Bereaved families who lost loved ones in the contaminated blood scandal say they have seen evidence that proves their relatives were being “used for research” without their knowledge and despite clinicians knowing the risks.
Historic notes in medical records found by campaigners are said to show that some patients being treated for the blood clotting disorder haemophilia in the 1970s and 1980s were given blood plasma treatment which doctors knew might be contaminated and infect them with hepatitis.
Clinicians involved in the treatment have maintained they wanted to study the links between the haemophilia treatment Factor VIII and the risk of infection.
Jason Evans, director of the campaign group Factor 8, believes that instead of stopping treatment, clinicians lobbied to continue trials, even after identifying the association between hepatitis and the treatment.
He has found notes alluding to the research in his own father’s medical records.
Mr Evans, whose father died in 1993 after being infected with both HIV and hepatitis C during the course of his treatment for haemophilia, said: “It is appalling that hundreds of people with haemophilia across the country were knowingly infected with lethal viruses under the guise of scientific research.
Image: Neil King was co-infected with both HIV and hepatitis C while receiving treatment for haemophilia
“These secret experiments, conducted without consent, show individuals were treated as mere test subjects, not human beings.
“The fact that this could happen on such a scale, over such a long period of time, is almost incomprehensible.”
Advertisement
Documents – obtained through Freedom of Information requests and medical records provided by families – reveal a timeline of the trials, led by a senior medic who worked for the now defunct Public Health Laboratory Service, say campaigners.
Becka Pagliaro from Waterlooville, near Portsmouth, said she was “shocked” to find notes about the trials in her father’s patient notes.
Her father Neil King was co-infected with both HIV and hepatitis C while receiving treatment for haemophilia. He died in 1996 when he was 38 years old.
“When I got his medical records I saw he was part of this research which I know was something that he would not have agreed to, so that was done covertly,” Ms Pagliaro said.
“I was really shocked – I wondered first of all whether I had received someone else’s medical records because I could not believe what I was seeing.”
Image: Janine Jones’ brother Mark Payton died when he was 41 after being co-infected with both hepatitis C and HIV
Janine Jones’ brother Mark Payton died when he was 41 after being co-infected with both hepatitis C and HIV.
“When I saw the research was on my brother’s records I thought: ‘What’s this?’ And after asking a few questions I didn’t get anywhere,” said the 59-year-old from Warwickshire.
“It was only the last few months that it really came to light – they were being used for research.”
Emma Frame, from South Shields, said that her father had never agreed to be part of studies but found multiple references to them in his medical records.
Ms Frame said: “I have all of his records which is where I came across these studies.
“There is no information other than this doctor’s name, a treatment and then a date. With my dad it was recorded several different times.
“It’s absolutely mind-blowing the information that is out there that has been hidden.”
Jeffrey Frame was co-infected with HIV and hepatitis C and died in 1991 when he was just 39.
Ms Frame said that in the mid 1990s she also discovered that the NHS had kept some of her father’s “samples”, which had not been discussed with the family.
“They still had actual physical samples of my dad who had died years previous,” she said.
Follow Sky News on WhatsApp
Keep up with all the latest news from the UK and around the world by following Sky News
Tens of thousands of people were infected with contaminated blood through infected blood products or blood transfusions, largely between the 1970s and 1980s.
People were infected with hepatitis or HIV, and in some cases with both.
An estimated 3,000 people have died as a result, while those who survived have lived with life-long health implications.
Des Collins, senior partner of Collins Solicitors, which represents 1,500 victims and their families, said: “There is now overwhelming evidence that the NHS failed patients on a number of levels in the 70s and 80s and certainly in ways we find shocking and abhorrent.
“We are looking forward to Sir Brian Langstaff’s final Inquiry report in a few weeks’ time, which will lay out the wrongs perpetrated in comprehensive fashion.
“Not only will this reinforce the case for compensating victims and their families, but importantly will shine a light on the lessons to be learned so that mistakes of the past are never repeated again.”
The Infected Blood Inquiry will publish its final report on the scandal on 20 May.
Russia has a “pretty good map” of Britain’s crucial network of undersea cables, experts have warned – potentially presenting Vladimir Putin with a “vulnerable soft underbelly” to attack.
While separated by 21 miles of water, a web of cables and pipelines nonetheless connects the UK and Europe.
These lines carry critical civilian and military communications, electricity and gas – things that underpin the fabric of our society.
But it’s hard to constantly keep an eye on hundreds of miles of subsea cables, leaving them vulnerable to sabotage.
After damage to undersea cables in the Red Sea caused internet disruption in Asia and the Middle East, Sky News looks at what subsea cables are and what damage to one or more of them – accidental or otherwise – could mean for the UK.
Image: HMS Somerset shadowing Russian ship Yantar. Pic: Royal Navy/PA
At first glance, it might be odd for a Royal Navy warship to be asked to shadow a civilian boat. But Britain doesn’t believe the Yantar is a civilian vessel, it believes it is used for Russian surveillance.
Defence Secretary John Healey spelled it out in parliament, saying: “Let me be clear, this is a Russian spy ship used for gathering intelligence and mapping the UK’s critical underwater infrastructure.”
The Yantar complied with international rules of navigation, Mr Healey said. But this was not the first time it had been detected near Britain’s subsea installations, he added.
Image: Fibre optic cables on the ocean floor. File pic: iStock
What are undersea cables?
There are around 60 sets of undersea cables branching out from the UK, Dr Sidharth Kaushal, an expert in maritime technology, told Sky News.
They are fairly wide, he says, and usually encased in a metal sheath. Closer to shore, they are often buried under concrete to further protect them. There are also pipelines which carry gas from the continent.
Some cables are in relatively shallow waters and are relatively easy to repair – they are often damaged unintentionally by commercial activity – while others are in deeper waters and require specialist equipment to fix if a problem arises.
A recent report from the IISS thinktank (the International Institute for Strategic Studies) highlighted the extent to which the European and global economies relies on them.
“Cables transmit around 95% of global data flows and underpin an estimated $10trn in financial transactions every day,” it said.
Image: Around 60 subsea cables connect the UK with the world beyond
Making a map?
Experts believe Russia has spent recent years covertly mapping undersea cables in the West – some of which are military and whose locations are not public knowledge.
“We have seen an uptick in activity of Russian surveillance,” said RUSI thinktank expert Dr Kaushal.
Surface vessels have been gathering intelligence, but there have also been reports of Russian uncrewed submersibles being operated near undersea cables, he added.
“Given that this has been a persistent activity in an area on which they have placed some importance for quite some time… one would expect they have a pretty good map.”
Please use Chrome browser for a more accessible video player
2:56
‘Putin wants to trick Trump’
What does sabotage look like?
Severing undersea cables can have a detrimental impact on the countries they serve.
“There’s quite a bit of redundancy in the cable networks running across the Atlantic and indeed the cable networks that service the UK,” Dr Kaushal said. “It certainly would not be very easy to sabotage cables… in a way that would be impactful.”
While it might be easy for a hostile state to deny cutting one or two cables, a systematic effort to affect the UK by cutting enough to have an impact would be harder to disavow, he added.
This is particularly the case with cables that are in deeper water, reachable only by a handful of states.
Recent disruption to undersea cables has been blamed on “anchor-dragging by Russia’s shadow fleet”, the IISS said in its report.
Russia has previously denied damaging undersea infrastructure.
Image: RFA Proteus monitoring Russian ship Yantar in November 2024. Pic: Royal Navy/PA
Does the UK need to prepare?
Faced with an increasingly fraught international picture as the war in Ukraine grinds on, the UK parliament’s National Security Strategy committee launched an inquiry into undersea cables earlier this year.
It is examining how well the UK is able to defend its undersea infrastructure – and how resilient the nation would be in the event of a major, protracted disruption to our internet connection.
“Our internet cable network looks like an increasingly vulnerable soft underbelly,” chairman Matt Western MP said as the inquiry began.
“There is no need for panic – we have a good degree of resilience, and awareness of the challenge is growing. But we must be clear-eyed about the risks and consequences: an attack of this nature would hit us hard.”
Dr Kaushal argued that while there is a degree of redundancy in the undersea cables that serve the UK, the pipelines that bring gas to British homes are perhaps more vulnerable.
“I think in some ways the pipeline network is far more fragile because there we are more reliant on a handful of critical pipelines,” he said.
While the nature of Donald Trump’s second state visit is indeed unusual, from the moment Sir Keir Starmer delivered the gold-edged invitation it began a process steeped in tradition.
Typically, second-term US presidents are offered a shorter visit, perhaps tea or lunch with the monarch at Windsor Castle. But the red carpet is literally being rolled out once again, with Trump receiving a second full state visit, with all the pomp and pageantry it entails.
An indication was given early on in Trump’s second term that he’d be receptive to a second state visit, and so – on perhaps the advice of the new prime minister – the King issued a second invitation.
The greatest form of tradition is one that always evolves, and so this may now set a new precedent for presidents who are voted out but then return to serve a second term.
Image: Trump and his wife Melania with the then Prince of Wales and Duchess of Cornwall in 2019. Pic: PA
Any nation can hold a state visit, but what is unique about Britain remains our internationally respected pageantry.
Even down to the very invitation – there is a very precise format for inviting someone on a state visit.
An invite must be issued, established by international law. Written on a special gold-edged paper, embossed with a golden coat of arms that is issued, it forms part of a historic archive.
Breaches of protocol
Much has been made in the past about moments where protocol was breached – Michelle Obama famously put her arm around Queen Elizabeth in 2011, but, in all honesty, I doubt very much the Queen was upset by this.
Image: In a breach of protocol during a visit to the UK in 2009, Michelle Obama touched the late Queen. Pic: AP
The fuss was not made by the late monarch, who accepted that what mattered was that Americans should be made very welcome on behalf of the UK.
And then criticism emerged against Trump, who appeared to make the Queen change places when the Guard of Honour was to be inspected.
But, in truth, it was Elizabeth II who had to correct herself because, in her long life as sovereign, she never escorted a visiting president.
Please use Chrome browser for a more accessible video player
1:31
When Trump met the Queen – and protocol was breached
The escort should stand further from the troops and her self-correction was misinterpreted as his error.
Trump’s visit this time will likely generate just as many headlines, but I don’t think there will be critical moments where a breach occurs.
What will happen today?
The Prince and Princess of Wales will greet the president and his wife in the grounds of the Windsor estate in the morning, before accompanying them to meet the King and Queen for an open-air greeting.
Mr and Mrs Trump, the King, Camilla, William, and Kate will then take part in a carriage procession through the estate to the castle, with the carriage ride joined by the Household Cavalry Mounted Regiment, which will provide a Sovereign’s Escort, as well as members of the armed forces and three military bands.
A ceremonial welcome with a guard of honour will be staged in the quadrangle of the castle, as is customary, followed by lunch with the royal family and a visit to see a Royal Collection exhibition within the castle.
The president and his wife will then visit St George’s Chapel privately on Wednesday afternoon to lay a wreath on the tomb of Queen Elizabeth II, whom they both met on their first state visit.
They will then be treated to a flypast by the Red Arrows alongside UK and US F-35 military jets on the east lawn at Windsor Castle, as well as a special Beating Retreat military ceremony.
They will then be treated to a flypast by the Red Arrows alongside UK and US F-35 military jets on the east lawn at Windsor Castle, as well as a special Beating Retreat military ceremony.
The traditional grand state banquet is set to follow in the castle’s St George’s Hall in the evening, with both Mr Trump and the King to give speeches as the event gets underway.
What it means for Trump – and is it worth it?
Trump’s mother would cut out and keep in a scrapbook containing pictures of the young Princess Elizabeth and her sister, Margaret Rose. It was an era before endless celebrity news, a time when public life revolved around the royals, the war, and survival.
And the president loved his mother, like many men do, so these things mean an enormous amount to him.
Image: Trump and Charles inspect the Guard of Honour. Pic: PA
When the horses go back to the stables and the carriages are put away, the impact of this visit will remain fresh in the mind of a president who may feel his nation – and maybe even he himself – have been affirmed by their ally.
Quite apart from the politics, although much will be said and written on that, there is one great hope for any state visit: that the country so many (myself included) have fought for can be safer and more successful as a result of the pomp and pageantry on display.
Downing Street has insisted its migrant returns scheme with France is not a “shambles” after the High Court blocked a man’s deportation.
Having seen the previous Conservative government’s Rwanda scheme run into trouble with the courts, the Labour administration’s alternative suffered its own setback on Tuesday.
An Eritrean man, who cannot be named for legal reasons, was due to be on a flight to France this morning.
He brought a legal claim against the Home Office, with lawyers acting on his behalf saying the case “concerns a trafficking claim”.
They also said he had a gunshot wound to his leg, and would be left destitute if he was deported.
The Home Office said it was reasonable to expect him to have claimed asylum in France before he reached the UK in August, but the ruling went in his favour.
Mr Justice Sheldon granted the man a “brief period of interim relief”.
While the judge said there did not appear to be a “real risk” he would face destitution in France, the trafficking claim required further interrogation.
He said the case should return to court “as soon as is reasonably practical in light of the further representations the claimant […] will make on his trafficking decision”.
A Number 10 spokesperson downplayed the development, insisting removals under the deal with France will start “imminently” and ministers are not powerless in the face of the courts.
Please use Chrome browser for a more accessible video player
1:08
‘One in, one out’ deal: What do we know?
‘We told you so’
The pilot scheme was announced to much fanfare in July, after Emmanuel Macron made a state visit to the UK.
He wants the number of migrants being returned to France to gradually increase over the course of the scheme, to deter them from coming in small boats.
The pilot came into force last month and is in place until June 2026.
Tory leader Kemi Badenoch was quick to say “we told you so” following Tuesday’s court decision, while Reform UK’s Nigel Farage criticised the government’s plan.
Please use Chrome browser for a more accessible video player
2:18
Migrant deal with France has ‘started’
The small boats crisis represents one of the biggest challenges for the new home secretary, Shabana Mahmood, following her promotion in Sir Keir’s recent reshuffle.
Describing the former justice secretary as “very tough”, he said: “She’s completely for real. I’ve known her for over 10 years – she really wants to see law and order restored.”