Connect with us

Published

on

It is a paradox that humanity at its very worst so often also brings out its very best too.

This is a story about the kindness of strangers. It’s a story about hope over hopelessness. It’s about the war in Gaza but also about the rarest of diseases.

It is about two families in worlds far apart. It is a story about two little girls, Julia and Annabel.

I don’t yet know how it will end. But this is how it started.

It was two weeks ago when my phone pinged: a message on Instagram from a friend-of-a-friend. Her name is Nina Frost.

Nina and I first met a few years ago at a party in Washington DC where she had told me about her daughter Annabel, a little girl with an ultra-rare genetic disorder called AHC.

I remember Nina explaining how it was a disease like no other.

More on Gaza

‘The human time bomb disease’ she had called it, based on the all-consuming parental nightmare that their little girl could have a fatal seizure at any moment.

Image:
The Frost family

I’ve followed Nina’s Instagram, @HopeForAnnabel since we first met.

The good news is that Annabel is doing well, albeit with that eternal danger hanging over her. She requires constant care, attention and love.

Nina’s message to me wasn’t about her own daughter. It was about another little girl, in Gaza.

Rare diseases like AHC, which stands for Alternating Hemiplegia of Childhood, generate tight networks; the families living with the condition. Only about 1,000 people worldwide have been diagnosed with AHC. It really is rare.

“There is a little girl stuck in Gaza with the disease,” Nina wrote to me.

“Julia is three – after the last few months she has become paralyzed and unable to eat as her symptoms have worsened dramatically. We are desperate to help as she is massively vulnerable – literally on the brink of death.”

Julia Abu Zaiter is from northern Gaza originally. But with her father Amjad, her mother Maha and her older sister Sham, she was forced south by the Israeli military.
Image:
Julia’s mother administers medication

Nina told me how she and her husband, Simon, are trying to organise the impossible: to get specialist drugs into Gaza and, ultimately, to try to get Julia and her family out.

Nina was modest about an endeavour that I now know has been all-consuming and expensive.

To tell this remarkable story of kindness and hope, I asked Nina to share with me Julia’s father’s number. Our local colleagues in Gaza then tracked the family down to a tent in the southern city of Rafah.

Julia Abu Zaiter is from northern Gaza originally. But with her father Amjad, her mother Maha and her older sister Sham, she was forced south by the Israeli military.

“My girl is three and a half years old. I want her to go out and play with the other children. Now, she cannot move at all,” Julia’s mother told our team, cradling her severely disabled little girl.

Rare diseases like AHC, which stands for Alternating Hemiplegia of Childhood, generate tight networks; the families living with the condition. Only about 1000 people worldwide have been diagnosed with AHC. It really is rare.
Image:
Annabel Frost

Rafah is on Gaza’s southern border with Egypt. Safety is so close and yet beyond reach unless the right strings are pulled with different authorities and governments in a labyrinth of wartime bureaucracy.

The images filmed by our team confirm what Nina had feared in her message to me.

Julia and her family are in the toughest of conditions. The house next to the tent was bombed a few days before our team visited.

The Abu Zaiters are now stuck in the city that could be the next battlefield and with a daughter whose condition is compounded by just the slightest stress, a little girl with, as Nina had told me, the ‘time bomb disease’.

“I told myself ‘it’s over, my girl is gone’,” Julia’s mother told our Gaza team, showing them Julia’s semi-paralysed state.

“Then a man named Simon contacted us and told us he will see if he can help, because his daughter’s situation is similar to mine.”

Five thousand miles away, and a world apart, in a leafy northwest suburb of Washington DC, I am now sitting with Simon, Nina and Annabel.

Julia Abu Zaiter
Image:
Julia Abu Zaiter

It is humbling to listen to their words – about their own daughter, but about their fight for a stranger too.

“Annabel lives with the most challenging condition that we can imagine – a neurological degeneration – and she lives with it with a smile on her face,” Simon says. “And we’re imagining the same for Julia in the most dire of circumstances.”

We look at videos of Julia which Amjad has sent to Simon.

“Our kids are all so similar… we feel a sense of connection to so many families and our world of rare disease,” Nina tells me.

“This is like that but on steroids. I mean, we feel so distressed for the situation that they’re facing.”

“Julia’s circumstances are exponentially worse, but I think we’ve always embraced the idea that we can do something to help, we must do something to help and that we should. I mean, I think it’s always been if not us, then who?” Nina adds.

Follow Sky News on WhatsApp
Follow Sky News on WhatsApp

Keep up with all the latest news from the UK and around the world by following Sky News

Tap here

Amjad’s message highlights concerns he has about his daughter. He is looking for reassurance from Simon.

Julia is experiencing some severe paralysis and via a translated SMS and a few photos, Amjad wants some encouragement which Simon can’t give.

“They don’t have the medicines they need and the doctors that they need to really treat and properly prevent episodes and to address them when she has them,” Simon says.

“So we’ve been trying to gather a group that can support her. It’s been constant communication and really difficult with the translation issues,” Simon tells me.

Over in Gaza, Julia’s mum is desperate. “Our conditions due to the war are below zero.

“Our situation is horrible. I cannot provide my daughter with any food or drinks. I can get medications through lots of difficulty, and I tell myself that getting these medications is more important than getting food for us.”

Rare diseases like AHC, which stands for Alternating Hemiplegia of Childhood, generate tight networks; the families living with the condition. Only about 1000 people worldwide have been diagnosed with AHC. It really is rare.
Image:
The Frosts speak to Sky’s Mark Stone

Against the odds, Simon has managed to coordinate with the right people to get the right medication into Gaza for Julia.

Through the tight AHC network, one doctor has prompted another who knows another and another. That’s how this works. Threads of kindness stitched together.

Read more from Sky News:
Man charged over 1966 Illinois murder
Philippine coastguard hits out at China’s ‘brute force’
Inside pro-Palestinian protest as police break up UCLA encampment

Now the challenge is getting Julia out to Egypt and then on a medical flight to Abu Dhabi. It will be hard, maybe impossible.

“And it seems like she’s really declined,” Nina says looking at the latest videos of Julia.

“I mean, it seems like exactly what we would have predicted has happened. She has gone from being a happy three-year-old with a profoundly difficult disease to being this shell of herself.”

“I feel like I am losing her,” Maha says with Julia in her arms. “She is dying right next to me and I cannot even do anything. The thing I fear the most is losing my daughter.”

There is some chance of an extraction to safety soon. It is not guaranteed but it is some hope for one little girl in a place where uncertainty is all around.

This is a story about two families worlds apart but bound by a disease.

I don’t yet know how it will end. This may feel sometimes like a world of hopelessness, but I have some hope.

Continue Reading

US

Trump exempts Hungary from US sanctions on Russian energy after meeting Orban

Published

on

By

Trump exempts Hungary from US sanctions on Russian energy after meeting Orban

Hungary has been given a one-year exemption from US sanctions on using Russian energy, a White House official has said, after its Prime Minister Viktor Orban met with Donald Trump in the White House.

Mr Orban succeeded in convincing the US president to allow Hungary to continue importing Russian oil and gas without being subject to the sanctions Mr Trump‘s administration had placed on Russian fossil fuels.

Hungary has been under heavy pressure from the European Union to end its reliance on Russian energy.

The EU has mostly heavily cut or ceased its imports of Russian oil and gas.

On 22 October, Mr Trump imposed sanctions against Russia’s two biggest oil companies, in a major policy shift described by Vladimir Putin as an “unfriendly act”.

Mr Trump has also been pushing Europe to stop using Russian energy.

Ukraine war latest: Trump gives Hungary energy sanctions relief

Please use Chrome browser for a more accessible video player

Will US sanctions on Russian oil hurt the Kremlin?

Mr Orban, the country’s nationalist leader and a long-time ally of Mr Trump, has described access to Russian energy as a “vital” issue for his landlocked country.

He said he planned to discuss with Mr Trump the “consequences for the Hungarian people” if the sanctions came into effect.

Speaking at a news conference after his talks with Mr Trump, Mr Orban said Hungary had “been granted a complete exemption from sanctions” affecting Russian gas delivered to Hungary from the TurkStream pipeline and oil from the Druzhba pipeline.

“We asked the president to lift the sanctions,” Mr Orban said. “We agreed and the president decided, and he said that the sanctions will not be applied to these two pipelines.”

Mr Trump appeared to be sympathetic to Mr Orban’s pleas.

“We’re looking at it, because it’s very different for him to get the oil and gas from other areas,” he said.

Please use Chrome browser for a more accessible video player

Why did Trump sanction Russian oil?

“As you know, they don’t have … the advantage of having sea. It’s a great country, it’s a big country, but they don’t have sea. They don’t have the ports.”

He added: “But many European countries are buying oil and gas from Russia, and they have been for years. And I said, ‘What’s that all about?'”

Read more from Sky News:
Putin’s right-hand man made him look weak
UPS and FedEx ground fleet of cargo planes after deadly crash

Please use Chrome browser for a more accessible video player

Putin: US sanctions are an ‘unfriendly act’

Orban says ‘miracle can happen’ in Ukraine war

Mr Trump and Mr Orban also discussed the war in Ukraine, with the US president saying: “The basic dispute is they just don’t want to stop yet. And I think they will.”

The president asked Mr Orban if he thought Ukraine could win the war, with the prime minister saying a “miracle can happen”.

Hungary reliant on Russian gas and oil

As part of the discussions, Hungary agreed to buy US liquefied natural gas (LNG), the US state department said, noting contracts were expected to be worth around $600m (£455m).

The two nations also agreed to work together on nuclear energy, including small modular reactors.

Mr Orban also said Hungary will also purchase nuclear fuel from the US-based Westinghouse Electric Company to power its Paks nuclear plant, which has until now relied on Russian-supplied nuclear fuel.

International Monetary Fund figures show Hungary relied on Russia for 74% of its gas and 86% of its oil last year. It warned an EU-wide cutoff of Russian natural gas could result in output losses in Hungary exceeding 4% of its GDP.

Continue Reading

US

Why US may soon have a real energy emergency

Published

on

By

Why US may soon have a real energy emergency

Donald Trump declared a questionable “national energy emergency” when he entered the White House. Soon, he may have one for real.

The president promised his America would “drill, baby drill” to new levels of prosperity by making the most of its reserves of oil and gas.

Mr Trump has now axed hundreds of billions in tax breaks and grants for low-carbon power and clean energy research and given them instead to fossil fuel investments.

Construction continues on Revolution Wind but the project is not yet connected to the grid. Pic: Reuters
Image:
Construction continues on Revolution Wind but the project is not yet connected to the grid. Pic: Reuters

There’s no better example than Revolution Wind, one of the largest offshore renewable energy projects in America.

Nearly 80% complete, the White House ordered an immediate halt.

When we visited, the massive 200m-wide turbines were going round – a temporary injunction has allowed construction to continue – but they’re not yet connected to the grid.

As long as Mr Trump is in power, it’s not certain they’ll ever be.

More on Climate Change

The future of other major wind and solar developments is also in doubt, as is more than $100bn (£75bn) in clean energy investment.

There’s less doubt about the fossil fuel business however. The industry is getting what it asked for after backing Mr Trump’s re-election.

US energy secretary Chris Wright and many key White House staff and advisers are former fossil fuel industry insiders.

Analysis for Sky News, by Global Witness, reveals that since the Paris Agreement was signed in 2015, US oil and gas production has grown five times faster than the average of the world’s next largest producers.

An increase that really took off during Mr Trump’s first presidency.

The analysis of company data goes on to reveal how US oil and gas production is now forecast to continue growing – by 2035 to double that of its next closest rival, Russia.

“Instead of reducing investment in dirty oil and gas, the principal drivers of climate breakdown, the US has doubled down on fossil fuels, ramping up production,” said Patrick Galey, of Global Witness.

A fact that would probably be music to the president’s ears and to many conservative Americans who voted for him.

US oil and gas production is forecast to grow to double that of Russia's by 2035
Image:
US oil and gas production is forecast to grow to double that of Russia’s by 2035

Mr Trump’s “energy emergency” was perhaps a predictable response to the “climate emergency” invoked by his political rivals.

The only problem is, apart from accelerating global warming, his energy plan is on course to make America worse off.

‘US energy demand to grow 25%’

For the first time in years, US electricity demand has been going up. It is driven in part by a race to build power-hungry data centres – further encouraged by Mr Trump’s aim for American supremacy in AI.

Demand is rising and renewable energy is the quickest, cheapest way to meet it.

Data centres require vast amounts of power. Pic: Reuters
Image:
Data centres require vast amounts of power. Pic: Reuters

President Trump has championed supremacy in AI – backing investments in and clearing red tape for massive energy-hungry data centres.

After declining, then remaining stable for years, US energy demand is now forecast to grow 25% by 2030, according to analysis by ICF International.

But where will all the electricity come from?

We went to Mitsubishi Power, which makes state-of- the-art gas turbines for power stations at its factory outside Savannah, Georgia.

Demand for new turbines has never been greater, according to Bill Newsom, the US CEO. Wait times for new turbines is now double what it was just two years ago.

Mitsubishi makes gas turbines for power stations at its factory outside Savannah, Georgia
Image:
Mitsubishi makes gas turbines for power stations at its factory outside Savannah, Georgia

And while America will need gas to meet rising demand – it’s twice as clean as coal and provides “baseload” power that renewable energy grids can’t yet match – it can’t be built fast enough.

American businesses, including AI, will likely suffer because they can’t get the power they need.

Read more from Sky News:
Trump may have another motive in war on drugs escalation

Trump raises tariffs on Canada in response to Reagan advert

US consumers – who Mr Trump promised lower bills – will end up paying more because he also made renewable energy more expensive.

And that’s to say nothing of the impact on carbon emissions.

The speed of transition being called for to meet the 1.5C Paris target was always going to be very expensive, as countries like the UK are finding out.

But by fighting one “emergency” with another, Mr Trump risks making Americans – and the climate – worse off.

Continue Reading

US

One year on from Donald Trump’s election win, an untold story has emerged

Published

on

By

One year on from Donald Trump's election win, an untold story has emerged

It’s a year since the US put Donald Trump back in the White House and I’ve spent this anniversary week in Florida and in Pennsylvania – two worlds in one country where I found two such contrasting snapshots of Trump’s America.

There are many ways to reflect on the successes and failures of the past year. Different issues matter to different people. But the thing which matters to all Americans is money.

The cost of living was a key factor in Donald Trump’s victory. He promised to make the country more affordable again. So: how’s he done?

On Wednesday, exactly a year since Americans went to the polls, the president was in Miami. He had picked this city and a particular crowd for his anniversary speech.

I was in the audience at the America Business Forum as he told wealthy entrepreneurs and investors how great life is now.

“One year ago we were a dead country, now we’re considered the hottest country in the world.” he told them to cheers. “Record high, record high, record high…”

The vibe was glitzy and wealthy. These days, these are his voters; his crowd.

“After just one year since that glorious election, I’m thrilled to say that America is back, America is back bigger, better, stronger than ever.” he said.

“We’ve done really well. I think it’s the best nine months, they say, of any president. And I really believe that if we can have a few more nine months like this, you’d be very happy. You’d be very satisfied.”

There was little question here that people are happy.

Liz Ciborowski says Trump has been good for the economy
Image:
Liz Ciborowski says Trump has been good for the economy

“Trump’s been a good thing?” I asked one attendee, Liz Ciborowski.

“Yes. He has really pushed for a lot of issues that are really important for our economy,” she said.

“I’m an investor,” said another, Andrea.

“I’m a happy girl. I’m doing good,” she said with a laugh.

Andrea says she's happy with how the economy is faring
Image:
Andrea says she’s happy with how the economy is faring

A year on from his historic victory, the president was, notably, not with the grassroots folk in the places that propelled him back to the White House.

He had chosen to be among business leaders in Miami. Safe crowd, safe state, safe space.

But there was just one hint in his speech which seemed to acknowledge the reality that should be a concern for him.

“We have the greatest economy right now,” he said, adding: “A lot of people don’t see that.”

That is the crux of it: many people beyond the fortunate here don’t feel the “greatest economy” he talks about. And many of those people are in the places that delivered Trump his victory.

That’s the untold story of the past year.

A thousand miles to the north of Miami is another America – another world.

Steelton, Pennsylvania sits in one of Donald Trump’s heartlands. But it is not feeling the beat of his greatest economy. Not at all.

At the local steel union, I was invited to attend a meeting of a group of steel workers. It was an intimate glimpse into a hard, life-changing moment for the men.

The steel plant is shutting down and they were listening to their union representative explaining what happens next.

David Myers used to be employed at the steelworks
Image:
David Myers used to be employed at the steelworks

The conversation was punctuated with all the words no one wants to hear: laid off, severance, redundancy.

“For over 100 years, my family has been here working. And I was planning on possibly one day having my son join me, but I don’t know if that’s a possibility now,” former employee David Myers tells me.

“And…” he pauses. “Sorry I’m getting a little emotional about it. We’ve been supplying America with railroad tracks for over a century and a half, and it feels weird for it to be coming to an end.”

Cleveland Cliffs Steelton plant is closing because of weakening demand, according to its owners. Their stock price has since surged. Good news for the Miami crowd, probably. It is the irony between the two Americas.

Read more US news:
JD Vance’s reaction to a big 24 hours in US politics is telling
New York’s new mayor shouldn’t expect any easy wins

Steelton in Pennsylvania
Image:
Steelton in Pennsylvania

Down at the shuttered plant, it’s empty, eerie and depressing. It is certainly not the image or the vision that Donald Trump imagined for his America.

Pennsylvania, remember, was key to propelling Trump back to the White House. In this swing state, they swung to his promises – factories reopened and life more affordable.

Up the road, conversations outside the town’s government-subsidised homes frame the challenges here so starkly.

“How much help does the community need?” I asked a man running the local food bank.

Elder Melvin Watts is a community organiser
Image:
Elder Melvin Watts is a community organiser

“As much as they can get. I mean, help is a four-letter word but it has a big meaning. So help!” community organiser Elder Melvin Watts said.

I asked if he thought things were worse than a year ago.

“Yes sir. I believe they needed it then and they need it that much more now. You know it’s not hard to figure that out. The cost of living is high.”

Nearby, I met a woman called Sandra.

Sandra says it's getting harder to make ends meet
Image:
Sandra says it’s getting harder to make ends meet

“It’s been harder, and I’m a hard-working woman.” she told me. “I don’t get no food stamps, I don’t get none of that. You’ve got to take care of them bills, eat a little bit or don’t have the lights on. Then you have people like Mr Melvin, he’s been out here for years, serving the community.”

Inside Mr Melvin’s food bank, a moment then unfolded that cut to the heart of the need here.

A woman called Geraldine Santiago arrived, distressed, emotional and then overwhelmed by the boxes of food available to her.

“We’ll help you…” Mr Melvin said as she sobbed.

Geraldine's welfare has been affected by the shutdown
Image:
Geraldine’s welfare has been affected by the shutdown

Geraldine is one of 40 million Americans now not receiving the full nutritional assistance programme, known as SNAP, and usually provided by the federal government.

SNAP benefits have stopped because the government remains shut down amid political deadlock.

I watched Geraldine’s rollercoaster emotions spilling out – from desperation to gratitude at this moment of respite. She left with a car boot full of food.

A year on from his victory, Donald Trump continues to frame himself as the “America First” president and now with an economy transformed. But parts of America feel far, far away.

Continue Reading

Trending