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“The moment you have it yourself you hear it everywhere, but for something so prevalent it’s not talked about at all,” says Patrick Keane. His right arm is plugged into a tube that runs up to a bag of clear liquid in a treatment room at the Royal Free Hospital in north London, one of the UK’s largest cancer treatment centres.

The 56-year-old’s future is dependent on the slow drip of chemicals that attack the cancer cells in his body. If the tumour in his bowel can be reduced by chemotherapy, it can then be more easily surgically removed.

Returning to duties last week after his own diagnosis, the King chose to highlight innovations in cancer research and the thousands who like him are living under the shadow of the disease.

Patrick is one. Indeed, he got his cancer diagnosis in late January, around the same time as the King, and he is taking part in an innovative clinical trial that may help future patients.

Patrick Keane is taking part in an innovative clinical trial that may help future patients
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Patrick Keane is taking part in an innovative clinical trial that may help future patients

In this election year, charities are calling on political parties to produce long-term plans for tackling the disease as part of their manifesto pledges. While innovation is saving lives, there is a looming budget shortfall.

Cancer Research UK, to whom the King became patron last week, estimates there will be a £1bn gap in research funding within the next decade. This is in part due to inflation combined with the cost of living crisis impacting donations to cancer charities.

Add to this that the number of us getting cancer is increasing, projected to go up by a fifth by 2040.

The Royal Free London NHS Trust, which receives the highest number of cancer referrals in London at 50,000 a year, has seen a 10,000 increase in referrals since 2019.

It’s no surprise then that the NHS is missing targets for waiting times between urgent GP referrals and treatment.

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One in two of us will get cancer and, as Patrick knows too well, that word opens up a world of uncertainty. “The word carries so much baggage with it,” he says, and having it can send your mind to “some pretty dark places”.

He talks frankly about the treatment and its side effects, which after his first two rounds, have been minimal. “I didn’t have much of a head of hair to begin with,” he jokes.

Some of his hair has gone in patches, but asked what the hardest thing has been, he doesn’t hesitate: “My father passed away when I was 14. He died of cancer. I have 13-year-old twins so I couldn’t initially shift the thought – is this going to happen again? Passing 48, the age that my father died was a key milestone for me. My children being older than I was when my father passed away was another one.

“Nobody expects their dad to die. It’s a very unreal concept, and I’m not dying – but to try to have that conversation you know – ‘things will be fine.’ It’s very treatable.”

Two weeks after his third round of chemo, scans show the treatment has done its job, Patrick’s surgery can go ahead and is due to happen later this month.

Roopinder Gillmore, lead cancer physician at the Royal Free
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Roopinder Gillmore, lead cancer physician at the Royal Free

More survive cancer as technology advances

Cancer is more treatable now. More of us are surviving it because technology is advancing.

At the Royal Free that ranges from a new cutting-edge £8m PET scanner, which offers a faster more accurate diagnosis, to new drugs offering greater survival chances.

Lead cancer physician at the Royal Free, Roopinder Gillmore, told Sky News: “We are doing surgery quicker, more keyhole robotic surgery in this hospital. We do liver transplants for patients with primary liver cancer, we’re trialling that out in other cancer types which is really exciting.

“We are doing more specialised radiotherapy and for me, my thing is drug treatments, and they are exponentially increasing in terms of what we can offer our patients. The big thing is immunotherapy, we didn’t have that 15 years ago. It has completely changed the outlook for people with lung cancer and skin cancer.”

Backlogs and waiting times have increased

But for all the advances, backlogs and waiting times have built up since the pandemic. The latest NHS figures show 64% of patients received their first treatment within 62 days of an urgent GP referral. The target is 85%.

That stretch on resources has a knock-on impact on patients like 29-year-old Beaux Harris.

Beaux, an actor and dancer who teaches at The Manor Dance Studio in north London, has what is called a mutated BRCA1 gene, which means her chances of getting cancer dramatically increase in her 30s.

She has a 60% chance of getting ovarian cancer and a 90% chance of getting breast cancer.

So she has decided to get a preventative double mastectomy and a hysterectomy but, due to the backlog, she has a long wait.

Beaux Harris has a mutated gene which means her chances of getting cancer dramatically increase in her 30s
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Beaux Harris has a mutated gene which means her chances of getting cancer dramatically increase in her 30s

‘I feel like I’ve got a ticking time bomb on me’

She says: “I feel like I’ve got a ticking time bomb on me – and it is terrifying. The truth is it doesn’t really feel like a choice when you are presented with a figure like that – it’s like saying would you get on a plane with a 90% chance of it crashing? I know I wouldn’t.”

She has been told that waiting times on the NHS for her preventative treatment is two years at the earliest.

She says people on her online support groups have waited five years. She’s also been told there’s a high chance the operation could be cancelled at the last minute if a high-demand cancer patient needs the slot.

“I could get timed out,” she says. So, she is crowdfunding to get the £50,000 plus she needs to go private.

Beaux Harris

‘I would love to be worrying about things that every other 29-year-old is worrying about’

She might need more funds if she wants some sort of normality at the end of it.

She says: “If I have a hysterectomy now, I can’t have children. So, I’m also trying to raise money to freeze my eggs. Something that is offered on the NHS to cancer patients, but not to BRCA patients.”

She certainly doesn’t want to wait until she gets cancer. Ovarian cancer is known as the silent killer due to the difficulty in early detection.

Beaux’s grandmother, her mother, and her aunt all died of cancer because of the BRCA1 mutated gene, she hopes to be the first female in her family in generations to survive having it.

“I would love to be worrying about things that every other 29-year-old is worrying about,” she says. “I’ve got some bloody Olivia awards to win!”

Indeed, Beaux is using her talents putting on performances and doing tap dance sessions to raise money for her treatment.

In some ways it is taken for granted that, because it touches so many of us, most of the money raised for cancer research in this country comes from the British public, but charities say the government needs to play a bigger role in ensuring the UK continues to innovate and improve treatment for what remains the defining health issue of our time.

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Special educational needs children ‘segregated and left to struggle in wrong schools to save money’

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Special educational needs children 'segregated and left to struggle in wrong schools to save money'

Children with special educational needs are being “segregated” and left to struggle in the wrong schools because councils are trying to “save on costs”, parents have told Sky News. 

Maire Leigh Wilson, whose four-year-old son has Down’s syndrome, says she “shudders to think” where he would be now had she not been in a “constant battle” with her council.

“I think he would probably just be at the back of a classroom, running around with no support and no ability to sign or communicate,” she said.

Mrs Leigh Wilson wanted her son Aidan to go to a mainstream school with additional specialist support, but her council, who decide what is known as a child’s Education Health and Care Plan (EHCP), wanted him to attend a special school.

The number of EHCPs being appealed by parents has risen “massively”, according to education barrister Alice De Coverley.

She said councils are struggling to meet the volume of demand with “stretched budgets”, and parents are also more aware of their ability to appeal.

Mrs De Coverley said more than 90% of tribunals are won by parents, in part because councils do not have the resources to fight their cases.

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She said, in her experience, parents of children with special educational needs will put “anything on the line, their homes, their jobs”.

On whether she thinks the system is rigged against parents, Mrs De Coverley said: “I’m not sure it’s meant to be. But I think that parents are certainly finding it very tough.”

She added the number of “unlawful decisions” being made by local authorities means parents who can afford it are being “utterly burnt out” by legal challenges.

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Maire Leigh Wilson with her son, Aiden, four
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Maire Leigh Wilson with her son, Aiden, four

Mrs Leigh Wilson’s case was resolved before making it to court.

Her council, Hounslow in southwest London, said they complete more than four in five new EHCPs within the statutory 20-week timescale, twice the national average.

Hounslow Council said they “put families at the heart of decision-making” and young people in the area with special educational needs and disabilities achieve, on average, above their peers nationally.

They admitted there are areas of their offer “that need to be further improved” and they are “working closely with families as a partnership”.

“We have a clear and credible plan to achieve this, and we can see over the last 18 months where we have focused our improvement work, the real benefits of an improved experience for children, young people, and their families,” a Hounslow Council spokesman said.

He added the council had seen the number of EHCPs double in the last decade and they “share parents’ frustrations amid rising levels of national demand, and what’s widely acknowledged as a broken SEND system”.

Emma Dunville wanted her son, Albie, to go to a special school but the council took too long to assess him
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Emma Dunville wanted her son, Albie, to go to a special school but the council took too long to assess him

Emma Dunville, a friend of Mrs Leigh Wilson whose son also has Down’s syndrome, describes her experience trying to get the right education provision for her child as “exhausting mentally and physically”.

She said: “For the rest of his life we’ll be battling, battling, battling, everything is stacked up against you.”

Unlike Mrs Leigh Wilson, Mrs Dunville wanted her son Albie to go to a special school, but she had to wait more than a year for an assessment with an education psychologist to contribute to the council’s decision, which meant she missed the deadline for an EHCP.

“The people making these decisions just don’t see that all children with Down’s syndrome are totally different and can’t be seen as the same.”

The guidelines are that if there are not enough local authority-employed education psychologists they should seek a private assessment, but her local authority did not do that.

Mrs Dunville said her son has been “segregated” in a mainstream school, where they are “trying their best” but “it’s just not the right setting”.

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Man arrested after woman in her 80s killed in Christmas Day motorway crash

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Man arrested after woman in her 80s killed in Christmas Day motorway crash

A man has been arrested after a woman in her 80s was killed in a Christmas Day motorway crash.

A white Ford Fiesta and a black Volkswagen Tiguan collided on the A1(M) near Darlington just after 8.30pm, North Yorkshire Police said.

The passenger of the Ford Fiesta, a woman in her 80s from the Durham area, suffered serious injuries and died at the scene.

The car’s driver, a man in his 80s from the Durham area, was taken to hospital in a serious but stable condition.

The driver of the Volkswagen, a man in his 20s from the Durham area, was arrested on suspicion of causing death by dangerous driving.

He has now been released under investigation.

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The motorway was closed until around 8am on Boxing Day for collision investigators and National Highways to assess the road surface.

It is now open in both directions but with a lane closure still in place as of 9.30am.

Police have appealed for witnesses and dashcam footage of the crash, which happened on the northbound carriageway between Junction 57 (A66(M) junction) and Junction 58 (Merrybent).

The force also thanked members of the public who assisted at the scene.

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Two women and dog killed after Christmas Day ‘stabbing’ at flat in Milton Keynes

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Two women and dog killed after Christmas Day 'stabbing' at flat in Milton Keynes

Two women have died following reports of a stabbing in Milton Keynes on Christmas Day, police have said.

A dog injured in the incident in Bletchley also died after being taken to the vets.

A man and a teenage boy suffered serious injuries.

A 49-year-old man from Milton Keynes has been arrested on suspicion of murder and attempted murder and remains in custody.

A police forensic officer at the scene near an apartment block on Santa Cruz Avenue in Newton Leys, near Bletchley.
Pic: PA
Forensic officers at the scene near an apartment block on Santa Cruz Avenue in Newton Leys, near Bletchley.
Pic: PA
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Forensic officers at the scene. Pics: PA

Officers were called to a block of apartments in Santa Cruz Avenue just after 6.30pm on Christmas Day following reports of a stabbing.

The two women, aged 38 and 24, died at the scene, Thames Valley Police said. Their next of kin have been informed.

The injured man and teenage boy were taken to hospital and are both in a stable condition.

Police said the parties are known to each other.

Senior investigating officer Detective Chief Inspector Stuart Brangwin said: “Firstly I would like to extend my deepest condolences to the families of the women who have tragically died in this shocking incident.

“We have launched a double murder investigation, which may be concerning to the wider public; however, we have made an arrest and are not looking for anyone else in connection with this incident and the parties are known to each other.”

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