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A national shortage of epilepsy medication is putting patients’ safety at risk, consultants have said.

Medical professionals are becoming genuinely concerned as ever more frequent supply issues continue to bite tens of thousands of sufferers.

According to the Epilepsy Society charity, over 600,000 people in the UK have the condition, or about one in every 100 people.

Among them is Charlotte Kelly, a mother of two living in London who has had epilepsy for over 20 years. She must take two tablets a day to manage her condition but issues with supply have forced her to start rationing her medication.

Speaking to Sky News, Ms Kelly told us of the fear surrounding the restricted access to the medicate she needs to survive.

“I’m scared. If I’m truly honest, I’m scared knowing that I might not get any medication for a few weeks, or a couple of months, I just don’t know when.

“It’s scary to know that I have to worry about getting hold of medication. I do believe that something needs to happen very quickly because even if it’s pre-ordered there’s no guarantee you’re going to get it.

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“The anxiety of worrying about if you’re going to get your medication builds up and the worry alone can cause seizures.”

It’s added worry knowing her chances of having seizures increases her reliance on her 14-year-old daughter who often has to make the 999 calls to get help for her mum.

She was due to get a renewed supply in December to get her through the next two months.

But there’s no guarantee of when any of it will next be in stock.

“I get very, very frustrated. There’s times when I’ve had to call five, six different pharmacies and the more you’re calling, and you’re not hearing what you need to hear.

“You’re getting more and more frustrated and then you’re getting upset and it’s like where do we stand? Epilepsy is a very, very, very common condition.

“Over 600,000 people in the UK alone, have epilepsy. And when but yet we feel like we are just a hidden condition.

“People just don’t understand that if I don’t have my medication I could have multiple seizures, and that could lead to hospitalisation, and at worst case, death.”

What is epilepsy?

Epilepsy is a condition that affects the brain and causes frequent seizures.

It can start at any age, but usually starts in childhood or in people over 60.

Seizures are bursts of electrical activity in the brain that temporarily affect how it works. They can cause a wide range of symptoms.

Symptoms include:

• uncontrollable jerking and shaking, known as a “fit”

• losing awareness

• becoming stiff

• strange sensations, such as a “rising” feeling in the belly, unusual smells or tastes, and a tingling feeling in your limbs

• collapsing

Seizures can be triggered in numerous ways including flashing lights, sleep deprivation, misuse of drugs or missing medications.

The condition affects more than 600,000 people in the UK.

Kay Dhillon, a pharmacist in west London, showed me the near-empty cubby hole and cupboard which is usually full of epilepsy medication as she told Sky News she started noticing products were flagging and being out of stock three weeks ago.

She describes it now as being at crisis point.

London pharmacist Kay Dhillon
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London pharmacist Kay Dhillon

“It is a crisis. You don’t know how many epilepsy fits or tablets the person can have or how severe their epilepsy is. Because obviously, they’ve been taking it every single day for so many years and it just stops one day, or even if they miss a dose, it’s a big deal.”

Ms Dhillon says she has been given no indication of when the drugs will be back in stock.

She says she’s been managing so far by helping patients access resources shared between four pharmacy branches but says everyone’s supplies are running low.

“It seems like it’s a manufacturing issue. Obviously, patients are asking – how can you not know when it will be back in stock?

“It’s a shame because patients rely on you for this and they shouldn’t have to go looking around for their daily medication.”

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Speaking to Sky News, Professor Ley Sander, director of medical services at the Epilepsy Society, says the supply concern is not just on the minds of patients but those in the industry too.

“It might be that we need a strategic reserve for storage of drugs, we might have to bring drugs over from other parts of the world to avoid this from recurring.

“We’re not at that point yet, but this is an urgent issue.”

In a statement provided to Sky News, a Department of Health and Social Care spokesperson said: “We understand how frustrating and distressing the possibility of medication shortages can be and are aware of supply issues with the epilepsy medicine carbamazepine. These have been communicated to the NHS, with information and advice provided on how to manage patients affected by these issues.

“The department is working closely with suppliers, NHS England, the Medicines and Healthcare products Regulatory Agency, the devolved governments and other stakeholders to ensure patients continue to have access to the treatments they need. Through this work, problems with carbamazepine should be resolved by early February.”

It is those like Charlotte who are left bearing the brunt till then.

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Family of man killed by psychiatric patient say they’ve been ‘treated like dirt’ after learning attacker can leave hospital

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Family of man killed by psychiatric patient say they've been 'treated like dirt' after learning attacker can leave hospital

The family of a dog walker killed by a psychiatric patient say they have been ‘treated like dirt’ by the NHS after learning his attacker has been granted permission to leave hospital.

Lewis Stone was stabbed to death by David Fleet in a random attack in Borth, Wales, in 2019, shortly after Mr Fleet had been released into the community.

Mr Stone’s family were informed of the update to his care just hours after Sky News aired their first TV interview calling for an internal NHS Trust report into its handling of Fleet’s case to be released.

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From 10 April: Victim’s family demand answers over killer’s NHS care

Mr Stone’s stepdaughter, Vicki Lindsay, told Sky News: “As victims, we have been treated disgracefully.

“We still do not know why the killer was released 10 days before he attacked Lewis, who made that decision and why, and who is going to be held accountable for it.

“But as if all that were not bad enough, only six years on, we now get to live knowing that the killer is now allowed out at night time.”

Ms Lindsay also told Sky’s Sarah-Jane Mee that “my biggest fear is that it’s going to happen again – I can’t sleep at night thinking about other families going through what we’ve gone through”.

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Mr Fleet was sectioned under the Mental Health Act after admitting manslaughter with diminished responsibility.

He was suffering from paranoid schizophrenia at the time of the attack and told psychiatrists that if he had not stabbed Mr Stone, the voices in his head “were going to kill him”.

Lewis Stone and his wife Elizabeth (Liz)
Lewis Stone was fatally stabbed on 28 February 2019 by David Fleet, has been sectioned under the Mental Health Act after admitting manslaughter with diminished responsibility. Lewis' family are demanding Hywel Dda health board reveals details of internal NHS Trust report into Fleet's mental health treatment. Pics sourced from family via mark.thompson@sky.uk
Image:
Lewis Stone was fatally stabbed in February 2019

Patients who have committed a mental health-related homicide can be granted permission to leave their hospital under Section 17 of the Mental Health Act.

It is considered part of the patient’s rehabilitation and preparation for eventual discharge.

What has the MoJ said?

A Ministry of Justice spokesperson said: “We understand this decision will be difficult for the Stone family, and our thoughts are with them.

“Any decision to approve access to the community is only made after a thorough risk assessment and with strict safeguards in place.”

Lewis Stone and Sammy (Granddaughter) , 
Lewis Stone was fatally stabbed on 28 February 2019 by David Fleet, has been sectioned under the Mental Health Act after admitting manslaughter with diminished responsibility. Lewis' family are demanding Hywel Dda health board reveals details of internal NHS Trust report into Fleet's mental health treatment. Pics sourced from family via mark.thompson@sky.uk
Image:
Lewis Stone with his granddaughter Sammy

The Hywel Dda health board says it does not intend to release an internal report into Fleet’s care.

Sharon Daniel, the interim executive director for nursing, quality and patient experience, said: “The duty of candour for patients came into force in Wales in April 2023.

“At the time of this incident and concern, we fulfilled our duties to be open.”

A senior NHS official has called the decision not to release the internal report “callous and uncaring”. Speaking on condition of anonymity, they said: “On the face of it, this family has been failed multiple times over.

“Of course, there is a balance to be struck between the rights of the family and the rights of the person detained, but the basic lack of transparency and consideration here undermines the duty of candour.”

Freedom of Information requests made by the victim’s support organisation Hundred Families have found that nearly 400 people were killed by former mental health patients between 2018 and 2023.

However, this number is expected to be a significant underestimate as a quarter of NHS Mental Health Trusts refused to say how many of their patients went on to kill, as they don’t want to risk identifying offenders.

Read more from Sky News:
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Julian Hendy, who founded Hundred Families, said: “Unfortunately the family of Lewis Stone is not alone. There is a terrible lack of openness and transparency and that needs to change.

“The public needs to know that mental health services are keeping people safe and learning effectively when things go wrong.

“At the moment, by failing to share information the public cannot be reassured.”

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Manchester van driver ‘took 20 lines of coke’ before killing toddler in crash

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Manchester van driver 'took 20 lines of coke' before killing toddler in crash

A van driver who killed a three-year-old girl in a crash had taken “at least 20 lines of cocaine”, a court has heard.

Rawal Rehman, 35, of Lambton Road, Manchester, was driving on Mosley Street on 22 February when he collided with a tram.

He then hit Louisa Palmisano – known as Lulu – while she was walking with her parents, and fled the scene at around 10am before later being arrested.

The three-year-old girl died from her injuries in hospital.

On Tuesday, Rehman pleaded guilty to causing death by dangerous driving in his Mercedes Sprinter van.

Prosecutor Rachel Shenton told Manchester Crown Court that he had visited two massage parlours in the city hours before.

She added he had taken “at least 20 lines of cocaine” in seven hours.

Judge Alan Conrad KC heard it was the prosecution’s case that Rehman’s drug consumption adversely affected his driving.

The Crown Prosecution Service (CPS) said in a statement that Rehman ignored stop signs and gave the tram driver no time to react before it struck the side of the van, which then mounted the pavement.

Abbie Clarke, senior crown prosecutor for CPS North West, said: “It is clear his driving fell far short of what is expected of a competent and careful driver.

“Rehman failed to take responsibility for his actions. He fled the scene in a taxi and denied that he drove dangerously in interview, only accepting responsibility on his third hearing before the court.

“He must now face the consequences for his role in this wholly avoidable tragedy.”

Read more from Sky News:
Harvard sues Trump over $2.2bn freeze
Details of Pope’s funeral announced

Rehman was previously jailed in 2017 for conspiracy to pervert the course of justice by burning a car involved in a fatal hit-and-run collision, which killed a 25-year-old man in Chorlton.

He has been remanded in custody until sentencing on 27 May.

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UK economy will be among hardest hit by global trade war, IMF warns

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UK economy will be among hardest hit by global trade war, IMF warns

Britain’s economy will be among the hardest hit by the global trade war and inflation is set to climb, the International Monetary Fund (IMF) has warned – as it slashed its UK growth forecast by a third.

In a sobering set of projections, the Washington-based organisation said it was grappling with “extremely high levels of policy uncertainty” – and the global economy would slow even if countries manage to negotiate a permanent reduction in tariffs from the US.

Echoing earlier warnings about the risks to the global financial system, the IMF said stock markets could fall even more sharply than they did in the aftermath of Donald Trump‘s “Liberation Day” tariffs announcement, when US and UK indices recorded some of their largest one-day falls since the pandemic.

It comes as Chancellor Rachel Reeves prepares to meet her US counterpart Scott Bessent at the IMF’s spring gathering in Washington this week.

She is hoping to negotiate a reduction to the 10% baseline tariff the US president has applied to all UK goods. Steel, aluminium and car exports face an additional 25% tariff.

Money latest: Trump’s ‘major loser’ attack on Fed chair sparks market alarm

HARD TO SEE A WIN FOR REEVES AHEAD


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Gurpreet Narwan

Business and economics correspondent

@gurpreetnarwan

As long as the world’s two largest economies are at war with each other, there will be considerable spillovers. The US and China account for 43% of the global economy.

If demand in either nation slows, that has ripple effects across the world. Tariff or no tariff, exporters to those markets will be hurt.

If China redirects its goods elsewhere, that could hurt domestic industries – jobs could be at stake.
US and Chinese investors might hit pause on global projects and stock market devaluations could hurt consumer confidence. Things could unravel quickly.

Against that backdrop, it is difficult to say with any certainty what would happen to the UK but, even if we find a way to sweet talk our way out of tariffs, the dark clouds of the global economy are moving in every direction.

Britain is an open and highly trade-sensitive economy (we have a trade-to-GDP ratio of around 65%) and global spillovers will rain on us.

Then there are the spillovers from the financial markets. The IMF warned that rising government borrowing costs were weighing on economic growth.
While rising UK bond yields are, in part, a reflection of investor unease over the UK’s growth and inflation outlook, they also reflect anxiety over the US trajectory.

It’s worth bearing all of this in mind if Chancellor Rachel Reeves emerges from her trip to Washington with a deal.

The Treasury would no doubt celebrate the achievement. After all, a reduction in tariffs could make a big difference to some industries, especially our car manufacturers who are currently grappling with a 25% levy on goods to their largest export market. However, it would not solve our problems.

In fact, it would barely make a difference to our overall GDP. Back in 2020, the government estimated that a free trade deal with the US would boost the UK economy by just 0.16% over the next 15 years.

And overall GDP does matter. The chancellor desperately needs economic growth to support the country’s ailing public finances (when the economy grows, so do government tax receipts).

She will know better than most that the prize the US has to offer is comparatively small, so she should weigh up the costs of any deal carefully.

The IMF presented a range of forecasts in its latest World Economic Outlook. Its main case looked at the period up to 4 April, after Mr Trump announced sweeping tariffs on countries across the world, ratcheting up US protectionism to its highest level in a century.

If the president were to revert to this policy framework, global growth would fall from 3.3% last year to 2.8% this year, before recovering to 3% in 2026.

In January, the IMF was predicting a rate of 3.3% for both years.

IMF

Nearly all countries were hit with downgrades, with the US expected to grow by just 1.8% this year, a downgrade of 0.9 percentage points.

Mexico was downgraded by 1.7 percentage points, while China and Canada are forecast to slow by 0.6 percentage points and Japan by 0.5 percentage points.

The UK economy is expected to grow by just 1.1% this year, down 0.5 percentage points from the 1.6% the IMF was predicting in January. Growth picks up to 1.4% next year, still 0.1 percentage points lower than the January forecast.

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Will tariffs hit UK growth?


Along with recent tariff announcements, the IMF blamed the UK’s poor performance on a rise in government borrowing costs, which has in part been triggered by growing unease among investors over the fate of the US economy.

When borrowing costs rise, the chancellor has to rein in public spending or raise taxes to meet her fiscal rules. That can weigh on economic growth.

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Trump: Tariffs are making US ‘rich’

It also pointed to problems in the domestic economy, mainly “weaker private consumption amid higher inflation as a result of regulated prices and energy costs”.

In a blow to the chancellor, the IMF warned that the UK would experience one of the largest upticks in inflation because of utility bill increases that took effect in April.

It upgraded its inflation forecast by 0.7 percentage points to 3.1% for 2025, taking it even higher above the Bank of England’s 2% target and deepening the dilemma for central bankers who are also grappling with weak growth.

Read more:
Can Reeves come up trumps in Washington?
Trump’s tariffs to have major global impact

Meanwhile, inflation in the US is likely to jump one percentage point higher than previously forecast to 3% in 2025 on the back of higher tariffs.

The IMF forecast period ended on 4 April. That was before the US president paused his reciprocal tariffs on countries across the world while ratcheting up levies on China.

In a worrying sign for finance ministers across the world, as they attempt to negotiate a deal with the US administration, the IMF said the global economy would slow just the same if Mr Trump were to make his temporary pause on reciprocal tariffs permanent.

That is because higher tariffs between the US and China, which together account for 43% of the global economy, would have spillover effects on the rest of the world that offset the benefits to individual countries.

“The gains from lower effective tariff rates for those countries that were previously subject to higher tariffs would now be offset by poorer growth outcomes in China and the United States – due to the escalating tariff rates – that would propagate through global supply chains,” the IMF said.

In response, Chancellor Rachel Reeves said:

“This forecast shows that the UK is still the fastest-growing European G7 country. The IMF have recognised that this government is delivering reform which will drive up long-term growth in the UK, through our plan for change.

“The report also clearly shows that the world has changed, which is why I will be in Washington this week defending British interests and making the case for free and fair trade.”

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