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The families of premature babies face being pushed into poverty or missing out on time with their sick children amid the rising cost of living.

On average, parents are paying an extra £405 per week while their baby is in hospital, according to a survey of 1,928 people.

For many, it is a double-edged sword – the extra expenses come at a time when their household income has dropped, with statutory maternity pay of £156.66 per week (or 90% of average weekly earnings – whichever is lower).

One in seven babies born in the UK is admitted to a neonatal unit, according to Bliss – a charity for sick and premature babies.

While the majority are born full term (and on average spend a week receiving care), the families of the sickest babies face an agonising hospital stay – and a hefty bill at the end of it, exacerbated by the cost of living crisis.

Isla - Lauren Ormston - Neonatal cost of living

Born weighing just 535g

Lauren Ormston’s pregnancy had been progressing normally when she suddenly went into labour at six months.

Baby Isla was given survival odds of 40% and was born weighing 1lb 2oz (535g) at 23 weeks. This would not even be her lowest weight – a few days later, it dropped to just 15oz (430g).

Lauren, 27, was allowed to cuddle her daughter for six minutes alongside her fiance Oliver Dewey, 31, before Isla was moved to the neonatal unit and ventilated.

She had a bleed on her brain, a hole in her heart and kidney failure.

“The doctor just told us to take each hour as it comes,” Lauren told Sky News.

“I was devastated, I didn’t know what to say, think or do. Because I had just brought this little human into the world and now she was having to fight for her life. It wasn’t fair on her.”

Isla - Lauren Ormston - Neonatal cost of living

130 days of travel

Isla spent 130 days in neonatal units at Ashford and St Peter’s Hospital in Surrey and Frimley Park Hospital in Camberley, and Lauren visited her every single day.

“There was not one day when I didn’t see her,” she said.

At St Peter’s Hospital, it was an 80-minute round trip – when Isla moved back to Frimley Park this was halved – although the family had to pay parking costs of £20 a week.

At one point, Isla was rushed to Great Ormond Street hospital for surgery on her eye, but Oliver was not allowed to stay on the ward, so had to pay £400 for a hotel for two nights to be near his daughter.

The hospital was unable to save the sight in Isla’s right eye – and the stay at Great Ormond cost the family £600.

Isla - Lauren Ormston - Neonatal cost of living
Image:
Isla being transported between neonatal units

Like many other parents surveyed by Bliss, travel was the biggest cost and Lauren spent around £150 a week on fuel. A tyre puncture en route one day added an extra £300.

Bliss said parents who are able to drive to the hospital spend £101 a week on average, while those who have to rely on public transport spend £119.

Despite spending more on travel, parents using public transport to see their babies are more likely to be in lower income brackets.

The unaffordable cost of travelling to and from the neonatal unit had a tangible impact on how involved parents can be in their baby’s care.

Some 84% of those who used public transport said that stopped them from being as involved as they wanted to be.

Isla - Lauren Ormston - Neonatal cost of living

Expensive canteen food and takeaways

The cost of food and drink at hospitals is notoriously high and options are limited.

Bliss said: “Parents have little choice over where to buy food and drink while at the hospital and are reliant on expensive hospital canteens and franchises rather than being able to prepare food from scratch or shop around.

“The lack of choice is exacerbated by limited facilities on neonatal units.”

A recent report found that more than a quarter of hospitals (27%) don’t have a parent kitchen.

On average, parents spent £96 a week more than their regular food budget while their baby was in a neonatal unit.

Lauren and her fiance lived off hospital sandwiches and fast food – or quick pick-up meals – while Isla was in hospital.

“I had to keep eating, but I didn’t want to have anything in the house because I needed to be with Isla all the time,” she said.

Isla- Lauren - neonatal cost of living

The cost of life-sustaining equipment

When Isla returned home in July, she required oxygen for four months.

This ended last Friday – but the family still operates a sleep study machine that monitors her oxygen levels and an apnea monitor.

They are also looking to buy a CO2 monitor at a cost of £230.

Bliss found 74% of parents with a baby who had been discharged from a neonatal unit in the last year said they were concerned that it was somewhat or very likely that the rising cost of energy could stop them from keeping their home warm this winter – something essential for premature children.

Isla - Lauren Ormston - Neonatal cost of living

Within the survey, two of the 24 respondents whose babies were currently using at-home medical equipment said the rising cost of energy had stopped them from using the devices their babies need.

Some 47% said they were concerned that the cost of energy may impact their ability to run this equipment in the future.

The charity is calling on the government and Ofgem to ensure energy companies cannot disconnect domestic energy support for households which include a vulnerable baby – and those who need to power at-home medical equipment.

It is also asking for an emergency neonatal fund to offer payments to cover extra energy costs caused by this equipment and for one to cover food and drink, travel, parking, accommodation and childcare costs associated with having a baby in neonatal care.

Read more on the cost of living crisis:
Six in 10 adults struggling to keep up with their bills
Millions skip meals or struggle to buy healthy food

How much will my energy bills increase next year?

Isla - Lauren Ormston - Neonatal cost of living

‘I feel cheated’: Returning to work

Oliver had to return to work three days after Isla was born, or risk using up all of his two-week paternity leave while Isla was in the neonatal unit.

“He had to, as much as it hurt him,” said Lauren.

“He wasn’t able to be there to see his daughter during the mornings, or change her nappy during the day, or help me. He had to go back to work so that he could help me pay for things.”

Bliss found on average households lost £2,994 in income over the time that their baby was in neonatal care.

Isla - Lauren Ormston - Neonatal cost of living
Lauren Ormston and fiance Oliver Dewey

Meanwhile, Lauren had to spend four months of her maternity leave watching Isla in hospital.

A new law, backed by the government, could allow parents whose babies require specialist care after birth to take additional time off work.

The Neonatal Care (Leave and Pay) Bill would allow parents to take up to 12 weeks of paid leave, in addition to maternity and paternity leave.

However, although the bill has passed its second reading in the House of Commons, it still must go through the House of Lords before it can become law, which means there is no immediate relief for parents such as Lauren and Oliver.

She now has to return to work just a few months after Isla is out of hospital and said she felt “cheated” from the time she will now lose with her daughter, all while paying £81 a day in nursery fees. This will suck up the majority of her paycheck, with what’s left going toward their mortgage.

“I am basically working to pay for nursery, and to try and keep a roof over our heads,” she said.

Isla - Lauren Ormston - Neonatal cost of living

‘I would never forgive myself’

Isla will have chronic lung disease for the rest of her life, alongside blindness in one eye. The family is not sure what other problems her prematurity may bring, or if she will have any disabilities because of the bleed on her brain.

But for Lauren, whatever the cost she will continue – even if it means going into debt.

One in four families have had to borrow money or increase their debt because of their baby’s neonatal stay.

“I am concerned, but I won’t stop using it. Money is money at the end of the day,” Lauren said.

“The cost of energy is going to have a massive impact, but I know I can’t stop using it.

“Because I know if I do and something happened I would never forgive myself.”

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A year after I was surrounded in Birmingham, have community rifts healed?

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A year after I was surrounded in Birmingham, have community rifts healed?

As riots broke out across the country last summer following the Southport attack, fear spread in a majority Muslim part of Birmingham that far-right protesters were on their way.

Locals came out on to the streets, and as I was reporting live on air, I was surrounded by a small group of masked men, swearing and gesturing to the camera.

Afterwards, as we were trying to drive away from the area, a man with a knife followed us and attempted to slash a tyre on our broadcast van.

Protesters showed up after word had spread among the muslim community in Birmingham that the far right were planning a protest in the city.
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The moment Becky Johnson was confronted on camera last summer

A year on, I have returned to the area to discuss what happened with some of those who saw their city descend into chaos.

“The local community had lost faith in the local elected members as well as the local policing units,” says Naeem Yousef, 48, who lives nearby. 

“They thought…the only way to protect themselves and the community was by coming out in force.”

Becky Johnson Birmingham anniversary

‘You can’t control their behaviour’

Tanveer Choudhry, 56, agrees. “In every community we have our sort of, shall we call them… idiots, and you can’t control their behaviour,” he says. 

“I think there was a concern that the far-right group that was coming may well be armed… so I think it was just trying to counteract what they thought was coming.”

We are sitting in a cafe, not far from where the unrest broke out last summer.

still from Johnson VT
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Masked men surrounded the Sky team during the unrest

‘They were looking for who they thought were the enemy’

The group I’m with were invited by community activist Naveed Sadiq, who was there that day.

As well as Naveed, there are three other local Muslim men, and two white residents, including Gerry Moynihan.

He recalls deciding to stay at home that day.

“They were looking for what they thought were the enemy – white people – and trying to find white people,” he says.

“Which is why I stayed in my house, because the intelligence I had was, don’t get involved, don’t walk around, and you know, it will pass.”

I ask the group if my team and I were targeted because we were white.

Becky Johnson Birmingham anniversary
Image:
Gerry Moynihan says he decided not to leave his home

“It’s not because you’re white, it’s because they’re actually bored,” Naveed says. “They were wanting a bit of excitement.”

I ask if they think it would have happened if we were all British Asian.

“Of course,” Tanveer replies. “It wasn’t the fact that you were white… it was just the heat of the moment”.

Naeem believes it happened simply because the men involved “do not want anyone filming what they’re doing”.  

“You could have been Asian… they would still try to get you out of the area,” he insists.

Becky Johnson Birmingham anniversary
Image:
Tanveer believes our team would still have been targeted if we were a different ethnicity

‘Are we going to be accepted?’

I’m keen to understand how these men feel now and whether the sentiment that brought people out on to the streets to “protect” them has been reignited by the recent protests outside hotels housing asylum seekers.

The answer, from Joe Khann, a local Muslim man, would surprise many.

“I would like to go and join them,” he says, referring to the anti-immigration protesters who have gathered several times in Epping. 

“We have this problem within our own communities, and people don’t talk about it. We feel exactly the same and we understand how the English feel with the immigration,” he explains.

still from Johnson VT on Birmingham unrest
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‘We feel exactly the same’ on immigration, says Joe Khann

“We’re having people who are getting married back home, they get married for six months, get divorced…and the government gives them all their help to get accommodation, their national insurance numbers and all that,” he says.

“We’re getting fed up within our own community because we hear this constantly.”

However, he thinks if he did try to join in protests, people would “think I’m an immigrant”.

He says he is “born here, 58, and they look at me as a foreigner or a migrant”.

Naeem agrees. “The question is for us now, as people who are born and bred in this country, what is our identity? Who are we?” he asks. 

“As a white person born in this country, you are automatically accepted. Are we going to be accepted? How many generations will it take for us to be accepted?”

Becky Johnson Birmingham anniversary
Image:
Naeem (left) says even those born in the UK question their identity

‘You have to blame someone’

Naeem is also concerned about immigration.

“We have an influx of people that we do not know about, and they have no loyalty to the area,” he says.

“I believe that the average white guy… isn’t racist, they’re just fed up,” adds Naveed. 

However, these men do have grievances, particularly with the media.

“We feel that we have a two-tier journalists system where when the colour is like mine we get different justice and when the colour is a bit paler it’s different,” Naveed says.

still from Johnson VT on Birmingham unrest
Image:
‘When the colour is like mine we get different justice,’ says Naveed (left)

‘We have become the bogeyman’

“When there’s criminality, and it’s on the news, a Muslim has to be identified by his religion,” Naeem says. 

He believes Muslims have become the “bogeyman” in many people’s minds.

“Where you don’t have housing for example, where the crime has increased, you have to blame someone,” he says.

“Prior it was the Irish community, now it’s the Muslim community.

“It’s a distraction from the actual real issues and how you can resolve them but let’s just put it on to the Muslim community for now, let’s just distract the whole nation and say look it’s the problem with asylum, it’s a problem with Muslims,” he says.

After leaving, I head over to the spot on the roundabout where my team were targeted last year.

As I stand there, my colleague sees a man imitating pulling the trigger of a gun at me from his car.

This is Britain, in broad daylight. 

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UK-France migrant returns deal comes into force

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UK-France migrant returns deal comes into force

Sir Keir Starmer and Emmanuel Macron’s migrant deal comes into force today, with detentions set to begin by the end of the week.

The “one in, one out” pilot scheme – which allows the UK to send some people who have crossed the Channel back to France in exchange for asylum seekers with ties to Britain – was signed last week, and has now been approved by the European Commission.

Politics Hub: Follow live updates

It comes as 2025 is on course to be a record year for crossings.

Approximately 25,436 people have already made the journey this year, according to PA news agency analysis of Home Office figures – 49% higher than at the same point in 2024.

The prime minister and the French president hailed the deal as a “good agreement” when it was first announced during the latter’s visit to the UK last month.

The scheme also means that anyone arriving in a small boat can be detained immediately, with space set aside at immigration removal centres in anticipation of their arrival.

Sir Keir said the ratification of the treaty will “send a clear message – if you come here illegally on a small boat you will face being sent back to France”.

Ministers have so far declined to say how many people could be returned under the deal, however, there have been reports that under the scheme only 50 people a week will be returned to France.

Analysis: Deal will need to go much further to work

Sky News political correspondent Rob Powell said while it was a “policy win” for the government, the numbers must eventually “go a lot higher” than 50 per week if it is to work as a deterrent.

“The average crossing rate is about 800 a week, so this will need to go up by a sizeable factor for that message to start seeping through to people trying to make that crossing,” Powell added.

The aim will be to make asylum seekers believe the “risk of going back to France is so big that they shouldn’t bother parting with their cash and paying smugglers” to make the crossing.

Read more:
What is the UK-France migrant returns deal?
Clampdown on social media ads for Channel crossings unveiled

Migrants in Dunkirk, France, preparing to cross the English Channel
Image:
Migrants in Dunkirk, France, preparing to cross the English Channel.

The Conservatives have branded the agreement a “surrender deal” and said it will make “no difference whatsoever”.

Under the terms of the agreement, adults arriving on small boats will face being returned to France if their asylum claim is inadmissible.

In exchange, the same number of people will be able to come to the UK on a new legal route, provided they have not attempted a crossing before and subject to stringent documentation and security checks.

The pilot scheme is set to run until June 2026, pending a longer-term agreement.

Home Secretary Yvette Cooper will face questions on the agreement on Sky News Breakfast this morning.

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Police warn of mass arrests if Palestine Action protest goes ahead

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Police warn of mass arrests if Palestine Action protest goes ahead

Police are warning of mass arrests if a protest in support of the banned group Palestine Action goes ahead on Saturday.

Hundreds of people are expected to turn out for the demonstration, which is understood to be planned for London.

However, the Metropolitan Police said “anyone showing support for the group can expect to be arrested.”

“We are aware that the organisers of Saturday’s planned protest are encouraging hundreds of people to turn out with the intention of placing a strain on the police and the wider criminal justice system,” said a spokesperson.

The organisers, a pressure group called Defend Our Juries, denied their protest will try to overwhelm the police and justice system.

“If we are allowed to protest peacefully and freely, then that is no bother to anyone,” said the group in a statement.

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What’s happening to Palestine Action?

Palestine Action was banned under terrorism laws after two aircraft were damaged at RAF Brize Norton on 20 June.

Home Secretary Yvette Cooper said the vandalism of the planes was “disgraceful” and accused the group of a “long history of unacceptable criminal damage”.

The ban means membership of, or support for, Palestine Action is a criminal offence punishable by up to 14 years in prison.

More than 200 people supporting the group were arrested at Defend Our Juries protests across the UK last month, many of whom held placards with the message: “I oppose genocide, I support Palestine Action.”

Downing Street has urged people not to attend this weekend’s protest.

Read more on Sky News:
Kremlin urges nuclear caution
How Euros star juggled studies and training

Monday's protesters waved flags and banged pan lids
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Monday’s protesters waved flags and banged pan lids

It comes after around 40 people gathered outside Labour HQ on Monday to protest the party’s stance on Gaza.

They were watched by a small group of police officers as they chanted phrases including: “Shame on Keir Starmer, shame on the Labour Party, shame on David Lammy.”

Separately, the Board of Deputies of British Jews has also confirmed it will protest this weekend, with community organisations marching through central London to Downing Street on Sunday.

They are calling for the government not to recognise the state of Palestine without all hostages taken by Hamas being released.

Last week, Sir Keir Starmer said he planned to recognise Palestine by the UN General Assembly meeting in September, unless Israel met certain conditions including agreeing a ceasefire and improving the humanitarian situation in Gaza.

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