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The dark granite block in a children’s cemetery in Bristol tells an incomplete story: “Trelissa Whitbread, born 3rd of Feb 1988. She lived 2 hours.”

Deborah Mann has not returned to the grave of her firstborn for 30 years but today has come with her daughter, Branwen, to tell her the story. “It shouldn’t have happened,” she says quietly.

Ms Mann had four pregnancies. Her first two children, Trelissa and Kaverne, died shortly after birth. Ms Mann believes their deaths were caused by an epilepsy drug she was taking called sodium valproate, prescribed by her GP.

After a long gap she would go on to have two more children, both girls, who were diagnosed with what is now recognised as foetal valproate syndrome, which has left them with life-long physical and neurological problems.

Ms Mann tells Sky News: “I asked so many questions and was told ‘this is just the way things are.’ It can’t be the way things are when you lose two babies. How can it be the way things are?”

Deborah Mann
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Deborah Mann

Five years ago, valproate was among three medical products including the pregnancy test drug Primodos and medical device pelvic mesh, that were found to have caused “avoidable harm” to patients.

The report was clear that valproate could cause lifelong disabilities to the children of mothers taking the drug when pregnant.

The independent review, chaired by Baroness Julia Cumberlege, strongly criticised the industry and regulators and made a series of recommendations, including the creation of a redress scheme for victims in all three groups.

On valproate, it stated: “Nothing can undo the harm that has been done to these individuals, but steps can be taken to make their lives easier.”

Deborah Mann and her daughter Branwen visit Trelissa's grave
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Deborah Mann and her daughter Branwen visit Trelissa’s grave

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20,000 children exposed to drug while in womb

Five years on there is still no such scheme for any of the campaign groups. In the week of developments in the Post Office scandal and infected blood, here is another scandal no less significant.

An estimated 20,000 children were exposed to sodium valproate while in the womb.

UK regulator the MHRA says an increased risk of neonatal loss is not currently a recognised adverse reaction, but it does warn of a range of congenital problems caused by the drug that are increasingly likely the higher the dose.

Sky News has also seen a study from 1972 which shows high doses of sodium valproate could be embryo-lethal in rats. At times Ms Mann was being prescribed 5,000mg, which is double the highest recommended dose.

Ms Mann worries about the future of her surviving children. She says of the government: “It’s financially better to pretend they don’t even exist. So many children are harmed, so many children that will not have their needs addressed as they grow older.”

At the time of birth her eldest daughter Rhonwen’s medical records state “valproate levels caused foetal and patient damage,” which included deafness.

Branwen, 29
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Branwen, 29

Daughter worries about being a mother as she can pass condition on

Ms Mann wasn’t initially told about the cause of her daughter’s problems, even when she was pregnant with her next child Branwen.

The 29-year-old told Sky News: “I have tight ankles, tight legs, tight hips and I have a weak lower back. I have to wear splints every day to be sure I can keep walking, and I have to do exercises every day. I have autism, Asperger’s syndrome.”

She goes on to list a series of brain problems that must be scanned every two years, “to make sure nothing’s grown or moved.”

She was bullied at school for her appearance, and she worries about being a mother as she can pass the condition on to her children.

She said: “I feel very let down by the government. I feel let down by the people who promised they would help us, that they will help ensure that we have a better quality of life.”

‘Somebody at last had listened’

Others the Cumberlege review wanted to get redress for “avoidable harm” were children born with malformations after their mothers used the drug Primodos.

These hormone-packed pills were prescribed as a pregnancy test to thousands of women in the 1960s and 70s and are alleged to have caused a range of malformations to babies, from shortened limbs to heart defects, which the manufacturer denies.

Marie Lyon, lead campaigner for the Association for Children Damaged by Hormone Pregnancy Tests
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Marie Lyon, lead campaigner for the Association for Children Damaged by Hormone Pregnancy Tests

Lead campaigner for the Association for Children Damaged by Hormone Pregnancy Tests (ACDHPT), Marie Lyon, told Sky News: “Our families were utterly overjoyed that somebody at last had listened, and Julia Cumberlege did a thorough review. Our expectations were wow! This is it now. An apology from the health secretary, all these years and we’ve finally got there, and then nothing.

“Five years and may I say, five years and 31 deaths. That’s how many of our members have died since that report was published in 2020 and we’ve still not received justice. It’s a disgrace.”

Baroness Cumberlege also recommended the government create a redress scheme for women left debilitated by pelvic mesh implants.

Kath Sansom, founder of the Sling The Mesh campaign group
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Kath Sansom, founder of the Sling The Mesh campaign group

‘The government are dragging their feet’

Kath Sansom, founder of the Sling The Mesh campaign group, told Sky News: “There are women in there who can’t walk any more, who need a stick or a mobility scooter – they’ve lost jobs, marriages, pensions. Some have had to sell their homes, and it feels really unfair that we are still waiting for a reply on redress.

“The government are dragging their feet. We keep being told that they are working on it at pace – but the phrase within the group is – a snail’s pace.”

The Department of Health and Social Care said: “The harm caused by pelvic mesh continues to be felt today” and “we are fully focused on how best to support patients and prevent future harm.”

“Health Minister Baroness Gillian Merron met patients affected and has committed to providing a further update.”

Government considering recommendations

The government says it is considering the recommendations by the patient safety commissioner last year for a redress scheme, but it’s notable there is no timescale and no reference to the harm caused by valproate or Primodos in their statement.

Dr Alison Cave, chief safety officer at the Medicines and Healthcare products Regulatory Agency (MHRA), said: “Patient safety is our highest priority and no one should stop taking valproate without seeking advice from their healthcare professional.

“Valproate is a highly teratogenic medicine and there is evolving evidence for harms in males, which is why the Commission on Human Medicines (CHM) recommended new regulatory measures to reduce the known harms from valproate, including the significant risk of serious harm to the baby if taken during pregnancy and the risk of impaired fertility in male.”

Sanofi, manufacturers of sodium valproate, told us: “We have always worked closely with the MHRA and fully met all our legal and regulatory obligations in relation to valproate which is an essential medicine used to treat a serious and potentially life-threatening condition.

“Sanofi has at all times provided information regarding valproate that reflects current knowledge as approved by MHRA.

“We are committed to working with all concerned stakeholders to continue educating about the risks and precautions for the appropriate use of valproate.”

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Care whistleblower ‘who saw elderly resident being punched’ could face removal from Britain

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Care whistleblower 'who saw elderly resident being punched' could face removal from Britain

A care worker who reported the alleged abuse of an elderly care home resident, which triggered a criminal investigation, is facing destitution and potential removal from Britain after speaking up.

“Meera”, whose name we have changed to protect her identity, said she witnessed an elderly male resident being punched several times in the back by a carer at the home where she worked.

Sky News is unable to name the care home for legal reasons because of the ongoing police investigation.

“I was [a] whistleblower there,” said Meera, who came to the UK from India last year to work at the home.

“Instead of addressing things, they fired me… I told them everything and they made me feel like I am criminal. I am not criminal, I am saving lives,” she added.

Meera
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‘Meera’ spoke up about abuse she said she witnessed in the care home where she worked

Like thousands of foreign care workers, Meera’s employer sponsored her visa. Unless she can find another sponsor, she now faces the prospect of removal from the country.

“I am in trouble right now and no one is trying to help me,” she said.

More on Migrant Crisis

Meera said she reported the alleged abuse to her bosses, but was called to a meeting with a manager and told to “change your statement, otherwise we will dismiss you”.

She refused. The following month, she was sacked.

The care home claimed she failed to perform to the required standard in the job.

She went to the police to report the alleged abuse and since then, a number of people from the care home have been arrested. They remain under investigation.

‘Migrants recruited because many are too afraid to speak out’

The home has capacity for over 60 residents. It is unclear if the care home residents or their relatives know about the police investigation or claim of physical abuse.

Since the arrests, the regulator, the Care Quality Commission (CQC), carried out an investigation at the home triggered by the concerns – but the home retained its ‘good’ rating.

Meera has had no reassurance from the authorities that she will be allowed to remain in Britain.

In order to stay, she’ll need to find another care home to sponsor her which she believes will be impossible without references from her previous employer.

She warned families: “I just want to know people in care homes like these… your person, your father, your parents, is not safe.”

She claimed some care homes have preferred to recruit migrants because many are too afraid to speak out.

“You hire local staff, they know the legal rights,” she said. “They can complain, they can work anywhere… they can raise [their] voice,” she said.

Becky Johnson
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Sky’s Becky Johnson spoke to ‘Meera’

Sky News has reported widespread exploitation of care visas and migrant care workers.

Read more:
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Immigration crackdown will fuel ‘exodus’ of nurses
New English language and UK citizenship requirements for migrants

Currently migrants make up around a third of the adult social care workforce, with the majority here on visas that are sponsored by their employers.

As part of measures announced in April in the government’s immigration white paper, the care visa route will be closed, meaning care homes will no longer be able to recruit abroad.

‘Whole system is based on power imbalance’

But the chief executive of the Work Rights Centre, a charity that helps migrants with employment issues, is warning that little will change for the tens of thousands of foreign care workers already here.

“The whole system is based on power imbalance and the government announcement doesn’t change that,” Dr Dora-Olivia Vicol told Sky News.

She linked the conditions for workers to poor care for residents.

Dr Dora
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Work Rights Centre CEO Dr Dora-Olivia Vicol

“I think the power that employers have over migrant workers’ visas really makes a terrible contribution to the quality of care,” she said.

Imran agrees. He came to the UK from Bangladesh, sponsored by a care company unrelated to the one Meera worked for. He says he frequently had to work 14-hour shifts with no break because there weren’t enough staff. He too believes vulnerable people are being put at risk by the working conditions of their carers.

Migrant workers ‘threatened’ over visas

“For four clients, there is [a] minimum requirement for two or three staff. I was doing [it] alone,” he said, in broken English.

“When I try to speak, they just directly threaten me about my visa,” he said.

“I knew two or three of my colleagues, they are facing the same issue like me. But they’re still afraid to speak up because of the visa.”

Meera

A government spokesperson called what happened to Imran and Meera “shocking”.

“No one should go to work in fear of their employer, and all employees have a right to speak up if they witness poor practice and care.”

James Bullion, from the CQC, told Sky News it acts on intelligence passed to it to ensure people stay safe in care settings.

Additional research by Leah Adin

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Donald Trump may be denied privilege of addressing parliament on UK state visit

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Donald Trump may be denied privilege of addressing parliament on UK state visit

Donald Trump may be denied the honour of addressing parliament on his state visit to the UK later this year, with no formal request yet submitted for him to be given that privilege.

It comes after President Macron’s successful state visit this week, in which he was invited to speak in front of both Houses of Parliament.

Sky News has been told the Speaker of the House of Commons, Sir Lindsay Hoyle, hasn’t so far received a request to invite the US president to speak in parliament when he is expected to visit in September.

It was confirmed to MPs who have raised concerns about the US president being allowed to address both houses.

Kate Osborne, Labour MP for Jarrow and Gateshead East, wrote to the speaker in April asking him to stop Mr Trump from addressing parliament, and tabled an early-day motion outlining her concerns.

“I was happy to see Macron here but feel very differently about Trump,” she said.

“Trump has made some very uncomfortable and worrying comments around the UK government, democracy, the Middle East, particularly around equalities and, of course, Ukraine.

“So, I think there are many reasons why, when we’re looking at a state visit, we should be looking at why they’re being afforded that privilege. Because, of course, it is a privilege for somebody to come and address both of the houses.”

But the timing of the visit may mean that any diplomatic sensitivities, or perceptions of a snub, could be avoided.

Macron addressing Parliament
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France’s President Emmanuel Macron addressed parliament during his state visit this month

Lord Ricketts, a former UK ambassador to France, pointed out that parliament isn’t sitting for much of September, and that could help resolve the issue.

In 2017, he wrote a public letter questioning the decision to give Donald Trump his first state visit, saying it put Queen Elizabeth II in a “very difficult position”.

Parliament rises from 16 September until 13 October due to party conferences.

The dates for the state visit haven’t yet been confirmed by Buckingham Palace or the government.

However, they have not denied that it will take place in September, after Mr Trump appeared to confirm they were planning to hold the state visit that month. The palace confirmed this week that the formal planning for his arrival had begun.

With the King likely to still be in Scotland in early September for events such as the Braemar Gathering, and the anniversary of his accession and the death of Queen Elizabeth on the 8th September, it may be expected that the visit would take place sometime from mid to the end of September, also taking into consideration the dates of the Labour Party conference starting on the 28th September and possibly the Lib Dem’s conference from the 20th-23rd.

Donald Trump. Pic: Reuters
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Mr Trump has said he believes the trip to the UK will take place in September. Pic: Reuters

When asked about parliamentary recess potentially solving the issue, Ms Osborne said: “It may be a way of dealing with it in a very diplomatic way… I don’t know how much control we have over Trump’s diary.

“But if we can manoeuvre it in a way that means that the House isn’t sitting, then that seems like a good solution, maybe not perfect, because I’d actually like him to know that he’s not welcome.”

A message from the speaker’s office, seen by Sky News, says: “Formal addresses to both Houses of Parliament are not automatically included in the itinerary of such a state visit.

“Whether a foreign head of state addresses parliament, during a state visit or otherwise, is part of the planning decisions.”

The King and Mr Trump raising a toast in 2019. Pic: Reuters
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Mr Trump made his first state visit to the UK in June 2019 during his first presidency. File pic: Reuters

It’s understood that if the government agrees to a joint address to parliament, the Lord Chamberlain’s office writes to the two speakers, on behalf of the King, to ask them to host this.

It will be Mr Trump’s second state visit.

During his first, in 2019, he didn’t address parliament, despite the fact that his predecessor, Barack Obama, was asked to do so.

It was unclear if this was due to the fact John Bercow, the speaker at the time, made it clear he wasn’t welcome to do so.

However, it didn’t appear to dampen Mr Trump’s excitement about his time with the Royal Family.

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Speaking earlier this year, he described his state visit as “a fest” adding “it’s an honour… I’m a friend of Charles, I have great respect for King Charles and the family, William; we have really just a great respect for the family. And I think they’re setting a date for September.”

It is expected that, like Mr Macron, the pageantry for his trip this time will revolve around Windsor, with refurbishment taking place at Buckingham Palace.

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Liverpool retires number 20 shirt at all levels in honour of Diogo Jota

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Liverpool retires number 20 shirt at all levels in honour of Diogo Jota

Liverpool have retired the number 20 shirt in honour of Diogo Jota – the first time it has made such a gesture.

The club said it was a “unique tribute to a uniquely wonderful person” and the decision was made in consultation with his wife and family.

The number 20 will be retired at all levels, including the men’s and women’s first teams and academy squads.

A statement said: “It was the number he wore with pride and distinction, leading us to countless victories in the process – and Diogo Jota will forever be Liverpool Football Club’s number 20.”

The club called it a “recognition of not only the immeasurable contribution our lad from Portugal made to the Reds’ on-pitch successes over the last five years, but also the profound personal impact he had on his teammates, colleagues and supporters and the everlasting connections he built with them”.

Jota's wife joined Liverpool players to view tributes at Anfield on Friday. Pic: Liverpool FC
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Jota’s wife joined Liverpool players to view tributes at Anfield on Friday. Pic: Liverpool FC

Pic: Liverpool FC
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Pic: Liverpool FC

Newly-married Jota died alongside his brother when his Lamborghini crashed in northern Spain on 3 July.

Police said this week that all the evidence so far suggests Jota was the one driving the vehicle.

Liverpool teammates joined members of Jota’s family, including his wife Rute, at a huge memorial site outside Anfield on Friday.

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Trump may be denied privilege of addressing parliament

A fan looks at messages written onto a memorial wall created near Anfield Stadium. Pic: Reuters
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A fan looks at messages on a memorial wall near Anfield. Pic: Reuters


Liverpool's captain Virgil van Dijk and Liverpool's player Andrew Robertson arrive on the day of the funeral ceremony of Liverpool's Portug
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Virgil van Dijk and Andy Robertson were among players at the funeral. Pic: Reuters

The star’s funeral took place last weekend, with Liverpool colleagues and members of the Portuguese national team in attendance.

Reds captain Virgil van Dijk carried a shirt bearing the number 20 made from flowers.

Liverpool players returned to the club’s training ground for the start of pre-season on Tuesday.

Their first game since Jota’s death will be on Sunday when they play a friendly away against Preston North End.

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