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Parents of a three-year-old boy waiting for a multi-organ transplant are attempting to raise £1m so they can seek treatment in the US in a bid to save his life. 

Ralph is one of 230 children in the UK who are in need of a life-saving organ donation, the highest number in almost a decade.

He was diagnosed with liver cancer in January and in May he went into surgery for a liver transplant when doctors decided to abort the procedure because the cancer had spread to his pancreas and bowel too.

He now needs a multi-organ transplant from a child of a similar size.

Children who die are presumed to have opted out from organ donation, unlike adults, and only half of all families of children approached about organ donation say yes. This has led to a shortage of donors, according to NHS Blood and Transplant (NHSBT).

In comparison, the consent rate for child organ donation in the US stands at 75%.

“We’ve been advised that that is our best option to go to America,” said Katie Tatham, Ralph’s mum, speaking to Sky News at her home in Essex.

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“It’s absolutely our last resort. We were really hoping a donor would come up in time in the UK, but unfortunately it hasn’t and we just don’t have the time to wait.

“So we’ve launched a GoFundMe to try to raise £1m to save Ralph’s life.”

Ralph is hoping to fly to the US for a transplant
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Ralph needs a multi-organ transplant from a child of a similar size

Ralph’s parents say more families need to say yes to organ donation.

“There’s so few donors that by saying ‘yes’ you would actually save another child’s life. And we’re not saying definitely do it, but we’re saying think about it in advance because you wouldn’t want to be in a situation where the first time you considered it was at the point of being in the worst situation.”

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Six years ago, a tragic road accident left Loanna Ball’s daughter Keira with life-threatening injuries. Loanna and Keira’s father decided to donate Keira’s organs.

“I can’t believe she isn’t here,” she told Sky News. “It is a rubbish situation to be in. None of us wants to lose our children. Sadly it happens but the thought that actually she’s donating her organs and she’s living on in others is incredible… If we can benefit and support and help other people, why not?”

Kiera and Loanna Bell
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Kiera and Loanna Bell

Max Johnson was the recipient of Keira’s heart. In 2017, the then prime minister Theresa May proposed a new law referred to as Max’s Law to launch an opt-out organ donation system for England.

“The law doesn’t apply to children,” explains Rachel Rowson, head of regional nursing at the NHSBT’s London Organ Donation Team.

“That’s why it’s really important for people to put themselves on the organ donor register and sign up. Regardless of children or adults, when we know somebody has opted into the organ donor register, we have a much higher consent rate.”

For many children waiting for organs such as a heart, lungs or bowel, like Ralph, they will need a transplant from another child who is a similar size to them. NHSBT says only 1% of people currently die in circumstances where organ donation is possible, but each donor who is able to donate has the potential to save up to nine people’s lives.

Daithi was born with a severe heart condition
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Daithi was born with a severe heart condition

In Northern Ireland, the Organ and Tissue Donation (Deemed Consent) legislation is known as Daithi’s Law in honour of six-year-old Daithi MacGabhann who has campaigned for the law change. The 1st of June marked exactly five years from when Daithi was added to the transplant waiting list.

“It’s an up and down rollercoaster,” his father Mairtin MacGabhann told Sky News, describing the wait for that all-important call.

“Daithi was born with a severe heart condition called hypoplastic left heart syndrome, which means that he has half a heart.”

Daithi interrupts: “I’ve been waiting for a long time.”

Daithi’s family hope that paediatric organ donation can “become the norm”.

“Some people may think that it’s a lot to ask but what those people may not understand is it’s the only thing we can ask to see our children. So we want people to have more conversations about paediatric organ donation and hopefully it’ll just become the norm in society.”

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Girl, 12, who died after being found unresponsive at psychiatric unit failed on multiple levels, inquest finds

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Girl, 12, who died after being found unresponsive at psychiatric unit failed on multiple levels, inquest finds

A 12-year-old girl who died after an incident of self-harm was failed on multiple levels, an inquest jury has found.

Warning: This story contains references to self-harm and suicide

Mia Lucas, who died in January 2024, was found unresponsive at an NHS children’s psychiatric unit after developing a rare neurological disorder that had been left undiagnosed.

The jury at Sheffield Coroner’s Court heard the girl was found at the Becton Centre, part of Sheffield Children’s NHS Foundation Trust.

She had been placed there after being sectioned while suffering an “acute psychotic episode” during an assessment at the Queen’s Medical Centre (QMC) in Nottingham.

On Thursday, the jury found that the failure to undertake a lumbar puncture at QMC before her transfer to the Becton Centre “possibly contributed to Mia’s death”.

A lumbar puncture involves a needle being inserted into your lower back to find out if symptoms are caused by a brain or spine condition.

Mia Lucas.
Pic: Family handout/PA
Image:
Mia Lucas.
Pic: Family handout/PA

The jury also said there was a failure at the Becton Centre to respond adequately to Mia’s risk of self-harm.

Professor Marta Cohen told the jury Mia’s cause of death was “compression of the neck” but she had now added that this was caused by “acute psychosis”, which was caused by “autoimmune encephalitis”, an inflammation of the brain that can cause extreme psychiatric symptoms and is treatable.

The autoimmune encephalitis diagnosis emerged during the nine-day inquest after a pathologist revealed she had received new post-mortem results.

The revelation prompted shock in the courtroom and tears from Mia’s family members in the public gallery.

The condition was described as “complex and rare”, according to consultant paediatric neurologist Mike Taylor.

He added that there was a low level of suspicion Mia had it, while being assessed at QMC, and told the court that experts had to consider the very severe treatment side effects, which included death.

Mia’s mother, Chloe Hayes, told Sky News she was unhappy at how the Becton Centre had supervised her daughter.

Mia Lucas (right), with her mother Chloe. Pic: Family handout/PA
Image:
Mia Lucas (right), with her mother Chloe. Pic: Family handout/PA

“All they had to do was watch her. I actually never got told the truth about the attempts that Mia made [to self-harm] until after she died,” she said.

“If I’d have known the truth I wouldn’t have left Mia there. And I think she had so much to live for. I don’t think she knew what she was doing.”

In a statement, Mrs Hayes added that she wanted people to know her daughter’s extreme behaviour was only evident in the final few weeks of her life.

“For the other 12 years, she was a beautiful soul who loved life and loved her family, and that’s how we want her to be remembered,” she said, describing Mia as a “happy, fun, friendly girl who had so much to live for.”

NHS Trusts apologise for Mia’s death

In a statement, Dr Manjeet Shehmar, medical director at Nottingham University Hospitals NHS Trust, offered “heartfelt condolences to Mia’s family for the loss of their daughter”.

She continued: “We accept the coroner’s outcome in court today and apologise to Mia’s family for not identifying autoimmune encephalitis while she was in our care. While this is an incredibly rare condition and initial tests were negative, we recognise that further testing may have had an impact on her future, for which we are truly sorry.”

Dr Shehmar said that in future cases of suspected possible autoimmune encephalitis, a lumbar puncture will be performed.

The trust will also “strengthen training and guidance for staff internally and review current published evidence of acute psychotic episodes in children and young people”.

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Pic: Family handout/PA
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Pic: Family handout/PA

Dr Jeff Perring, executive medical director at Sheffield Children’s NHS Foundation Trust, said: “Our thoughts are with Mia’s family and everyone who is grieving her loss in such tragic circumstances.

“We are deeply sorry for Mia’s death and recognise the profound impact this has had on those who loved her.”

The trust has carried out a thorough review of Mia’s care and made “significant changes” at the Becton Centre, he added.

“We will continue to work with children, young people, their families and carers to listen to, learn and take action from their experiences.

“The inquest has been important to understand fully the circumstances surrounding Mia’s death. We will now carefully reflect on the evidence heard and the coroner’s conclusions to ensure we continue to provide safe and compassionate care.”

Anyone feeling emotionally distressed or suicidal can call Samaritans for help on 116 123 or email jo@samaritans.org in the UK. Alternatively, you can call Mind’s support line on 0300 102 1234, or NHS on 111.

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Budget 2025 is a big risk for Labour’s election plans

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Budget 2025 is a big risk for Labour's election plans

Day two after a budget is always an important moment.

This is when the nerds and boffins of Britain’s fiscal thinktanks assemble to deliver their snap verdict on the chancellor’s decisions.

The moment is more important than ever when, as was certainly the case this time, the budget is a big one.

So what did the Institute for Fiscal Studies (IFS) and the Resolution Foundation make of this year’s budget?

Well, as you’d probably expect, they both fell short of distilling it into a single soundbite, but in broad terms, they both sounded somewhat positive.

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Yes, there were plenty of big provisos. The head of the IFS, Helen Miller, said Labour have broken their manifesto pledge not to raise National Insurance.

More on Budget 2025

The Resolution Foundation argued that if only the chancellor had raised the basic rate of income tax instead of freezing personal allowances, it would have made the tax rise considerably fairer and more progressive.

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Treasury minister vs Ed Conway

And that’s before one gets into the criticism of some of the other bits and pieces from the red book – the structure of the EV tax, for instance (why doesn’t it try to penalise congestion?), or of the mansion tax (why not just overhaul council tax altogether?).

But for the most part, these closely-followed institutions seemed pretty supportive of this year’s budget – more so, certainly, than they were last year.

Primarily, that’s because while the last budget left only a very thin bit of headroom against Rachel Reeves’s fiscal rules, this one was far more cautious, doubling that fiscal insurance policy to just over £21bn.

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Beth Rigby challenges Sir Keir Starmer over the budget

Yet that headroom is dependent on a couple of important factors. First, that the government will hold to its promises to keep spending growth constrained towards the end of the decade. Second, that it will be able to raise all the tax revenues it’s promising in that year.

That, in turn, gets to a deeper issue with the budget. Most of the tough stuff has been put off to the final year of the forecast – namely 2029.

That year, the government will face a squeeze at the very same moment that Britons are all asked to pay more in taxes.

And, critically, that’s the very year Labour is due to face a general election. Does it really plan to fight an election off the back of a contracting economy?

Consider, too, that for all the government’s promises to get living standards growing this parliament, they are currently only forecast to rise at the slowest rate since the 1950s – save for the pandemic and energy price shock period. The economic backdrop, in other words, is hardly rosy.

Still, for the time being, the chancellor has managed to put together a budget that has bolstered her position both in her party and in her job.

Markets remain relatively sanguine – much more so than after Rachel Reeves’s first budget last year – with bond yields lower today than before the event (albeit a little higher than yesterday).

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However, this was a complex budget. And, as with all bits of complex engineering, there remains a distinct possibility of large chunks of the budget failing to work.

But since so much of it isn’t due to kick in for a few years, it may take quite a while before we find out which bits work and which, if any, don’t.

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Man arrested at Manchester airport in connection with attack at Heaton Park synagogue

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Man arrested at Manchester airport in connection with attack at Heaton Park synagogue

A man has been arrested at an airport as part of the investigation into the terrorist attack at a Manchester synagogue.

The 31-year-old was detained at Manchester Airport on suspicion of the commission, preparation and instigation of acts of terrorism after arriving on an inbound flight, police said.

It brings the total number of people arrested in connection with the incident at Heaton Park Hebrew Congregation Synagogue to seven.

Jihad al Shamie launched the attack at the synagogue in Crumpsall on 2 October, driving his car at worshippers gathering on the Jewish holy day of Yom Kippur, before attacking others with a knife and trying to storm inside.

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Manchester synagogue terrorist: what we know now

Armed police shot al Shamie after he ran towards officers “aggressively” while carrying a knife and what police feared was an explosive device – later identified as a fake.

Worshippers Melvin Cravitz, 66, and Adrian Daulby, 53, were killed, with Mr Daulby being described as a “quiet hero” who leapt from his seat to block the doors of the synagogue as it came under attack.

Adrian Daulby, left, and Melvin Cravitz. Pics: Family handout/Greater Manchester Police
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Adrian Daulby, left, and Melvin Cravitz. Pics: Family handout/Greater Manchester Police

He died from a single gunshot wound to the chest fired by an armed police officer, while father-of-three Mr Cravitz died from multiple knife wounds inflicted by al Shamie, an inquest at Manchester Coroner’s Court heard in October.

The inquests into the deaths of both men have been adjourned until February next year.

Three other men were treated in hospital for serious injuries. Two have since been released, police said on Thursday.

The deadly attack rocked the local community. Pic: PA
Image:
The deadly attack rocked the local community. Pic: PA

An inquest into the death of al Shamie, a Syrian-born UK citizen, heard he was identified by his fingerprints and evidence, including his car, phone and inquiries with his immediate family in the aftermath of the attack.

At the hearing in October, Judge Alexia Durran, the chief coroner of England and Wales, said her provisional findings were that al Shamie died of gunshot wounds.

The Independent Office for Police Conduct found no misconduct in the police response.

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Synagogue attacker died of gunshot wounds

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In a statement on Thursday, Assistant Chief Constable Rob Potts, from Counter Terrorism Policing North West, said: “The loved ones of Mr Daulby and Mr Cravitz have been updated on this development, as have those who were seriously injured in the attack.

“Our investigation is continuing, and I would once again appeal for anyone with information that they think could assist our enquiries to please come forward.”

Police also said a 30-year-old man arrested on 9 October on suspicion of failing to disclose information contrary to S38B of the Terrorism Act 2000 remains on bail.

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