Running her fingers over her scan for the first time, Karen Trippass could feel straight away that her unborn baby had her husband’s nose.
Born with bilateral coloboma, a rare condition also known as cat-eye syndrome, she never thought she would experience this pregnancy milestone in the same way that sighted expectant mums do, the excitement of seeing the shifting black and white shapes of a growing embryo appearing on screen for the first time.
It was something she missed out on while pregnant with her eldest daughter, Phoebe, 10 years ago. Questioned by medical staff and social workers on her ability to care for a newborn at that time, Karen says being visually impaired meant she was treated differently and she suffered from depression, finding it difficult to bond with her baby before her birth.
Image: Karen’s raised baby scan helped her ‘see’ her unborn daughter while she was pregnant. Pic: World Unseen
This time round, she was able to “meet” her baby through her 29-week ultrasound thanks to technology that creates a raised image, providing a tactile feel of her child wriggling in her womb. She says having this, and also being able to hear the heartbeat, helped her feel more connected.
Karen’s second daughter, Ruby, is now eight weeks old, and her scan hangs up at their home in Surrey.
“The first thing I remember noticing was her nose,” she says. “She’s got my husband’s nose. I could feel the top of her head, her nose, the dip of her eyes… I’ll always treasure it.
Image: Pic: World Unseen
“Both my babies are IVF, it took us a long time to get there. So the whole thing’s emotional anyway, but then getting to see your baby like everybody else does… I just hope that every visually impaired woman who has a baby could get that opportunity.
“I don’t expect the NHS to be rolling it out, but even if you had to pay a minimal charge, I think a lot of people would prefer it. I just think it’s amazing, the concept of having family pictures from now on would be pretty cool.”
According to the NHS, there are more than two million people living with sight loss in the UK, with around 340,000 registered as blind or partially sighted.
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Karen’s scan of Ruby was created by camera firm Canon, and is being featured as part of its new World Unseen exhibition, launched in partnership with the Royal National Institute of Blind People (RNIB) – “the photography exhibition you don’t need to see”.
Image: The World Unseen exhibition features photos paired with braille, elevated images and audio descriptions. Pic: World Unseen/Canon
Designed completely with the experience of blind and partially sighted people in mind, the exhibition features a series of pictures taken by world-renowned photographers, some who are visually impaired, accompanied with elevated prints, audio descriptions, soundscapes and braille.
For sighted people, traditional images are obscured in different ways to convey different types of visual impairment, from glaucoma to diabetic retinopathy. It is an insight into the difficulties faced by blind and partially sighted people, a challenge to see life through their lens, and a reminder of the vision those of us with sight rely on and take for granted every day.
At the launch event, even the canapes play with your senses – we are encouraged to put on headphones playing sounds of the sea, a scent spray filling the air with salt and vinegar, as fish and chip nibbles are presented.
Image: Pic: World Unseen/Canon
Among the photographers whose work is featured is Ian Treherne, from Essex, who is known as the Blind Photographer. Born with the condition RP Type 2 Usher Syndrome, he has been deaf since birth and over the years has lost almost 95% of his sight.
“I hid my blindness for years,” he says. “I acted as a sighted person for a very long time. When I was growing up, disability was a very, awkward, difficult topic. Only my close friends knew about it. Then in my 30s, I sort of ‘came out’ as a blind person and it’s done me the world of good to be open and honest about it. And I think by doing photography and working alongside other people with disabilities, you can really improve the bigger picture among the general public.”
Image: Pic: World Unseen/Canon
Ian says he has always been creative and photography allowed him to capture moments in time as he was losing his sight. But there was also a rebelliousness behind his desire to get behind the camera.
“I knew that doing photography and being blind was going to hurt some minds, hurt some brains,” he says. “I knew it would raise some questions.”
So he taught himself, practising with his camera and researching on the internet. “With the condition I’ve got, I have to work probably 10, 20 times harder than a fully sighted person,” he says.
“It’s all a learning curve. I think that’s really the biggest boundary in society, it’s changing the mindsets, or adjusting the mindsets. I think people are sometimes just afraid to ask the question.”
Image: These images of Lioness Chloe Kelly’s Euro 2022 final goal are obscured to show how a person with a visual impairment might see them. Pic: World Unseen/Canon
The World Unseen exhibition feature works from world-renowned photographers and Canon ambassadors from around the globe, including Brazilian photojournalist Sebastião Salgado, Nigerian photojournalist Yagazie Emezi, sports photographer Samo Vidic, fashion photographer Heidi Rondak, and Pulitzer-winning photojournalist Muhammed Muheisen.
A photograph from Kenya of the last male northern white rhino, taken by award-winning South African photojournalist Brent Stirton, also features. You can feel the roughness, every groove of the animal’s skin, as you run your fingers over the elevated image.
Photographs of Lioness Chloe Kelly’s decisive goal in the Euro 2022 final at Wembley, by Marc Aspland, are also on display, with an audio description reliving the moment of the win.
But Ruby, of course, is the star of the show, cradled by her mum in front of her scan. “It’s funny to think of people feeling Ruby’s picture but I love the idea that quite a lot of visually impaired people will feel what a scan picture is like, because I didn’t know what to expect,” Karen says.
“To have this memory, this opportunity to ‘see’ – I say see, or feel – my baby before she was born was awesome. And to have a record of it and get to show Ruby when she’s older, it’s so special.”
The World Unseen exhibition has opened at Somerset House, in central London, and runs over the weekend
NHS funding could be linked to patient feedback under new plans, with poorly performing services that “don’t listen” penalised with less money.
As part of the “10 Year Health Plan” to be unveiled next week, a new scheme will be trialled that will see patients asked to rate the service they received – and if they feel it should get a funding boost or not.
It will be introduced first for services that have a track record of very poor performance and where there is evidence of patients “not being listened to”, the government said.
This will create a “powerful incentive for services to listen to feedback and improve patients’ experience”, it added.
Sky News understands that it will not mean bonuses or pay increases for the best performing staff.
NHS payment mechanisms will also be reformed to reward services that keep patients out of hospital as part of a new ‘Year of Care Payments’ initiative and the government’s wider plan for change.
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Speaking to The Times, chief executive of the NHS Confederation Matthew Taylor expressed concerns about the trial.
He told the newspaper: “Patient experience is determined by far more than their individual interaction with the clinician and so, unless this is very carefully designed and evaluated, there is a risk that providers could be penalised for more systemic issues, such as constraints around staffing or estates, that are beyond their immediate control to fix.”
He said that NHS leaders would be keen to “understand more about the proposal”, because elements were “concerning”.
Health Secretary Wes Streeting said: “We will reward great patient care, so patient experience and clinical excellence are met with extra cash. These reforms are key to keeping people healthy and out of hospital, and to making the NHS sustainable for the long-term as part of the Plan for Change.”
In the raft of announcements in the 10 Year Health Plan, the government has said 201 bodies responsible for overseeing and running parts of the NHS in England – known as quangos – will be scrapped.
These include Healthwatch England, set up in 2012 to speak out on behalf of NHS and social care patients, the National Guardian’s Office, created in 2015 to support NHS whistleblowers, and the Health Services Safety Investigations Body (HSSIB).
The head of the Royal College of Nursing described the move as “so unsafe for patients right now”.
Professor Nicola Ranger said: “Today, in hospitals across the NHS, we know one nurse can be left caring for 10, 15 or more patients at a time. It’s not safe. It’s not effective. And it’s not acceptable.
“For these proposed changes to be effective, government must take ownership of the real issue, the staffing crisis on our wards, and not just shuffle people into new roles. Protecting patients has to be the priority and not just a drive for efficiency.”
Elsewhere, the new head of NHS England Sir Jim Mackey said key parts of the NHS appear “built to keep the public away because it’s an inconvenience”.
“We’ve made it really hard, and we’ve probably all been on the end of it,” he told the Daily Telegraph.
“The ward clerk only works nine to five, or they’re busy doing other stuff; the GP practice scrambles every morning.”
A haul of cocaine worth nearly £100m has been seized at a UK port, authorities say.
The haul, weighing 2.4 tonnes, was found under containers on a ship arriving from Panama at London Gateway port in Thurrock, Essex.
It had been detected earlier this year after an intelligence-led operation but was intercepted as it arrived in the UK this week.
With the help of the port operator, 37 large containers were moved to uncover the drugs, worth an estimated £96m.
The haul is the sixth-largest cocaine seizure in UK history, according to Border Force.
Its maritime director Charlie Eastaugh said: “This seizure – one of the largest of its kind – is just one example of how dedicated Border Force maritime officers remain one step ahead of the criminal gangs who threaten our security.
“Our message to these criminals is clear – more than ever before, we are using intelligence and international law enforcement cooperation to disrupt and dismantle your operations.”
Container ships are one of the main ways international gangs smuggle Class A drugs into the UK, Mr Eastaugh said.
Cocaine deaths in England and Wales increased by 31% between 2022 and 2023, according to the latest Home Office data.
Elsewhere this weekend, a separate haul of 170 kilos of ketamine, 4,000 MDMA pills, and 20 firearms were found on a lorry at Dover Port in Kent.
Image: One of the 20 firearms found at Dover Port. Pic: NCA
Experts estimate the ketamine’s street value to be £4.5m, with the MDMA worth at least £40,000.
The driver of the lorry, a 34-year-old Tajikistan national, was arrested at the scene on suspicion of smuggling the items, the National Crime Agency said.
Sir Keir Starmer has said fixing the UK’s welfare system is a “moral imperative” after the government’s U-turn.
The prime minister faced a significant rebellion over plans to cut sickness and disability benefits as part of a package he said would shave £5bn off the welfare bill and get more people into work.
The government has since offered concessions ahead of a vote in the Commons on Tuesday, including exempting existing Personal Independence Payment claimants (PIP) from the stricter new criteria, while the universal credit health top-up will only be cut and frozen for new applications.
Speaking at Welsh Labour’s annual conference in Llandudno, North Wales, on Saturday, Sir Keir said: “Everyone agrees that our welfare system is broken, failing people every day.
“Fixing it is a moral imperative, but we need to do it in a Labour way, conference, and we will.”
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Sir Keir also warned of a “backroom stitch up” between the Conservatives, Reform UK and Plaid Cymru ahead of next year’s Senedd elections.
He said such a deal would mark a “return to the chaos and division of the last decade”.
But opposition parties have hit back at the prime minister’s “imaginary coalitions”, with Plaid Cymru accusing Labour of “scraping the barrel”.
Reform UK said the NHS “isn’t safe in Labour’s hands” and people are “left waiting in pain” while ministers “make excuses”.
Voters in Wales will head to the polls next May and recent polls suggest Labour are in third place, behind Reform and Plaid.
Labour have been the largest party at every Senedd election since devolution began in 1999.
Conservative Party leader Kemi Badenoch has not ruled out making deals with Plaid Cymru or Reform at the Senedd election.
At the conference, the prime minister was joined on stage by Wales Secretary Jo Stevens, First Minister Eluned Morgan and deputy leader of Welsh Labour Carolyn Harries.
He described Baroness Morgan as a “fierce champion for Wales” and “the best person to lead Wales into the future”.
Sir Keir said the £80m transition board to support Port Talbot steelworkers after the closure of the plant’s blast furnaces was a result of “two Labour governments working together for the people of Wales”.
He described Nigel Farage as a “wolf in Wall Street clothing” who has “no idea what he’s talking about” on the issue.
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