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A national shortage of epilepsy medication is putting patients’ safety at risk, consultants have said.

Medical professionals are becoming genuinely concerned as ever more frequent supply issues continue to bite tens of thousands of sufferers.

According to the Epilepsy Society charity, over 600,000 people in the UK have the condition, or about one in every 100 people.

Among them is Charlotte Kelly, a mother of two living in London who has had epilepsy for over 20 years. She must take two tablets a day to manage her condition but issues with supply have forced her to start rationing her medication.

Speaking to Sky News, Ms Kelly told us of the fear surrounding the restricted access to the medicate she needs to survive.

“I’m scared. If I’m truly honest, I’m scared knowing that I might not get any medication for a few weeks, or a couple of months, I just don’t know when.

“It’s scary to know that I have to worry about getting hold of medication. I do believe that something needs to happen very quickly because even if it’s pre-ordered there’s no guarantee you’re going to get it.

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“The anxiety of worrying about if you’re going to get your medication builds up and the worry alone can cause seizures.”

It’s added worry knowing her chances of having seizures increases her reliance on her 14-year-old daughter who often has to make the 999 calls to get help for her mum.

She was due to get a renewed supply in December to get her through the next two months.

But there’s no guarantee of when any of it will next be in stock.

“I get very, very frustrated. There’s times when I’ve had to call five, six different pharmacies and the more you’re calling, and you’re not hearing what you need to hear.

“You’re getting more and more frustrated and then you’re getting upset and it’s like where do we stand? Epilepsy is a very, very, very common condition.

“Over 600,000 people in the UK alone, have epilepsy. And when but yet we feel like we are just a hidden condition.

“People just don’t understand that if I don’t have my medication I could have multiple seizures, and that could lead to hospitalisation, and at worst case, death.”

What is epilepsy?

Epilepsy is a condition that affects the brain and causes frequent seizures.

It can start at any age, but usually starts in childhood or in people over 60.

Seizures are bursts of electrical activity in the brain that temporarily affect how it works. They can cause a wide range of symptoms.

Symptoms include:

• uncontrollable jerking and shaking, known as a “fit”

• losing awareness

• becoming stiff

• strange sensations, such as a “rising” feeling in the belly, unusual smells or tastes, and a tingling feeling in your limbs

• collapsing

Seizures can be triggered in numerous ways including flashing lights, sleep deprivation, misuse of drugs or missing medications.

The condition affects more than 600,000 people in the UK.

Kay Dhillon, a pharmacist in west London, showed me the near-empty cubby hole and cupboard which is usually full of epilepsy medication as she told Sky News she started noticing products were flagging and being out of stock three weeks ago.

She describes it now as being at crisis point.

London pharmacist Kay Dhillon
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London pharmacist Kay Dhillon

“It is a crisis. You don’t know how many epilepsy fits or tablets the person can have or how severe their epilepsy is. Because obviously, they’ve been taking it every single day for so many years and it just stops one day, or even if they miss a dose, it’s a big deal.”

Ms Dhillon says she has been given no indication of when the drugs will be back in stock.

She says she’s been managing so far by helping patients access resources shared between four pharmacy branches but says everyone’s supplies are running low.

“It seems like it’s a manufacturing issue. Obviously, patients are asking – how can you not know when it will be back in stock?

“It’s a shame because patients rely on you for this and they shouldn’t have to go looking around for their daily medication.”

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Speaking to Sky News, Professor Ley Sander, director of medical services at the Epilepsy Society, says the supply concern is not just on the minds of patients but those in the industry too.

“It might be that we need a strategic reserve for storage of drugs, we might have to bring drugs over from other parts of the world to avoid this from recurring.

“We’re not at that point yet, but this is an urgent issue.”

In a statement provided to Sky News, a Department of Health and Social Care spokesperson said: “We understand how frustrating and distressing the possibility of medication shortages can be and are aware of supply issues with the epilepsy medicine carbamazepine. These have been communicated to the NHS, with information and advice provided on how to manage patients affected by these issues.

“The department is working closely with suppliers, NHS England, the Medicines and Healthcare products Regulatory Agency, the devolved governments and other stakeholders to ensure patients continue to have access to the treatments they need. Through this work, problems with carbamazepine should be resolved by early February.”

It is those like Charlotte who are left bearing the brunt till then.

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British troops deployed to Israel to ‘monitor Gaza ceasefire’ after US request

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British troops deployed to Israel to 'monitor Gaza ceasefire' after US request

Britain has sent a senior commander and a small number of troops to Israel to help international efforts to monitor a fragile Gaza ceasefire following an American request.

John Healey, the defence secretary, revealed the deployment barely a week after Yvette Cooper, the new foreign secretary, said the UK had “no plans” to send soldiers.

The British Major General will work as the deputy to a US commander, who is tasked with running a civil-military coordination centre that is also expected to include troops from Egypt, Qatar, Turkey, and the United Arab Emirates.

The ceasefire deal, brokered by Donald Trump, between Hamas and Israel has created the “opportunity for a long-term peace”, Mr Healey said.

Defence Secretary John Healey said Donald Trump had created the conditions for an end to the fighting. Pic: PA
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Defence Secretary John Healey said Donald Trump had created the conditions for an end to the fighting. Pic: PA

“We have specialist experience and skills that we have offered to contribute,” he said, answering questions after delivering a lecture on wider defence issues to business leaders at an event in London on Monday evening.

The defence secretary said: “We can contribute to the monitoring of the ceasefire. That is likely to be led by others.

“We have also, in response to the American request, put a first rate two-star officer into a civilian-military command, as the deputy commander.

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“So Britain will play an anchor role, contribute the specialist experience and skills where we can. We don’t expect to be leading… but we will play our part.”

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Ceasefire in fragile state.

The British officer is being accompanied by a small team of UK military personnel, with expertise in planning.

The United States, for its part, is sending up to 200 troops to Israel. They will not enter Gaza.

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The British contingent will also not be operating inside the strip.

A Ministry of Defence spokesperson said: “A small number of UK planning officers have embedded in the US led CMCC, Civil Military Coordination Centre, including a 2* deputy commander to ensure that the UK remains integrated into the US led planning efforts for Gaza post-conflict stability.

“The UK continues to work with international partners to support the Gaza ceasefire to see where the UK can best contribute to the peace process.”

Details about the US plans – headed by Central Command – to help facilitate the flow of humanitarian aid as well as logistical and security assistance into the territory emerged after Mr Trump brokered a ceasefire deal between Hamas and Israel on 10 October.

Gazan mourners pray over the bodies of Palestinians killed by Israeli fire. Pic: AP
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Gazan mourners pray over the bodies of Palestinians killed by Israeli fire. Pic: AP

One official said the new team will help monitor implementation of the ceasefire agreement and the transition to a civilian government in Gaza.

It is separate to a planned international stabilisation force that would deploy into the territory to help secure the peace.

That force is a key part of Mr Trump’s 20-point peace plan.

In a sign of potential problems, though, The New York Times reported on Tuesday that countries that might contribute soldiers to the international force are nervous about putting boots on the ground while Hamas remains an armed group.

The arrival of British troops in Israel comes as the ceasefire deal remains under pressure, with Israel and Hamas accusing each other of breaching its terms.

Israel briefly resumed airstrikes over the weekend after its troops were reported to have come under attack.

Meanwhile, the Hamas-run health ministry in Gaza yesterday reported more than 50 deaths in the last 24 hours.

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Senior King aide was head of royal protection when Prince Andrew ‘asked officer to dig up dirt on accuser’

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Senior King aide was head of royal protection when Prince Andrew 'asked officer to dig up dirt on accuser'

A current senior member of the King’s household was the head of royal protection at the time Prince Andrew allegedly asked one of his police officers to dig up dirt on Virginia Guiffre, Sky News has discovered.

Lord Peter Rosslyn, who is now Lord Steward and Personal Secretary to the King and Queen, was head of Royalty and Diplomatic Protection between 2003-2014.

It is not clear if Lord Rosslyn – known at the time as Commander Peter Loughborough – was made aware of Prince Andrew’s request. However, it reportedly happened in 2011 when it’s claimed Andrew wrote in an email that he passed the date of birth and confidential social security number of his accuser, Virginia Guiffre, to one of his close protection team to find out information about her.

Lord Peter Rosslyn arriving at the Duchess of Kent's funeral. Pic: PA
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Lord Peter Rosslyn arriving at the Duchess of Kent’s funeral. Pic: PA

At the weekend, the Metropolitan Police said it was “actively looking into the claims made”.

Sky News approached Lord Rosslyn for comment, which was passed to Buckingham Palace.

A palace spokesperson said: “As you may or may not be aware, Lord Rosslyn works for The Royal Household and thus this issue has been referred to me. However, since this matter relates to his time in service with the Metropolitan Police, they would be the appropriate body to approach with media enquiries of this nature.”

The Met Police had nothing further to add.

Police sources have told Sky News the officer (CPO) involved would have been expected to escalate this request from Andrew to his superiors.

While there may have been other members of senior staff between the CPO and Lord Rosslyn, the request should have been considered serious enough to be referred to the top of the Royalty and Diplomatic Service.

Those with knowledge of the royal household tell us Lord Rosslyn is one of the King’s closest and most trusted members of staff.

His role as Lord Steward involves managing all aspects of the King’s personal affairs, and the non-state business of the monarch.

Who is Lord Peter Rosslyn?

As well as being much respected by Queen Elizabeth II, and affectionately known as her “favourite policeman”, in 2014 Lord Rosslyn was appointed as Master of the Household of the then Prince of Wales and the Duchess of Cornwall at Clarence House.

In February 2003, he was made Lord Steward by the King, thereby becoming the “first dignitary of the King’s court” – a sign that the monarch wanted to keep him around.

While Andrew’s alleged attempts to smear Virginia Guiffre would have been morally wrong, he also would have been asking his police officer to put his career on the line.

Any attempt to use police databases to find information on an innocent individual not connected to a crime would have been a sackable offence, and unlawful.

In his statement on Friday, Prince Andrew again stressed that he vehemently denies the allegations against him.

A Buckingham Palace source told Sky News that the recent claims that have emerged are being viewed by the Royal Family with “very serious and grave concern” and “should be examined in the proper and fullest ways”.

Prince Andrew's signature
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Prince Andrew’s signature

Andrew should give evidence to US authorities – minister

The revelation comes as a government minister said Andrew should give evidence to US authorities – and anger grows after it emerged he had been paying “peppercorn rent” for two decades.

On Friday, Andrew announced he was giving up his royal titles, including the Duke of York, after new, damaging reports about his relationship with paedophile financier Jeffrey Epstein.

Passages from the memoir released on Tuesday of the late Virginia Giuffre, who accused Prince Andrew of sexually assaulting her, provide further details of their alleged encounters.

Prince Andrew has always strenuously denied the allegations.

Business Secretary Peter Kyle said on Tuesday he would “support” Prince Andrew giving evidence to US prosecutors.

He added he would also support any decision by the Met Police to investigate allegations that Prince Andrew used a Met bodyguard to gain information on Giuffre.

It comes as anger continues to grow over Prince Andrew’s housing arrangements.

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‘Victims should be in driver’s seat’

‘Peppercorn rent’

The royal has only paid “peppercorn rent” for more than two decades at his Windsor mansion, according to a National Audit Office report published in 2005.

“Peppercorn rent” is a legal term used in leases to show that rent technically exists, so the lease is valid, but it’s nominal, often literally £1 a year or just a symbolic amount.

In practice, it means the tenant pays no rent.

It also shows he was required to pay a further £7.5m for refurbishments.

A document from the Crown Estate also shows he signed a 75-year lease on the property in 2003.

It reveals he paid £1m for the lease and that since then he has paid “one peppercorn” of rent “if demanded” per year.

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The agreement also contains a clause which states the Crown Estate would have to pay Andrew around £558,000 if he gave up the lease.

Pressure is mounting on him to give up the 30-bedroom mansion.

Senior Tory Robert Jenrick called for Prince Andrew to live privately.

‘He has disgraced himself’

He said: “It’s about time Prince Andrew took himself off to live in private and make his own way in life.

“He has disgraced himself, he has embarrassed the royal family time and again. I don’t see why the taxpayer, frankly, should continue to foot the bill at all. The public are sick of him.”

Virginia Giuffre's posthumous memoir was released today. Pic: Reuters
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Virginia Giuffre’s posthumous memoir was released today. Pic: Reuters

Mr Kyle, however, said that would be a question for King Charles.

But he did say MPs could bring forward a motion to strip Prince Andrew of his remaining titles, adding it would be up to Speaker Sir Lindsay Hoyle to choose one of these motions for debate.

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Bank tax could hurt households and business lending, UK’s biggest mortgage provider says

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Bank tax could hurt households and business lending, UK's biggest mortgage provider says

The chief executive of Lloyds Banking Group has warned that a tax raid on the banks could harm lending to households and businesses.

In an exclusive interview with Sky News at the government’s regional investment summit, Charlie Nunn urged the chancellor to ignore calls for a windfall tax on commercial banks even though the sector is enjoying record profits.

“If we are going to have the ability and the confidence to continue to lend into the real economy, to help households and businesses invest, we need to make sure that the financial services system and Lloyds Banking Group really remains healthy in that context,” he said.

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Charlie Nunn was appointed Lloyds boss in November 2020. Pic: PA
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Charlie Nunn was appointed Lloyds boss in November 2020. Pic: PA

Britain’s four largest banks – HSBC, Barclays, Lloyds Banking Group and NatWest – posted record profits of £45.9bn last year and are on course for another bumper performance this year, thanks to higher interest rates.

Their financial success has raised speculation that the sector could be in the chancellor’s firing line at next month’s budget.

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Rachel Reeves could raise the bank surcharge – a levy on bank profits in addition to corporation tax.

The Conservative government cut the levy from 8% to 3% in 2023. Returning it to 8% could raise £2bn for a chancellor who needs to find anywhere up to £50bn to meet her fiscal rules.

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Chancellor faces tough budget choices

Some have suggested a separate windfall tax, which could raise closer to £8bn.

Mr Nunn said such a move risked undermining the health of a sector which underpins the country’s economic prosperity.

“Obviously, taxes are a matter for the government to look at. But it’s definitely one of the factors that impact our ability to support the real economy in the UK,” he said.

A raid on the banks would cause pain to a sector that is already facing substantial costs because of the car finance scandal.

Lloyds, one of the most exposed lenders, has set aside nearly £2bn to cover potential compensation arising from the Financial Conduct Authority’s (FCA) redress scheme.

The FCA established the scheme to draw a line under the long-running mis-selling scandal, in which lenders failed to disclose commission paid to brokers, meaning many customers ended up paying more than they should have for their car finance.

Under the FCA’s scheme, eligible customers – as many as 14.2 million – could receive an average of £700 each.

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Payouts due after motor finance scandal

There is mounting anger within the industry at the way the scheme, which is going out to consultation, has been set up. Mr Nunn said the proposal was too generous to customers and not proportionate to the harms actually caused to customers.

He did not rule out the possibility of a judicial review but, in the first instance, called for a rethink, warning that the current scheme risks scaring away investors, causing an exodus from the market and driving up the cost and availability of credit.

“When you look at the implication of what’s being proposed by the FCA, it’s going to potentially take 20 years of profitability of the car finance industry. And, what does that mean for invest ability in that industry and for other investors and businesses looking to invest in the UK? There’s real concern that this is going to create an invest ability issue,” he said.

“Our concern is will the industry continue to function? Will it support all customers across the whole of the UK that need finance? Will other investors be looking at this and wondering whether the UK is a place they should invest, if retrospectively we can take away 20 years of profits?”

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