Parents of two children who were in end-of-life cases have called on the UK’s highest court to allow them to name the doctors involved.
Six-year-old Zainab Abbasi and 12-month-old Isaiah Haastrup were at the centre of life-support treatment disputes before their deaths in 2019 and 2018 respectively.
Both families say they disagreed with decisions made by doctors at the time, but court orders have prevented them from naming the doctors in the childrens’ care indefinitely.
The parents gathered on Monday at the Supreme Court in London as five judges consider allowing the names to be made public.
Speaking outside court about the disputes, Zainab’s mother Aliya Abbassi said: “Day after day, it was like a battle with them. In any profession, you should be accountable for what you do.”
Mrs Abbasi said the death of her daughter, followed by a fight for transparency, has taken a toll on family life.
She said: “I get heart palpitations, five years on. It’s broken us… there is something grossly unnatural about losing your child.”
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Last year, Zainab and Isaiah’s parents won a Court of Appeal fight to have the clinicians named.
However, the NHS trusts involved, in Newcastle and London, are now challenging the decision at the Supreme Court.
Zainab was born with a rare genetic illness which the family did not know about until she was three years old.
Image: Zainab Abbasi was born with a rare genetic illness
In July 2019, the six-year-old’s health rapidly deteriorated and she was admitted to hospital, struggling to breathe and was placed on a life support machine.
The local NHS trust applied to the High Court for permission to take Zainab off the ventilator, but in mid-September, just three days before the hearing was due to start, she died.
Isaiah suffered brain damage during his birth and was left severely disabled. A judge gave doctors permission to provide only palliative care – against the wishes of his father Lanre Haastrup and mother Takesha Thomas.
Image: Isaiah Haastrup with his aunt Dahlia Thomas. Pic: PA
Mr Haastrup said on Monday he hoped that after last year’s Court of Appeal ruling he would finally be able to share Isaiah story and process his death. But that has not been the case.
“You don’t grieve when you’re fighting. You grieve afterwards don’t you? I think I am going to start grieving after the Supreme Court judgment,” said Mr Haastrup.
‘My story is not complete’
He also said: “I want to tell my story, my story is not complete when the characters are not named.”
Mr Haastrup said he could understand “at that time” why the reporting restriction was made but said it was now “academic”.
“There’s no point of having it in place anymore,” he said, adding that his son was a “fighter”.
In a ruling last year, three Court of Appeal judges said the rights of the parents to “tell their story” outweighed the privacy rights of the clinicians and staff that remained “long after” the court orders were made.
But Gavin Millar KC, for Newcastle Upon Tyne Hospitals NHS Foundation Trust and King’s College Hospital NHS Foundation Trust, said the Court of Appeal’s decision “contains a number of clear and obvious missteps”.
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In a statement, the Newcastle Upon Tyne Hospitals NHS Foundation Trust, which was involved in Zainab’s case, said: “We understand this has been an incredibly difficult time for the family and we extend our condolences to them.
“Our first priority is always to act in the best interests of our patients, and the entire clinical team involved in Zainab’s care did their best to support her and her family.
“It’s important to emphasise that there have been no findings of fault against any member of staff involved. As an employer, we have a duty to protect the wellbeing and safety of our clinical teams who work tirelessly to support their patients.”
Meanwhile, King’s College Hospital NHS Foundation Trust, which was involved in Isaiah’s case, said in a statement: “Our sympathies continue to be with Isaiah’s family, and we have previously apologised for the standard of care they received at King’s.
“However, we are also committed to looking after the wellbeing of our staff, and protecting their ability to deliver safe and effective care for patients.”
One girl has died and another is in a critical condition after a tree partially collapsed at a park in Essex.
The girls, aged seven and six, suffered serious injuries when they were among a number of children caught beneath the tree at Chalkwell Park in Southend.
Essex Police confirmed the seven-year-old girl died in hospital and her family is receiving support from specialist officers.
Three other children suffered minor injuries following the incident.
An East of England Ambulance Service spokesperson said: “We were called at 2.55pm to reports that a tree had fallen in Chalkwell Park in Chalkwell.
“Six ambulances, three ambulance officer vehicles, the London Air Ambulance and Kent Air Ambulance were sent to the scene.”
Police said an investigation is continuing into what caused the tree to collapse.
‘Unimaginable hardship’ for families
Chief Superintendent Leighton Hammett said: “Families are facing unimaginable hardship this evening and all of our thoughts are with them at this time.
“I cannot begin to put into words how difficult today’s events have been, and continue to be, for them.
“It’s also not lost on me how traumatic it must have been for the members of the public who witnessed this awful incident.
“Across a matter of moments, many of them went from enjoying the warm summer weather to rushing to the aid of strangers without a second thought.”
Chief Sup Hammett also paid tribute to police, ambulance and fire crews who “did all they could,” adding that “today’s loss is one they will all take personally”.
Death is ‘truly devastating’
Local MP David Burton-Sampson said: “The news of the sad death of one of the children involved in the incident at Chalkwell Park today is truly devastating.
“I am sure I reflect the thoughts of all our residents here in Southend in sending my deepest condolences to the child’s family and friends.
“My thoughts are also with the other children injured and I wish them a full and speedy recovery.
NHS funding could be linked to patient feedback under new plans, with poorly performing services that “don’t listen” penalised with less money.
As part of the “10 Year Health Plan” to be unveiled next week, a new scheme will be trialled that will see patients asked to rate the service they received – and if they feel it should get a funding boost or not.
It will be introduced first for services that have a track record of very poor performance and where there is evidence of patients “not being listened to”, the government said.
This will create a “powerful incentive for services to listen to feedback and improve patients’ experience”, it added.
Sky News understands that it will not mean bonuses or pay increases for the best performing staff.
NHS payment mechanisms will also be reformed to reward services that keep patients out of hospital as part of a new ‘Year of Care Payments’ initiative and the government’s wider plan for change.
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Speaking to The Times, chief executive of the NHS Confederation Matthew Taylor expressed concerns about the trial.
He told the newspaper: “Patient experience is determined by far more than their individual interaction with the clinician and so, unless this is very carefully designed and evaluated, there is a risk that providers could be penalised for more systemic issues, such as constraints around staffing or estates, that are beyond their immediate control to fix.”
He said that NHS leaders would be keen to “understand more about the proposal”, because elements were “concerning”.
Health Secretary Wes Streeting said: “We will reward great patient care, so patient experience and clinical excellence are met with extra cash. These reforms are key to keeping people healthy and out of hospital, and to making the NHS sustainable for the long-term as part of the Plan for Change.”
In the raft of announcements in the 10 Year Health Plan, the government has said 201 bodies responsible for overseeing and running parts of the NHS in England – known as quangos – will be scrapped.
These include Healthwatch England, set up in 2012 to speak out on behalf of NHS and social care patients, the National Guardian’s Office, created in 2015 to support NHS whistleblowers, and the Health Services Safety Investigations Body (HSSIB).
The head of the Royal College of Nursing described the move as “so unsafe for patients right now”.
Professor Nicola Ranger said: “Today, in hospitals across the NHS, we know one nurse can be left caring for 10, 15 or more patients at a time. It’s not safe. It’s not effective. And it’s not acceptable.
“For these proposed changes to be effective, government must take ownership of the real issue, the staffing crisis on our wards, and not just shuffle people into new roles. Protecting patients has to be the priority and not just a drive for efficiency.”
Elsewhere, the new head of NHS England Sir Jim Mackey said key parts of the NHS appear “built to keep the public away because it’s an inconvenience”.
“We’ve made it really hard, and we’ve probably all been on the end of it,” he told the Daily Telegraph.
“The ward clerk only works nine to five, or they’re busy doing other stuff; the GP practice scrambles every morning.”
A haul of cocaine worth nearly £100m has been seized at a UK port, authorities say.
The haul, weighing 2.4 tonnes, was found under containers on a ship arriving from Panama at London Gateway port in Thurrock, Essex.
It had been detected earlier this year after an intelligence-led operation but was intercepted as it arrived in the UK this week.
With the help of the port operator, 37 large containers were moved to uncover the drugs, worth an estimated £96m.
The haul is the sixth-largest cocaine seizure in UK history, according to Border Force.
Its maritime director Charlie Eastaugh said: “This seizure – one of the largest of its kind – is just one example of how dedicated Border Force maritime officers remain one step ahead of the criminal gangs who threaten our security.
“Our message to these criminals is clear – more than ever before, we are using intelligence and international law enforcement cooperation to disrupt and dismantle your operations.”
Container ships are one of the main ways international gangs smuggle Class A drugs into the UK, Mr Eastaugh said.
Cocaine deaths in England and Wales increased by 31% between 2022 and 2023, according to the latest Home Office data.
Elsewhere this weekend, a separate haul of 170 kilos of ketamine, 4,000 MDMA pills, and 20 firearms were found on a lorry at Dover Port in Kent.
Image: One of the 20 firearms found at Dover Port. Pic: NCA
Experts estimate the ketamine’s street value to be £4.5m, with the MDMA worth at least £40,000.
The driver of the lorry, a 34-year-old Tajikistan national, was arrested at the scene on suspicion of smuggling the items, the National Crime Agency said.