Infected blood scandal: Bereaved families say loved ones who died after being contaminated were being ‘used for research’

Published

1 year ago

May 8, 2024

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Bereaved families who lost loved ones in the contaminated blood scandal say they have seen evidence that proves their relatives were being “used for research” without their knowledge and despite clinicians knowing the risks.

Historical notes in medical records found by campaigners are said to show that some patients being treated for the blood clotting disorder haemophilia in the 1970s and 1980s were given blood plasma treatment which doctors knew might be contaminated and infect them with hepatitis.

Clinicians involved in the treatment have maintained they wanted to study the links between the haemophilia treatment Factor VIII and the risk of infection.

Jason Evans, director of the campaign group Factor 8, believes that instead of stopping treatment, clinicians lobbied to continue trials, even after identifying the association between hepatitis and the treatment.

He has found notes alluding to the research in his own father’s medical records.

Mr Evans, whose father died in 1993 after being infected with both HIV and hepatitis C during the course of his treatment for haemophilia, said: “It is appalling that hundreds of people with haemophilia across the country were knowingly infected with lethal viruses under the guise of scientific research.

“These secret experiments, conducted without consent, show individuals were treated as mere test subjects, not human beings.

“The fact that this could happen on such a scale, over such a long period of time, is almost incomprehensible.”

Documents – obtained through Freedom of Information requests and medical records provided by families – reveal a timeline of the trials, led by a senior medic who worked for the now defunct Public Health Laboratory Service, say campaigners.

Becka Pagliaro from Waterlooville, near Portsmouth, said she was “shocked” to find notes about the trials in her father’s patient notes.

Her father Neil King was co-infected with both HIV and hepatitis C while receiving treatment for haemophilia. He died in 1996 when he was 38 years old.

“When I got his medical records I saw he was part of this research which I know was something that he would not have agreed to, so that was done covertly,” Ms Pagliaro said.

“I was really shocked – I wondered first of all whether I had received someone else’s medical records because I could not believe what I was seeing.”

Janine Jones’ brother Mark Payton died when he was 41 after being co-infected with both hepatitis C and HIV.

“When I saw the research was on my brother’s records I thought: ‘What’s this?’ And after asking a few questions I didn’t get anywhere,” said the 59-year-old from Warwickshire.

“It was only the last few months that it really came to light – they were being used for research.”

Emma Frame, from South Shields, said that her father had never agreed to be part of studies but found multiple references to them in his medical records.

Ms Frame said: “I have all of his records which is where I came across these studies.

“There is no information other than this doctor’s name, a treatment and then a date. With my dad it was recorded several different times.

“It’s absolutely mind-blowing the information that is out there that has been hidden.”

Jeffrey Frame was co-infected with HIV and hepatitis C and died in 1991 when he was just 39.

Ms Frame said that in the mid 1990s she also discovered that the NHS had kept some of her father’s “samples”, which had not been discussed with the family.

“They still had actual physical samples of my dad who had died years previous,” she said.

Tens of thousands of people were infected with contaminated blood through infected blood products or blood transfusions, largely between the 1970s and 1980s.

People were infected with hepatitis or HIV, and in some cases with both.

An estimated 3,000 people have died as a result, while those who survived have lived with life-long health implications.

Des Collins, senior partner of Collins Solicitors, which represents 1,500 victims and their families, said: “There is now overwhelming evidence that the NHS failed patients on a number of levels in the 70s and 80s and certainly in ways we find shocking and abhorrent.

“We are looking forward to Sir Brian Langstaff’s final Inquiry report in a few weeks’ time, which will lay out the wrongs perpetrated in comprehensive fashion.

“Not only will this reinforce the case for compensating victims and their families, but importantly will shine a light on the lessons to be learned so that mistakes of the past are never repeated again.”

The Infected Blood Inquiry will publish its final report on the scandal on 20 May.

UK

Russell Brand: Comedian and actor pleads not guilty to rape and sexual assault charges

Published

13 hours ago

May 30, 2025

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Russell Brand has pleaded not guilty to rape and sexual assault charges as he appeared in court in London.

The British comedian and actor, from Hambleden in Buckinghamshire, was charged by post last month with one count each of rape, indecent assault and oral rape as well as two counts of sexual assault.

The charges relate to alleged incidents involving four separate women between 1999 and 2005.

The 49-year-old, who has been living in the US, was flanked by two officers as he pleaded not guilty to all the charges at Southwark Crown Court today.

Brand stood completely still and looked straight ahead as he delivered his pleas.

The comedian, who has consistently denied having non-consensual sex since allegations were first aired two years ago, is due to stand trial in June 2026.

He previously told his 11.2 million followers on X that he welcomed the opportunity to prove his innocence.

The allegations were first made in a joint investigation by The Sunday Times, The Times and Channel 4 Dispatches in September 2023.

As Friday’s hearing finished, Brand replaced his sunglasses before exiting the dock and calmly walking past reporters.

UK

Tom Daley says ‘it’s scary how LGBT rights are being dangerously threatened’

Published

13 hours ago

May 30, 2025

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Tom Daley says 'it's scary how LGBT rights are being dangerously threatened'

Even as someone who has grown up in the public eye, Tom Daley has vulnerabilities and concerns to finally reveal.

The five-time Olympic medallist has an even greater perspective as the British diver who first competed at the Games aged 14 in 2008, who is now retired and a father of two.

Having grown up in the public eye when social media was still in its infancy, Daley is deeply troubled by the toxicity online, especially for someone with an opinion.

And the 31-year-old has spoken out from a young age – from LGBTQ+ rights to bullying and mental health – but he is ready to go further now.

“There’s lots of things I think we’ll look back on this last five, 10 years of human history as being quite shocking in a way,” Daley said in an interview with Sky News.

“When social media came to prevalence – and cancel culture and people not being allowed to make any mistakes or be able to share too many opinions – it can be very scary and intimidating for certain groups of people.

“I think it definitely pits lots of people against each other and I think we always have to remember that we’re all in this together at the end of the day.

“And there’s so many more important things – being able to come together as one human race and I know that sounds very like hippie-dippie.

“But it really is as simple as that, about just being kind to each other.

“Where has that kindness and compassion gone because everybody feels like they have something to say about very small groups of people.”

A front row seat to LA 2028

The Tokyo 2020 Olympic champion revealed he was gay in 2013 and went on to marry Oscar-winning screenwriter Dustin Lance Black.

They now live as a family in Los Angeles – the city hosting the 2028 Olympics.

Having retired from diving after a final silver medal at Paris 2024, Daley will have a front row seat to the Games taking place in an America where Donald Trump has seemed to roll back LGBTQ+ protections early in his second presidential term.

“It is scary in some parts of the world how the rights of LGBT people are kind of being reversed or they’re being dangerously threatened,” Daley said when asked about Trump.

“It’s something again where minorities have to come together for the greater good because it is scary.

“And you may see someone else’s rights going away and I think it’s important that everybody, especially minorities, come together because it won’t just be one group that gets targeted.

“Once one group has been targeted, it will move on to the next, and the next, and the next.

“I think the most important thing is staying visible. I think lots of people ask, ‘What can you do to be an activist? What can you do to an advocate?’

“I think it’s being truly and authentically yourself. As long as you’re happy, your friends and family are happy, and you’re not hurting anyone else, then I think just being visible is a great form of activism.”

Trump election victory was a ‘shock’

“For lots of people living in the West Coast bubble, it was like a bit of a shock when Trump won the election in November,” Daley said.

“But I think it’s also given everybody a wake-up call. I just always believe in leading with kindness, care and compassion and trying to make life worth living for every single person.”

Daley knows what it is like to feel targeted for abuse.

In a new documentary featuring family video growing up, Tom Daley 1.6 Seconds, there is a sense of disbelief that he gave interviews as a child talking about being bullied in school after his Olympic debut at Beijing 2008.

“I never really saw it back then as something that was strange because it’s something that I had lived and grown up and just was part of how my life existed,” he said.

“But, looking back on it, I kind of was like, ‘Oh my gosh, imagine if it could have all been so different’.”

London 2012 poster boy

During the build-up to London 2012, Daley was the poster boy of the home Olympics.

But he was dealing with bulimia and body dysmorphia in private. It’s still difficult to talk about, knowing people would comment on how he seemed in great shape.

“But that’s not what an eating disorder is,” he said. “An eating disorder is not being able to think about your body, what you eat, what you put into your body rationally.

“And I think that’s something that people don’t necessarily understand with eating disorders, which is why going through that, I went through it alone.

“Because I was embarrassed to be thinking about those things. I didn’t think anybody would believe me.”

To this day, Daley feels people online are dismissive of his concerns. In interviews, he grates when it is pointed out that in retirement he is not fat.

“I’m constantly reminded of that,” he said. “So it’s definitely something that triggered the way that I think about my relationship with food.”

This is not to take away from how fondly Daley looks back on a career that saw him reach the pinnacle with Olympic gold in 2021 at the pandemic-delayed Olympics.

There is no sign of coming out of retirement again as he did in Paris last year.

“I feel incredibly proud of what I’ve been able to achieve in terms of my perseverance and resilience through lots of different things,” he said. “I do miss being on that diving board.

“It is like there is no other feeling than being on top of a diving board in a competition where you’re putting all of the work that you put in into that 1.6 seconds and I think I will forever miss that.”

UK

Kyle Enos: Man who made and sold poisonous diet pills is jailed

Published

13 hours ago

May 30, 2025

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Kyle Enos: Man who made and sold poisonous diet pills is jailed

A man who made and sold poisonous diet pills has been jailed.

DNP is poisonous to humans and has been banned for human consumption in the UK.

The industrial chemical, which is officially known as 2,4-Dinitrophenol, has been illegally sold as a pill for weight loss, according to police.

Kyle Enos, 33, from Maesteg, Bridgend, was jailed for three years on Thursday after a multi-agency investigation.

DNP can cause serious physical side effects or death, according to the Food Standards Agency.

Enos was found to have purchased the pure form sodium salt of the powder from China via the dark web.

He made the pills using cutting agents and a pill press in his bedroom and advertised them on a website he had made.

After receiving orders via email, he would ship the products within the UK and beyond, disguising them as vitamins and minerals.

Following the investigation, he was charged with multiple drug offences and pleaded guilty at Cardiff Magistrates’ Court on 1 May.

‘Extremely ill or even dying’

He was sentenced at Cardiff Crown Court for one count of member of public import/acquire/possess/use of a regulated substance without licence, one count of supply regulated substance to member of public without verifying licence and one count of supply of regulated poison by person other than a pharmacist.

He was also found to have failed to comply with a serious crime prevention order (SCPO) after a previous conviction for the supply of the Class A drug Fentanyl.

Detective Constable Kieran Morris, of South Wales Police’s regional organised crime unit (ROCU) Tarian, said Enos was supplying the pills “with no safety precautions in place”, which could have led to buyers “becoming extremely ill or even dying”.

“Tarian ROCU are committed to safeguarding members of the public not only within our region, but across the United Kingdom and beyond,” he added.

Alison Abbott, head of the National Crime Agency’s prisons and lifetime management unit, said SCPOs were “a powerful tool” to help prevent those convicted of “serious offences” from reoffending after their release from prison.

“This case should serve as a warning to others,” she added.

“As we did with Enos, we will actively monitor all those who are subject to such orders, and they will stay on our radar even after they are released from jail.”