Infected Blood Inquiry: Couple who were shunned and abused as son lay dying hoping for ‘justice’
Colin Smith carries a small suitcase into the dining room of their Newport home and lays it flat on the table in the centre of the room. He pops open both latches.
His wife Jan reaches inside and pulls out a sky blue child’s blanket. She holds it close to her face, closes her eyes and inhales deeply.
“It still smells of him,” she says, softly.
“This is the blanket he was wrapped in when he died.”
Their son, also called Colin, was just seven years old when he died in January 1990. His tiny body was ravaged by Hepatitis C and AIDS.
The suitcase, much like the one most families used to own in the 1980s, is just big enough to hold all the memories of their son’s short life.
Next to the blanket, are his favourite toys including a snow globe and lots of his artwork.
Jan and Colin Smith look through the suitcase containing their son’s possessions
Jan explains that Collin, loved to paint and draw and that he was very talented.
“He was 13 pounds when he died. That’s nothing is it for a seven-year-old?” Jan asks.
The question goes unanswered as a momentary silence fills the room.
Colin was born with haemophilia. The treatment for his blood clotting disorder included a product called Factor VIII.
What his parents didn’t know was that the Factor VIII was made in America using blood farmed from prisoners, drug addicts and sex workers.
Jan can recall all the fine details of that day clearly. Especially the cold, matter-of-fact way the bombshell news was delivered by doctors treating Collin.
“We went to the hospital,” Jan says, and they called us out into a corridor, kids running around, parents, and just told us that Colin had become [infected with] HIV.”
By this time their beautiful little boy had become very sick.
Colin Smith with his toys
‘You just couldn’t pick him up’
Colin senior is still haunted by the effect the virus had on his son’s body. ‘You could see every sinew and tendon in his body,” he said.
Jan said: “I think it was about ’89 that we realised because the weight loss was incredible. And we had him home for a little while, and you couldn’t just pick him up.
“We had to use a sheepskin because it hurt him. He would say: ‘Mum you’re hurting, it’s hurting’.”
Colin was treated by Professor Arthur Bloom, who died in 1992. But in the 1980s, he was one of the country’s leading haemophiliac specialists.
However, documents shown at the Infected Blood Inquiry prove Bloom’s research carried great risks and these were never explained to Colin’s parents.
Professor Arthur Bloom, who died in 1992, was one of the country’s leading haemophiliac specialists
There is a record of the first time Colin went into hospital that shows that he had never been treated for his haemophilia at this point.
Previously untreated patients were known to be useful for research as their responses to new treatments could be tracked. Patients exactly like Colin.
Also shown to the Infected Blood Inquiry was a letter from Prof Bloom to a colleague after another visit by Colin to hospital saying he’s been given Factor VIII and acknowledging that even though this was the British version there was still a risk of Hepatitis but that “this is just something haemophiliacs have to accept”.
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And a letter, dated 24 June 1983, from Prof Bloom to colleagues discusses the risk of AIDS. They accept that one possible case of AIDS has been reported.
Colin’s parents are convinced their son was being used in secret trials.
Colin Smith
“I think Colin was just unlucky enough to be born at the right time. Newly diagnosed haemophiliac, never been treated,” his father explained.
“Which is what we were after, because as documentation states that they are cheaper than chimpanzees, you know. You treat a chimp once, you can follow these children throughout their lives. And that’s what was going on.
“And this was going on from the ’70s. Colin was born in 1982. Yet they still infected him. How do you justify that?”
His mother said that they trusted the doctors at the time and never questioned their son’s treatment. “Just when we think back – at the time no, we didn’t. But when we think back, it was just blood tests. Blood tests, blood tests, blood tests.”
Hate campaign
The threat of HIV and AIDs was only just emerging. And this ignorance drove a hate-fuelled campaign against all those impacted.
This stigma forced Colin and Jan to move home and be shunned by some of their own community. All while still caring for their dying son.
“It became public when he needed to start school, for nursery, and all the parents protested and said: ‘We’re not having an AIDS kid in this school’, because we’ve been known as the AIDS family. We had AIDS that were [written] on the house and you’re not talking little.
“Well, it was like six-foot letters ‘AIDS DEAD’, we had crosses scraped into the door. The phone calls in the middle of the night were not very nice. They were the worst.”
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As Colin’s condition deteriorated his parents decided to bring him home for what would be his last Christmas with the family. It was against the wishes of Prof Bloom.
Jan and Colin were told haemophiliacs with AIDS should die in hospital and be cremated quickly. But the family ignored the hospital.
“And you know what,” Jan says. “He asked for a bike. And we actually got him a bike. He never rode it, obviously because he was too ill. But he wanted a bike. And I’m not going to not get him a bike. Because they all have bikes. But Colin never, never even sat on one.”
Colin Smith spent his last Christmas at home, against the wishes of Professor Bloom
That difficult decision to remove Colin from hospital to spend his last days with his family at home proved to be the right one.
“He was on my lap and he just got up to you, didn’t he?” Jan says looking at her husband. “He said: ‘I can’t see, daddy. I can’t see’. And then he just lay back. My hand was on his chest.
“And, you know, for a mother to actually feel the rise and fall of his chest. Waiting for it to stop. Because that’s what I was doing.
“I was waiting for it to stop. And then it stopped. And I just said: ‘I think he’s gone’. And I remember shaking him a little bit, but he’d gone.”
Jan and Colin Smith speaking to Sky News
‘I want my son to have his name back’
On Monday, Sir Brian Langstaff will deliver the long-awaited report into the infected blood scandal.
It has taken campaigners like Jan and Colin decades to achieve this. They are clear on what this report must say and how the government must respond.
Colin senior lives with the guilt of not protecting his son. He wants accountability.
“I want justice to be served properly not hypothetically. Let’s see the people who did this, hopefully criminal charges. It is manslaughter at least. I gave my son over to his killers, you know, and I can’t get to grips with that,” he says.
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Blood scandal ‘the worst thing’
For Jan, it will be recognition for a lifetime of heartbreak and grieving.
“I want people to recognise my son. And I want to be able to go to the cemetery and say, we’ve done it. And you’ve done it. That’s what I want. And I want an apology.
“People say it’s the money, it’s not the money. And I can’t get that through to people. It’s not the money. I want recognition.
“I want my son to have his name back. His name is Colin John Smith. And that’s what I want people to remember.”
Sky News will have full coverage of the infected blood report on TV, online and on the Sky News app on Monday.
The King and other members of the Royal Family have said they are “deeply saddened” after a number of people were struck by a car during Liverpool FC’s title parade.
The monarch said he and the Queen were “deeply shocked and saddened” by Monday’s incident in the city.
The head of state, who is currently on a two-day visit in Canada with his wife, said: “It is truly devastating to see that what should have been a joyous celebration for so many could end in such distressing circumstances.
“At this heartbreaking time for the people of Liverpool, I know that the strength of community spirit for which your city is renowned will be a comfort and support to those in need.”
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Police and other emergency personnel at the scene of the incident in Liverpool. Pic: AP
The Prince and Princess of Wales have also issued a statement, saying they were “deeply saddened” by what happened in Liverpool.
William, who is patron of the Football Association, and his wife Kate said in a message shared by Kensington Palace on social media: “What should have been a joyful celebration ended with tragedy.
“Our thoughts are with those who were injured and to the first responders and emergency services on the ground.”
Meanwhile, the Princess Royal visited the Royal Liverpool University Hospital on Tuesday, where she met medical staff who treated some of the 47 people injured when a vehicle hit fans attending the parade.
The Princess Royal thanked hospital staff. Pic: PA
Divisional medical director for surgery at Aintree University Hospital, Marc Lucky, told Princess Anne that medics were “very, very fortunate” that there were not more major injuries.
Consultant Jay Rathore added: “Most of the injuries were limb injuries. No life-threatening, we were able to manage them.”
The princess was already due to be in Liverpool on Tuesday to visit the MS Queen Anne after it arrived on Monday for Cunard’s 185th anniversary celebrations.
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The King and Queen are currently on a trip to Canada. Pic: PA
She expanded her itinerary to also meet nurses, consultants, and paramedics, as well as representatives from Merseyside Fire and Rescue Service and the football club, in light of Monday night’s incident.
“We really appreciate you still coming, because it will mean a lot to the people of the city,” Liverpool City Council leader Liam Robinson said as he thanked the princess for her visit.
A Buckingham Palace spokesman said: “The princess would like to share her heartfelt condolences and support for the families and communities affected.
“Her Royal Highness also wishes to acknowledge the courage of the emergency services, some of whom she met today, and all those providing care and comfort during this difficult time.”
King Charles says Canada will remain “strong and free” – in a speech viewed by many Canadians as a show of support for the country’s sovereignty following annexation threats by Donald Trump.
It comes after Mr Trump repeatedly suggested that Canada should become America’s 51st state.
Prime Minister Mark Carney later invited Charles, who is the head of state in Canada, to the state opening of parliament.
On Tuesday, Charles said in a speech, written by Mr Carney’s government to open Canada’s parliament, that the country would remain “strong and free”, quoting the national anthem, but did not directly refer to Mr Trump’s annexation threats.
“We must face reality: since the Second World War, our world has never been more dangerous and unstable. Canada is facing challenges that, in our lifetimes, are unprecedented,” the King told politicians in the Senate Building in Ottawa in French.
“Many Canadians are feeling anxious and worried about the drastically changing world around them,” he added.
Mark Carney applauded the King. Pic: PA
King Charles spoke with former Canadian PM Justin Trudeau. Pic: PA
In the speech, he highlighted his admiration for “Canada’s unique identity, which is recognised across the world for bravery and sacrifice in defence of national values”.
He set out the government’s legislative agenda on the second day of his Canada visit, an honour usually reserved for the governor general.
King Charles is only the second monarch, after his mother Queen Elizabeth II, to do so. The late queen delivered the speech at the state opening of the Canadian parliament in 1957, her first visit to the country as head of state, and again in 1977.
King Charles and Queen Camilla were riding in a horse-drawn landau. Pic: Reuters
King Charles III and Queen Camilla are pictured ahead of the opening of parliament. Pic: PA
Charles and Camilla laid a wreath at the national war memorial in Ottawa. Pic: PA
He said that it has been nearly 70 years since his mother first opened the Canadian parliament, and at the time, World War II remained a painful memory while the Cold War was intensifying simultaneously.
“Freedom and democracy were under threat,” the King said.
“Today, Canada faces another critical moment. Democracy, pluralism, the rule of law, self-determination, and freedom are values which Canadians hold dear, and ones which the government is determined to protect.”
He added that since Queen Elizabeth II’s first Canadian parliament opening, the country “has dramatically changed: repatriating its constitution, achieving full independence, and witnessing immense growth”.
Addressing the protection of Canada’s sovereignty, Charles read out a promise by the Canadian government that it would rebuild, rearm and reinvest in its armed forces.
“It will invest to strengthen its presence in the north, as this region, which is an integral part of the Canadian nation, faces new threats,” he read.
King Charles and Queen Camilla were led by procession to open the first session of parliament in Canada
Royal Canadian Mounted Police (RCMP) officers on horseback rode towards the senate building. Pic: Reuters
King Charles and Queen Camilla visited the Senate. Pic: Reuters
The speech, which was awarded a standing ovation by attendees, was largely written by officials working for Mr Carney’s government, with Charles adding his own comments about his love for Canada.
The King opening Canada’s parliament is a “clear message of sovereignty” and “not coincidental”, Mr Carney previously said.
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King Charles and Mark Carney during the event
He also revealed that Canadians “weren’t impressed” by the decision of the UK government to offer Mr Trump an unprecedented second state visit to the UK.
Mr Carney said the invitation Sir Keir Starmer handed to the US president earlier this year “cut across clear messages” that the Canadian government was trying to send to the White House in response to their threats against Canada’s sovereignty, including Mr Trump’s idea for it to be America’s 51st state.
Peter Mandelson, the UK ambassador to the United States, has told Sky News he “regrets” his association with paedophile Jeffrey Epstein.
Lord Mandelson‘s links to the late billionaire were exposed in a 2019 report by JP Morgan bank, filed in a New York court.
Epstein killed himself in August of that year while awaiting trial on charges of sex trafficking minors.
He had previously served an 18-month sentence after pleading guilty to procuring a person under the age of 18 for prostitution.
Whilst serving that sentence, the JP Morgan report suggests that Mr Mandelson stayed at Epstein’s Manhattan flat.
Epstein wrote to his private banker on 17 June 2009: “Peter will be staying at 71st over weekend…”
At the time, Lord Mandelson was the Business Secretary in the UK government under then-Prime Minister Gordon Brown. He was appointed UK ambassador to the United States in December 2024.
Jeffrey Epstein. File pic: New York State Sex Offender Registry via AP
Sky News asked him if he did, indeed, stay at Epstein’s flat while the disgraced financier was in jail.
He replied: “I’m not answering any questions about him. My knowledge of him is something I regret, I wish I’d never met him in the first place.”
Asked why he had an association with Epstein whilst he was in jail, Lord Mandelson replied: “Why did many people meet him? He was a prolific networker. And I wish I’d never met him in the first place.”
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As US ambassador, Lord Mandelson represents Britain’s interests in Washington and has vowed to treat Donald Trump‘s administration with “respect, seriousness and understanding of where they are coming from politically”.
This comes after Lord Mandelson described the US president as a “danger to the world”, for which he apologised earlier this year.
He told the Alain Elkann Interviews podcast in 2019: “What Donald Trump represents and believes is an anathema to mainstream British opinion.”
US President Donald Trump, vice president JD Vance, and UK ambassador to the US Peter Mandelson. Pic: AP
Mr Mandelson added: “Even those who have a sneaking admiration for Donald Trump because of his personality, nonetheless regard him as reckless, and a danger to the world.”
But in January this year, Lord Mandelson said he now considered his remarks “as ill-judged and wrong”.
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