Bruce Willis dementia diagnosis: Daughter Tallulah reveals ‘I knew something was wrong for a long time’
Bruce Willis’s daughter has revealed how he still recognises her and “lights up” when she enters the room, as loved ones come to terms with his dementia diagnosis.
Tallulah Willis laid bare the impact the Hollywood actor’s illness has had on her family in an essay for Vogue Magazine.
The 29-year-old said she knew “something was wrong for a long time” before the family announced the Die Hard star was suffering from aphasia – a condition affecting the brain which causes speech and language difficulties – leading to his retirement.
She later learned aphasia was a feature of frontotemporal dementia (FTD) – which “chips away at his cognition and behaviour day by day”.
The Pulp Fiction actor – who shares daughters Rumer, Tallulah and Scout with ex-wife Demi Moore – was diagnosed with the progressive neurological disorder in February this year.
Willis wrote the article days after the actor’s wife, model Emma Hemming-Willis, with whom he has two daughters, Mabel, 10, and Evelyn, eight, described the “toll” on her mental health and spoke poignantly about how their time together was precious.
“It started out with a kind of vague unresponsiveness, which the family chalked up to Hollywood hearing loss. ‘Speak up! Die Hard messed with Dad’s ears,'” Willis wrote.
Later, the unresponsiveness “broadened”, she added.
“He still knows who I am and lights up when I enter the room.
“He may always know who I am, give or take the occasional bad day. One difference between FTD and Alzeimer’s dementia is that, at least early in the disease, the former is characterized by language and motor deficits, while the latter features more memory loss.
“I keep flipping between the present and the past when I talk about Bruce: he is, he was, he is, he was. That’s because I have hopes for my father that I’m so reluctant to let go of.”
Bruce and Tallulah Willis pictured at the premiere of The Whole Ten Yards in 2004 Pic: Rex
‘My father’s condition hit me painfully’
Willis admitted she has met her father’s decline in recent years with a “share of avoidance and denial that I’m not proud of” – due to various health issues including anorexia nervosa, depression and being diagnosed with ADHD, which led to rapid weight loss and body dysmorphia.
During her own health battles, the actor was “quietly struggling”, she said.
Recalling a moment when her father’s condition “hit me painfully”, she wrote: “I was at a wedding in the summer of 2021 on Martha’s Vineyard, and the bride’s father made a moving speech.
Bruce Willis in 1999
“Suddenly I realized that I would never get that moment, my dad speaking about me in adulthood at my wedding. It was devastating. I left the dinner table, stepped outside, and wept in the bushes.”
Last spring, Willis saw her weight drop to about 84 pounds (38.1kg).
“The other night, I lay in bed thinking to myself, with an ache in my heart, what if my dad had been his full self and saw me at that size? What would he have done?
“I’d like to think that he wouldn’t have let it happen.
“Whereas my sisters and my mother have these extensive tool kits – lots of psycho-education and interpersonal skills, my dad has never been so interested in root causes, in close examination.
“Maybe he’s a stereotypical father of a certain generation in that way, a doer who, if he had understood, might have scooped me up and said, ‘This is ending now.’
“His style has always been to plug the leak even if he’s not sure why the leak is happening.
“Certainly there are benefits to examination, but there’s a beauty in his way, and I don’t think I noticed it until he was no longer capable of it.”
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Willis is now focused on recovery and her relationship with her father – whose mobility has not been affected by his condition.
“Every time I go to my dad’s house, I take tons of photos of whatever I see, the state of things. I’m like an archaeologist, searching for treasure in stuff that I never used to pay much attention to.
“I have every voicemail from him saved on a hard drive,” she said.
“I find that I’m trying to document, to build a record for the day when he isn’t there to remind me of him and of us.
“These days, my dad can be reliably found on the first floor of the house, somewhere in the big open plan of the kitchen-dining-living room, or in his office.
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“That office has always been a kind of window into what he’s most interested in at any given moment. Recently I found a scrap of paper there on which he had written, simply, ‘Michael Jordan’. I wish I knew what he was thinking. (In any case, I took it!)
“The room is filled with the nick-nacks he has collected: vintage toy cars, coins, rocks, objects made of brass. He likes things that feel heavy in the hand, that he can spin around in his fingers.”
Last month the actor and Moore became grandparents after Rumer announced the birth of her first child, Louetta Isley Thomas Willis.
Donald Trump has said he is considering “taking away” the US citizenship of actress and comedian Rosie O’Donnell, despite a Supreme Court ruling that expressly prohibits a government from doing so.
In a post on Truth Social on Saturday, the US president said: “Because of the fact that Rosie O’Donnell is not in the best interests of our Great Country, I am giving serious consideration to taking away her Citizenship.”
He also labelled O’Donnell, who has moved to Ireland, as a “threat to humanity” and said she should “remain in the wonderful country of Ireland, if they want her”.
O’Donnell responded on Instagram by posting a photograph of Mr Trump with Jeffrey Epstein.
“You are everything that is wrong with America and I’m everything you hate about what’s still right with it,” she wrote in the caption.
“I’m not yours to silence. I never was.”
Rosie O’Donnell moved to Ireland after Donald Trump secured a second term. Pic: AP
O’Donnell moved to Ireland with her 12-year-old son in January after Mr Trump had secured a second term.
She has said she’s in the process of obtaining Irish citizenship based on family lineage and that she would only return to the US “when it is safe for all citizens to have equal rights there in America”.
O’Donnell and the US president have criticised each other publicly for years, in an often-bitter back-and-forth that predates Mr Trump’s move into politics.
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This is just the latest threat by the president to revoke the citizenship of someone he has disagreed with, most recently his former ally Elon Musk.
But the two situations are different as while Musk was born in South Africa, O’Donnell was born in the US and has a constitutional right to American citizenship.
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Amanda Frost, a law professor at the University of Virginia School of Law, said the Supreme Court ruled in a 1967 case that the fourteenth amendment of the constitution prevents the government from taking away citizenship.
“The president has no authority to take away the citizenship of a native-born US citizen,” he added.
“In short, we are nation founded on the principle that the people choose the government; the government cannot choose the people.”
The Salt Path author Raynor Winn’s fourth book has been delayed by her publisher.
It comes amid claims that the author lied about her story in her hit first book. Winn previously described the claims as “highly misleading” and called suggestions that her husband had Moth made up his illness “utterly vile”.
In a statement, Penguin Michael Joseph, said it had delayed the publication of Winn’s latest book On Winter Hill – which had been set for release 23 October.
The publisher said the decision had been made in light of “recent events, in particular intrusive conjecture around Moth’s health”, which it said had caused “considerable distress” to the author and her family.
“It is our priority to support the author at this time,” the publisher said.
“With this in mind, Penguin Michael Joseph, together with the author, has made the decision to delay the publication of On Winter Hill from this October.”
A new release date will be announced in due course, the publisher added.
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Winn’s first book, released in 2018, detailed the journey she and husband took along the South West Coast Path – familiarly known as The Salt Path – after they lost their family farm and Moth received a terminal health diagnosis of Corticobasal Degeneration (CBD).
But a report in The Observer disputed key aspects of the 2018 “true” story – which was recently turned into a film starring Jason Isaacs and Gillian Anderson.
Raynor and husband Moth (centre) with actors Jason Isaacs (L) and Gillian Anderson (R). Pic: Steve Tanner/Black Bear
Experts ‘sceptical of health claims’
As part of the article, published last weekend, The Observer claimed to have spoken to experts who were “sceptical” about elements of Moth’s terminal diagnosis, such as a “lack of acute symptoms and his apparent ability to reverse them”.
In the ensuing controversy, PSPA, a charity that supports people with CBD, cut ties with the couple.
The Observer article also claimed the portrayal of a failed investment in a friend’s business wasn’t true, but said the couple – whose names are Sally and Tim Walker – lost their home after Raynor Winn embezzled money from her employer and had to borrow to pay it back and avoid police action.
Anderson played Winn in a movie about the couple’s journey. Pic: Steve Tanner/Black Bear
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It also said that, rather than being homeless, the couple had owned a house in France since 2007.
Winn’s statement said the dispute with her employer wasn’t the reason the couple lost their home – but admitted she may have made “mistakes” while in the job.
“For me it was a pressured time,” she wrote. “It was also a time when mistakes were being made in the business. Any mistakes I made during the years in that office, I deeply regret, and I am truly sorry.”
She admitted being questioned by police but said she wasn’t charged.
The author also said accusations that Moth lied about having CBD/CBS were false and had “emotionally devastated” him.
“I have charted Moth’s condition with such a level of honesty, that this is the most unbearable of the allegations,” Winn wrote on her website.
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