A father of four has said he is “constantly fighting the NHS” to get the care his two severely disabled sons need – and his fears about the future grow as he sees friends in similar situations putting their children into care.
Paul and his husband Michael Atwal-Brice adopted Levi and Lucas when the children were babies.
Now aged 16 and diagnosed with autism and epilepsy – among other disabilities – both parents have had to leave their jobs to care for them full-time.
They also care for Lotan and Lance, twin boys without any disabilities.
“Everything is just a battle with the NHS,” Paul, from Thurnscoe in South Yorkshire, told Sky News.
“Unless you’re prepared to stand up and fight, you get nothing.”
The two teens have been left waiting for NHS care at every stage.
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Levi’s epilepsy means he requires frequent hospitalisation.
When Paul last had to call an ambulance – while the family were away on holiday – they had to wait 45 minutes, despite the fact Levi was bleeding heavily from the head. He had fallen while having a seizure and hit his head on a door frame.
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“Once the seizures had stopped, he gets graded down to a category two, so the wait gets longer.
“Even though we were telling them he can’t wait because he won’t even let us touch his head and blood was going everywhere. It doesn’t matter.
“And this was before the latest strikes and challenges this winter.”
Once they had made it to the hospital, they then had to wait more than four hours in a hospital corridor to be seen.
“It was awful. Levi is severely autistic and non-verbal and he gets upset very easily so he was screaming the corridors down, upsetting other people, but they couldn’t move him.”
Image: Paul and Michael have both given up work to care for their children
‘Friends are putting their children into care’
Levi and Lucas are both nearing adulthood, which leaves Paul fearing for their future.
“All the services are being cut back,” he said.
“The health service is a fight and struggle to get anywhere.
“A lot of friends of ours are putting their children into full-time care because they can’t cope with all the services being cut back, and this costs thousands and thousands a year to do this, a cost which the NHS has to pick up.
“It doesn’t make sense.”
Both boys need appointments every six weeks, but amid growing pressure on the National Health Service, this has been cut back to three months – and is often even six because clinicians cannot fit them in.
“It’s disgraceful,” said Paul. “Something needs to be done to fix this. These are life-saving appointments for the boys.”
Wendy Lowder, Barnsley executive director for place health and adult social care at NHS South Yorkshire said: “I’m really saddened about the experiences we’ve heard about from this family.
“Having a seamless transition between services when you reach 16 is so important to families at this time. Our teams have worked closely with the family to resolve all the issues they have experienced.
“We are now reviewing how the supply of these sorts of items works better for any families in the same situation in the future.”
Two months without food syringes
The teens are very underweight, so they have to be syringe fed fibre drinks from a dietician, but the hospital has said they can’t prescribe them any more.
Instead, the family has to get them via the GP.
But a communication breakdown left them without the required food for two months.
“We went to the GP just before Christmas and they didn’t know anything about it. They said they couldn’t order them either.”
Instead, Paul and Michael had to try and feed them with a plastic IKEA beaker, which turned out to be a “disaster”.
“They had liquid running down them as they couldn’t take the quantity, so there was a lot of waste and upset.
“We were promised we’d have a delivery to the house over Christmas, but it never came.”
South West Yorkshire Partnership NHS Foundation Trust has been contacted for comment.
A £5,000 energy bill
The family’s energy bills are going up £1,500 a year and they are estimated to pay almost £5,000 for their gas and electric in the next 12 months.
“Electric bills are our biggest worry of all.
“They’ve got to a stage where we can no longer carry them safely up and down stairs so we’ve had to have a lift fitted in the house. We can’t not have that going, it needs to be powered by electricity all the time.
“They have seizures all the time and the lift is literally a lifesaver.”
Meanwhile, the washing machine is constantly running because the boys are incontinent, and bedsheets and clothing have to be changed all the time.
The NHS will only provide four nappies a day to the family: “This is crazy. How can you tell the boys that they can only wee and poo four times a day? You wouldn’t do that to anyone.
“Their beds are electric, they have a therapy bath that also runs on power and their sensory room is full of calming lights and sounds that also cost money.
“In addition to all this, we are now spending £120 on fuel a week.”
Kicking off a major ongoing project on the future of the National Health Service, an hour-long debate into the future of the NHS will take place this evening, live from University Hospital Coventry.
It begins at 7pm and will be hosted by Sky News presenter Anna Botting alongside a special panel.
If you are an NHS worker and would like to share your experiences with us anonymously, please email NHSstories@sky.uk.
Two Labour-run councils have said they are considering taking legal action to stop the use of hotels to house migrants in their areas after Epping council won a temporary injunction on Tuesday.
The leaders of Wirral and Tamworth councils both say they are considering their legal options in the wake of the Epping case, citing similar concerns about the impact of the hotels on their local communities.
Epping Forest District Council won an interim High Court injunction to stop migrants from being accommodated at The Bell Hotel, after arguing its owners did not have planning permission to use it to house migrants.
In a statement, Paula Basnett, the Labour leader of Wirral council, said: “Like many other local authorities, we have concerns about the Home Office’s practice of placing asylum seekers in hotels without consultation or regard to local planning requirements.
“We are actively considering all options available to us to ensure that any use of hotels or other premises in Wirral is lawful and does not ride roughshod over planning regulations or the wishes of our communities.
Image: Police officers ahead of a demonstration outside The Bell Hotel. Pic: PA
“Wirral has always been proud of its record in supporting families and those fleeing conflict, but it is unacceptable for the government to impose unsuitable, short-term arrangements that disrupt communities and bypass local decision-making.
“If necessary, we will not hesitate to challenge such decisions in order to protect both residents and those seeking refuge.”
Carol Dean, the Labour leader of Tamworth Borough Council, said she understands the “strong feelings” of residents about the use of a local hotel to house asylum seekers, and that the council is “listening to their concerns and taking them seriously”.
She pointed out that under the national Labour government, the use of hotels has halved from 402 to 210, with the aim of stopping the use of any hotels by the end of this parliament.
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5:43
Migrant hotels a ‘failure of policy’
But she continued: “Following the temporary High Court injunction granted to Epping Forest District Council, we are closely monitoring developments and reviewing our legal position in light of this significant ruling.”
Cllr Dean added that they had previously explored their legal options to challenge the use of the hotel but decided against them, as temporary injunctions were not being upheld.
However, the Epping ruling “represents a potentially important legal precedent”, which is why they are “carefully assessing” its significance for Tamworth.
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11:48
Minister ‘gets asylum frustration’
“We fully recognise the UK government has a statutory duty to accommodate people seeking asylum. However, we have consistently maintained that the prolonged use of hotel accommodation may not represent the best approach – either for our local community or for the asylum seekers themselves,” she said.
“We will continue to work constructively with government departments and all relevant agencies while making sure the voice of our community is heard at the highest levels of government.”
Last night, Conservative-run Broxbourne Council also announced it was exploring its legal options, and the Reform UK leader of Kent County said she was writing to fellow leaders in Kent to explore whether they could potentially take legal action as well.
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6:18
Asylum hotels: ‘People have had enough’
Use of Epping hotel ‘sidestepped public scrutiny’
The prime minister and the home secretary are under huge pressure to clear the asylum backlog and stop using hotels across the country to house those waiting for their applications to be processed.
Protests have sprung up at migrant hotels across the country. But The Bell Hotel in Epping became a focal point in recent weeks after an asylum seeker housed there was charged with sexually assaulting a 14-year-old girl.
Epping Forest District Council sought an interim High Court injunction to stop migrants from being accommodated at the hotel, owned by Somani Hotels Limited, on the basis that using it for that purpose contravened local planning regulations.
Image: The Bell Hotel in Epping. Pic: PA
The interim injunction demanded that the hotel be cleared of its occupants within 14 days, but in his ruling on Tuesday, Mr Justice Eyre granted the temporary block, while extending the time limit by which it must stop housing asylum seekers to 12 September.
Somani Hotels said it intended to appeal the decision, its barrister, Piers Riley-Smith, arguing it would set a precedent that could affect “the wider strategy” of housing asylum seekers in hotels.
A government attempt to delay the application was rejected by the High Court judge earlier on Tuesday, Home Office barristers arguing the case had a “substantial impact” on the Home Secretary, Yvette Cooper, in performing her legal duties to asylum seekers.
But Mr Justice Eyre dismissed the Home Office’s bid, stating that the department’s involvement was “not necessary”.
The judge said the hotel’s owners “sidestepped the public scrutiny and explanation which would otherwise have taken place if an application for planning permission or for a certificate of lawful use had been made”.
He added: “It was also deliberately taking the chance that its understanding of the legal position was incorrect. This is a factor of particular weight in the circumstances of this case.”
Reacting to Tuesday’s judgment, border security minister Dame Angela Eagle said the government will “continue working with local authorities and communities to address legitimate concerns”.
She added: “Our work continues to close all asylum hotels by the end of this parliament.”
A row has broken out between the Tories and Reform about previous comments on migrant hotels, so who said what and when?
At the centre of the argument is an interview Robert Jenrick did with Sky News back in November 2022, one week after he was appointed immigration minister in Rishi Sunak’s government.
His appearance came amid a crisis at an asylum seeker processing centre in Kent, which had become severely overcrowded – with migrants sleeping on the floor and families being housed in marquees.
The home secretary at the time, Suella Braverman, had also been accused of allowing the situation to develop by failing to procure sufficient alternative accommodation – such as hotels – for migrants to be taken to.
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0:48
Full clip: Jenrick on hotels in 2022
Asked about this by Sky News in 2022, Robert Jenrick said: “More hotels have been coming online almost every month throughout the whole of this year.
“So, Suella Braverman and her predecessor, Priti Patel, were procuring more hotels. What I have done in my short tenure is ramp that up and procure even more because November, historically, has been one of the highest months of the year for migrants illegally crossing the Channel.”
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3:40
Council wins asylum hotel case
Fast-forward almost three years, and this clip has been seized on by Reform UK as evidence that Mr Jenrick “boasted” about how many migrant hotels he had opened.
That’s a potentially damaging accusation, given the now shadow justice secretary recently joined protests outside a migrant hotel in Essex.
Mr Jenrick responded by accusing Reform of posting a “selectively clipped” video that didn’t include the context about the Kent processing centre.
To an extent, he has a point.
Image: Nigel Farage’s party has posted clips of Mr Jenrick speaking from 2022
Pic: PA
At the time, the government was fighting accusations that they were risking an expensive court action from migrants claiming they were being detained unlawfully.
The minister’s response was to point out that they were sourcing alternative options to make sure this didn’t happen and to prevent order breaking down in Kent.
Mr Jenrick has also pointed to other comments he made at the time saying, “it is essential we exit the hotels altogether” and describing the expensive hotel bill as “disgraceful”.
But that’s not to say Robert Jenrick hasn’t undergone quite a pronounced shift in both language and substance when it comes to migration.
Image: Mr Jenrick has accused Zia Yusuf of “pushing false and petty crap”
Pic: PA
For instance, in the same Sky News interview in 2022, he said: “I would never demonise people coming to this country in pursuit of a better life. And I understand and appreciate our obligation to refugees.”
At the time, this wasn’t a surprising view from a minister commonly considered to be in the centre of the Tory party.
But Mr Jenrick’s time as immigration minister saw him move further to the right.
As he has since said himself: “I could see the breakdown of the British state was doing immense damage. It angered me, and it motivated me to do absolutely everything to fix the problem.”
The following months saw Mr Jenrick significantly harden his position, to the point that he resigned over the government’s approach.
But the bigger contradiction Reform is trying to get at by picking this fight is around the Tory record.
It is a fact that the use of hotels to house asylum seekers peaked at just over 55,000 while the Conservatives were in power.
Similarly, it’s a fact that legal migration reached record levels on the Tories watch.
Mr Jenrick can fairly claim that – in the final year of his front-bench career – he did go further than most to try to change this.
But he can’t change the data from the time.
Reform knows that – just as it also knows the Tory record on migration is one of the big pull factors bringing their voters over to them.
A former Church of England priest who ran a rave-inspired “cult” group has been found guilty of indecently assaulting nine women.
Chris Brain, 68, led the Nine O’Clock Service (NOS) in the 1980s and 1990s in Sheffield, with services aimed at 18 to 30-year-olds featuring multimedia, scantily-dressed women, and a live band.
The movement was initially seen by the church as a “ground-breaking” success story and attracted between 500 to 600 people to worship at 9pm on Sundays after NOS moved from St Thomas Church to The Rotunda in Ponds Forge.
Brain, from Wilmslow, Cheshire, denied committing sexual offences against 13 women, including one count of rape and 36 counts of indecent assault between 1981 and 1995.
Today he was found guilty of 17 counts of indecent assault relating to nine women and acquitted of 15 similar charges.
The jury is still deliberating on five outstanding counts, including the rape charge.
Image: Brain led NOS. Pic: BBC/EVRYMAN/BREACH OF FAITH
Inner London Crown Court heard Brain’s ordination was “fast-tracked”, including claims he cheated in his exams, and he wore the same cassock as Robert De Niro in The Mission for the ceremony in 1991.
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But prosecutors said NOS became a “closed and controlled group”, in which Brain “dominated and abused his position” to sexually assault a “staggering number of women from his congregation”.
Image: NOS started at St Thomas Church in Sheffield
NOS collapsed in 1994 after women made allegations about Brain, who resigned from his holy orders in 1995 amid “enormous media interest”, the court heard.
Image: Brain was accused of one count of rape and 36 counts of indecent assault between 1981 and 1995. Pic: Elizabeth Cook/PA
‘Allegations destroyed my life’
Giving evidence, Brain admitted receiving back massages from some NOS members, which he said started as a way to relieve tension headaches, but would “very rarely” lead to sexual activity.
“With some of my closest friends, it would be kissing sometimes, occasionally massaging, stroking. Anything more than that, we would back off,” he said.
He told the jury any touching was done with “100%” consent, and he would’ve “instantly stopped” if anyone had indicated they were uncomfortable.
Brain said the allegations had “basically destroyed my life” and suggested the women had “to exaggerate these things to make it either sexual or controlling” in order “to make a criminal case”.
Brain said he became involved in the dotcom boom in the late 1990s before setting up a business helping smaller firms transition into big companies, which folded once he was charged.