The families of people suffering from chronic illnesses are calling on the government to fund more research into medical cannabis.
End Our Pain, which campaigns for the benefits of medical cannabis, is set to deliver a letter to Health Secretary Steve Barclay on Monday, urging him to put aside £1.4m towards research into the drug.
Medical cannabis, which campaigners believe can treat neurological diseases, chronic pain and conditions like epilepsy, was made legal in the UK in 2018.
But to date, fewer than five people have received an NHS prescription, leaving the rest forced to go private for their prescriptions, or even buying drugs on the black market.
Elaine Levy had to sell her four-bedroom home and move into a flat, because of the costs of paying £2,200 every month for medical cannabis to treat her adult daughter’s epilepsy.
“In the end I couldn’t keep up with the mortgage payments, it was like paying more than a mortgage, so in the end I actually did sell my home.
“I’ve made such sacrifices for this, but when you have a child that you see change from being doped up by drugs to a girl who is awake, who now doesn’t need a wheelchair, isn’t always calling ambulances, how can you possibly go backwards?”
The reason NHS doctors are so unwilling to prescribe cannabis-based products is a lack of evidence on the quality, safety, and clinical and cost effectiveness.
Dr Simon Erridge, head of research and access at Sapphire Medical Clinics in London, said: “At the moment in those conditions where we’ve seen the most promise – things like mental health, chronic pain, sleep disorders – we haven’t had that right type of research that can convince regulators and clinicians in the NHS for it to be prescribed on a population basis, across all people with those conditions.
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Use of medical cannabis on rise
“Those trials which we call randomised control trials, where you either take a dummy sugar pill or a gold standard treatment and you compare medical cannabis with that.”
For Elaine, the lack of that research is what is so frustrating.
She said when he was health secretary, Matt Hancock promised funding would be made available, but in the years since, they have been repeatedly ignored by the government:
“We were promised an observational trail and an randomised control trial, so we could actually help the children who are already on medical cannabis, and also do data for the children who aren’t on it,” she added.
“We have never seen the money, we have never had a meeting since with the government. They have basically ignored us.”
While Elaine lost her home to the fees of getting the medication privately, others take things further, by buying it on the black market.
When Hayley Lanciano’s husband Neil was given weeks to live with incurable brain cancer, she tried to treat his pain by sourcing medical cannabis illegally.
Image: Hayley and Neil Lanciano
“At the time he was struggling to walk, he was struggling to get out of the house, and that was where they told us he only had six to eight weeks left to live so we were desperately clutching at straws wanting to do more and give him some quality of life.”
She added: “You are very isolated you’re on your own. You have to do your own research. You just hope and trust that what you’re buying is what they say you’re buying.”
In a statement, a spokesperson for the Department of Health and Social Care told Sky News: “We are working closely with partners to establish clinical trials to test the safety and effectiveness of more cannabis-based products for medicinal use to inform future NHS funding decisions.
Image: Neil playing rugby when he was younger
“Licensed cannabis-based medicines are funded by the NHS where there is clear evidence of their quality, safety and effectiveness.
“We are taking an evidence-based approach to unlicensed cannabis-based treatments to ensure they are proved safe and effective before they can be considered for roll-out on the NHS more widely.”
Conservative Senedd member Laura Anne Jones has joined Reform UK, the party has announced.
The announcement of the party’s first member of the Senedd was made on Tuesday at the Royal Welsh Show in Builth Wells, Powys.
The annual event is Europe’s largest agricultural show and attracts thousands of visitors every year.
Laura Anne Jones was initially a member of the Senedd for the South Wales East region between 2003 and 2007, before returning in 2020.
She is the second high-profile defection from the Conservative party, after former cabinet minister David Jones joined the party earlier this month.
Image: (L-R) Nigel Farage, David Jones and Laura Anne Jones at the news conference
Reform leader Nigel Farage said the latest defection was a “big step forward for Reform UK in Wales”.
Speaking at the news conference, Ms Jones said she had been a member of the Conservative party for for 31 years but that the party was now “unrecognisable to [her]”.
She said the Conservative Party “wasn’t the party that [she] joined over three decades ago” and that she could “no longer justify” party policy on the doorstep.
Ms Jones said Wales was “a complete mess” and that she now wanted to be “part of the solution not the problem”.
Reform is still without a leader in Wales, but Ms Jones did not rule herself out of the running for that position.
The defection comes with less than a year to go until the Senedd election, when voters in Wales will elect 96 members to the Welsh parliament for the first time – an increase of more than 50%.
Recent opinion polls have shown Reform UK and Plaid Cymru vying for pole position, with Labour in third and the Conservatives in fourth.
Ms Jones said she had not notified the Conservative Party of her defection before the announcement.
The party’s Senedd leader Darren Millar said he was “disappointed” with the announcement and that Conservative members and voters would feel “very let down by her announcement”.
This breaking news story is being updated and more details will be published shortly.
A former City worker is facing jail after he was found guilty of volunteering to spy for the Russians when he ran out of money in retirement.
Howard Phillips, 65, from Harlow, Essex, handed over the home address and landline for Grant Shapps, his local MP and then the defence secretary, during an undercover sting by MI5.
He told two officers posing as Russian agents he wanted to work in intelligence to avoid a “nine-to-five office” job after clearing out his savings by retiring at 59.
Image: Howard Phillips. Pic: Metropolitan Police
Phillips was found guilty of assisting what he believed to be Russian intelligence service agents, in breach of the National Security Act.
Dressed in a dark suit and dark coloured tie, he shook his head and looked around the court as he was found unanimously guilty by a jury at Winchester Crown Court after four hours of deliberation.
He now faces a lengthy jail term after offering to provide logistical support for Russian agents across the world in the increasingly desperate hope it would bail him out of his money worries.
Jocelyn Ledward KC, prosecuting, said Phillips was “struggling financially” and seeking “interesting and exciting work for easy money”.
Phillips, who is divorced with four grown-up children, became an insolvency practitioner in 1986 and had worked for Bond Partners in the City. He had become self-employed in 2011 and then worked as a manager in the charity sector before moving to GDPR compliance in “semi-retirement” in 2018.
Phillips explained that he sent out hundreds of CVs and applied online, adding: “I was avidly seeking employment but none was forthcoming.”
He filled in an online application form for MI5 in 2014 and again in 2024, because he “wanted to act in the service of my country”, but found that they required a university degree.
Phillips began writing a series of increasingly fanciful letters to Conservative Party ministers, offering his advice on how to influence the electorate, and to Hollywood actors – including Tom Cruise and Jennifer Aniston – asking to meet and talk about how to get into the movie business.
However, his financial situation was “decreasing rapidly”. He had used up all the money he had gained from the sale of a property. He had a balance of £25,126.09 in his bank accounts on April 29 2023 but by May 20 2024 it had dropped to £374.48 after using his savings to pay off Santander credit card bills.
Image: Phillips as he was arrested. Pic: Metropolitan Police
Phillips was filmed from multiple angles in an elaborate undercover operation which saw two MI5 agents adopting Russian accents to pose as agents of the SVR, Russia’s foreign intelligence agency, even though he had never heard of the organisation.
On 15 March last year, Phillips volunteered his services to the Russians in a letter intercepted by MI5.
In messages on WhatsApp, he claimed his name was David Marshall and said he was a “fully pledged British citizen, born in the UK to British parents and British grandparents etc” and had “several situations of utmost benefit to convey and offer”.
He added that he was “semi-retired” but had “connections in high places”.
Phillips was asked if he could prepare a document on a USB stick that would explain how he could assist Russian intelligence and deliver it to London on 4 April last year.
Jurors were played a covert recording of a meeting between Phillips and “Sasha” and “Dima” – two undercover MI5 officers – at the London Bridge Hotel on 26 April in which he told the men he wanted to work for Russia in exchange for financial independence from the UK.
He was arrested by plain-clothed officers in a coffee shop near King’s Cross station on 16 May last year.
Phillips denied materially assisting a foreign intelligence service to carry out UK-related activities under the National Security Act 2023.
A nine-year-old girl was shot in the head by a motorbike-riding gunman in east London in an attempted assassination of rival gang members, a court has heard.
Ali Nasser, 43, Kenan Aydogdu, 45, and Mustafa Kiziltam, 38 – who are linked to the Hackney Turks – were sat outside the busy Evin restaurant on Kingsland High Street, Hackney, when six shots were fired at the group, a jury was told.
They were all wounded, but one of the stray bullets hit the girl, who was sitting at a table with her family members on the evening of 29 May last year, and lodged in her brain, the Old Bailey heard.
All of the victims survived the attack – which was caught on CCTV in footage described as “distressing to watch”.
But the girl needed operations to rebuild her skull with titanium and was in hospital for three months before being allowed to go home. She will have physical and cognitive difficulties for the rest of her life.
Prosecutors say the shooting was part of an ongoing dispute between the Tottenham Turks and the Hackney Turks, also known as the Bombacilars (Bombers), whose “intense rivalry” over more than a decade has seen “extreme violence” used between them.
James Mulholland KC told a jury that members of the Tottenham Turks had ordered the “planned assassination of members of a rival gang”.
Javon Riley, 33, of Farnborough, Hampshire, is on trial at the Old Bailey, where he denies four charges of attempted murder and an alternative charge of causing grievous bodily harm with intent relating to the girl, who cannot be identified because of her age.
Prosecutors say Riley wasn’t a member of the Tottenham Turks but was linked to them and knew they were behind the shooting.
The gunman, who arrived on the scene on an “extremely powerful” red Ducati Monster, has not been arrested, but Riley is said to have played “a key role” before, during and after the alleged attempted murders.
He is alleged to have been “an integral part” of the plan, as he carried out reconnaissance and carried the gunman away from the scene.
The court heard that after the shooting, the gunman rode the motorbike to a nearby street where Riley was waiting in a stolen Nissan Juke on false plates before they “calmly” headed to north London before transferring into Riley’s Range Rover.
Vehicles used in the alleged plot were later torched, the court heard.
Mr Mulholland said in covert recordings in the months after the shooting, Riley talked about Izzet Eren, who is linked to the Tottenham Turks and was shot in Moldova on 10 July last year in what is believed to have been a revenge attack.
He also discussed a man called “Kem”, who prosecutors say is Kemal Eren, “one of those closely involved in the Tottenham Turks”.
“It is clear from all the evidence that Javon Riley knew this was a job for individuals connected with Tottenham Turks, the level of violence required and the aim was to kill those seated outside the restaurant and played an integral part in setting the scene so that this came about,” said Mr Mulholland.
“The only reason someone did not die that night was luck and had nothing to do with Mr Riley.”