Cost of living: The desperate parents skipping meals and ‘freezing’ to keep their disabled children ‘alive’

Published

2 years ago

October 26, 2022

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The parent of a disabled child says she will “freeze” to keep her daughter alive this winter as she faces a £7,000 energy bill, with families resorting to desperate measures to survive the cost of living crisis.

Another father said he is skipping meals to ensure his autistic son has enough to eat – and has lost five inches off his waistline.

“Frightening” new data from the Office for National Statistics (ONS) reveals that 55% of people living with disabilities are finding it difficult to afford energy bills and 36% struggling to cope with housing payments (rent or mortgage).

This compares to 45% of their non-disabled counterparts struggling with energy bills, and 30% having difficulty with housing costs.

Around one in 15 (7%) of disabled adults are behind on their energy bills, compared to one in 25 (4%) non-disabled people, according to the ONS.

Meanwhile, one in 25 (4%) disabled adults are behind on their rent or mortgage payments – twice as many as their non-disabled counterparts, with one in 50 (2%) behind on housing costs.

Families of those living with disabilities have become increasingly desperate amid the crisis.

‘I will freeze to keep my daughter alive’

A mother said she will freeze this winter after her energy bill surged beyond £500 a month – the majority of which is used to power life-saving equipment for her disabled daughter.

Carolynne Hunter, from Tillicoultry in Scotland, fears her annual bill hit will £7,000. She is being urged by her energy company to increase her direct debit to £700 a month, which she said she is refusing to do.

“I just can’t afford it,” she told Sky News.

“And I work full time, I am working 40 hours a week, so I have more money coming in than most.”

Her 12-year-old daughter, Freya, requires round-the-clock intensive care at home. She is oxygen-dependent and requires a track and hoist, a powerchair, an electric bed and an electric bath.

Freya is unable to regulate her own body temperature, so requires constant heating in the winter.

This winter Ms Hunter will turn off the heating in every room except Freya’s – and said she and her other daughter will “freeze”.

But, Ms Hunter told Sky News, she has no choice if she wants to keep her daughter alive.

“I don’t matter, do I?” she said, adding: “People who have disabilities are just not going to be able to pay for these bills and they’re not going to survive.

“If you’re cold for a long period of time and you have an illness, you’re going to get hypothermia.

“And you can imagine the mental health of people – my mental health isn’t too great at the moment because I am sitting in a freezing cold living room every night.”

Skipping meals to feed his son

Paul Ridley, 57, has been skipping meals to ensure food stays on the table for his family, including his son Keith, 33, who has autism and is non-verbal.

The ensuing weight loss, increased by stress, has seen Mr Ridley drop from a waist size of 32ins to 28ins.

He said: “You’re always worried about the shopping – for example, a normal shop would get you about four or five bags.

“Now it’s around three.”

He added: “Carers are the unpaid army of this country. If we go down and cannot care, it’s going to cost the government more money.”

Mike O’Brien, who is a full-time carer for both his elderly and disabled parents, said his family’s grocery bill has gone up by £30 a week – despite continuing to order the same food.

He said one of the issues was trying to deal with rising prices on a fixed income. It comes amid calls for the government to increase benefits in line with inflation, with warnings “lives will be lost” if it doesn’t.

“When things are constantly going up and up, all of a sudden you realise [your benefits] are not going to last that long,” Mr O’Brien said.

Energy bill surged by 50%

Dan McEvoy and his wife are full-time carers to their nine-year-old daughter, Elisa, who lives with cerebral palsy and is registered blind and deaf.

The 46-year-old dad of two said “everything is more expensive” when it comes to caring for someone with a disability – from spending more on fuel to get to hospital appointments, to needing to run the washing machine more often.

Last year, Elisa spent eight months in hospital. Since coming home, the family’s energy bill has surged by 50%.

“Over half our energy usage comes from what we need to keep Elisa alive and comfortable,” Mr McEvoy told Sky News.

Amid the risk of blackouts, he added that “without electricity, Elisa would need to be hospitalised”.

“The biggest frustration for us is every time we seem to be making any headway and promoting the idea that parents of disabled children are disproportionately impacted by this, there is a new prime minister.

“So it’s like starting again from scratch.”

Risk of death at home

James Taylor, from disability equality charity Scope, said today’s figures were “frightening” and the charity’s helpline had been “inundated with calls”.

“Scope has heard from so many disabled people who are having to choose between being warm and powering life-saving equipment,” he said.

Richard Kramer, Sense chief executive, added: “Many disabled people face higher energy bills due to needing to power essential equipment such as wheelchairs, hoists and feeding machines, or have to shoulder the costs of specialised therapies and diets.

“The latest ONS data is just further proof of how badly disabled people are struggling through this cost of living crisis.

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Both charities are calling on the new prime minister, Rishi Sunak, to uprate benefits in line with inflation.

Dan White, from Disability Rights UK, said: “We are reaching a point in the cost of living crisis where without urgent intervention from the government, disabled people will be at risk of serious deterioration in their health, and at worst death in their homes”

UK

UK economy grows by 0.1% between July and September – slower than expected

Published

60 mins ago

November 15, 2024

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UK economy grows by 0.1% between July and September - slower than expected

The UK economy grew by 0.1% between July and September, according to the Office for National Statistics (ONS).

However, despite the small positive GDP growth recorded in the third quarter, the economy shrank by 0.1% in September, dragging down overall growth for the quarter.

The growth was also slower than what had been expected by experts and a drop from the 0.5% growth between April and June, the ONS said.

Economists polled by Reuters and the Bank of England had forecast an expansion of 0.2%, slowing from the rapid growth seen over the first half of 2024 when the economy was rebounding from last year’s shallow recession.

And the metric that Labour has said it is most focused on – the GDP per capita, or the economic output divided by the number of people in the country – also fell by 0.1%.

Reacting to the figures, Chancellor of the Exchequer Rachel Reeves said: “Improving economic growth is at the heart of everything I am seeking to achieve, which is why I am not satisfied with these numbers.

“At my budget, I took the difficult choices to fix the foundations and stabilise our public finances.

“Now we are going to deliver growth through investment and reform to create more jobs and more money in people’s pockets, get the NHS back on its feet, rebuild Britain and secure our borders in a decade of national renewal,” Ms Reeves added.

The sluggish services sector – which makes up the bulk of the British economy – was a particular drag on growth over the past three months. It expanded by 0.1%, cancelling out the 0.8% growth in the construction sector.

The UK’s GDP for the most recent quarter is lower than the 0.7% growth in the US and 0.4% in the Eurozone.

The figures have pushed the UK towards the bottom of the G7 growth table for the third quarter of the year.

It was expected to meet the same 0.2% growth figures reported in Germany and Japan – but fell below that after a slow September.

The pound remained stable following the news, hovering around $1.267. The FTSE 100, meanwhile, opened the day down by 0.4%.

The Bank of England last week predicted that Ms Reeves’s first budget as chancellor will increase inflation by up to half a percentage point over the next two years, contributing to a slower decline in interest rates than previously thought.

Announcing a widely anticipated 0.25 percentage point cut in the base rate to 4.75%, the Bank’s Monetary Policy Committee (MPC) forecast that inflation will return “sustainably” to its target of 2% in the first half of 2027, a year later than at its last meeting.

The Bank’s quarterly report found Ms Reeves’s £70bn package of tax and borrowing measures will place upward pressure on prices, as well as delivering a three-quarter point increase to GDP next year.

UK

Meeting the deeply radical anti-tax group that is ‘growing in popularity’

Published

60 mins ago

November 15, 2024

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Meeting the deeply radical anti-tax group that is 'growing in popularity'

“If you are a member of something, it means you’ve accepted membership. Anything with ‘ship’ on the end, it’s giving you a clue: it’s telling you that’s maritime law. That means you’ve entered into a contract.”

This isn’t your standard legal argument and it is becoming clear that I am dealing with an unusual way of looking at the world.

I’m in the library of a hotel in Leicestershire, a wood-panelled room with warm lighting, and Pete Stone, better known as Sovereign Pete, is explaining how “the system” works. Mr Stone is in his mid-50, bald with a goatee beard and wearing, as he always does for public appearances, a black T-shirt and black jeans.

With us are six other people, mainly dressed in neat jumpers. They’re members of the Sovereign Project (SP), an organisation Mr Stone founded in 2020, which, he says, now has more than 20,000 paying members.

As arcane as this may sound, it represents a worldview that is becoming more influential – and causing problems for authorities. Loosely, they’re defined as “sovereign citizens” or “freemen on the land”.

Their fundamental point is that nobody is required to obey laws they have not specifically consented to – especially when it comes to tax. They have hundreds of thousands of followers in the UK across platforms including YouTube, Facebook and Telegram.

Increasingly, they are coming into conflict with governments and the law. Sovereign citizens have ended up in the High Court in recent months, challenging the legalities of tax bills and losing on both occasions.

In October, four people were sentenced to prison for the attempted kidnapping of an Essex coroner, who they saw as acting unlawfully. The self-appointed “sheriffs” attempted to force entry to the court, one of them demanding: “You guys have been practising fraud!”

The Sovereign Project is not connected to any of those cases, nor does it promote any sort of political action, let alone violence.

Instead, they are focused on issues like questioning the obligation to pay taxes, as Mr Stone explains, referencing the feudal system that operated in the Middle Ages.

“Do you know about the feudal system when people were slaves and were forced to pay tax?” he asks.

“Now, unless the feudal system still operates today, and we still have serfs and slaves, then the only way that you can pay taxes is to have a contract, you have to agree to it and consent to it.”

Another member, Karl Deans, a 43-year-old property developer who runs the SP’s social media, says: “We’re not here to dodge tax.”

Local government tends to be a target beyond just demands for tax. Mr Stone speaks of “council employee crimes”.

I ask whether, considering the attempted kidnapping in Essex, there is a danger that people will listen to these accusations of crimes by councils and act on them.

“Well that’s proved,” Mr Stone says. “We only deal with facts.”

Evidence suggests this approach is becoming an issue for councils across the UK, as people search online for ways to avoid paying tax.

Sky News analysis shows that out of 374 council websites covering Great Britain, at least 172 (46%) have pages responding to sovereign citizen arguments around avoiding paying council tax. They point out that liability for council tax is not dependent on consent, or a contract, and instead relies on the Local Government Finance Act 1992, voted on by Parliament.

But the Sovereign Project’s worldview extends beyond council tax. It is deeply anti-establishment, at times conspiratorial. Stone suggests the summer riots may have been organised by the government.

“The sovereign fraternity operates above all of this,” he says. “We look down at the world like a chessboard. We see what’s going on.”

He explains that, really, the UK government isn’t actually in control: there is a shadow government above them.

“These are the people who control government,” he explains.

“A lot of people say this could be the crown council of 13, this could be a series of Italian families.”

Professor Christine Sarteschi, an expert in sovereign citizens at Chatham University, Pittsburgh, says she’s worried about the threat sovereign citizens may pose to the rule of law, especially in the US where guns are readily available.

“The movement is growing and that’s evidenced by seeing it in different countries and hearing about different cases. The concern is that they will become emboldened and commit acts of violence,” she says.

“Because sovereigns truly believe in their ideas and if they feel very aggrieved by, you know, the government or whomever they think is oppressing them or controlling them… they can become emotionally involved.

“That emotional involvement sometimes leads to violence in some cases, or the belief that they have the power to attempt to overthrow a government in some capacity.”

Much of this seems to be based on an underlying and familiar frustration at the state of this country and of the world.

Mr Stone echoes some of the characteristic arguments also made by the right, that there is “two-tier policing”, that refugees arriving in the UK are “young men of fighting age”, that the government is using “forced immigration to destroy the country”.

Another SP member, retired investment banker David Hopgood, 61, says: “I firmly believe it is the true Englishman – and woman – of this country – that has the power to unlock this madness that’s happening in the West.

“We’ve got the Magna Carta – all these checks and balances. We just need to pack up, go down to Parliament and say: It’s time to dismiss you. You’re not fit for purpose.”

The members of the Sovereign Project are unfailingly patient and polite in explaining their understanding of the world.

But there is no doubt they hold a deeply radical view, one that is apparently growing in popularity.

UK

Wes Streeting ‘crossed the line’ by opposing assisted dying in public, says Labour peer Harriet Harman

Published

60 mins ago

November 15, 2024

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Wes Streeting 'crossed the line' by opposing assisted dying in public, says Labour peer Harriet Harman

Wes Streeting “crossed the line” by opposing assisted dying in public and the argument shouldn’t “come down to resources”, a Labour peer has said.

Speaking on Sky News’ Electoral Dysfunction podcast, Baroness Harriet Harman criticised the health secretary for revealing how he is going to vote on the matter when it comes before parliament later this month.

MPs are being given a free vote, meaning they can side with their conscience and not party lines, so the government is supposed to be staying neutral.

But Mr Streeting has made clear he will vote against legalising assisted dying, citing concerns end-of-life care is not good enough for people to make an informed choice, and that some could feel pressured into the decision to save the NHS money.

He has also ordered a review into the potential costs of changing the law, warning it could come at the expense of other NHS services if implemented.

Baroness Harman said Mr Streeting has “crossed the line in two ways”.

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“He should not have said how he was going to vote, because that breaches neutrality and sends a signal,” she said.

“And secondly… he’s said the problem is that it will cost money to bring in an assisted dying measure, and therefore he will have to cut other services.

“But paradoxically, he also said it would be a slippery slope because people will be forced to bring about their own death in order to save the NHS money. Well, it can’t be doing both things.

“It can’t be both costing the NHS money and saving the NHS money.”

Baroness Harman said the argument “should not come down to resources” as it is a “huge moral issue” affecting “only a tiny number of people”.

She added that people should not mistake Mr Streeting for being “a kind of proxy for Keir Starmer”.

“The government is genuinely neutral and all of those backbenchers, they can vote whichever way they want,” she added.

Prime Minister Sir Keir Starmer has previously expressed support for assisted dying, but it is not clear how he intends to vote on the issue or if he will make his decision public ahead of time.

The cabinet has varying views on the topic, with the likes of Justice Secretary Shabana Mahmood siding with Mr Streeting in her opposition but Energy Secretary Ed Miliband being for it.

The Terminally Ill Adults (End of Life) Bill is being championed by Labour backbencher Kim Leadbeater, who wants to give people with six months left to live the choice to end their lives.

Under her proposals, two independent doctors must confirm a patient is eligible for assisted dying and a High Court judge must give their approval.

The bill will also include punishments of up to 14 years in prison for those who break the law, including coercing someone into ending their own life.

MPs will debate and vote on the legislation on 29 November, in what will be the first Commons vote on assisted dying since 2015, when the proposal was defeated.