Connect with us

Published

on

It is a paradox that humanity at its very worst so often also brings out its very best too.

This is a story about the kindness of strangers. It’s a story about hope over hopelessness. It’s about the war in Gaza but also about the rarest of diseases.

It is about two families in worlds far apart. It is a story about two little girls, Julia and Annabel.

I don’t yet know how it will end. But this is how it started.

It was two weeks ago when my phone pinged: a message on Instagram from a friend-of-a-friend. Her name is Nina Frost.

Nina and I first met a few years ago at a party in Washington DC where she had told me about her daughter Annabel, a little girl with an ultra-rare genetic disorder called AHC.

I remember Nina explaining how it was a disease like no other.

More on Gaza

‘The human time bomb disease’ she had called it, based on the all-consuming parental nightmare that their little girl could have a fatal seizure at any moment.

Image:
The Frost family

I’ve followed Nina’s Instagram, @HopeForAnnabel since we first met.

The good news is that Annabel is doing well, albeit with that eternal danger hanging over her. She requires constant care, attention and love.

Nina’s message to me wasn’t about her own daughter. It was about another little girl, in Gaza.

Rare diseases like AHC, which stands for Alternating Hemiplegia of Childhood, generate tight networks; the families living with the condition. Only about 1,000 people worldwide have been diagnosed with AHC. It really is rare.

“There is a little girl stuck in Gaza with the disease,” Nina wrote to me.

“Julia is three – after the last few months she has become paralyzed and unable to eat as her symptoms have worsened dramatically. We are desperate to help as she is massively vulnerable – literally on the brink of death.”

Julia Abu Zaiter is from northern Gaza originally. But with her father Amjad, her mother Maha and her older sister Sham, she was forced south by the Israeli military.
Image:
Julia’s mother administers medication

Nina told me how she and her husband, Simon, are trying to organise the impossible: to get specialist drugs into Gaza and, ultimately, to try to get Julia and her family out.

Nina was modest about an endeavour that I now know has been all-consuming and expensive.

To tell this remarkable story of kindness and hope, I asked Nina to share with me Julia’s father’s number. Our local colleagues in Gaza then tracked the family down to a tent in the southern city of Rafah.

Julia Abu Zaiter is from northern Gaza originally. But with her father Amjad, her mother Maha and her older sister Sham, she was forced south by the Israeli military.

“My girl is three and a half years old. I want her to go out and play with the other children. Now, she cannot move at all,” Julia’s mother told our team, cradling her severely disabled little girl.

Rare diseases like AHC, which stands for Alternating Hemiplegia of Childhood, generate tight networks; the families living with the condition. Only about 1000 people worldwide have been diagnosed with AHC. It really is rare.
Image:
Annabel Frost

Rafah is on Gaza’s southern border with Egypt. Safety is so close and yet beyond reach unless the right strings are pulled with different authorities and governments in a labyrinth of wartime bureaucracy.

The images filmed by our team confirm what Nina had feared in her message to me.

Julia and her family are in the toughest of conditions. The house next to the tent was bombed a few days before our team visited.

The Abu Zaiters are now stuck in the city that could be the next battlefield and with a daughter whose condition is compounded by just the slightest stress, a little girl with, as Nina had told me, the ‘time bomb disease’.

“I told myself ‘it’s over, my girl is gone’,” Julia’s mother told our Gaza team, showing them Julia’s semi-paralysed state.

“Then a man named Simon contacted us and told us he will see if he can help, because his daughter’s situation is similar to mine.”

Five thousand miles away, and a world apart, in a leafy northwest suburb of Washington DC, I am now sitting with Simon, Nina and Annabel.

Julia Abu Zaiter
Image:
Julia Abu Zaiter

It is humbling to listen to their words – about their own daughter, but about their fight for a stranger too.

“Annabel lives with the most challenging condition that we can imagine – a neurological degeneration – and she lives with it with a smile on her face,” Simon says. “And we’re imagining the same for Julia in the most dire of circumstances.”

We look at videos of Julia which Amjad has sent to Simon.

“Our kids are all so similar… we feel a sense of connection to so many families and our world of rare disease,” Nina tells me.

“This is like that but on steroids. I mean, we feel so distressed for the situation that they’re facing.”

“Julia’s circumstances are exponentially worse, but I think we’ve always embraced the idea that we can do something to help, we must do something to help and that we should. I mean, I think it’s always been if not us, then who?” Nina adds.

Follow Sky News on WhatsApp
Follow Sky News on WhatsApp

Keep up with all the latest news from the UK and around the world by following Sky News

Tap here

Amjad’s message highlights concerns he has about his daughter. He is looking for reassurance from Simon.

Julia is experiencing some severe paralysis and via a translated SMS and a few photos, Amjad wants some encouragement which Simon can’t give.

“They don’t have the medicines they need and the doctors that they need to really treat and properly prevent episodes and to address them when she has them,” Simon says.

“So we’ve been trying to gather a group that can support her. It’s been constant communication and really difficult with the translation issues,” Simon tells me.

Over in Gaza, Julia’s mum is desperate. “Our conditions due to the war are below zero.

“Our situation is horrible. I cannot provide my daughter with any food or drinks. I can get medications through lots of difficulty, and I tell myself that getting these medications is more important than getting food for us.”

Rare diseases like AHC, which stands for Alternating Hemiplegia of Childhood, generate tight networks; the families living with the condition. Only about 1000 people worldwide have been diagnosed with AHC. It really is rare.
Image:
The Frosts speak to Sky’s Mark Stone

Against the odds, Simon has managed to coordinate with the right people to get the right medication into Gaza for Julia.

Through the tight AHC network, one doctor has prompted another who knows another and another. That’s how this works. Threads of kindness stitched together.

Read more from Sky News:
Man charged over 1966 Illinois murder
Philippine coastguard hits out at China’s ‘brute force’
Inside pro-Palestinian protest as police break up UCLA encampment

Now the challenge is getting Julia out to Egypt and then on a medical flight to Abu Dhabi. It will be hard, maybe impossible.

“And it seems like she’s really declined,” Nina says looking at the latest videos of Julia.

“I mean, it seems like exactly what we would have predicted has happened. She has gone from being a happy three-year-old with a profoundly difficult disease to being this shell of herself.”

“I feel like I am losing her,” Maha says with Julia in her arms. “She is dying right next to me and I cannot even do anything. The thing I fear the most is losing my daughter.”

There is some chance of an extraction to safety soon. It is not guaranteed but it is some hope for one little girl in a place where uncertainty is all around.

This is a story about two families worlds apart but bound by a disease.

I don’t yet know how it will end. This may feel sometimes like a world of hopelessness, but I have some hope.

Continue Reading

US

Boy, eight, and mother in critical condition as nine people injured in shooting at Detroit waterpark

Published

on

By

Boy, eight, and mother in critical condition as nine people injured in shooting at Detroit waterpark

An eight-year-old boy is in a critical condition after he was shot in the head at a waterpark in Michigan – with eight other people injured.

His mother is also in a critical condition, while his four-year-old brother is in a stable condition with a leg wound, after a gunman opened fire in a Detroit suburb on Saturday.

Another other six victims, who are all aged 30 or over, including a husband and wife and a 78-year-old man, are said to be in a stable condition.

Police tracked the suspected gunman, described as a 42-year-old white man, to a home, where they sent a drone inside to find he had died by a self-inflicted gunshot wound, authorities said.

The shooting happened at just after 5pm at the Brooklands Plaza Splash Pad in Rochester Hills, an area of a city park where people can play in fountains of water.

Police respond to the scene of a shooting at the Brooklands Plaza Splash Pad, Saturday, June 15, 2024, in Rochester Hills, Mich. The Oakland County Sheriff...s Office says there are ...numerous wounded victims... after police were called for an active shooter. (WXYZ via AP)
Image:
Police respond to a shooting at the Brooklands Plaza Splash Pad. Pic: WXYZ/AP

Oakland County Sheriff Mike Bouchard said the attack appeared to be random, with the gunman driving up to the park, walking to the water recreation area and firing up to 28 times, stopping multiple times to reload.

“People were falling, getting hit, trying to run,” he said. “Terrible things that unfortunately all of us in our law enforcement business have seen way too much.”

More on Michigan

The sheriff said the gunman, who at least one witness said was using two handguns, was “apparently in no rush” and “just calmly walked back to his car”.

An officer arrived at the scene within two minutes of the 911 call, he said, with the first deputies providing first aid including tourniquets.

A handgun and three empty magazines were recovered from the scene, the sheriff said.

Police were able to quickly come up with a likely address, and a car matching the suspect’s was discovered at the residence.

Sheriff Bouchard said the quick actions of police may have prevented a “second chapter” to the shooting as he showed a photo of a semiautomatic rifle on a table inside the home.

Officials with the Oakland County Sheriff's Department, Rochester Hills Fire Department and other jurisdictions secure the scene of a shooting at the Brooklands Plaza Splash Pad, Saturday, June 15, 2024, in Rochester Hills, Mich. (Katy Kildee/Detroit News via AP)
Image:
Officials secure the scene. Pic Katy Kildee/Detroit News/AP

Read more from Sky News
Reality TV stars appear in court
Wayne Lineker jokes about Ibiza punch
Celebrities named in King’s Birthday Honours list

Another handgun, believed to have been used by the suspect to take his own life, was also found inside.

The suspect, who is believed to have lived with his mother, did not live in Rochester Hills and it is not yet known why he went to the park or what his motive may have been.

Rochester Hills Mayor Bryan Barnett said he “started to cry” when he arrived at the scene because it is supposed to be a place where people gather and have fun.

The shooting was a reminder “that we live in a fragile place,” he said, while Sheriff Bouchard called it “a gut punch” for the county.

“Our most fervent hope, at least at his point, is that all of the injured victims have speedy recoveries,” he said.

“None of us… anticipated going into Father’s Day weekend with this kind of tragedy that families will be deeply affected by forever.”

Continue Reading

US

Missouri woman who spent 43 years behind bars has murder conviction overturned

Published

on

By

Missouri woman who spent 43 years behind bars has murder conviction overturned

A woman who was a psychiatric patient when she incriminated herself in a 1980 Missouri murder has had her conviction overturned after spending 43 years behind bars.

Sandra Hemme’s lawyers say a disgraced police officer was responsible for the killing of 31-year-old library worker Patricia Jeschke and this is the longest time a woman has been imprisoned for a wrongful conviction in US history.

Judge Ryan Horsman ruled on Friday the 63-year-old had established evidence of actual innocence, said her trial counsel was ineffective and prosecutors had failed to disclose evidence that would have helped her.

He said she must be freed within 30 days unless prosecutors retry her, but her lawyers, with the New York-based Innocence Project, are seeking her immediate release.

“We are grateful to the Court for acknowledging the grave injustice Ms Hemme has endured for more than four decades,” they said in a statement, promising to keep up their efforts to dismiss the charges and reunite Hemme with her family.

The brutal killing of Ms Jeschke grabbed the headlines after her worried mother climbed through her apartment window in in St Joseph, Missouri, and found her daughter’s naked body on the floor surrounded by blood on 13 November 1980.

Read more from Sky News:
Boy, eight, in critical condition after waterpark shooting
Call for ‘urgent explanation’ after police car filmed hitting cow

More on United States

Her hands were tied behind her back with a telephone cord, and a pair of tights was wrapped around her throat, with a knife under her head.

Ms Hemme was shackled in leather wrist restraints and so heavily sedated she “could not hold her head up straight” or “articulate anything beyond monosyllabic responses” when she was first questioned over Ms Jeschke’s death, according to her lawyers.

They alleged in a petition seeking her exoneration that authorities ignored her “wildly contradictory” statements and suppressed evidence implicating Michael Holman, then a 22-year-old police officer who tried to use the murdered woman’s credit card on the day her body was found.

The judge found that “no evidence whatsoever outside of Ms Hemme’s unreliable statements connects her to the crime”.

“In contrast,” he added, “this Court finds that the evidence directly ties Holman to this crime and murder scene.”

Holman, who had been a suspect and was questioned at the time, was fired after investigations for burglary and insurance fraud, and died in 2015.

Continue Reading

US

Donald Trump challenges Joe Biden to take cognitive test – only to get name of his own doctor wrong

Published

on

By

Donald Trump challenges Joe Biden to take cognitive test - only to get name of his own doctor wrong

Donald Trump has challenged President Joe Biden to take a cognitive test – only to confuse the name of his own doctor.

The Republican presidential nominee has regularly lambasted his rival over his various gaffes, despite his own tendency to ramble or get facts wrong.

Speaking in Detroit, Mr Trump questioned the president’s mental acuity. He said: “He doesn’t even know what the word ‘inflation’ means. I think he should take a cognitive test like I did.”

Seconds later, he continued: “Doc Ronny Johnson. Does everyone know Ronny Johnson, congressman from Texas? He was the White House doctor, and he said I was the healthiest president, he feels, in history, so I liked him very much indeed immediately.”

However he was clearly referring to Ronny Jackson, who was the White House physician for part of his presidency.

He was elected to Congress in 2021 and is one of Mr Trump’s most vociferous defenders on Capitol Hill.

Mr Trump took the cognitive test in 2018 at his own request, Dr Jackson told reporters at the time. The exam is designed to detect early signs of memory loss and other mild cognitive impairment.

More from US

The former president, who turned 78 on Friday, has made questioning whether the 81-year-old President Biden is up for a second term a centrepiece of his campaign.

But online critics quickly seized on his Saturday night gaffe, with the Biden campaign posting a clip of the moment minutes later.

President Biden poked fun at Mr Trump’s age too, wishing him a happy 78th birthday “from one old guy to another” on X.

Joe Biden and Volodymyr Zelenskyy shake hands on the day of signing a new security agreement between the United States and Ukraine, in Fasano, Italy, June 13, 2024. Pic: Reuters
Image:
Joe Biden and Volodymyr Zelenskyy shake hands after the signing of a new security agreement this week. Pic: Reuters

Read more:
Supreme Court rejects bid to restrict access to abortion pill
Sandy Hook massacre survivors graduate high school

It comes after a week in which both rivals were criticised for awkward moments in public.

President Biden appeared to freeze for several seconds before briefly stumbling on his words at an event marking the anniversary of Juneteenth on Monday.

Meanwhile, a teleprompter malfunction in Las Vegas saw Mr Trump go off on a bizarre tangent about his dislike of sharks.

Continue Reading

Trending