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Jacqueline Saa has a genetic condition that leaves her unable to stand and walk on her own or hold a job. Every weekday for four years, Saa, 43, has relied on a home health aide to help her cook, bathe and dress, go to the doctor, pick up medications, and accomplish other daily tasks.

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Have you or someone you know with disabilities unexpectedly lost Medicaid benefits since April 2023? Tell us about it here. contact us

She received coverage through Floridas Medicaid program until it abruptly stopped at the end of March, she said.

Every day the anxiety builds, said Saa, who lost her home health aide for 11 days, starting April 1, despite being eligible. The state has since restored Saas home health aide service, but during the gap she leaned on her mother and her 23- and 15-year-old daughters, while struggling to regain her Medicaid benefits.

Its just so much to worry about, she said. This is a health care system thats supposed to help.

Medicaids home and community-based services are designed to help people like Saa, who have disabilities and need help with everyday activities, stay out of a nursing facility. But people are losing benefits with little or no notice, getting bad advice when they call for information, and facing major disruptions in care while they wait for the issue to get sorted out, according to attorneys and advocates who are hearing from patients.

In Colorado, Texas, and Washington, D.C., the National Health Law Program, a nonprofit that advocates for low-income and underserved people, has filed civil rights complaints with two federal agencies alleging discrimination against people with disabilities. The group has not filed a lawsuit in Florida, though its attorneys say theyve heard of many of the same problems there.

Attorneys nationwide say the special needs of disabled people were not prioritized as states began to review eligibility for Medicaid enrollees after a pandemic-era mandate for coverage expired in March 2023. Email Sign-Up

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Instead of monitoring and ensuring that people with disabilities could make their way through the process, they sort of treated them like everyone else with Medicaid, said Elizabeth Edwards, a senior attorney for the National Health Law Program. Federal law puts an obligation on states to make sure people with disabilities dont get missed.

At least 21 million people nationwide have been disenrolled from Medicaid since states began eligibility redeterminations in spring 2023, according to a KFF analysis.

The unwinding, as its known, is an immense undertaking, Edwards said, and some states did not take extra steps to set up a special telephone line for those with disabilities, for example, so people could renew their coverage or contact a case manager.

As states prepared for the unwinding, the Centers for Medicare & Medicaid Services, the federal agency that regulates Medicaid, advised states that they must give people with disabilities the help they need to benefit from the program, including specialized communications for people who are deaf or blind.

The Florida Department of Children and Families, which verifies eligibility for the states Medicaid program, has a specialized team that processes applications for home health services, said Mallory McManus, the departments communications director.

People with disabilities disenrolled from Medicaid services were properly noticed and either did not respond timely or no longer met financial eligibility requirements, McManus said, noting that people would have been contacted by us up to 13 times via phone, mail, email, and text before processing their disenrollment.

Allison Pellegrin of Ormond Beach, Florida, who lives with her sister Rhea Whitaker, who is blind and cognitively disabled, said that never happened for her family. Rhea Whitakers home health aide care was cut for 12 days without her receiving any notice. Whitakers sister, Allison Pellegrin, took time off from work to take care of Whitaker, who was disabled by a severe brain injury in 2006.(Allison Pellegrin)

They just cut off the benefits without a call, without a letter or anything stating that the benefits would be terminating, Pellegrin said. Her sisters home health aide, whom she had used every day for nearly eight years, stopped service for 12 days. If I’m getting everything else in the mail, she said, it seems weird that after 13 times I wouldn’t have received one of them.

Pellegrin, 58, a sales manager who gets health insurance through her employer, took time off from work to care for Whitaker, 56, who was disabled by a severe brain injury in 2006.

Medicaid reviews have been complicated, in part, by the fact that eligibility works differently for home health services than for general coverage, based on federal regulations that give states more flexibility to determine financial eligibility. Income limits for home health services are higher, for instance, and assets are counted differently.

In Texas, a parent in a household of three would be limited to earning no more than $344 a month to qualify for Medicaid. And most adults with a disability can qualify without a dependent child and be eligible for Medicaid home health services with an income of up to $2,800 a month.

The state was not taking that into consideration, said Terry Anstee, a supervising attorney for community integration at Disability Rights Texas, a nonprofit advocacy group.

Even a brief lapse in Medicaid home health services can fracture relationships that took years to build.

It may be very difficult for that person who lost that attendant to find another attendant, Anstee said, because of workforce shortages for attendants and nurses and high demand.

Nearly all states have a waiting list for home health services. About 700,000 people were on waiting lists in 2023, most of them with intellectual and developmental disabilities, according to KFF data.

Daniel Tsai, a deputy administrator at CMS, said the agency is committed to ensuring that people with disabilities receiving home health services can renew their Medicaid coverage with as little red tape as possible.

CMS finalized a rule this year for states to monitor Medicaid home health services. For example, CMS will now track how long it takes for people who need home health care to receive the services and will require states to track how long people are on waitlists.

Staff turnover and vacancies at local Medicaid agencies have contributed to backlogs, according to complaints filed with two federal agencies focused on civil rights.

The District of Columbias Medicaid agency requires that case managers help people with disabilities complete renewals. However, a complaint says, case managers are the only ones who can help enrollees complete eligibility reviews and, sometimes, they dont do their jobs.

Advocates for Medicaid enrollees have also complained to the Federal Trade Commission about faulty eligibility systems developed by Deloitte, a global consulting firm that contracts with about two dozen states to design, implement, or operate automated benefits systems.

KFF Health News found that multiple audits of Colorados eligibility system, managed by Deloitte, uncovered errors in notices sent to enrollees. A 2023 review by the Colorado Office of the State Auditor found that 90% of sampled notices contained problems, some of which violate the states Medicaid rules. The audit blamed flaws in system design for populating notices with incorrect dates.

Deloitte declined to comment on specific state issues.

In March, Colorado officials paused disenrollment for people on Medicaid who received home health services, which includes people with disabilities, after a system update led to wrongful terminations in February.

Another common problem is people being told to reapply, which immediately cuts off their benfits, instead of appealing the cancellation, which would ensure their coverage while the claim is investigated, said attorney Miriam Harmatz, founder of the Florida Health Justice Project.

What theyre being advised to do is not appropriate. The best way to protect their legal rights, Harmatz said, is to file an appeal.

But some disabled people are worried about having to repay the cost of their care.

Saa, who lives in Davie, Florida, received a letter shortly before her benefits were cut that said she may be responsible to repay any benefits if she lost her appeal.

The state should presume such people are still eligible and preserve their coverage, Harmatz said, because income and assets for most beneficiaries are not going to increase significantly and their conditions are not likely to improve.

The Florida Department of Children and Families would not say how many people with disabilities had lost Medicaid home health services.

But in Miami-Dade, Floridas most populous county, the Alliance for Aging, a nonprofit that helps older and disabled people apply for Medicaid, saw requests for help jump from 58 in March to 146 in April, said Lisa Mele, the organizations director of its Aging and Disability Resources Center.

So many people are calling us, she said.

States are not tracking the numbers, so the impact is not clear, Edwards said. It’s a really complicated struggle.

Saa filed an appeal March 29 after learning from her social worker that her benefits would expire at the end of the month. She went to the agency but couldnt stand in a line that was 100 people deep. Calls to the states Medicaid eligibility review agency were fruitless, she said.

When they finally connected me to a customer service representative, she was literally just reading the same explanation letter that Ive read, Saa said. I did everything in my power.

Saa canceled her home health aide. She lives on limited Social Security disability income and said she could not afford to pay for the care.

On April 10, she received a letter from the state saying her Medicaid had been reinstated, but she later learned that her plan did not cover home health care.

The following day, Saa said, advocates put her in touch with a point person at Floridas Medicaid agency who restored her benefits. A home health aide showed up April 12. Saa said shes thankful but feels anxious about the future.

The toughest part of that period is knowing that that can happen at any time, she said, and not because of anything I did wrong.

Have you or someone you know with disabilities unexpectedly lost Medicaid benefits since April 2023? Tell KFF Health News about it here.

KFF Health News correspondents Samantha Liss and Rachana Pradhan contributed to this report.

Daniel Chang: dchang@kff.org, @dchangmiami Related Topics Insurance Medicaid States Colorado Disabilities Disparities District Of Columbia Florida Texas Contact Us Submit a Story Tip

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Irish politician faces deportation from Egypt after trying to cross into Gaza

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Irish politician faces deportation from Egypt after trying to cross into Gaza

An Irish politician who was detained in Egypt trying to cross into Gaza says the police were violent towards the group after seizing his phone.

People Before Profit-Solidarity TD (MP) Paul Murphy was part of a large demonstration attempting to march to the Rafah crossing in a bid to get aid into the region.

The opposition politician said his phone and passport were confiscated on Friday before he was put on a bus to Cairo airport for deportation.

Israel-Iran live: ‘Tehran will burn’ if it keeps firing missiles

Footage of the seconds before his phone was seized shows authorities forcibly dragging protesters away from the sit-down demonstration.

Ireland’s deputy premier said several Irish citizens who were detained have now been released. Mr Murphy confirmed he was among the released protesters, posting a photo on his Facebook page saying he was back in Cairo and “meeting shortly to decide next steps”.

In a message from Mr Murphy after he was detained, posted online by his social media team, he said: “I’m ok, but they still have my phone.

“Egyptian police say we’re going to airport but this isn’t the road we came on because there are 1000s of marchers on the streets. They’re taking us south past a lake, then west towards Cairo.

“Violence got worse after they seized my phone.

“One American woman in my group was badly kicked & beaten, and had her hijab torn off.”

Sky News has contacted Egypt’s police regarding Mr Murphy’s claims of violence towards the group.

Mr Murphy previously said other Irish citizen were among those who had been stopped from entering Gaza.

“The world has watched a horrific genocide for the past 20 months. Since March, a total attempt of starvation,” he added.

“And that this is a peaceful march to demand that it be ended and demand that western governments stop their complicity.”

Appeal to foreign affairs minister

Mr Murphy’s partner, Councillor Jess Spear, had previously appealed to Ireland’s Foreign Affairs Minister and deputy premier Simon Harris to make a public statement on Mr Murphy’s detention.

She expressed “relief” that the group had been released from detention.

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The deadly road to Gaza aid point

She said: “However, they still want to reach Rafah to try and get humanitarian aid into Gaza. That has been the sole purpose of being in Egypt.

“Paul has appealed to Tanaiste Simon Harris to put pressure on the Egyptian authorities to let the marchers reach Rafah. The situation of the people of Gaza worsens by the day as they suffer starvation imposed by Israel.”

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Mitsubishi debuts EV battery swap network for cars AND trucks in Tokyo

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Mitsubishi debuts EV battery swap network for cars AND trucks in Tokyo

Mitsubishi is partnering with Ample and Yamoto Transports to deploy an innovative new battery swap network for electric cars in its Japanese home market — but it’s not just for electric cars. Mitsubishi Fuso commercial trucks are getting in on the action, too!

Despite a number of early EV adopters with an overdeveloped concept of ownership, battery swap technology has proven to be both extremely effective and extremely positive to the overall EV ownership experience. And when you see how simple it is to add hundreds of miles of driving in just 100 seconds — quicker, in many cases, than pumping a tank of liquid fuel into an ICE-powered car — you might come around, yourself.

That seems to be what Mitsubishi thinks, anyway, and they’re hoping they’ll be your go-to choice when it’s time to electrify your regional and last-mile commercial delivery fleet(s) by launching a multi-year pilot program to deploy more than 150 battery-swappable commercial electric vehicles and 14 modular battery swapping stations across Tokyo, where the company plans to showcase its “five minute charging” tech in full view of hundreds of commercial fleets and, crucially, the executives of the companies that own and manage them.

How battery swap works for electric trucks
How battery swap works for electric trucks; via Mitsubishi Fuso.

A truck like the Mitsubishi eCanter typically requires a full night of AC charging to top off its batteries, and at least an hour or two on DC charging in Japan, according to Fuso. This joint pilot by Mitsubishi, Mitsubishi Fuso Trucks, and Ample aims to circumvent this issue of forced downtime with its swappable batteries, supporting vehicle uptime by delivering a full charge within minutes. The move is meant to encourage the transport industry’s EV shift while creating a depository of stored energy that can be deployed to the grid in the event of a natural disaster — something Mitsubishi in Japan has been working on for years.

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Trucks like the eCanter already serve a number of roles throughout the global truck market, including municipal waste collection, regional delivery support, and more.

The pilot is backed by Tokyo Metropolitan Government’s “Technology Development Support Project for Promoting New Energy,” with local delivery operator Yamato Transport testing swappable EVs for delivery operations on both its eCanter light-duty trucks and Mitsubishi Minicab kei-class electric vans.

Electrek’s Take


Fuso eCanter battery swap; via Mitsubishi.

Electrifying the commercial truck fleet is a key part of decarbonizing city truck fleets – not just here in the US, but around the world. I called the eCanter, “a great product for moving stuff around densely packed city streets,” and eliminating the corporate fear of EV charging in the wild just makes it an even better product for that purpose.

Here’s hoping we see more “right size” electric solutions like this one (and more battery swapping tech) in small towns and tight urban environments stateside somewhat sooner than later.

SOURCES | IMAGES: Mitsubishi, Fuso.


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Sports

Clutch gene, engage: How Leon Draisaitl reached an even higher level in the Cup Final

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Clutch gene, engage: How Leon Draisaitl reached an even higher level in the Cup Final

SUNRISE, Fla. — Leon Draisaitl is at his best when describing the Edmonton Oilers‘ worst moments.

They were “waxed” and “spanked” in Game 3 of the Stanley Cup Final by the Florida Panthers, when they lost 6-1. They “put us on our heels early and we were lollygagging around” in the first period of Game 4, when Florida built a 3-0 lead and chased starting goaltender Stuart Skinner for the second straight game.

“It’s certainly not the time to lollygag around, right?” Draisaitl asked rhetorically.

Indeed, it is not, which might be why Draisaitl didn’t let the Oilers linger in overtime too long before ending Game 4 with his 11th goal of the playoffs — shoving the puck towards the Panthers’ net, having it deflect off defenseman Niko Mikkola and behind Sergei Bobrovsky at 11:18. Edmonton won 5-4, tied the series at 2-2 and completely flushed any lingering embarrassment over that Game 3 “spanking.”

In the process, Draisaitl continued to rewrite the NHL record books and loudly stated his case as the Stanley Cup playoffs’ most valuable player.

As of Friday morning, Draisaitl had the second-best odds at winning the Conn Smythe Trophy, according to ESPN BET (+225), trailing Florida center Sam Bennett (+140) and ahead of teammate Connor McDavid (+260), who won the award in a losing effort last season.

Oilers defenseman Jake Walman believes that it’s not just Draisaitl’s scoring but his all-around game that’s what makes him such a driving force for the Oilers.

“He’s a beast who can do it all for us,” Walman said. “There have been stretches in this postseason when he’s played great defensively too.”

Edmonton has a plus-4 in goal differential with Draisaitl on the ice in the postseason.

“It’s incredible. He’s a horse out there for us,” said forward Ryan Nugent-Hopkins, who has played with Draisaitl since the 29-year-old center was drafted third overall in 2014 by Edmonton. “We can always lean on him. He always finds a way to get those big [goals].”

The numbers make that statement undeniable. Draisaitl’s Game 4 winner was his fourth overtime goal of this postseason, setting a new single playoff year record in the NHL. Incredibly, Draisaitl also holds the single-season record for overtime goals in the regular season (six), which he also set this season.

Draisaitl is just the fifth player in NHL history to score multiple overtime goals in a Stanley Cup Final series. Maurice Richard holds the record with three OT goals.

“He’s one of the best players in the world for a reason. He not only says what he’s going to do, he backs it up with his play and his actions. That’s what makes him an amazing leader,” Oilers defenseman Darnell Nurse said. “We get into overtime. In those tense moments, he has an ability to relax and just make plays. He gets rewarded for working hard.”

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Leon Draisaitl scores OT winner for Oilers in Game 4

Leon Draisaitl notches the game-winning goal with this one-handed effort in a pulsating Game 4 that levels the series for Oilers.

Draisaitl has been perhaps the NHL’s most dominant player when factoring in the regular season with the postseason. The Oilers star finished a close second to Winnipeg Jets goalie Connor Hellebuyck in the voting for the Hart Trophy as league MVP, after a season in which Draisaitl led the NHL in goals (52) and was third overall in points (106). Draisaitl was the winner of the Hart in 2019-20, and this was the fourth season of 50 or more goals in Draisaitl’s 11-year NHL career.

Draisaitl is now second to Sam Bennett (14 goals) in postseason goals, after scoring his 11th in overtime of Game 4. He’s now tied with teammate Connor McDavid with 32 points in 20 playoff games to lead all scorers.

He has now reached 30 points in two straight postseasons, becoming only the fifth player in NHL history to accomplish that feat, along with McDavid (2024-2025), Nikita Kucherov (2020-2021), Mario Lemieux (1991-1992) and Wayne Gretzky (1987-1988 and 1983-1985). Draisaitl now has three 30-point playoff seasons in his career, tying him with McDavid and Hockey Hall of Famer Mark Messier for second all-time behind all-time leader Gretzky, who had six 30-point playoff campaigns.

It’s not just the amount of scoring for Draisaitl — it’s when he’s scoring. Consider that he has 16 points in the final two rounds of the playoffs, including a series-best seven points in the Stanley Cup Final. Draisaitl has points in 17 of 20 playoff games, and nine of his past 10 overall.

“He’s as clutch as it gets,” said goalie Calvin Pickard, also a Game 4 hero for Edmonton with 22 saves and a win in relief of Skinner. “He’s been playing great. Always scoring big goals at big times.”

In the case of his Game 4 performance, Draisaitl not only came through in the clutch but also did in a building that hasn’t been friendly to him. He hadn’t tallied a point in any of his previous five Stanley Cup Final games on the road against the Panthers. He didn’t even generate a shot on goal in Game 7 last season or in Game 3 this postseason. He also failed to generate a shot attempt in Game 3, marking just the second time in 93 career playoff games that this occurred for Draisaitl.

On Thursday, he made up for lost time with three points, assisting on goals by Nugent-Hopkins and Vasily Podkolzin before scoring one of his own in overtime.

Florida coach Paul Maurice believes his team has defended Draisaitl and McDavid “reasonably well” in the series at 5-on-5.

“I think they’re still going to generate some action,” the coach said. “I think the even-strength chances are pretty tight through four games.”

One of the differences for Edmonton this postseason, after losing to Florida in Game 7 of the Stanley Cup Final in 2024, is their confidence and comfort in playing in tight games and grinding series. If they get down, they don’t get flustered. If things aren’t clicking offensively, they’re patient.

“You just get comfortable in those situations knowing that you play one good game, you find a way to get a win on the road, and you go home and the series is tied. That’s really all it is,” Draisaitl said before Game 4. “Sometimes those games where you just get waxed a little bit, they’re almost easier to get out of, right? We didn’t play our best. They played their best. We weren’t even close to bringing our best. You park that, you move on.”

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Draisaitl comes up big with OT winner in Game 1

Leon Draisaitl nets the winning goal late in overtime to help the Oilers take Game 1 of the Stanley Cup Final.

For all the message-sending that the Panthers did in Game 3 — on the scoreboard, on the ice and with their mouths — the Oilers sent an important one about their resiliency with their Game 4 rally.

“It tells you that our group never quits. We believe that no matter how bad it is, if we get over that hump of adversity, we’re going to keep pushing, we’re going to keep coming, and eventually it’ll break,” Draisaitl said. “You don’t want to be in these situations too many times. But when they happen, I think we’re great at it.”

It helps to have someone like Leon Draisaitl scoring when it matters most.

“I don’t know what could convey what he means to our team,” Edmonton coach Kris Knoblauch said. “The leadership, the play. He has just elevated his game in the toughest moments.”

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