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The families of people suffering from chronic illnesses are calling on the government to fund more research into medical cannabis.

End Our Pain, which campaigns for the benefits of medical cannabis, is set to deliver a letter to Health Secretary Steve Barclay on Monday, urging him to put aside £1.4m towards research into the drug.

Medical cannabis, which campaigners believe can treat neurological diseases, chronic pain and conditions like epilepsy, was made legal in the UK in 2018.

But to date, fewer than five people have received an NHS prescription, leaving the rest forced to go private for their prescriptions, or even buying drugs on the black market.

Elaine Levy had to sell her four-bedroom home and move into a flat, because of the costs of paying £2,200 every month for medical cannabis to treat her adult daughter’s epilepsy.

“In the end I couldn’t keep up with the mortgage payments, it was like paying more than a mortgage, so in the end I actually did sell my home.

“I’ve made such sacrifices for this, but when you have a child that you see change from being doped up by drugs to a girl who is awake, who now doesn’t need a wheelchair, isn’t always calling ambulances, how can you possibly go backwards?”

The reason NHS doctors are so unwilling to prescribe cannabis-based products is a lack of evidence on the quality, safety, and clinical and cost effectiveness.

Dr Simon Erridge, head of research and access at Sapphire Medical Clinics in London, said: “At the moment in those conditions where we’ve seen the most promise – things like mental health, chronic pain, sleep disorders – we haven’t had that right type of research that can convince regulators and clinicians in the NHS for it to be prescribed on a population basis, across all people with those conditions.

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Use of medical cannabis on rise

“Those trials which we call randomised control trials, where you either take a dummy sugar pill or a gold standard treatment and you compare medical cannabis with that.”

For Elaine, the lack of that research is what is so frustrating.

She said when he was health secretary, Matt Hancock promised funding would be made available, but in the years since, they have been repeatedly ignored by the government:

“We were promised an observational trail and an randomised control trial, so we could actually help the children who are already on medical cannabis, and also do data for the children who aren’t on it,” she added.

“We have never seen the money, we have never had a meeting since with the government. They have basically ignored us.”

While Elaine lost her home to the fees of getting the medication privately, others take things further, by buying it on the black market.

When Hayley Lanciano’s husband Neil was given weeks to live with incurable brain cancer, she tried to treat his pain by sourcing medical cannabis illegally.

Hayley and Neil Lanciano
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Hayley and Neil Lanciano

“At the time he was struggling to walk, he was struggling to get out of the house, and that was where they told us he only had six to eight weeks left to live so we were desperately clutching at straws wanting to do more and give him some quality of life.”

She added: “You are very isolated you’re on your own. You have to do your own research. You just hope and trust that what you’re buying is what they say you’re buying.”

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In a statement, a spokesperson for the Department of Health and Social Care told Sky News: “We are working closely with partners to establish clinical trials to test the safety and effectiveness of more cannabis-based products for medicinal use to inform future NHS funding decisions.

Neil playing rugby when he was younger
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Neil playing rugby when he was younger

“Licensed cannabis-based medicines are funded by the NHS where there is clear evidence of their quality, safety and effectiveness.

“We are taking an evidence-based approach to unlicensed cannabis-based treatments to ensure they are proved safe and effective before they can be considered for roll-out on the NHS more widely.”

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Alleged Madeleine McCann family stalker left voicemails saying ‘I believe I’m really her’

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Alleged Madeleine McCann family stalker left voicemails saying 'I believe I'm really her'

A woman accused of stalking the parents of Madeleine McCann allegedly left voicemails asking the mother of the missing girl for a DNA test, a court heard.

Jurors heard voicemails left by Julia Wandelt, 24, from Lubin, Poland, in which she was audibly upset.

She allegedly left the messages last year, over a period of months, and at one point asked: “What if I’m her?”

Co-defendant Karen Spragg, 61, began crying today at Leicester Crown Court and had to leave the dock when the voicemails were played.

Wandelt, whose head was down while jurors were listening, was heard saying: “I know you probably think Madeleine‘s dead. Well she is not. I really believe I’m her.

“Help me. Don’t think Madeleine is dead. This is a chance. Please, I beg you. The police don’t want to help me, they don’t want to help Madeleine. It’s all corrupt.

“I promise you that I will prove who I am because I know you love Madeleine.”

In another message, she said: “You probably believe Madeleine is not alive anymore.

Madeleine McCann went missing during a family holiday to Portugal in 2007. Pic: PA
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Madeleine McCann went missing during a family holiday to Portugal in 2007. Pic: PA

“What if I am her? What if there’s a small chance that I’m her?”

Jurors also heard that, one night, Wandelt sent a message to Mrs McCann at 1am, saying: “I don’t understand why you don’t want to do a DNA test.”

Prosecutors allege that Wandelt, a Polish national, falsely claimed she was Madeleine while stalking parents Kate and Gerry McCann by sending emails, making calls and turning up at their address between June 2022 and February this year.

The court previously heard that Wandelt called and messaged Mrs McCann more than 60 times in a single day in April last year. This included alleged memories of Madeleine’s abduction.

Madeleine went missing during a family holiday to Praia da Luz in Portugal, in May 2007.

Wandelt and Spragg, of Caerau Court Road in Caerau, Cardiff, both deny one count of stalking.

The trial continues.

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Tommy Robinson refused to give phone pin to police as he drove his Bentley to Benidorm, court hears

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Tommy Robinson refused to give phone pin to police as he drove his Bentley to Benidorm, court hears

Tommy Robinson refused to hand over his phone pin when police stopped his Bentley on the way to Benidorm, a court has heard.

He allegedly told officers “Not a chance, bruv” and said he was a journalist when they pulled him aside at the Channel Tunnel at Folkestone in July 2024.

Robinson, real name Stephen Yaxley-Lennon, is accused of “frustrating” counter-terrorism powers by refusing to give access to the phone.

He denies the charge.

The right-wing political activist was flanked by security guards as he arrived at Westminster Magistrates Court for the opening of the trial on Monday.

The 42-year-old faces three months in prison and/or a £2,500 fine if found guilty.

Robinson had £13,000 and 1,900 euros on him when he was stopped and told police he was going to Benidorm in Spain for a few days, said prosecutor Jo Morris.

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He allegedly refused to give the pin as he claimed the phone had sensitive “journalist material” on it.

He’s said to have told police: “It’s my work, I’m a journalist,” claiming it contained information about “vulnerable girls”.

The court heard Robinson was stopped in his silver Bentley SUV because he gave “short, vague replies” about what he was doing and “made no eye contact”.

PC Mitchell Thorogood told the court it was also “unusual” he bought tickets on the day rather than in advance and was in an expensive car not registered in his name.

Pic: PA
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Pic: PA

When police took Robinson into an interview room and demanded his phone, he allegedly told them: “Not a chance bruv… you look like a c*** so you ain’t having it.”

Officers said they recognised Robinson when they stopped him and his lawyer, Alisdair Williamson KC, suggested the stop may have been “discriminatory” against his political beliefs.

Police can stop anyone at a UK port and hold them for six hours if they suspect they may be involved in planning or committing acts of terrorism.

They are legally obliged to answer questions and must give access to their electronic devices or face a criminal charge.

In a video on X before the hearing, Robinson said Elon Musk had “picked up the legal bill” for “this absolute state persecution”.

The case comes a month after Robinson led a huge rally in central London under the banner ‘Unite the Kingdom’.

The trial continues.

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UK played ‘vital role’ in Gaza peace deal, says Trump aide, after minister branded ‘delusional’

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UK played 'vital role' in Gaza peace deal, says Trump aide, after minister branded 'delusional'

Steve Witkoff, the US special envoy to the Middle East, has claimed the UK played a “vital role” in helping negotiate the Gaza peace deal, smoothing over a potential diplomatic row between London and Washington.

Witkoff took to X on Monday, ahead of meeting President Donald Trump in Israel, to praise the UK.

“I would like to acknowledge the vital role of the United Kingdom in assisting and coordinating efforts that have led us to this historic day in Israel,” Witkoff wrote.

“In particular, I want to recognise the incredible input and tireless efforts of National Security Advisor Jonathan Powell.”

His comments came 24 hours after education secretary Bridget Phillipson was branded “delusional” by Mike Huckabee, the US ambassador to Israel, for claiming that Sir Keir Starmer’s presence at a signing ceremony for today’s ceasefire deal in Egypt “demonstrates the key role that we [Britain] have played”.

The minister made her remarks on Sunday Morning With Trevor Phillips but did not say exactly what the UK’s role in the ceasefire, largely attributed to Donald Trump, is or was.

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Phillipson added: “We have played a key role behind the scenes in shaping this.

“It’s right that we do so because it’s in all of our interest, including our own national interest, that we move to a lasting peace in the region.

“These are complex matters of diplomacy that we are involved in. But we do welcome and recognise the critical role that the American government played in moving us to this point.”

Her comments prompted Mr Huckabee to repost the Sky News clip on social media, claiming: “I assure you she’s delusional.”

He added: “She can thank Donald Trump anytime just to set the record straight.”

Mr Huckabee was part of the negotiating team for the peace deal, with Mr Trump calling the former Arkansas governor “AMAZING” as he said he “worked so hard, and did so much, to bring about peace in the Middle East”.

In August, Mr Huckabee said the UK and other European nations that said they would declare a Palestinian state were “having the counterproductive effect that they probably think that they want”.

Israel: UK did not play key role in peace deal

Israel’s deputy foreign affairs minister, Sharren Haskell backed Huckabee, telling Sky News the UK played “the opposite” of a key role in the peace deal after recognising the Palestinian state.

“The message that the UK government has sent Hamas was the message that: the longer they continue this war, they will be rewarded.

“I mean, you must understand that when a terrorist organisation is thanking you. You are on the wrong side of history.”

It is understood the prime minister has underlined Mr Trump’s key role in securing this deal throughout the process. Publicly, he praised Mr Trump twice in his press conference in India on Thursday.

Read more:
Gaza latest: Hostages Square boos Netanyahu
Hamas official thanks Donald Trump for ceasefire deal

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Final preparations for hostages in Israeli hospital

Ms Phillipson stood by the September decision to declare a Palestinian state, saying it was “the right thing to do”.

Husam Zomlot, the Palestinian ambassador to the UK, told Sky News it was a “moment of leadership” for the UK to declare a Palestinian state, and a “responsibility to begin to correct a century of the gravest historic injustices committed against our people”.

He added: “That moment three weeks ago, when the UK did recognise, is a moment when we can say that the wheels of history are turning in a different direction.”

No plans for British troops on the ground

The education secretary also told Sky News the government has “no plans” to put British troops into Israel or Gaza as part of a stabilisation force after the ceasefire.

The US military will help establish a multinational force in Israel, known as a civil-military coordination centre, which is likely to include troops from Egypt, Qatar, Turkey and the UAE.

Tens of thousands of Palestinians have walked back to Khan Younis in southern Gaza. Pic: AP
Image:
Tens of thousands of Palestinians have walked back to Khan Younis in southern Gaza. Pic: AP

On Friday, US officials said up to 200 US troops already based in the Middle East will be moved to Israel to help monitor the ceasefire in Gaza.

The day before, President Trump announced Israel and Hamas had “signed off on the first phase” of a peace plan he unveiled last week.

Pic: Reuters
Image:
Pic: Reuters

Aid trucks have been gathering in Egypt to cross into Gaza after months of warnings by aid groups of famine in parts of the territory.

In Israel, the remaining hostages are due to be returned from Gaza by Hamas on Monday under the first phase of the peace plan. Twenty are believed to still be alive, 26 have been declared dead, while the fate of two is unknown.

The ceasefire agreement has been made two years after Hamas stormed Israel on 7 October 2023, killing 1,200 people and taking 251 hostages.

Israel’s military offensive has killed more than 67,000 Palestinians in Gaza, according to the Hamas-run health ministry, which the UN deems reliable.

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