The families of people suffering from chronic illnesses are calling on the government to fund more research into medical cannabis.
End Our Pain, which campaigns for the benefits of medical cannabis, is set to deliver a letter to Health Secretary Steve Barclay on Monday, urging him to put aside £1.4m towards research into the drug.
Medical cannabis, which campaigners believe can treat neurological diseases, chronic pain and conditions like epilepsy, was made legal in the UK in 2018.
But to date, fewer than five people have received an NHS prescription, leaving the rest forced to go private for their prescriptions, or even buying drugs on the black market.
Elaine Levy had to sell her four-bedroom home and move into a flat, because of the costs of paying £2,200 every month for medical cannabis to treat her adult daughter’s epilepsy.
“In the end I couldn’t keep up with the mortgage payments, it was like paying more than a mortgage, so in the end I actually did sell my home.
“I’ve made such sacrifices for this, but when you have a child that you see change from being doped up by drugs to a girl who is awake, who now doesn’t need a wheelchair, isn’t always calling ambulances, how can you possibly go backwards?”
The reason NHS doctors are so unwilling to prescribe cannabis-based products is a lack of evidence on the quality, safety, and clinical and cost effectiveness.
Dr Simon Erridge, head of research and access at Sapphire Medical Clinics in London, said: “At the moment in those conditions where we’ve seen the most promise – things like mental health, chronic pain, sleep disorders – we haven’t had that right type of research that can convince regulators and clinicians in the NHS for it to be prescribed on a population basis, across all people with those conditions.
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Use of medical cannabis on rise
“Those trials which we call randomised control trials, where you either take a dummy sugar pill or a gold standard treatment and you compare medical cannabis with that.”
For Elaine, the lack of that research is what is so frustrating.
She said when he was health secretary, Matt Hancock promised funding would be made available, but in the years since, they have been repeatedly ignored by the government:
“We were promised an observational trail and an randomised control trial, so we could actually help the children who are already on medical cannabis, and also do data for the children who aren’t on it,” she added.
“We have never seen the money, we have never had a meeting since with the government. They have basically ignored us.”
While Elaine lost her home to the fees of getting the medication privately, others take things further, by buying it on the black market.
When Hayley Lanciano’s husband Neil was given weeks to live with incurable brain cancer, she tried to treat his pain by sourcing medical cannabis illegally.
Image: Hayley and Neil Lanciano
“At the time he was struggling to walk, he was struggling to get out of the house, and that was where they told us he only had six to eight weeks left to live so we were desperately clutching at straws wanting to do more and give him some quality of life.”
She added: “You are very isolated you’re on your own. You have to do your own research. You just hope and trust that what you’re buying is what they say you’re buying.”
In a statement, a spokesperson for the Department of Health and Social Care told Sky News: “We are working closely with partners to establish clinical trials to test the safety and effectiveness of more cannabis-based products for medicinal use to inform future NHS funding decisions.
Image: Neil playing rugby when he was younger
“Licensed cannabis-based medicines are funded by the NHS where there is clear evidence of their quality, safety and effectiveness.
“We are taking an evidence-based approach to unlicensed cannabis-based treatments to ensure they are proved safe and effective before they can be considered for roll-out on the NHS more widely.”
A man has been arrested on suspicion of murder after three children and a woman died in a house fire in Brent, northwest London.
Metropolitan Police officers are investigating after being called to assist firefighters in Stonebridge, near Wembley, shortly after 1.20am.
A 43-year-old woman and three children, a 15-year-old girl, an eight-year-old boy and a four-year-old boy, died at the scene, the force said. Their next of kin have been informed.
Police are waiting for an update on the conditions of two others who were taken to hospital.
A 41-year-old man was arrested at the scene in connection with the incident and remains in custody.
Image: Pics: PA
Eight fire engines and around 60 firefighters responded to the blaze, the London Fire Brigade (LFB) said.
Two terrace houses, each with three floors, were severely damaged in the fire, which was under control by around 3.25am, the fire service added.
Firefighters rescued the woman and one of the children from the second floor of the house, but they were declared dead by air ambulance crews.
The two other children were found inside the property and were also declared dead at the scene, LFB said.
Image: Emergency services at the scene. Pics: PA
LFB assistant commissioner Keeley Foster said: “Upon arrival, firefighters were met with a well-developed fire, involving two adjoining properties. Crews immediately set to work carrying out firefighting operations in order to bring the incident under control.
“Sadly, a woman and three children have died as a result of this fire.
“Crews wearing breathing apparatus were able to rescue the woman and one of the children from the second floor, but they were later declared deceased at the scene.
“A further two children were discovered to have died in the fire, as crews carried out a search of the properties involved.”
She added: “This is an extremely tragic incident, and the thoughts of everyone across the brigade are with those impacted by this incident.”
Image: Pic: PA
London Ambulance Service said an air ambulance, incident response officers, advanced paramedic and hazardous area response team were deployed to the scene.
Superintendent Steve Allen, from the Met’s local policing team in northwest London, said: “This is an extremely tragic incident and our thoughts are with everyone involved.
“Officers arrested a man at the scene and we continue to work alongside investigators from the London Fire Brigade to establish the cause of the fire.
“Emergency services will remain in Tillett Close throughout the day as these enquiries take place.”
Mayor of London Sadiq Khan said in a post on X: “This is devastating news and my thoughts are with the family, friends and wider community of the four people who sadly have lost their lives.
“I remain in close contact with the London Fire Brigade and Metropolitan Police as they work to establish the cause of the fire and offer support to all those impacted.”
Dawn Butler, the local Labour MP for Brent East, posted: “Devastated to see the fatal fire at homes in Tillett Close last night.
“My prayers are with the family and friends affected by this is a very sad tragedy.
“@LFB_Brent worked hard to get it under control, thank you.”
The teacher of one of the Southport stabbing victims has told Sky News they “don’t want her to be forgotten”, 10 months after the knife attack in which she was murdered.
Seven-year-old Elsie Dot Stancombe was killed along with Bebe King, six, and nine-year-old Alice da Silva Aguiar in an attack by Axel Rudakubana at a Taylor Swift-themed dance class last July.
Jennifer Sephton, headteacher of Farnborough Road Infant School, will be skydiving to raise funds for the Elsie’s Story charitable trust, which has been set up in memory of the former pupil.
Image: (L-R) Alice da Silva Aguiar, Elsie Dot Stancombe and Bebe King were killed in an attack at a Taylor Swift-themed class
“She’d been with us for four years, throughout her education,” Ms Sephton told Sky News, “and we just want everybody to know Elsie’s spirit.”
Describing Elsie as “such a determined young lady,” Ms Sephton said Elsie had “a real zest for life, and a sparkle in her eye all the time.”
She added that Elsie’s Story, which has been set up by Elsie’s family, is about “continuing that legacy.”
Image: Jennifer Sephton
In the aftermath of the July 2024 attack, the gates outside Elsie’s school were lined with flowers, balloons, and cards bearing her name.
Since then, memorial benches and a tree have been planted in the school grounds, providing pupils and staff with a place to “remember and reflect”, Ms Sefton says.
“[Elsie’s death] had such an impact on all our community,” the teacher said, “it’s had an impact on her friends, their siblings, our school as a community and our staff.”
Ms Sephton will be joined in the skydive by Adrian Antell, headteacher at the adjoining junior school where Elsie had been due to start.
“Elsie was due to come to us last September,” he told Sky News, “but what we’ve learned about her is that she had a wonderful impact in the infant school, and we don’t want her to be forgotten.
“We want her name to have to live on and to be thought of in a positive way.”
Mr Antell said they continue to support Elsie’s classmates, who joined the new school without her.
“There’s no instruction manual for this,” he explained, “every day is different, and every day is one step at a time.
“So all we can do as a school is to think about individual children and support them in the best way we can.”
Scientists from Kew Gardens are using a new study to track which trees bees prefer to try to stem the decline in our vital pollinators.
Bee populations are falling all over the world due to a mixture of habitat loss, climate change, and the use of pesticides, with a devastating impact on our biodiversity and food production.
But it’s feared that not enough comprehensive, global research is being done to understand the issue or find solutions.
Image: The study is building up heat maps of the most popular trees
Image: Non-invasive monitors track the buzz created by bees’ wing beats
UK becoming a no-fly zone
Researchers based at Wakehurst in Sussex, known as Kew’s “Wild Botanic Garden”, have begun placing advanced bio-acoustics sensors in some of their trees to track which ones bees favour.
They hope it’ll help urban planners know which trees to plant in built-up areas, as a way of combating the worrying decline in bee numbers.
Pollination research lead Dr Janine Griffiths-Lee said: “Nearly 90% of our flowering plants depend on the contribution of pollinators, but in the UK the population of flying insects in the last 20 years has decreased by around 60%.
“It’s really hard to be able to put a figure on the decline of our pollinators, but we do know that globally the number is declining.
“And with that comes crop yield instability and the loss of an essential ecosystem service.”
Their new, non-invasive monitors listen for the buzz created by bees’ wing beats, building up heat maps of the most popular spots.
Image: Bio-acoustics sensors are placed in trees to track which ones the bees are more drawn to
‘We’re facing twin crises’
Dr Griffiths-Lee said: “If you think about the tree’s footprint, it’s very small, but they’re huge 3D structures covered in pollen and nectar, which are essential resources of pollinators.
“So we really wanted to think about which are the best trees for bees for us to plant, and that can inform landscape planners, urban architects.”
Eight different species of tree were chosen for the study, including horse chestnut and lime trees, with a mixture of native and non-native species.
The scientists have also been gathering DNA from pollen, which also helps them to map which plants and flowers the insects prefer.
Wakehurst’s director, Susan Raikes, calls the 535-acre estate a “living laboratory”, and said the project’s all about searching for nature-based solutions to the impacts of climate change.
“The stakes couldn’t be higher, really. We know that we’re facing these twin crises of biodiversity loss and climate change,” she added.
“We need to be able to understand, as the climate changes, which plants from warmer climes will be good here in the UK for pollinators in the future.
“If all of our native plants are struggling, then we need to find new sources of pollen – for us all to survive.”