Bruce Willis’s daughter has revealed how he still recognises her and “lights up” when she enters the room, as loved ones come to terms with his dementia diagnosis.
Tallulah Willis laid bare the impact the Hollywood actor’s illness has had on her family in an essay for Vogue Magazine.
The 29-year-old said she knew “something was wrong for a long time” before the family announced the Die Hard star was suffering from aphasia– a condition affecting the brain which causes speech and language difficulties – leading to his retirement.
She later learned aphasia was a feature of frontotemporal dementia (FTD) – which “chips away at his cognition and behaviour day by day”.
The Pulp Fiction actor – who shares daughters Rumer, Tallulah and Scout with ex-wife Demi Moore – was diagnosed with the progressive neurological disorder in February this year.
Willis wrote the article days after the actor’s wife, model Emma Hemming-Willis, with whom he has two daughters, Mabel, 10, and Evelyn, eight, described the “toll” on her mental health and spoke poignantly about how their time together was precious.
“It started out with a kind of vague unresponsiveness, which the family chalked up to Hollywood hearing loss. ‘Speak up! Die Hard messed with Dad’s ears,'” Willis wrote.
Later, the unresponsiveness “broadened”, she added.
“He still knows who I am and lights up when I enter the room.
Advertisement
“He may always know who I am, give or take the occasional bad day. One difference between FTD and Alzeimer’s dementia is that, at least early in the disease, the former is characterized by language and motor deficits, while the latter features more memory loss.
“I keep flipping between the present and the past when I talk about Bruce: he is, he was, he is, he was. That’s because I have hopes for my father that I’m so reluctant to let go of.”
Image: Bruce and Tallulah Willis pictured at the premiere of The Whole Ten Yards in 2004 Pic: Rex
‘My father’s condition hit me painfully’
Willis admitted she has met her father’s decline in recent years with a “share of avoidance and denial that I’m not proud of” – due to various health issues including anorexia nervosa, depression and being diagnosed with ADHD, which led to rapid weight loss and body dysmorphia.
During her own health battles, the actor was “quietly struggling”, she said.
Recalling a moment when her father’s condition “hit me painfully”, she wrote: “I was at a wedding in the summer of 2021 on Martha’s Vineyard, and the bride’s father made a moving speech.
Image: Bruce Willis in 1999
“Suddenly I realized that I would never get that moment, my dad speaking about me in adulthood at my wedding. It was devastating. I left the dinner table, stepped outside, and wept in the bushes.”
Last spring, Willis saw her weight drop to about 84 pounds (38.1kg).
“The other night, I lay in bed thinking to myself, with an ache in my heart, what if my dad had been his full self and saw me at that size? What would he have done?
“I’d like to think that he wouldn’t have let it happen.
“Whereas my sisters and my mother have these extensive tool kits – lots of psycho-education and interpersonal skills, my dad has never been so interested in root causes, in close examination.
“Maybe he’s a stereotypical father of a certain generation in that way, a doer who, if he had understood, might have scooped me up and said, ‘This is ending now.’
“His style has always been to plug the leak even if he’s not sure why the leak is happening.
“Certainly there are benefits to examination, but there’s a beauty in his way, and I don’t think I noticed it until he was no longer capable of it.”
Willis is now focused on recovery and her relationship with her father – whose mobility has not been affected by his condition.
“Every time I go to my dad’s house, I take tons of photos of whatever I see, the state of things. I’m like an archaeologist, searching for treasure in stuff that I never used to pay much attention to.
“I have every voicemail from him saved on a hard drive,” she said.
“I find that I’m trying to document, to build a record for the day when he isn’t there to remind me of him and of us.
“These days, my dad can be reliably found on the first floor of the house, somewhere in the big open plan of the kitchen-dining-living room, or in his office.
“That office has always been a kind of window into what he’s most interested in at any given moment. Recently I found a scrap of paper there on which he had written, simply, ‘Michael Jordan’. I wish I knew what he was thinking. (In any case, I took it!)
“The room is filled with the nick-nacks he has collected: vintage toy cars, coins, rocks, objects made of brass. He likes things that feel heavy in the hand, that he can spin around in his fingers.”
The Edinburgh Fringe, the world’s largest arts festival, is getting under way, and the conflict in Gaza seems to be feeding into what’s happening.
From shows cancelled to artists divided, it’s no joke.
Rachel Creeger has had a distressing start to her stand-up run.
Two weeks ago, out of the blue, she says the venue Whistle Binkies rang her and fellow Jewish comedian Philip Simon to cancel their slots.
Image: Rachel Creeger says her Edinburgh shows have been cancelled by the venue
She told Sky News it’s come down to “what we bring to that venue by being ourselves”.
The pair were allegedly given three reasons for the cancellation.
One was linked to a “vigil for IDF soldiers” that she says the venue initially claimed had been held during her performance last year but, according to Creeger, later had to admit hadn’t taken place.
More on Edinburgh
Related Topics:
“That never happened,” she insists.
Rachel says she was told her previous performances there had resulted in the venue having to pay for graffiti to be removed from toilet doors every three days.
“Again, we didn’t see evidence of that at all,” she says.
“We’re not the ones writing it… but if it was bothering them and they worried it was bothering us, then maybe we’d have volunteered to help them – or to help clean it.”
She claims she was also told the venue was responding to staff concerns about their own safety should Creeger’s show go ahead.
“It’s a pub in Edinburgh, it’s a music venue, they themselves have bouncers most evenings… And perhaps they might say if there’s a concern about extra risk, we should do all we can to make our performers safe.”
‘More unites us than divides us’
Creeger says her show is in no way political.
“It’s based around the idea that a Jewish mother can answer any question, solve any problem… I will make it better for you, the audience gets to write a question and put it into a chicken soup pot… The reason I kind of love it is because by the end of it people leave feeling actually more unites us than divides us.
“We’re not the people making the trouble,” she adds.
“I’ve certainly never started a protest, I’ve never done graffiti, I’ve never caused harm anywhere; my show doesn’t do that, my show is lovely.”
As Britain’s only touring comedian who is also a practising Orthodox Jew, she says since the 7 October attack she and other Jewish comedians are experiencing a significant increase in antisemitism while performing.
“We’re not Israeli, we’re British Jews,” says Creeger.
“The situation there is horrendous and distressing and painful for people of any number of religions and races… To be kind of scapegoated with dog whistles around that is clearly very, very unpleasant.”
The Fringe Society has said its role is to provide support and advice to all participants at the festival “with a vision to give anyone a stage and everyone a seat”.
A spokesperson explained they don’t manage or programme venues and “we understand that the show cancellations have been a choice made by the venue”.
Whistle Binkies hasn’t responded to multiple requests for comment.
Police Scotlandtold Sky News it hasn’t “received any reports of concern” about Creeger’s show.
There are, of course, huge sensitivities when it comes to discussing what’s going on in the world right now.
American stand-up Zainab Johnson is making her Fringe debut this year.
While her show Toxically Optimistic is all about putting a positive spin on life’s challenges, she doesn’t shy away from tackling the serious stuff if it comes up.
Image: Zainab Johnson says her show doesn’t shy away from tackling serious issues
‘Shows becoming serious is a part of life’
“If I’m doing a show and somebody wants to yell out Free Palestine, well let’s talk about it,” she tells Sky News.
“I am the comedian where, if the show has to become serious, it becomes serious. That’s a part of life, you know?”
Johnson adds: “I’m from the United States and they talk about free speech all the time, but then you find out free speech ain’t really free because the moment you say something that is contrary to what the majority feels or wants to be heard, then you can be penalised…
“But isn’t that the beauty of this festival? So many people just telling their story, whatever their story is.”
Comedian Andy Parsons has had a long-standing career in satire, appearing regularly on shows like BBC2’s Mock the Week.
While he has the likes of Elon Musk and Nigel Farage in his sights for his stand-up show, Please #@!$ Off to Mars, they’re not his only focus.
Image: Andy Parsons says comedians ‘should be able to talk about anything’
He says stand-ups “should be able to talk about anything and find a way to get that to work, including Israel and Gaza”.
He explains jokingly: “I’ve got some stuff about Israel in the show and obviously it can work both ways. It can give you some publicity and obviously it can get you cancelled.”
Irish-Palestinian comedian Sami Abu Wardeh – a clown comic – is the only Palestinian doing a full run of a comedy show at this year’s Fringe.
“My show is clowning, it’s storytelling, it’s even got a bit of stand-up and it’s heavily inspired by the comedian Dave Allen, who is one of my comedy heroes,” says Wardeh.
“It felt really important that I come and just exist in this space, as a Palestinian, and speak my words and have my voice heard.
“I’ve used all of these skills to make a show that is about really what’s going on in this country and in the world at the moment.
Image: Irish-Palestinian comedian Sami Abu Wardeh is the only Palestinian doing a full run at this year’s Fringe
“I think most people in this country are going to recognise that Britain is in a very dark place… and I’m hoping to reach those people and to give a voice to the dissatisfaction.”
‘Plans in place’ for disruption
He’s had to consider the possibility of protests and take steps to “make sure that the audience and myself are safe and secure”.
“We have plans in place to know how to deal with people who are disruptive,” he says. “And particularly anybody who wants to bring any kind of bigoted views into the room.”
As one of the very few Palestinians at the festival, Wardeh says it is “not only my duty” but “an honour to be here and to represent my people”.
He also feels it’s wrong that Rachel Creeger has had her venue cancelled.
“I sincerely support free speech and I think everyone should be able to get on the stage and say what they want, within reason obviously,” says Wardeh.
Rachel says she hopes to confirm a new venue for her show on social media in the coming days.
“We’ve thankfully had a number of venues approach us to say that they have space available, so I’m hopeful that I’ll get – if not a full – then at least part of the run for the show.”
Since arriving in Edinburgh she’s been overwhelmed by how many hugs of support she’s received.
“To have super high-profile comedians put their heads above the parapet to say ‘this is wrong’, it means so much…In a way the story is that someone’s done something very hurtful… But look at all the love, that’s amazing.”
Sami Abu Wardeh’s Palestine: Peace de Resistance is at the Pleasance Dome in Edinburgh until 24 August Andy Parsons’ Please #@!$ Off to Mars is at Pleasance Courtyard’s Cabaret Bar until 10 August Zainab Johnson: Toxically Optimistic is at Pleasance Courtyard until 24 August
Flintoff previously described how he thought he had died in the accident – which saw him “pulled face-down on the runway” for about 50m under a three-wheel car.
The incident led to the BBC pulling the plug on Top Gear and it remains unclear if it will ever return.
Hollywood actor Brian Cox has told Sky News that Donald Trump is talking “bollocks” after suggesting there should be 50 or 75 years between Scottish independence referendums.
The US president said a country “can’t go through that too much” when questioned by reporters during his visit to Scotland this week.
The Emmy-winning star, who is an independence supporter, has hit back, branding him “that idiot in America”.
The 79-year-old told Sky News: “He’s talking bollocks. I’m sorry, but he does. It’s rubbish. Let’s get on with it and let’s get it [independence] done. We can do it.
“It’s been tough as there’s a great deal of undermining that has gone on.”
Please use Chrome browser for a more accessible video player
2:13
Trump responds to Sky question on Israel
SNP fraud probe causing ‘harm’
Mr Cox said the police fraud investigation examining the SNP’s finances has done “enormous harm” to the party and wider independence movement.
More from Ents & Arts
Nicola Sturgeon was arrested as part of the long-running police probe but cleared of any wrongdoing earlier this year.
The former first minister’s estranged husband Peter Murrell, who was SNP chief executive for two decades, appeared in court in April to face a charge of alleged embezzlement. He has entered no plea.
Brian Cox is preparing to return to the Scottish stage for the first time in a decade in a play about the Royal Bank of Scotland’s role in the 2008 financial crash.
Ahead of the Edinburgh festival performances, the veteran actor told Sky News: “I think it’s a masterpiece. It’s certainly one of the best pieces of work I’ve been involved in.
Image: Brian Cox speaking to Sky’s Connor Gillies
‘My friend Spacey should be forgiven’
The Succession star was also asked about his “old friend” Kevin Spacey.
The former House of Cards actor, 65, was exiled from the showbiz world in 2017 after allegations of sexual misconduct.
Spacey has admitted to “being too handsy” in the past and “touching someone sexually” when he didn’t know they “didn’t want him to”.
Spacey stood trial in the UK for multiple sexual offences against four men in July 2023 but was acquitted on all counts.
Image: Kevin Spacey
Mr Cox told Sky News: “I am so against cancel culture. Kevin has made a lot of mistakes, but there is a sort of viciousness about it which is unwarranted.
“Everybody is stupid as everybody else. Everybody is capable of the same mistakes and the same sins as everybody else.”
Asked if he could see a return to showbiz for Spacey, Cox replied: “I would think so eventually, but it’s very tough for him.
“He was tricky, but he has learnt a big lesson. He should be allowed to go on because he is a very fine actor. I just think we should be forgiving.”
He concluded: “What is the joy you get out of kicking somebody in the balls when they are down? That is what I cannot stand.”