A partnership of the country’s leading social care and end of life organisations has told Sky News of their deep frustration at being excluded from important discussions around the assisted dying debate – describing the proposed change to the law as “unworkable, unaffordable and naive”.
The Coalition of Frontline Care for People Nearing the End of Life is worried about the impact of introducing assisted dying will have on their three million-strong workforce, which they say is on the frontline for delivering care to terminally ill adults.
The partnership includes The Gold Standards Framework Charity (GSF), National Care Forum (NCF), British Geriatric Society (BGS), Care England (CE) and the Community Hospital Association.
It submitted evidence at the committee stage of the Terminally Ill Adults (End of Life) Bill, but was not called to give evidence
Professor Martin Vernon, consultant geriatrician and spokesperson for ethics and law at the British Geriatric Society, told Sky News: “This is a huge problem for us.
“The majority of people this law will impact on are going to be older people with complex needs, and there has been virtually no engagement in the consultation process around this proposed legislation.”
Image: Professor Martin Vernon says the majority affected by the bill will be older with complex needs
Professor Vernon and his coalition colleagues are especially concerned about sick and vulnerable adults being pressured into making choices.
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“We then may see, increasingly, older people with life-limiting diagnoses like dementia, like frailty, feeling the need to opt for assisted dying or indeed feeling coerced either by their circumstances or societally,” he added.
“This may place a heavy burden on some individuals to choose assisted dying when, actually, the creation of better alternatives – supportive care, and palliative care to enable them to have a dignified and comfortable last few years of life should be the way to go.”
Caroline Southgate, founder and managing director of home care company Doris Jones, told Sky News there was simply not enough information about the impact assisted dying would have on her staff.
Image: ‘The way that the bill is presented doesn’t give us enough information,’ Caroline Southgate says
“I think we are concerned that we don’t have enough clarity about how we would train staff, how we support people if they make that decision,” she said.
“At the moment, the way that the bill is presented doesn’t give us enough information to know how we would deal with those issues.
“If someone chooses this route, all I need to know is what’s my role, where are my boundaries?”
Mrs Southgate is also worried about her staff being accused of coercion. Because of the nature of their work, home carers build up a strong bond with the people they tend to, often seeing them multiple times a day.
And sometimes, they might be the only contact their service users have.
“I think we’ve got lots and lots of experience of being in homes with people, dealing with families, who trust us to look after the person who needs care and support at home,” she added.
“I need to know that we would be insured and protected should a family decide that one of our staff was accused of coercing someone, or the other way around, talking someone out of a situation.
“We really need a lot more information to make that safe for us and to make sure that our staff are really well supported.”
Katy Betz works for Mrs Southgate. She is a trained nurse originally from Germany but has lived and worked as a carer in England for over twenty years.
Kate loves what she does, but echoes the same concerns expressed by her employer: Assisted dying could change the relationship she has with her service users.
Driving along Southend’s seafront, she explains there is little else she and her care colleagues talk about these days.
Image: Katy Betz tells Sky News the debate on assisted dying is all she and her colleagues talk about
“It is important”, she says. “Even within my friendship group, everyone has got a different opinion, a strong opinion actually.
Katy says she needs more detail: “More training, safeguarding – what do we do? Where do we go? Who needs to be informed about the client’s decision?
“You are there to make their life, and their end of life, bearable and as good as possible. I can’t explain how I deal with it, but I think you just have to be born to deal with it.”
Katy is on her way to see John and Brenda Barber for one of their daily visits. Brenda is 85 and John is 90.
John took Brenda on their date to a jive dance in Southend.
He was twenty years old and had just returned from army service in Gibraltar. Brenda was just sixteen.
They have been inseparable ever since.
John’s arthritis makes every day tasks almost impossible, and he says if he did not have a carer like Katy, his life would be intolerable.
Image: Paul Barber said his life would be intolerable without Katy Betz
He says: “It’s becoming increasingly difficult with different parts of my body. My wife and I are together and that’s what we want. We would never want to be separated.”
There’s a pause while he reflects on that thought. “That’s despite the bickering,” he says before breaking into a mischievous laugh.
The bond that is shared between Katy, John and Brenda is clear to see. They are worried that this might change irreversibly if the assisted dying law is passed.
The Terminally Ill Adults (End of Life) Bill returns to the House of Commons on Friday, where it will face greater scrutiny.
Earlier this week, two Royal Colleges, Physicians and Psychiatrists, withdrew support for the bill, saying it was “not fit for purpose”.
But campaigners in favour of assisted dying have told Sky News the bill includes more protections and safeguards for all dying people than any other jurisdiction where the choice is legal.
Sarah Wootton, chief executive for Dignity in Dying, said: “MPs voted by a clear majority to progress Kim Leadbeater’s Bill in November because they recognised that the blanket ban on assisted dying is failing dying people and their families.
“Every year, dying people are forced to endure unbearable pain, despite good care, travel overseas to die alone, or take matters into their own hands, often dying violent and lonely deaths without support.
“This Bill – already hailed as the strongest in the world – has been strengthened even further during committee stage, with amendments accepted to involve a range of skilled professionals in every application, specific training requirements around coercion, and that assisted dying can only be discussed within the context of all end of life options.”
At least 13 people may have taken their own lives after being accused of wrongdoing based on evidence from the Horizon IT system that the Post Office and developers Fujitsu knew could be false, the public inquiry has found.
A further 59 people told the inquiry they considered ending their lives, 10 of whom tried on at least one occasion, while other postmasters and family members recount suffering from alcoholism and mental health disorders including anorexia and depression, family breakup, divorce, bankruptcy and personal abuse.
Writing in the first volume of the Post Office Horizon IT Inquiry report, chairman Sir Wyn Williams concludes that this enormous personal toll came despite senior employees at the Post Office knowing the Horizon IT system could produce accounts “which were illusory rather than real” even before it was rolled out to branches.
Sir Wyn said: “I am satisfied from the evidence that I have heard that a number of senior, and not so senior, employees of the Post Office knew or, at the very least, should have known that Legacy Horizon was capable of error… Yet, for all practical purposes, throughout the lifetime of Legacy Horizon, the Post Office maintained the fiction that its data was always accurate.”
Referring to the updated version of Horizon, known as Horizon Online, which also had “bugs errors and defects” that could create illusory accounts, he said: “I am satisfied that a number of employees of Fujitsu and the Post Office knew that this was so.”
The first volume of the report focuses on what Sir Wyn calls the “disastrous” impact of false accusations made against at least 1,000 postmasters, and the various redress schemes the Post Office and government has established since miscarriages of justice were identified and proven.
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‘It stole a lot from me’
Recommendations regarding the conduct of senior management of the Post Office, Fujitsu and ministers will come in a subsequent report, but Sir Wyn is clear that unjust and flawed prosecutions were knowingly pursued.
“All of these people are properly to be regarded as victims of wholly unacceptable behaviour perpetrated by a number of individuals employed by and/or associated with the Post Office and Fujitsu from time to time and by the Post Office and Fujitsu as institutions,” he says.
What are the inquiry’s recommendations?
Calling for urgent action from government and the Post Office to ensure “full and fair compensation”, he makes 19 recommendations including:
• Government and the Post Office to agree a definition of “full and fair” compensation to be used when agreeing payouts • Ending “unnecessarily adversarial attitude” to initial offers that have depressed the value of payouts, and ensuring consistency across all four compensation schemes • The creation of a standing body to administer financial redress to people wronged by public bodies • Compensation to be extended to close family members of those affected who have suffered “serious negative consequences” • The Post Office, Fujitsu and government agreeing a programme for “restorative justice”, a process that brings together those that have suffered harm with those that have caused it
Regarding the human impact of the Post Office’s pursuit of postmasters, including its use of unique powers of prosecution, Sir Wyn writes: “I do not think it is easy to exaggerate the trauma which persons are likely to suffer when they are the subject of criminal investigation, prosecution, conviction and sentence.”
He says that even the process of being interviewed under caution by Post Office investigators “will have been troubling at best and harrowing at worst”.
The report finds that those wrongfully convicted were “subject to hostile and abusive behaviour” in their local communities, felt shame and embarrassment, with some feeling forced to move.
Detailing the impact on close family members of those prosecuted, Sir Wyn writes: “Wives, husbands, children and parents endured very significant suffering in the form of distress, worry and disruption to home life, in employment and education.
“In a number of cases, relationships with spouses broke down and ended in divorce or separation.
“In the most egregious cases, family members themselves suffered psychiatric illnesses or psychological problems and very significant financial losses… their suffering has been acute.”
The report includes 17 case studies of those affected by the scandal including some who have never spoken publicly before. They include Millie Castleton, daughter of Lee Castleton, one of the first postmasters prosecuted.
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Three things you need to know about Post Office report
She told the inquiry how her family being “branded thieves and liars” affected her mental health, and contributed to a diagnosis of anorexia that forced her to drop out of university.
Her account concludes: “Even now as I go into my career, I still find it so incredibly hard to trust anyone, even subconsciously. I sabotage myself by not asking for help with anything.
“I’m trying hard to break this cycle but I’m 26 and am very conscious that I may never be able to fully commit to natural trust. But my family is still fighting. I’m still fighting, as are many hundreds involved in the Post Office trial.”
Business Secretary Jonathan Reynolds said the inquiry’s report “marks an important milestone for sub-postmasters and their families”.
He added that he was “committed to ensuring wronged sub-postmasters are given full, fair, and prompt redress”.
“The recommendations contained in Sir Wyn’s report require careful reflection, including on further action to complete the redress schemes,” Mr Reynolds said.
“Government will promptly respond to the recommendations in full in parliament.”
The long-awaited first report from the Post Office Horizon scandal inquiry lays bare not just the devastating personal toll of one of the greatest miscarriages of justice in British legal history, but also the slow-motion failure of the government and the Post Office to deliver meaningful redress.
Sir Wyn Williams’s first report documents with stark clarity how hundreds of sub-postmasters, wrongly accused of theft and fraud due to the faulty Horizon IT system, lost their livelihoods, homes, reputations – and in some cases, their lives.
Thirteen people are believed to have taken their lives as a result of the scandal.
Fifty-nine contemplated it.
It talks of alcohol addiction, serious mental illness, and bankruptcy – all tearing families apart and leaving behind a heartbreaking legacy.
But if the scandal was a failure of justice, the response to it has become a second injustice.
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Critical on a technical level
The report is critical, on a fairly technical level, about the complexity, delays, and bureaucracy of redress schemes that have left victims still waiting years for full compensation.
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‘It stole a lot from me’
Hundreds of whom have died before seeing “full and fair redress”.
While Sir Wyn is fair to the government and the Post Office in stating that he believes their commitment to delivering the above has been in “good faith”, he concludes this has not been achieved for every victim, describing “formidable” difficulties.
There are 19 recommendations – including a push to ensure consistency across all four redress schemes, with an agreed and public definition of “full and fair redress”.
Compensation
Among them, that family members of victims should be compensated, and a permanent public body established to manage future redress schemes in future.
Additionally, Fujitsu, the Post Office, and the government should engage in formal restorative justice programmes.
There was also a flavour of what is to come in the final report later this year or next.
The report has found that both Fujitsu and Post Office staff knew Horizon could produce false data but concealed this, maintaining a false narrative of accuracy.
One of the most important things now, though, is how and when the government, Post Office, and Fujitsu respond officially.
Sir Wyn has also set a deadline of 10 October 2025 for that.
The victims of this scandal have waited long enough.
There was a “wholesale and general failure” to address the risks posed by Axel Rudakubana before the Southport attack, the chairman of the public inquiry into the murders has said.
In his opening statement at Liverpool Town Hall, Sir Adrian Fulford said the teenager’s “known predilection for knife crime” suggests it was “far from an unforeseeable catastrophic event”.
The former vice president of the Court of Appeal said Rudakubana’s actions “impose the heaviest of burdens” to investigate how it was possible for him to cause “such devastation”.
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‘We need to understand what went wrong’
The 18-year-old murdered Elsie Dot Stancomb, seven, Bebe King, six, and Alice da Silva Aguiar, nine, at a Taylor Swift-themed class on 29 July last year.
He also injured eight other children and two adults at the Hart Space in the Merseyside seaside town, with Sir Adrian describing the attack as “one of the most egregious crimes in our country’s history”.
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‘We don’t want Elsie forgotten’
The public inquiry, announced by Home Secretary Yvette Cooper in January, will look into whether the attack could or should have been prevented, given what was known about the killer.
Rudakubana, who was born in Cardiff, had been referred to the government’s anti-extremism Prevent scheme three times before the murders, including over research into school shootings and the London Bridge terror attack.
He had also accessed online material about explosives, warfare, knives, assassination and an al Qaeda training manual.
A rapid review into his contact with Prevent found his case should have been kept open and that he should have been referred to Channel, another anti-terror scheme.
Rudakubana was twice caught with a knife and managed to hoard other blades, as well as a bow and arrow, machetes, a sledgehammer and the deadly toxin ricin at his home.
He bought the 20cm chef’s knife used to carry out the attack using a Virtual Private Network (VPN).
Sir Adrian said he did not want to pre-judge the outcome of the inquiry.
But he added: “These factors, if correct and when taken together, tend to suggest that far from being an unforeseeable catastrophic event, the perpetrator posed a very serious and significant risk of violent harm, over a number of years, with a particular and known predilection for knife crime.
“Furthermore, his ability, unhindered, to access gravely violent material on the internet, to order knives online when underage, and then to leave home unsupervised to commit the present attack, speaks to a wholesale and general failure to intervene effectively, or indeed at all, to address the risks that he posed.”
Sir Adrian said the inquiry will examine decisions taken in light of Rudakubana’s “deteriorating and deeply troubling behaviour” to identify “without fear or favour” all of the relevant failings.
He said he aims to make recommendations to ensure the best chance of stopping others “who may be drawn to treating their fellow human beings in such a cruel and inhuman way”.
Rudakubana, 18, was jailed for a minimum of 52 years in January and is being investigated over an alleged attack on a prison officer at Belmarsh prison in May.
Sir Adrian said he would be referred to by his initials or as “the perpetrator” during the inquiry and asked the media not to show his “terrifying and singularly distressing” police mugshot to avoid causing distress to the survivors and their families, who have been granted anonymity.
The surviving children, many whom were under the age of 10, are “bravely trying to cope with school life in the face of what they have suffered,” he added.
Sir Adrian asked those in the room to stand for a minute’s silence for the victims.
Some of those whose children were injured will speak at a hearing on Wednesday before the inquiry is adjourned to 8 September, with the first phase expected to last until November.
It will then move on to a second phase next year to “consider the wider issues of children and young people being drawn into extreme violence”.
Rachael Wong, director at law firm Bond Turner, representing the three bereaved families, said: “We know that nothing the inquiry reveals or subsequently recommends will change the unimaginable loss felt by the families of Elsie, Alice and Bebe, but we all now have a responsibility to ensure that something like this never happens again.
“We will be doing all we can to assist the chair through the inquiry and uncover the truth.
“It is only through intense public scrutiny that real change can be effected.”
Sefton Council is asking people not to leave flowers near schools or the scene of the attack to mark the anniversary later this month, but to donate to local charitable causes instead.
There will be a three-minute silence and flags will be lowered to half-mast on public buildings around the Liverpool city region.
“We fully understand that many of us still need to grieve and to mark the day,” the council said in an open letter.
“Our colleagues have been working with faith and community leaders to identify local spaces where you can go, within your neighbourhood, to pay tribute, whether this be to say a prayer, light a candle, speak to someone or quietly reflect in a way that feels right for you.”