Diane Edwards is exhausted and in mourning. She has agreed to speak to Sky News just 10 days after her ex-husband’s death.
She stands in the bathroom where they would spend hours through the night together as he battled stage 4 terminal bowel cancer.
“Sometimes I’d put him back into bed and the blood would be pouring out,” she says.
“It’s horrific. It isn’t the same person you knew or you were married to. They’re not the same people.”
Mick was blind and needed assistance moving around his home. He had been suffering for months and opportunities to diagnose his condition were missed.
After he was told he had cancer, carers and charity support staff would visit to help the family during the day but Diane says they were insufficient and lacked the medical training needed.
“They weren’t medical carers. He deteriorated even more and I was on my knees, I was at breaking point.
“The tears were rolling down my cheek, sometimes I didn’t know I was crying. I was worn out and I thought ‘if I don’t do something about myself, I’m going to end up in hospital’. I never slept. Your body gets used to no sleep.”
Image: Mick Edwards
One year ago, complications in Mick’s condition meant he required hospital treatment.
This time he was discharged with a fast-track care package known as NHS Continuing Healthcare or CHC. It’s funded by the NHS for people assessed as having health and social care needs caused by a medical issue.
Around 12 weeks after leaving hospital, Mick was remotely assessed online by NHS Shropshire, Telford and Wrekin, which found he needed social care instead of palliative care.
Diane says Mick didn’t have any family present at this meeting, only staff from a care home who were now looking after him.
It left the family worried they would have to sell his home to pay for the palliative care they believed he needed.
“Mick couldn’t cope with a video link,” Diane says. “He’d lost his confidence, he’d had falls, he was deteriorating, so he couldn’t have coped.
“I had to tell Mick he’d lost his funding. He got upset over it. He didn’t eat for a day because of it. It’s hard, there’s nothing out there for you for help, there’s no backup, I wish there was.”
Image: Diane and Mick Edwards on their wedding day
The Shropshire, Telford and Wrekin NHS Trust offered its sympathies and condolences to Mick’s family, telling Sky News its assessments are carried out in line with the national framework, which allows providers to use a number of approaches including face-to-face or video-teleconferencing.
The assessment teams recommend whether patients have an unmet health need over and above what a local authority can provide. Every individual has the right to appeal, the trust says.
The national framework also says it is best practice for assessors to meet with the individual being assessed and that there are concerns such CHC assessments can be a postcode lottery.
Research by the Nuffield Trust thinktank found that nationally between January and March of this year, only around a fifth of people who underwent a CHC assessment were eligible and that approvals varied widely, from over 40% in Leicestershire to just 7.3% in Gloucestershire.
Nuffield Trust fellow Rachel Hutchings and her team acknowledge there is little public understanding around the CHC process and that there can be many complex reasons contributing to the disparities, such as the demographics of the population served by the respective trusts.
But she says the inconsistencies in how funding is allocated and assessed are a concern.
She told Sky News: “There are a lot of pressures within the social care system more generally, we know that long-term reform is definitely needed, but so far we’ve had very little progress on that, but in the short-term there’s a real urgent crisis facing social care as well and we see a lot of these challenges kind of exemplified within CHC.”
Image: Rachel Hutchings from Nuffield Trust
NHS England told Sky News that “anyone eligible for continuing healthcare should receive a package of support that is tailored to their individual needs and preferences”.
It continued: “The process of assessment for continuing healthcare and decision-making should also be centred around the individual, taking into account their needs, or their representative’s view where appropriate, and they should be empowered and assisted to participate.”
Mick’s CHC funding was eventually reinstated six weeks later after a social worker and a local GP intervened.
But Diane says she believes her ex-husband’s final days are indicative of how patients nearing the end of life are treated and that Mick would have opted for assisted dying had it been available.
“I don’t remember feeling this unsafe ever before,” says 76-year-old devout Sikh Resham Kaur who moved to the UK from India when she was 18.
She’s waiting for two men to walk her home from the gurdwara – a Sikh place of worship – at a time of rising fears over physical and verbal racial abuse.
Resham reaches for her walking stick and puts on her shoes.
Image: Sarbjit Singh and Mangat Singh walking Resham Kaur home from the gurdwara
Image: Monty Singh says they are ‘not vigilantes’
“When I came to this country, I didn’t fear for my safety. But now I do – every day. It’s a lot worse now,” she says.
It’s a disturbing admission at a time when some fear Britain’s communities are more fragmented than ever.
Two volunteers arrive, opening the exit door for Resham at the gurdwara in Smethwick in the West Midlands.
Sarbjit Singh – who works in a bakery – and Mangat Singh – who works at a salad farm – are part of the congregation and walk people to and from the gurdwara on their days off to keep them safe.
With attendance numbers at the gurdwara falling because of safety fears, Sarbjit says it’s something they need to do “until we get a bit of peace and tranquillity back in society and the community”.
“We have to do something. We can’t just sit in silence. And we can’t let the congregation just stay at home,” Sarbjit says.
Image: The Oldbury patrol
Other groups of Sikh men are also taking action – joining patrols along a road in nearby Oldbury where a young Sikh woman was allegedly raped a few weeks ago.
That alleged attack – and an assault on two taxi drivers in Wolverhampton in August – have horrified the Sikh community. Police are treating both incidents as racially aggravated.
Image: Two Sikh taxi drivers were allegedly assaulted in Wolverhampton in August
Monty Singh, who is taking part in the patrols, says they are “not vigilantes”.
“We need to make it crystal clear that we’re good people, we’re just trying to do the right thing and support our community,” Monty adds.
Pervinder Kaur is the vice president of the gurdwara.
Image: Pervinder Kaur said before the summer people felt safe, but racial abuse is being emboldened
She believes racial abuse is being emboldened after a summer of demonstrations outside hotels housing asylum seekers and renewed debate about immigration.
“People are more verbal about it now. They are not scared of the consequences,” she said.
A sense of vulnerability is common among minority communities and security measures have also been stepped up at mosques around the country.
Image: Iman Adam Kantar said ‘the Union Jack is our flag’
Image: Friday prayers at the Rumi Mosque in Edmonton, north London
Imam Adam Kantar from the Rumi Mosque in Edmonton, north London, said: “Many people are now telling their children not to be outside after certain hours.
“Their [husbands], they prefer to go shopping instead of their hijab [wearing] wives and spouses.
“We have to engage with the wider community and prove that we love this country and its people. The Union Jack is our flag.”
What Britain’s fragmented society has in common is fear among minority communities – even if the causes are different.
Rabbi Josh Levy, the co-lead of Progressive Judaism, has spent years trying to advance interfaith dialogue.
He said: “Single individual(s) or small groups can cause a huge amount of pain and distress.
“There are lots of really great examples of community cohesion around the country. But generally, there is definitely a sense of fragmentation. And whether it’s driven by political concerns or what’s happening internationally.
“We’ve got huge work to do in taking the work that happens on a national level and bringing it into local communities.”
Rachel Reeves has been warned that firms face a “make-or-break moment” at next month’s budget.
The British Chamber of Commerce (BCC) urged the chancellor, who is widely expected to announce tax hikes in November’s budget to fill a gap in the public finances, to steer clear of increasing levies on businesses.
Ms Reeves raised taxes by £40bn last year and the BCC said business confidence had not recovered since.
“Last year’s budget took the wind from their sails, and they have been struggling to find momentum ever since,” BCC director-general Shevaun Haviland said.
She said firms felt “drained” and could not plan ahead as they expected “further tax demands to be laid at their feet” when the budget is delivered on 26 November.
“The chancellor must seize this moment and use her budget to deliver a pro-growth agenda that can restore optimism and belief amongst business leaders,” Ms Haviland added.
“This year’s budget will be a make-or-break moment for many firms.”
Please use Chrome browser for a more accessible video player
2:46
Labour might U-turn on farming tax: What do farmers think?
The BCC also called for a reform of business rates and the removal of the windfall tax on gas and oil introduced by the last government.
In its submission, the industry body outlined more than 60 recommendations, including the proposal of further infrastructure investment, cuts to customs barriers and action on skill shortages.
Earlier this year, Prime Minister Sir Keir Starmer announced Labour would aim to approve 150 major infrastructure projects by the next election, with Labour already pledging to support expansions of both Heathrow and Gatwick airports – another of the BCC’s requests.
While the Treasury would not comment on budget speculation, a spokesperson insisted Ms Reeves would “strike the right balance” between ensuring funding for public services and securing economic growth.
She has vowed to stick to Labour’s manifesto pledges not to raise taxes on “working people”.
Please use Chrome browser for a more accessible video player
1:07
Is Britain heading towards a new financial crisis?
Household spending on the wane
The BCC’s plea to halt further tax rises on businesses comes as retail sales growth slowed in September.
“With the budget looming large, and households facing higher bills, retail spending rose more slowly than in recent months,” Helen Dickinson, chief executive of the British Retail Consortium (BRC), said.
“Rising inflation and a potentially taxing budget is weighing on the minds of many households planning their Christmas spending.”
Total retail sales in the UK increased by 2.3% year-on-year in September, against growth of 2% in September 2024 and above the 12-month average growth of 2.1%, according to BRC and KPMG data.
While food sales were up by 4.3% year-on-year, this was largely driven by inflation rather than volume growth.
Non-food sales growth slowed to 0.7% against the growth of 1.7% last September, making it below the 12-month average growth of 0.9%.
Image: Total retail sales in the UK increased in September compared to the year before. File pic: PA
Online non-food sales only increased by 1% against last September’s growth of 3.4%, which was below the 12-month average growth of 1.8%.
“The future of many large anchor stores and thousands of jobs remains in jeopardy while the Treasury keeps the risk of a new business rates surtax on the table,” Ms Dickinson said.
“By exempting these shops when the budget announcements are made, the chancellor can reduce the inflationary pressures hammering businesses and households alike.”
Thousands of homes fitted with insulation under a flagship government scheme now need major remedial work, or risk damp and mould, the public spending watchdog has warned.
A damning report by the National Audit Office (NAO) said “clear failures” in the Energy Company Obligation (ECO) scheme to tackle fuel poverty and pollution had led to low quality installations and even potential fraud.
It blamed incompetent subcontractors and weak monitoring and government oversight for the issues, which in extreme cases could cause fires.
Fuel poverty campaigners warned the system had “let cowboys through the front door”, saying it must be fixed to bring down energy bills and keep people warm.
Almost all homes – some 98%, affecting 22,000 to 23,000 properties – fitted with external wall insulation under the ECO are affected, the NAO said.
A further 29% of homes with internal wall insulation – around 9,000 to 13,000 dwellings – also face major issues that need fixing.
A small percentage of homes – 6% with external insulation and 2% with internal – put people in immediate danger, such as poor ventilation that could cause carbon monoxide poisoning, and electrical safety issues that could start fires.
ECO is a scheme that obliges energy companies to pay for energy efficiency measures in vulnerable households out of consumer bills.
Gareth Davies, head of the NAO, said ECO is “important to help reduce fuel poverty and meet the government’s ambitions for energy efficiency”.
But “clear failures in the design and set-up” had led to “poor-quality installations, as well as suspected fraud”, he added.
‘Gaming the system’
The report says the reason things had gone so badly wrong could be down to work being subcontracted to individuals and firms who are not competent or certified, uncertainty over standards, and businesses “cutting corners” or “gaming the system”.
The energy regulator Ofgem last year estimated businesses had falsified claims for ECO installations in between 5,600 and 16,500 homes.
That means they could have claimed between £56m and £165m from energy suppliers – ultimately paid for by bill-payers.
Image: More than 20,000 homes are said to be affected. File pic: iStock
Martin McCluskey, the government minister for energy consumers, criticised the “unacceptable, systemic failings” that had affected thousands of families.
He added: “We are fixing the broken system the last government left by introducing comprehensive reforms to make this process clear and straightforward, and in the rare cases where things go wrong, there will be clear lines of accountability, so consumers are guaranteed to get any problems fixed quickly.”
The government urged households to take up the free audit that will be offered in a forthcoming letter, and said installers would be forced to remedy the issues free of charge.
However, insulation has the potential to vastly improve homes, analysts pointed out.
Jess Ralston from energy think tank ECIU said: “The majority of households that have benefitted from insulation schemes have lower bills and warmer, healthy homes, particularly during the early years of the gas crisis when the UK’s poor quality housing stock was one of the reasons we were so badly hit compared to other European countries.”
Simon Francis, co-ordinator of the End Fuel Poverty Coalition, said: “Insulation and ventilation, when done properly, are among the safest and most effective ways to bring down energy bills and keep people warm.”
But the report had revealed a “system that has let cowboys through the front door, leaving thousands of victims living in misery and undermining public trust”.
Sue Davies, Which? head of consumer protection policy, called it “a damning indictment of a failed scheme, where poor oversight has allowed rogue traders to cause huge damage to people’s homes and lives”.
She said the government must take swift action to rectify the damage, as well as ensuring “there is no repeat of this scandal by putting in place robust consumer protections and effective oversight”.