Running her fingers over her scan for the first time, Karen Trippass could feel straight away that her unborn baby had her husband’s nose.
Born with bilateral coloboma, a rare condition also known as cat-eye syndrome, she never thought she would experience this pregnancy milestone in the same way that sighted expectant mums do, the excitement of seeing the shifting black and white shapes of a growing embryo appearing on screen for the first time.
It was something she missed out on while pregnant with her eldest daughter, Phoebe, 10 years ago. Questioned by medical staff and social workers on her ability to care for a newborn at that time, Karen says being visually impaired meant she was treated differently and she suffered from depression, finding it difficult to bond with her baby before her birth.
This time round, she was able to “meet” her baby through her 29-week ultrasound thanks to technology that creates a raised image, providing a tactile feel of her child wriggling in her womb. She says having this, and also being able to hear the heartbeat, helped her feel more connected.
Karen’s second daughter, Ruby, is now eight weeks old, and her scan hangs up at their home in Surrey.
“The first thing I remember noticing was her nose,” she says. “She’s got my husband’s nose. I could feel the top of her head, her nose, the dip of her eyes… I’ll always treasure it.
“Both my babies are IVF, it took us a long time to get there. So the whole thing’s emotional anyway, but then getting to see your baby like everybody else does… I just hope that every visually impaired woman who has a baby could get that opportunity.
“I don’t expect the NHS to be rolling it out, but even if you had to pay a minimal charge, I think a lot of people would prefer it. I just think it’s amazing, the concept of having family pictures from now on would be pretty cool.”
According to the NHS, there are more than two million people living with sight loss in the UK, with around 340,000 registered as blind or partially sighted.
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Karen’s scan of Ruby was created by camera firm Canon, and is being featured as part of its new World Unseen exhibition, launched in partnership with the Royal National Institute of Blind People (RNIB) – “the photography exhibition you don’t need to see”.
Designed completely with the experience of blind and partially sighted people in mind, the exhibition features a series of pictures taken by world-renowned photographers, some who are visually impaired, accompanied with elevated prints, audio descriptions, soundscapes and braille.
For sighted people, traditional images are obscured in different ways to convey different types of visual impairment, from glaucoma to diabetic retinopathy. It is an insight into the difficulties faced by blind and partially sighted people, a challenge to see life through their lens, and a reminder of the vision those of us with sight rely on and take for granted every day.
At the launch event, even the canapes play with your senses – we are encouraged to put on headphones playing sounds of the sea, a scent spray filling the air with salt and vinegar, as fish and chip nibbles are presented.
Among the photographers whose work is featured is Ian Treherne, from Essex, who is known as the Blind Photographer. Born with the condition RP Type 2 Usher Syndrome, he has been deaf since birth and over the years has lost almost 95% of his sight.
“I hid my blindness for years,” he says. “I acted as a sighted person for a very long time. When I was growing up, disability was a very, awkward, difficult topic. Only my close friends knew about it. Then in my 30s, I sort of ‘came out’ as a blind person and it’s done me the world of good to be open and honest about it. And I think by doing photography and working alongside other people with disabilities, you can really improve the bigger picture among the general public.”
Ian says he has always been creative and photography allowed him to capture moments in time as he was losing his sight. But there was also a rebelliousness behind his desire to get behind the camera.
“I knew that doing photography and being blind was going to hurt some minds, hurt some brains,” he says. “I knew it would raise some questions.”
So he taught himself, practising with his camera and researching on the internet. “With the condition I’ve got, I have to work probably 10, 20 times harder than a fully sighted person,” he says.
“It’s all a learning curve. I think that’s really the biggest boundary in society, it’s changing the mindsets, or adjusting the mindsets. I think people are sometimes just afraid to ask the question.”
The World Unseen exhibition feature works from world-renowned photographers and Canon ambassadors from around the globe, including Brazilian photojournalist Sebastião Salgado, Nigerian photojournalist Yagazie Emezi, sports photographer Samo Vidic, fashion photographer Heidi Rondak, and Pulitzer-winning photojournalist Muhammed Muheisen.
A photograph from Kenya of the last male northern white rhino, taken by award-winning South African photojournalist Brent Stirton, also features. You can feel the roughness, every groove of the animal’s skin, as you run your fingers over the elevated image.
Photographs of Lioness Chloe Kelly’s decisive goal in the Euro 2022 final at Wembley, by Marc Aspland, are also on display, with an audio description reliving the moment of the win.
But Ruby, of course, is the star of the show, cradled by her mum in front of her scan. “It’s funny to think of people feeling Ruby’s picture but I love the idea that quite a lot of visually impaired people will feel what a scan picture is like, because I didn’t know what to expect,” Karen says.
“To have this memory, this opportunity to ‘see’ – I say see, or feel – my baby before she was born was awesome. And to have a record of it and get to show Ruby when she’s older, it’s so special.”
The World Unseen exhibition has opened at Somerset House, in central London, and runs over the weekend
Women and their partners should be given paid time off work if they experience a miscarriage, MPs have said.
As of April 2020, employees can be eligible for statutory parental bereavement leave, including pay, if they have a stillbirth after 24 weeks of pregnancy, but there is no specific leave for a pre-24 week miscarriage.
The Women and Equalities Committee (WEC) is recommending the two-week leave period should now be made available to women who experience a miscarriage, and their partners who support them.
An estimated one in five pregnancies end before 24 weeks, with as many as 20% ending in the first 12 weeks, known as early miscarriage.
The cross-party group of MPs acknowledged that while a “growing number of employers have specific pregnancy loss leave and pay policies” there remains a “very substantial” gap in support.
And while the introduction of baby loss certificates was welcome it “does not go far enough and it should be backed up by statutory support”.
Many women are forced to take sick leave, which the committee says is an “inappropriate and inadequate” form of employer support as it does not afford women adequate confidentiality or dignity and puts them at high risk of employment discrimination.
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Charlotte Butterworth-Pool, 34, has suffered two pregnancy losses before 24 weeks.
She didn’t tell her employer about the first – as she “just so happened to have the week off” – but her devastation after the second meant she spoke to her workplace.
“I took a week off sick and had to spend the full week in bed,” she tells Sky News. “But then I had to go back to work, and everyone knew I was expecting a baby, which was upsetting. That was quite difficult to manage.”
Ms Butterworth-Pool says she “probably would have taken longer [off]” if a statutory policy had been in place.
The committee intends to put forward amendments to the government’s Employment Rights Bill, in the name of WEC’s Chair, Labour MP Sarah Owen.
This recommendations would cover anyone who experiences miscarriages, ectopic pregnancy, molar pregnancy, in vitro fertilisation embryo transfer loss, or who has a termination for medical reasons.
“I was not prepared for the shock of miscarrying at work during my first pregnancy,” Ms Owen said.
“Like many women, I legally had to take sick leave. But I was grief stricken, not sick, harbouring a deep sense of loss.” She added that the case for a minimum standard in law is “overwhelming”.
“A period of paid leave should be available to all women and partners who experience a pre-24-week pregnancy loss. It’s time to include bereavement leave for workers who miscarry in new employment rights laws.”
‘We need more compassion for mums and their loss’
A number of women have backed the committee’s proposal, including Leila Green, 41, who says “people just didn’t understand why I couldn’t just get on with it” after she suffered a pregnancy loss.
Ms Green, who went on to have triplets, even found it hard to explain her feelings to her husband.
“He didn’t know that baby, that baby was a stranger to him,” she says. “But the baby shared my blood, I knew that baby. I had all these wonderful ideas of what I would do with this wonderful child that got snatched away so suddenly.”
She now supports women with her organisation F**k Mum Guilt and adds: “We need more compassion for mums and their loss. You cannot expect us to act like robots.
“If we go on like nothing has happened, it’s like a ticking time bomb waiting to go off.”
Tess Woodward, 35, has experienced six pregnancy losses and felt like “the rug had been pulled out from under us” after the first in 2020.
“Physically I had to take some time off work for the surgery, and then to recover from it,” she says. “Emotionally, it was very difficult to deal with.”
Ms Woodward’s employer offered her all the support she needed but prior to this, she admits she had been worried.
The fact she was supported “removed some of the extra worry that could have been there,” she adds.
A spokesperson from the Department for Business and Trade said: “Losing a child at any stage is incredibly difficult and we know many employers will show compassion and understanding in these circumstances.
“Our Employment Rights Bill will establish a new right to bereavement leave, make paternity and parental leave a day one right, and strengthen protections for pregnant women and new mothers returning to work.”
Thousands of children are being failed because of the “inequitable” special educational needs system, MPs have said.
In a damning report the Public Accounts Committee (PAC) says too many families are struggling to access support their children with special educational needs and disabilities (SEND) “desperately need”.
Over the past nine years, the number of young people receiving SEND support in state schools has increased by 140,000 from 1m to 1.14m. Budgets have not kept pace, leading to a “crisis” in the system.
Children with even more complex support needs are legally entitled to education, health and care (EHC) plans, and the number of these obligations has more than doubled, increasing by 140% to 576,000.
Local authority spending on SEND has consistently outstripped government funding, leading to substantial deficits in council budgets.
Representatives of the chief financial officers of 40 councils in England, the SCT, estimate that rising demand and costs have resulted in SEND deficits of £4bn among English councils, projected to grow to £5.9bn this year.
This increase is not unusual, with similar rises seen in other high-income countries, but the committee notes that the Department for Education could do more to better understand the reasons behind the rise.
In response to today’s report, Cllr Roger Gough, children’s social care spokesperson for the County Councils Network, said: “While government has committed to reform, it is vital that it is done quickly and correctly. Both councils and families can ill-afford to wait.
“We need the government to set out a comprehensive reforms package and begin to implement them within the next 12 months, including immediate clarity on how government intends to address councils’ deficits.”
Eats into wider schools funding
A recent report by the Institute for Fiscal Studies (IFS) on education spending in England found that despite an expected fall in pupil numbers in coming years, forecasted increases in spending on SEND are projected to undo any resulting savings.
The PAC report found that increased spends were already eating into school budgets, with more than half of the increase in school funding between 2019 and 2024 explained by growth in high needs SEND funding.
As a result, an 11% real terms increase in funding over the period only equated to a 5% increase in mainstream school funding per pupil.
Luke Sibieta, research fellow at the Institute for Fiscal Studies, told Sky News: “We’ve seen rapid rise in the number of pupils with the most severe special needs over the last 6-7 years.
“Numbers have gone up by around 70% and funding has gone up by 60%, so it hasn’t met the rapid increase in numbers.
“That puts mainstream school budgets under real pressure. With half the budget going towards educational needs, the amount left over for extra resources elsewhere in the system will be quite small.
“It’s a picture of rapidly rising demand that just soaks up any funding increase really quickly.”
Postcode lottery in services
Beyond the funding crisis, the Public Accounts Committee’s report highlights serious issues with the current standard of SEND services available in different parts of the country.
They describe a postcode lottery of services, with the quality of support varying significantly between council areas.
In 2023, only half of education, health and care plans for high support needs children and young people were issued within the legal 20-week limit.
Families in neighbouring local authorities could experience very different EHC plan waiting times, with 71.5% of EHC plans written on time in Lambeth compared to 19.2% in neighbouring Southwark.
Parents are also increasingly appealing EHC plan decisions, with the number of appeals more than doubling from 6,000 in 2018 to 15,600 in 2023.
Nearly all (98%) of these were found either partially or wholly in favour of the parents, which the Department for Education recognises as poor value for money and contributing to families’ low confidence in the system.
“Lost generation” of children
The inquiry report concludes that a “lost generation” of children could leave school without having received the help they need without urgent reform of the system, and lays out seven key recommendations.
These include working with local authorities as a matter of urgency to develop a fair budget solution to the immediate financial challenges facing many as a result of SEND related overspends.
They also call on the government to set out the provision which children with SEND should expect, and how schools will be held to account, as well as earlier identification of SEND and improved teacher training, within the next six months.
Commenting on the report, Daniel Kebede, general secretary of the National Education Union, said: “Teachers have described navigating the current system as ‘spinning plates on a roller coaster’. Recommending that a plan of action is in place to resolve the lack of provision, support and resources is clearly good to see.
“The High Needs funding system is fundamentally broken. With EHC plan numbers continuing to rise the current shortfall in SEND funding will only continue to grow.”
The Data and Forensics team is a multi-skilled unit dedicated to providing transparent journalism from Sky News. We gather, analyse and visualise data to tell data-driven stories. We combine traditional reporting skills with advanced analysis of satellite images, social media and other open source information. Through multimedia storytelling we aim to better explain the world while also showing how our journalism is done.
Apple AI is sending misleading push notifications about sensitive stories like Gisele Pelicot’s mass rape trial, Britain’s grooming gang scandal and a prison officer filmed having sex with an inmate.
Concerns have now been raised with Apple by multiple news organisations over the AI summary feature, which is available on iPhones with Apple Intelligence.
The feature “must be revoked”, the National Union of Journalists told Sky News, as the “inaccurate news summaries shared to audiences through Apple Intelligence demonstrate the feature is not fit for purpose”.
The feature uses artificial intelligence to summarise notifications “so you can scan them for key details”, according to Apple.
However, the AI has been incorrectly summarising news stories from newsrooms like the BBC, Sky News and the Telegraph and creating misleading and inaccurate headlines.
In one example created for a Sky News story, the feature incorrectly suggested safeguarding minister Jess Phillips called for a new inquiry into Britain’s grooming gangs.
The wider story about grooming gangs was sensitive and controversial, with Elon Musk attacking the MP and Sir Keir Starmer for not holding a national inquiry.
In another example of a sensitive story being inaccurately summarised, Apple’s AI said mass rape victim Gisele “defended her convictions”.
Gisele Pelicot was the victim of rape by more than 50 men, after her ex-husband drugged, raped and advertised her on the internet. Her rapists have been sentenced to more than 400 years in prison.
A third example was the recent news about a prison officer being jailed for 15 months after being filmed having sex with a prisoner summarised as “prison officer filmed having sex with inmate”.
Sky News has now raised concerns with Apple about the summaries, over worries that the feature could erode trust in the news and the organisation’s reputation.
The BBC also previously complained to the tech giant after the feature inaccurately told readers that darts player Luke Littler had won the PDC World Championship – before he played in the final.
“These AI summarisations by Apple do not reflect – and in some cases completely contradict – the original BBC content,” a BBC spokesperson told Sky News.
“It is critical that Apple urgently addresses these issues as the accuracy of our news is essential in maintaining trust.”
The NUJ’s general secretary Laura Davison said: “With each story inaccurately shared, Apple positions itself amid actors spreading harmful misinformation, condemned by all who recognise the importance of ethical and credible journalism.
“There have now been multiple examples of these errors and at a time of polarisation amid audiences on highly sensitive news stories dominating the media, the editorial integrity and reputation of journalists and outlets should not be weakened in this manner.
“Doing so only risks the erosion of public trust and confidence in news,” she said.
In another recent example, the summary told Telegraph readers the prime minister had changed his stance on farmer inheritance tax and was now backing farmers.
Apple appeared to confuse the headline “Blow to Starmer as supermarket giant backs farmers over inheritance tax raid”.
Instead, it summarised the headline to “Starmer backs farmers over inheritance tax raid”.
The Telegraph did not respond to a request for comment.
When approached for comment, Apple sent Sky News a link to a BBC article on the topic where it said it was working to clarify that summaries were AI-generated.
However, Sky News suggested it still has concerns that the way summaries are presented by Apple AI carry strong implications they have originated from Sky News.