Thousands of children with special educational needs or disabilities are missing out on the education they are entitled to because of huge delays in the system designed to support them.
A record half a million pupils now have an Education, Health and Care Plan (EHCP) – a legal document setting out a child or young person’s special educational needs, the support they require, and the outcomes they would like to achieve.
The plans must be issued within 20 weeks of being applied for, but analysis of government data by Sky News reveals this deadline is missed in a staggering half of all cases, meaning thousands of children are having to wait.
Councils accuse the government of “losing its grip” on the crisis and have called for more funding to address the soaring demand.
George is due to go to high school next year but cannot read or write.
He has a complex speech disorder that makes it hard for him to learn, and he has been waiting years for a diagnosis to see if he has autism.
The 10-year-old was turned down twice for an EHCP but finally secured one last year. It was meant to give him access to extra help – including support for his speech and learning disorder.
He spent all of his education in a mainstream school until his mother Rachael reluctantly withdrew him because she says the school could no longer meet his needs.
“His plan says he should be getting speech therapy. But he isn’t. Everything on his plan should be provided. That’s the whole point. But he’s not getting it,” she told Sky News.
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Image: Rachael is helping George with his education
In response to this crisis, the government has set out a plan to improve SEND (special educational needs and disabilities) provision – including a pledge to spend more than £2.6bn building more special schools. But the measures will not be rolled out until at least 2025.
In an exclusive interview with Sky News, Education Secretary Gillian Keegan admitted the government’s SEND improvement plan needed time to make an impact.
Asked specifically about George, who is currently not receiving any formal education, Ms Keegan said: “So there isn’t a place for George and George needs a place. That’s why we are putting an extra £2.6bn to build those new places. He will be helped, but he won’t be helped as much as we want to, as quickly as we want to.”
George has not been to school for the last six months, and his mum says he is slipping behind on his education as each day passes.
“I’m actually really sad. I think that George has been let down – not only by the school and local authority, but sometimes I feel like by me,” Rachael told us.
“I’m his mum and I should be able to give him really simple things like an education. And I am struggling to do that.”
Image: Gillian Keegan says George will be helped but not ‘as quickly as we want to’
Rachael has no teaching experience but has turned their living room into a makeshift classroom. She’s been forced to quit her job to educate George.
“There isn’t another option at the moment, but it can’t be a permanent thing. We are a household that is used to two wages and we live in a way that means we need two wages. It’s not doable.”
Rachael is paying for George to access online courses and for educational trips to places like the zoo.
They have applied to four special schools in their local area but have had a rejection letter from all of them. George’s education is on hold.
A spokesman for BMAT Education, which runs George’s primary school, told Sky News they had worked closely with George and his mum since he joined the school aged three.
“Funded education is available [to George] both in school, and remotely, though he is not currently attending,” he said.
“The school … has worked with the local authority and has successfully obtained an Education Health and Care Plan for George. At time of writing, no additional SEND funding has been received.
“We are confident that, with the EHCP in place, the local authority will find the right provision, with the resources, to meet George’s needs.”
Image: Rachael has been taking George to the zoo
Essex County Council has a legal obligation to find George appropriate educational provision.
A spokesperson told Sky News: “It would be inappropriate to comment on individual cases.
“Any concerns raised by parents are dealt with according to our established processes and we are in touch with the family directly.
“Essex County Council is committed to ensuring that every child in the county has the support they need to meet their educational potential, and that they receive all the necessary support and resources to meet any special educational needs or disabilities.”
Councillor Louise Gittins, chair of the Local Government Association’s Children and Young People Board, said: “Councils share the government’s ambition of making sure every child with special educational needs and disabilities gets the high-quality support that meets their needs.
“However, while the measures announced will help to fix some of the problems with the current system, they do not go far enough in addressing the fundamental cost and demand issues that result in councils struggling to meet the needs of children with SEND.”
NHS funding could be linked to patient feedback under new plans, with poorly performing services that “don’t listen” penalised with less money.
As part of the “10 Year Health Plan” to be unveiled next week, a new scheme will be trialled that will see patients asked to rate the service they received – and if they feel it should get a funding boost or not.
It will be introduced first for services that have a track record of very poor performance and where there is evidence of patients “not being listened to”, the government said.
This will create a “powerful incentive for services to listen to feedback and improve patients’ experience”, it added.
Sky News understands that it will not mean bonuses or pay increases for the best performing staff.
NHS payment mechanisms will also be reformed to reward services that keep patients out of hospital as part of a new ‘Year of Care Payments’ initiative and the government’s wider plan for change.
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Speaking to The Times, chief executive of the NHS Confederation Matthew Taylor expressed concerns about the trial.
He told the newspaper: “Patient experience is determined by far more than their individual interaction with the clinician and so, unless this is very carefully designed and evaluated, there is a risk that providers could be penalised for more systemic issues, such as constraints around staffing or estates, that are beyond their immediate control to fix.”
He said that NHS leaders would be keen to “understand more about the proposal”, because elements were “concerning”.
Health Secretary Wes Streeting said: “We will reward great patient care, so patient experience and clinical excellence are met with extra cash. These reforms are key to keeping people healthy and out of hospital, and to making the NHS sustainable for the long-term as part of the Plan for Change.”
In the raft of announcements in the 10 Year Health Plan, the government has said 201 bodies responsible for overseeing and running parts of the NHS in England – known as quangos – will be scrapped.
These include Healthwatch England, set up in 2012 to speak out on behalf of NHS and social care patients, the National Guardian’s Office, created in 2015 to support NHS whistleblowers, and the Health Services Safety Investigations Body (HSSIB).
The head of the Royal College of Nursing described the move as “so unsafe for patients right now”.
Professor Nicola Ranger said: “Today, in hospitals across the NHS, we know one nurse can be left caring for 10, 15 or more patients at a time. It’s not safe. It’s not effective. And it’s not acceptable.
“For these proposed changes to be effective, government must take ownership of the real issue, the staffing crisis on our wards, and not just shuffle people into new roles. Protecting patients has to be the priority and not just a drive for efficiency.”
Elsewhere, the new head of NHS England Sir Jim Mackey said key parts of the NHS appear “built to keep the public away because it’s an inconvenience”.
“We’ve made it really hard, and we’ve probably all been on the end of it,” he told the Daily Telegraph.
“The ward clerk only works nine to five, or they’re busy doing other stuff; the GP practice scrambles every morning.”
Carrie Johnson – the wife of former prime minister Boris Johnson – has revealed she was admitted to hospital with severe dehydration, as she offered advice to other breastfeeding mothers in the hot weather.
Mrs Johnson, 37, posted a picture of herself and her newborn daughter Poppy Eliza Josephine on Friday in a hospital bed.
“Being hospitalised for two nights for severe dehydration was not on my postpartum bingo card,” she captioned the Instagram post.
Mrs Johnson urged other “breastfeeding mums” to make sure they eat and drink enough “in this heat”, especially those who are “clusterfeeding”.
Poppy was born on 21 May, becoming the couple’s fourth child after their son Frank, born in July 2023, daughter Romy, born in December 2021, and son Wilfred, born in April 2020.
Image: Boris Johnson with newborn daughter Poppy Eliza Josephine Johnson. Pic: Carrie Johnson/Instagram
In a separate Instagram story, Mrs Johnson described an “honestly brutal week”.
“Mastitis (me), reflux (her), dehydration (me). What a pair we are!,” she said.
“But thank you for all the kind messages, especially all the brilliant advice on reflux. Really appreciate it and made me feel way less alone going thru (sic) it all. And as ever, thanks to our amazing NHS.”
Image: Carrie and Boris Johnson after his resignation in 2022. Pic: PA
The NHS recommends drinking plenty of fluids while breastfeeding – and avoiding caffeine and alcohol to stop their effects being passed on to the baby.
Having a drink nearby when mothers stop to feed is advised, as is water, lower-fat milk, and low-sugar drinks.
Sir Keir Starmer has said fixing the UK’s welfare system is a “moral imperative” after the government’s U-turn.
The prime minister faced a significant rebellion over plans to cut sickness and disability benefits as part of a package he said would shave £5bn off the welfare bill and get more people into work.
The government has since offered concessions ahead of a vote in the Commons on Tuesday, including exempting existing Personal Independence Payment claimants (PIP) from the stricter new criteria, while the universal credit health top-up will only be cut and frozen for new applications.
Speaking at Welsh Labour’s annual conference in Llandudno, North Wales, on Saturday, Sir Keir said: “Everyone agrees that our welfare system is broken, failing people every day.
“Fixing it is a moral imperative, but we need to do it in a Labour way, conference, and we will.”
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Sir Keir also warned of a “backroom stitch up” between the Conservatives, Reform UK and Plaid Cymru ahead of next year’s Senedd elections.
He said such a deal would mark a “return to the chaos and division of the last decade”.
But opposition parties have hit back at the prime minister’s “imaginary coalitions”, with Plaid Cymru accusing Labour of “scraping the barrel”.
Reform UK said the NHS “isn’t safe in Labour’s hands” and people are “left waiting in pain” while ministers “make excuses”.
Voters in Wales will head to the polls next May and recent polls suggest Labour are in third place, behind Reform and Plaid.
Labour have been the largest party at every Senedd election since devolution began in 1999.
Conservative Party leader Kemi Badenoch has not ruled out making deals with Plaid Cymru or Reform at the Senedd election.
At the conference, the prime minister was joined on stage by Wales Secretary Jo Stevens, First Minister Eluned Morgan and deputy leader of Welsh Labour Carolyn Harries.
He described Baroness Morgan as a “fierce champion for Wales” and “the best person to lead Wales into the future”.
Sir Keir said the £80m transition board to support Port Talbot steelworkers after the closure of the plant’s blast furnaces was a result of “two Labour governments working together for the people of Wales”.
He described Nigel Farage as a “wolf in Wall Street clothing” who has “no idea what he’s talking about” on the issue.
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