Damien Dalmayne, 17, is autistic. He also battles mental health issues that have left him unable to get out of bed and contemplating harming himself.
Warning: This story contains references to suicide
“There were thoughts of me doing stuff to myself. I never did but there were stages where it would get pretty hard and it really did get to that point that I was really considering it,” Damien says.
His depression spiralled during the COVID lockdowns and when he was 15 he was referred to his local NHS mental health team in Greenwich.
The paediatrician who made the referral recommended that Damien be seen “urgently”.
But Child and Adolescent Mental Health Services (CAMHS) rejected the referral, instead referring Damien and his family to a local social services team.
Damien believes he was rejected because of his autism diagnosis.
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“They [CAMHS] think they can’t help people with special needs. They think ‘that’s just a terminal illness’ even though it’s not,” says Damien.
In its rejection letter, Greenwich CAMHS agreed Damien “experiences emotional difficulties”.
But, noting his autism diagnosis, it suggested he see the area’s Children with Disabilities Team, rather than a specialist mental health service.
Crucially, his mother, Emma Dalmayne, says this meant they were unable to access specialist services like therapy to help Damien.
Autism and mental health ‘seen as separate issues’
Ms Dalmayne says a confused social worker called her after Damien’s referral was redirected to their team.
“They said ‘why have we been called?’ I said ‘I don’t know’.”
“CAMHS see autism and mental health as separate for some reason,” says Ms Dalmayne.
“If you’re not well you go to a doctor, you get help. But no, if you’re mentally ill and autistic and go to a doctor, you’re not getting anything. You’re told ‘well we can’t see you because you have a neurological difference’.”
The NHS trust responsible for Greenwich CAMHS said it is unable to comment on individual cases but stressed it does accept referrals for autistic children who have a “severe and enduring mental health need”.
However, it said children may be referred to other services “where referrals do not meet the threshold for CAMHS”.
CAMHS are run by different health trusts throughout the UK.
Image: Ms Dalmayne is campaigning for better access to CAMHS for autistic children
Ms Dalmayne says she has spoken to other parents with autistic children who have had similar experiences.
She says she knows one mother who is scared to tell her local CAMHS that her son has been diagnosed as autistic because she worries they will stop his care.
“It’s not an inclusive world. We don’t feel included at all,” says Ms Dalmayne, who is also autistic.
Damien believes NHS services don’t think autistic people can engage effectively with therapy.
“It’s not like just talking to a wall. They [autistic children] will end up listening and if they can they will end up talking.”
He says his experience with CAMHS left him feeling “inhuman”.
Damien ended up using his disability benefits to pay for private therapy.
“If I had waited probably six months [longer to get therapy], I probably wouldn’t be here. They [CAMHS] really put my health at risk,” he says.
Oxleas NHS Foundation Trust, which administers Greenwich CAMHS, said: “Currently, just over 16% of our CAMHS caseload includes children and young people with both an autism diagnosis and a severe and enduring mental health need. This does not include children and young people either waiting for or currently being assessed by an autism diagnostic service alongside CAMHS.
“Should individual circumstances change, re-referrals can be made. CAMHS is just one part of a much larger collection of services delivering emotional health and wellbeing support and services to children and young people.”
People with autism more likely to experience mental health issues
Sky News tried to get a clearer picture of autistic children’s access to CAMHS across the UK, but when we requested data from health trusts, the majority did not disclose the number of referrals and rejections for autistic children.
We did learn of the serious pressure facing services nationally, with data showing total referrals to CAMHS had risen by 60% between 2018 and 2023. Rejections from CAMHS were up by 30% across the same period.
While it’s difficult to get a sense of the number of autistic children accessing CAMHS, autistic people are more likely to experience mental health problems than people who aren’t autistic.
Image: Damien says the rejection by CAMHS put his health at risk
Sky News spoke to one CAMHS nurse anonymously – we aren’t identifying the health trust she works for.
She said nationally it’s a mixed picture in terms of the level of care autistic children receive.
“We [CAMHS] certainly don’t do enough for children that have been diagnosed with autism in terms of their post-diagnostic support.”
She says she has witnessed preconceptions about autism among staff that can lead to autistic children not getting the care they need.
Skills ‘aren’t consistent’ across health service
“Some people [working in CAMHS], sometimes might tend to say ‘well it’s [their issues are] because of their autism’ as opposed to thinking well actually they might be autistic but they can also have a mental health difficulty that can be supported,” says the nurse.
“A child that has autism and mental health needs, that’s not going to be solved by social services, they need mental health support.”
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She says skills aren’t “consistent” across the health service and that autistic children can be at a disadvantage if their behaviour means more traditional forms of talking therapy aren’t appropriate.
The nurse continues: “I’ve known it happen where people say ‘oh this person is not engaging’ so they get discharged.
“Sometimes therapy is not always helpful, then it’s about different, more holistic ways to support children and support behavioural changes.
“I do think there’s a need to increase skills within CAMHS absolutely. [Staff] recruitment and retention has been difficult across the board.”
Ms Dalmayne is campaigning for better access to CAMHS for autistic children, her biggest fear is that autistic children and adults are hurting, and even killing themselves, if they can’t access mental health support.
“It makes me feel we’ve got to do everything we can to change it,” she says.
Anyone feeling emotionally distressed or suicidal can call Samaritans for help on 116 123 or email jo@samaritans.org in the UK. In the US, call the Samaritans branch in your area or 1 (800) 273-TALK
A group of Labour MPs has urged Sir Keir Starmer to do more to tackle the rising cost of living amid fears the party could lose the next election to Reform.
The MPs are launching a new splinter group, the living standards coalition, to shift the focus to everyday concerns such as food, energy bills and housing.
In a letter to the prime minister, the group’s members warned that one question would be on the mind of voters at the next election: “Did this Labour government make me better off?”
“After 14 years of living in a no-growth economy and with some of the highest bills in Europe, our constituents are struggling to make ends meet,” they said.
“More of them are turning away from democracy and towards populism as they can’t afford a decent life.”
The coalition is the latest splinter group to form since the party’s landslide election victory a year ago.
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Other groups include the Labour growth group, which focuses on delivering economic growth, and MPs in Red Wall constituencies in the North who are alive to the threat Reform poses in their seats.
While the MPs stress they are supportive of the actions the government has taken so far, the forming of a new group could be interpreted as a sign of restlessness in the parliamentary party, especially given the fallout of last week’s botched welfare vote.
In the letter, first reported by The Guardian, the MPs write: “We are here to support your efforts to go further and faster on raising living standards. We come from every corner of our party.
“To raise living standards, we support government interventions that will help to increase incomes and lower costs.
“We welcome interventions that will raise incomes. We welcome investment in labour- intensive building, education, and healthcare jobs that will raise living standards through employment. We welcome the Employment Rights Bill that will get wages rising.”
They added: “We know that some will try to stop us raising living standards.
“They will try to block us from building the affordable housing and windfarms we need to get bills down. They oppose the way we have raised revenue from the very wealthiest to invest in childcare and our NHS.
“We are glad you are keeping this government’s focus on raising living standards. We stand in support of you. It is the most important issue to our constituents and the country.”
The parents of survivors of the Southport attack have revealed the “untold stories” of how their “hero” children escaped.
Axel Rudakubana, 18, murdered Elsie Dot Stancombe, seven, Bebe King, six, and Alice da Silva Aguiar, nine, in what the chairman of the public inquiry Sir Adrian Fulford called “one of the most egregious crimes in our country’s history”.
Eight children were injured along with two adults at a Taylor Swift-themed class in the Merseyside seaside town on 29 July last year, while 15 others escaped without physical injuries.
The surviving victims and their families have been granted anonymity during the inquiry, with one girl referred to as C3. Her father was the first to give evidence at Liverpool Town Hall on Wednesday.
Image: Alice da Silva Aguiar, Elsie Dot Stancombe and Bebe King were murdered in the attack
Reading a statement on behalf of him and his wife, he told how their daughter was the first girl to escape the scene by running from the Hart Space building and hiding behind a parked car before jumping through an open car door.
“Our nine-year-old daughter was stabbed three times in the back by a coward she didn’t even see,” he said.
“Although she didn’t know what was happening – she knew she had to run. She ran out of the studio door, down the stairs, and out of the building.”
He said she can be seen “looking scared, confused and pained” in CCTV footage of the incident, adding: “It was troubling for us to see what she had to go through, before either of her parents had arrived at the scene.”
“We are so thankful and proud that despite being critically injured, she was able to make the decisions she did in that terrible moment,” he said.
The girl’s father said his daughter “continues to astound” them with the way she dealt with the attack and her recovery, saying: “It has been inspiring for us to witness.”
Image: Inquiry chair Sir Adrian Fulford at Liverpool Town Hall. Pic: PA
He said she has difficulty sleeping, experiences flashbacks, looks over her shoulder scanning for potential danger when she leaves the house, has a fear of loud noises and has to turn off some songs when they come on the radio.
“Our daughter knows that she is loved,” he said.
“It is through this support and love that she will continue to thrive. We couldn’t be prouder of her. She is our hero.”
Stabbed 33 times
The parents of a girl referred to as C1 told how their “beautiful, articulate, fun-loving little girl” was stabbed 33 times.
After being attacked she escaped the building, but Rudakubana was seen dragging her back inside in CCTV footage played during his sentencing hearing, which drew gasps in court, before she was stabbed 20 more times.
“That is how she became known in this nightmare. The girl that was dragged back in,” her mother said.
Image: Police at the scene. Pic: PA
She thanked the teachers who escaped to call police and flag down help but said: “The most painful of truths for us though, and what has been most devastating to come to terms with, is that there were no adults to help during both of her attacks.
“She was only supported by other children. The courage and strength she found leaves me crushed, but in complete awe.”
She added: “It is these untold stories of remarkable strength and bravery that are missing when we have heard other accounts of this day.”
The mother said the “hours and days that followed the attack were a living hell” and her daughter’s memories – including a concert of her “idol” Taylor Swift – have “been forfeited to make space for the trauma that she carries”.
“We tell her she was brave. How proud we are that she was able to help other girls. How her strength makes us feel strong. How important what she did that day was. She is her own hero. She may be a survivor of this attack, but she is still trying to survive this, every single day,” she said.
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‘We need to understand what went wrong’
Attack ‘changed everything’
The mother of a girl referred to as C8 said she was “like any other seven-year-old little girl”, “with an incredible energy” and “full of life”.
But in a statement read out by a legal representative, she said the attack last year “changed everything” when she got a “panicked phone call” from a friend’s mother, who couldn’t find the girls.
“That moment, the sound of fear in her voice and the panic I felt will never leave me,” she said.
“I rushed to the scene and what I saw is something no parent should ever see. My daughter had sustained serious physical injuries including a stab wound to her arm and a cut to her face and chin.”
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She said her daughter “remembers the attack vividly” and later told her “she thought it had to be fake, because she couldn’t believe something that terrible could really be happening”.
“Where she was once eager to go off with her friends, she now needs my support if it is somewhere public or unknown,” she said.
“Simple days out now need a level of safety planning that we would never have considered before.”
‘Constant flashbacks’
The mother of a girl referred to as Q, who escaped without being physically injured, told how she arrived to collect her daughter to find “children running from the building, screaming and fearing for their lives”.
In a statement read to the inquiry by a legal representative on her behalf, she said it was “the most horrific experience of my life”.
“What I saw on that day will stick with me forever, I constantly have flashbacks and relive what happened,” she said.
She said her daughter has become “very withdrawn” since the attack and has asked her parents, “How will I ever be normal again?”
The public inquiry, announced by Home Secretary Yvette Cooper in January, is looking into whether the attack could or should have been prevented, given what was known about the killer.
Rudakubana, who was born in Cardiff, had contact with police, the courts, the youth justice system, social services and mental health services, and was referred to the government’s anti-extremism Prevent scheme three times before the murders.
A rapid review into his contact with Prevent found his case should have been kept open and that he should have been referred to Channel, another anti-terror scheme.
C1’s mother said: “She deserves the truth, she deserves accountability. She deserves an apology. Our girls deserve an apology.
“Backed up by the promise that changes will be made and this will not be allowed to happen again.”
Victims of the infected blood scandal say they are “waiting to die in limbo”, with just hundreds having received compensation to date.
For decades, more than 30,000 NHS patients were knowingly given infected blood products, and more than 3,000 people died as a result. Survivors are left living with long-term health complications, including HIV and hepatitis.
An inquiry into the scandal, which published its final report in May 2024, accused the NHS of a “pervasive cover-up”. Recompense payments for the victims and survivors were ordered, with the government setting aside £11.8bn to do this.
Earlier this year, the inquiry was reopened to examine the “timeliness and adequacy” of the compensation, and its report – published today – has accused the scheme of “perpetuating” harm.
Just 2,043 people have been asked to start a claim, 616 have been made offers, and 430 of those have been paid.
“For decades, people who suffered because of infected blood have not been listened to. Once again, decisions have been made behind closed doors, leading to obvious injustices,” says Sir Brian Langstaff, chair of the Infected Blood Inquiry.
“It is not too late to get this right. We are calling for compensation to be faster, and more than that, fairer.”
In his latest 210-page report, Sir Brian says yet more people have been harmed by the way they have been treated by the scheme.
It highlights how the compensation scheme was drafted without any direct involvement from the people most affected – the expert group that advised the government on how financial support should be delivered was not allowed to take evidence or hear from any victim of the infected blood scandal.
“Obvious injustices” within the scheme include the exclusion of anyone infected with HIV prior to 1982 and the unrealistic requirements for proving psychological harm.
How did the infected blood scandal happen?
Between 1970 and the early 1990s, more than 30,000 NHS patients were given blood transfusions, or treatments made using blood products, which were contaminated with hepatitis C or HIV.
The infected blood was used because the NHS was struggling to meet the domestic demand for blood products, so sourced around 50% of them from abroad, including the US.
But much of the blood had been taken from prisoners, drug addicts and other high-risk groups who were paid to give blood.
Blood donations in the UK were not routinely screened for hepatitis C until 1991, 18 months after the virus was first identified.
As a result, more than 3,000 people have died, and survivors have experienced lifelong health implications.
In 2017, the government announced a statutory inquiry into the scandal to examine the impact on families, how authorities responded, and the care and support provided to those affected.
The Infected Blood Inquiry published its findings last year and a multi-billion-pound compensation scheme was announced in its wake.
This included payments for a group of people with the blood clotting disorder haemophilia, who were subjected to “unethical research” while at school and included in secret trials to test blood products.
HIV infections before 1982
The current scheme means any person infected with HIV before 1 January 1982 will not be compensated – something the latest report calls “illogical and unjust”.
The rule “completely misunderstands (or ignores) the central fact that blood products used [before this date] were already known to carry a risk of a dangerous virus – Hepatitis”, the report says.
The rule appears to have been made based on legal advice to the government.
One mother says her daughter was invited to claim compensation, only to be told she was likely “ineligible” because she had been infected prior to 1982.
“To reach this stage of the proceedings to be faced with the unbearable possibility of her claim being declined is yet another nightmare to be somehow endured… This unbearable and intolerable situation is cruel and unjust,” she says in the report.
One person who is not named in the report said: “It feels as if we are waiting to die in limbo, unable to make any progress in our lives and fearing that as our health declines, we may not ever get the compensation we deserve.”
Analysis by Sky correspondent Laura Bundock: Victims’ painful battle continues – and in some cases time is running out
This is another deeply damning report into the infected blood scandal.
We now know the damage and suffering caused by the worst treatment disaster in the history of the NHS is far from over.
So many were promised long-overdue compensation. But those infected and affected by the scandal are still being harmed by delays, injustices, and a lack of transparency.
Over a year since his final inquiry report was published the chair, Sir Brian Langstaff, does not hold back in his criticism of the compensation scheme.
He finds the system sluggish, slow and difficult to navigate.
What was set up to help the infected blood community, failed to properly involve victims of the scandal. Opportunities were missed opportunities to consult, and decisions were made behind closed doors.
The end result is an unfair, unfit system leaving people undercompensated. What’s worse, very few have received any money. And in some cases, time is running out.
This additional report makes yet more recommendations. Sir Brian is clear that despite a bad start, it’s not too late to get things right. What he says is an important moment of vindication for the victims, who’d felt their voices were being ignored.
They’ve campaigned and fought for this inquiry for decades. Most assumed the battle was over once Sir Brian’s report was published last year. But despite promises and pledges from politicians, their anger and upset hasn’t gone away.
The government says it’s taking steps to speed up the process. For victims, trust in the authorities remains low.
It will take more than warm words to restore faith, as they continue through the painful struggle for justice.
Unrealistic expectations
The report also highlights the unrealistic evidence requirements for someone proving psychological harm.
The current regulations require a consultant psychiatrist to have diagnosed and treated someone, either as in-patient, or in hospital for six months.
But the report says, at the time the scandal was unfolding, “consultant psychiatric services were not the norm across every part of the country”.
“It would be wrong to set a requirement for compensation that such services be accessed when it was not a practical proposition that they could be.”
Those infected were also unlikely to have told even close friends and family about their diagnosis due to the stigma and ostracism.
Therefore, the expectation of having received medical care “would have involved revealing to an unknown clinician what that person dared not reveal, especially if there was a chance that it might leak out”.
Other exclusions
The report also highlighted other exclusions within the compensation scheme.
It says the “impacts of infection with Hepatitis is not being fully recognised in the scheme as it stands”. The scheme also fails to recognise the devastating impacts of interferon, used to treat Hep C. The vast majority of people who received interferon suffered severely, both psychologically and physically.
The compensation regulations also withdraw support for a bereaved partner if the infected person dies after 31 March this year. The argument being that they are eligible for compensation in their own right as an “affected” person.
But removing these payments immediately after death means infected persons “see themselves as worthless and [ignites] fears of leaving partners destitute”.
One man reports being denied compensation as victims of medical experimentation because – despite having evidence it took place – the hospital where he was infected was not named in the regulations.
The report issued a number of recommendations to speed up the process.
It says people should be able to apply for compensation, rather than wait to be asked.
The compensation authority should also progress applications from different groups at the same time, giving priority to those who are most ill and older, or who have never received any form of financial support.
It also says anyone who has evidence of being the victim of medical experiments should be compensated for it, regardless of where they were treated.
The report calls for more transparency and openness, as well as involvement from those infected and affected.
Support groups reactto latest report
Kate Burt, Chief Executive of the Haemophilia Society, said the government’s “failure to listen to those at the heart of the contaminated blood scandal has shamefully been exposed by the Infected Blood Inquiry yet again”.
“Now government must take urgent action to put this right by valuing those impacted by this scandal through a fair and fast compensation settlement,” she says. “Only then can the infected blood community move on from the past and finally focus on what remains of their future.”
A lawyer advising some 1,500 victims says some of the recommendations “can and should be implemented immediately”.
Des Collins, senior partner at Collins Solicitors, says: “We also urgently need transparency of the timetable for the affected and an acceleration of the payment schedule to them.”
This breaking news story is being updated and more details will be published shortly.