Colin Smith carries a small suitcase into the dining room of their Newport home and lays it flat on the table in the centre of the room. He pops open both latches.
His wife Jan reaches inside and pulls out a sky blue child’s blanket. She holds it close to her face, closes her eyes and inhales deeply.
“It still smells of him,” she says, softly.
“This is the blanket he was wrapped in when he died.”
Their son, also called Colin, was just seven years old when he died in January 1990. His tiny body was ravaged by Hepatitis C and AIDS.
The suitcase, much like the one most families used to own in the 1980s, is just big enough to hold all the memories of their son’s short life.
Next to the blanket, are his favourite toys including a snow globe and lots of his artwork.
Image: Jan and Colin Smith look through the suitcase containing their son’s possessions
Jan explains that Collin, loved to paint and draw and that he was very talented.
“He was 13 pounds when he died. That’s nothing is it for a seven-year-old?” Jan asks.
The question goes unanswered as a momentary silence fills the room.
Colin was born with haemophilia. The treatment for his blood clotting disorder included a product called Factor VIII.
What his parents didn’t know was that the Factor VIIIwas made in America using blood farmed from prisoners, drug addicts and sex workers.
Jan can recall all the fine details of that day clearly. Especially the cold, matter-of-fact way the bombshell news was delivered by doctors treating Collin.
“We went to the hospital,” Jan says, and they called us out into a corridor, kids running around, parents, and just told us that Colin had become [infected with] HIV.”
By this time their beautiful little boy had become very sick.
Image: Colin Smith with his toys
‘You just couldn’t pick him up’
Colin senior is still haunted by the effect the virus had on his son’s body. ‘You could see every sinew and tendon in his body,” he said.
Jan said: “I think it was about ’89 that we realised because the weight loss was incredible. And we had him home for a little while, and you couldn’t just pick him up.
“We had to use a sheepskin because it hurt him. He would say: ‘Mum you’re hurting, it’s hurting’.”
Colin was treated by Professor Arthur Bloom, who died in 1992. But in the 1980s, he was one of the country’s leading haemophiliac specialists.
However, documents shown at the Infected Blood Inquiry prove Bloom’s research carried great risks and these were never explained to Colin’s parents.
Image: Professor Arthur Bloom, who died in 1992, was one of the country’s leading haemophiliac specialists
There is a record of the first time Colin went into hospital that shows that he had never been treated for his haemophilia at this point.
Previously untreated patients were known to be useful for research as their responses to new treatments could be tracked. Patients exactly like Colin.
Also shown to the Infected Blood Inquiry was a letter from Prof Bloom to a colleague after another visit by Colin to hospital saying he’s been given Factor VIII and acknowledging that even though this was the British version there was still a risk of Hepatitis but that “this is just something haemophiliacs have to accept”.
And a letter, dated 24 June 1983, from Prof Bloom to colleagues discusses the risk of AIDS. They accept that one possible case of AIDS has been reported.
Colin’s parents are convinced their son was being used in secret trials.
Image: Colin Smith
“I think Colin was just unlucky enough to be born at the right time. Newly diagnosed haemophiliac, never been treated,” his father explained.
“Which is what we were after, because as documentation states that they are cheaper than chimpanzees, you know. You treat a chimp once, you can follow these children throughout their lives. And that’s what was going on.
“And this was going on from the ’70s. Colin was born in 1982. Yet they still infected him. How do you justify that?”
His mother said that they trusted the doctors at the time and never questioned their son’s treatment. “Just when we think back – at the time no, we didn’t. But when we think back, it was just blood tests. Blood tests, blood tests, blood tests.”
Hate campaign
The threat of HIV and AIDs was only just emerging. And this ignorance drove a hate-fuelled campaign against all those impacted.
This stigma forced Colin and Jan to move home and be shunned by some of their own community. All while still caring for their dying son.
“It became public when he needed to start school, for nursery, and all the parents protested and said: ‘We’re not having an AIDS kid in this school’, because we’ve been known as the AIDS family. We had AIDS that were [written] on the house and you’re not talking little.
“Well, it was like six-foot letters ‘AIDS DEAD’, we had crosses scraped into the door. The phone calls in the middle of the night were not very nice. They were the worst.”
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As Colin’s condition deteriorated his parents decided to bring him home for what would be his last Christmas with the family. It was against the wishes of Prof Bloom.
Jan and Colin were told haemophiliacs with AIDS should die in hospital and be cremated quickly. But the family ignored the hospital.
“And you know what,” Jan says. “He asked for a bike. And we actually got him a bike. He never rode it, obviously because he was too ill. But he wanted a bike. And I’m not going to not get him a bike. Because they all have bikes. But Colin never, never even sat on one.”
Image: Colin Smith spent his last Christmas at home, against the wishes of Professor Bloom
That difficult decision to remove Colin from hospital to spend his last days with his family at home proved to be the right one.
“He was on my lap and he just got up to you, didn’t he?” Jan says looking at her husband. “He said: ‘I can’t see, daddy. I can’t see’. And then he just lay back. My hand was on his chest.
“And, you know, for a mother to actually feel the rise and fall of his chest. Waiting for it to stop. Because that’s what I was doing.
“I was waiting for it to stop. And then it stopped. And I just said: ‘I think he’s gone’. And I remember shaking him a little bit, but he’d gone.”
Image: Jan and Colin Smith speaking to Sky News
‘I want my son to have his name back’
On Monday, Sir Brian Langstaff will deliver the long-awaited report into the infected blood scandal.
It has taken campaigners like Jan and Colin decades to achieve this. They are clear on what this report must say and how the government must respond.
Colin senior lives with the guilt of not protecting his son. He wants accountability.
“I want justice to be served properly not hypothetically. Let’s see the people who did this, hopefully criminal charges. It is manslaughter at least. I gave my son over to his killers, you know, and I can’t get to grips with that,” he says.
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6:20
Blood scandal ‘the worst thing’
For Jan, it will be recognition for a lifetime of heartbreak and grieving.
“I want people to recognise my son. And I want to be able to go to the cemetery and say, we’ve done it. And you’ve done it. That’s what I want. And I want an apology.
“People say it’s the money, it’s not the money. And I can’t get that through to people. It’s not the money. I want recognition.
“I want my son to have his name back. His name is Colin John Smith. And that’s what I want people to remember.”
Sky News will have full coverage of the infected blood report on TV, online and on the Sky News app on Monday.
Schools need to be “brave enough” to talk about knives, Sky News has been told, as the killer of Sheffield teenager Harvey Willgoose is sentenced today.
His killer, who was also 15 and cannot be identified for legal reasons, had brought a 13cm hunting knife into school.
Image: Harvey Willgoose. Pic: Sophie Willgoose
Following Harvey’s murder, his parents Caroline and Mark Willgoose told Sky News they wanted to see knife arches in “all secondary schools and colleges”.
“It’s 100% a conversation, I think, that we need to be empowered and brave enough to have,” says Katie Crook, associate vice principal of Penistone Grammar School.
The school, which teaches 2,000 pupils, is just a few miles away from where Harvey was killed.
After being contacted by the Willgoose family, it has decided to install a knife arch.
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The arch – essentially a walk-through metal detector – has been described as a “reassuring tool” and “real success” by school leaders.
“We’re really lucky here that we don’t have a knife crime problem – but we are on the forefront with safeguarding initiatives,” says Mrs Crook.
“I didn’t really think we needed one at first,” says Izzy, 14. “But then I guess at Harvey’s school they wouldn’t think that either and then it did actually happen.”
Joe, 15, says he did find the knife arch “intimidating” at first.
“But after using it a couple of times,” he says, “it’s just like walking through a doorway”.
“And it’s that extra layer of, like, you feel secure in school.”
After Harvey’s death, then home secretary Yvette Cooper said that she would support schools in the use of knife arches.
But there remains no official government policy or national guidance on their use.
Some headteachers who spoke with Sky News feel knife arches aren’t the answer – saying the issue required a societal approach.
Others said knife arches themselves were a significant expense to schools.
But Mrs Crook says they are “well worth the funding” if they prevent “a student making a catastrophic decision”.
“I’m a parent and, of course, my focus every day is keeping our students safe, just as I want my son to be kept safe in his setting and his school.”
Mrs Crook says she thinks schools would “welcome” a discussion at “national level” about the use of knife arches and other knife-related deterrents in schools.
“It’s sad, though that this is what it’s come to, that we’re having lockdown drills in the UK, in our school settings.
“But I suppose some might argue that has been needed for a long time.”
If you eat beef, and ever stop to wonder where and how it’s produced, Jonathan Chapman’s farm in the Chiltern Hills west of London is what you might imagine.
A small native herd, eating only the pasture beneath their hooves in a meadow fringed by beech trees, their leaves turning to match the copper coats of the Ruby Red Devons, selected for slaughter only after fattening naturally during a contented if short existence.
But this bucolic scene belies the turmoil in the beef market, where herds are shrinking, costs are rising, and even the promise of the highest prices in years, driven by the steepest price increase of any foodstuff, is not enough to tempt many farmers to invest.
For centuries, a symbolic staple of the British lunch table, beef now tells us a story about spiralling inflation and structural decline in agriculture.
Mr Chapman has been raising beef for just over a decade. A former champion eventing rider with a livery yard near Chalfont St Giles, the main challenge when he shifted his attention from horses to cows was that prices were too low.
“Ten years ago, the deadweight carcass price for beef was £3.60 a kilo. We might clear £60 a head of cattle,” he says. “The only way we could make the sums add up was to process and sell the meat ourselves.”
Processing a carcass doubles the revenue, from around £2,000 at today’s prices to £4,000. That insight saw his farm sprout a butchery and farm shop under the Native Beef brand. Today, they process two animals a week and sell or store every cut on site, from fillet to dripping.
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Today, farmgate prices are nearly double what they were in 2015 at £6.50 a kilo, down slightly from the April peak of almost £7, but still up around 25% in a year.
For consumers that has made paying more than £5 for a pack of mince the norm. For farmers, rising prices reflect rising costs, long-term trends, and structural changes to the subsidy regime since Brexit.
“Supply and demand is the short answer,” says Mr Chapman.
“Cow numbers have been falling roughly 3% a year for the last decade, probably in this country. Since Brexit, there is virtually no direct support for food in this country. Well over 50% of the beef supply would have come from the dairy herd, but that’s been reducing because farmers just couldn’t make money.”
Political, environmental and economic forces
Beef farmers also face the same costs of trading as every other business. The rise in employers’ national insurance and the minimum wage have increased labour costs, and energy prices remain above the long-term average.
Then there is the weather, the inescapable variable in agriculture that this year delivered a historically dry summer, leaving pastures dormant, reducing hay and silage yields and forcing up feed costs.
Native Beef is not immune to these forces. Mr Chapman has reduced his suckler herd from 110 to 90, culling older cows to reduce costs this winter. If repeated nationally, the full impact of that reduction will only be fully clear in three years’ time, when fewer calves will reach maturity for sale, potentially keeping prices high.
That lag demonstrates one of the challenges in bringing prices down.
Basic economics says high prices ought to provide an opportunity and prompt increased supply, but there is no quick fix. Calves take nine months to gestate and another 20 to 24 months to reach maturity, and without certainty about price, there is greater risk.
There is another long-term issue weighing on farmers of all kinds: inheritance tax. The ending of the exemption for agriculture, announced in the last budget and due to be imposed from next April, has undermined confidence.
Neil Shand of the National Beef Association cites farmers who are spending what available capital they have on expensive life insurance to protect their estates, rather than expanding their herds.
“The farmgate price is such that we should be in an environment that we should be in a great place to expand, there is a market there that wants the product,” he says. “But the inheritance tax challenge has made everyone terrified to invest in something that will be more heavily taxed in the future.”
While some of the issues are domestic, the UK is not alone.
Beef prices are rising in the US and Europe too, but that is small consolation to the consumer, and none at all to the cow.
“No one can listen to our calls?” a manager from Clarion, the UK’s largest housing association, asks one of her team on a recording that has been leaked to Sky News.
“Don’t tell anyone I told you this,” she goes on – before instructing him how to pretend he’s put up an important fire safety notice in one of their buildings.
“Just put it up on a plain bit of wall … take a picture,” she says, telling him that she’ll “come and find” him if it turns out she can’t trust him.
She brags about her management style. “I’m trying to help you hit your targets,” she says – adding: “My team is always on point, we always meet our targets.”
The recording will add to fears of residents of social housing that their safety is not taken seriously by landlords.
The conversation took place in 2022. It was reported to Clarion’s HR team in September 2023. However, an investigation only began in September 2024 when the recording was sent to Clarion management.
The manager involved was only sacked this summer – almost two years after it was first raised with Clarion.
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A Clarion spokesperson told Sky News: “In 2023, our HR team received an email from a former employee raising concerns, but no supporting evidence was provided despite our request. When an audio recording was shared with us in September 2024, we immediately launched a full investigation, which led to the dismissal of a staff member.
“It is deeply regrettable that information was not shared sooner, as this would have enabled earlier action. Building safety remains our top priority across all Clarion homes.”
They added that their “investigation included interviews of all relevant team members to ensure this was an isolated incident”.
The fire safety notice being discussed in the recording was a poster advising residents who have disabilities or vulnerabilities to contact Clarion.
The need for a building owner to identify people who will need additional help in the event of a fire is part of compliance with new regulations introduced since the Grenfell Tower fire in 2017 killed 72 people.
Disabled and vulnerable residents must be identified so that a “person-centred fire risk assessment” can be drawn up by the fire brigade.
Those documents should then be stored in a box on the ground floor of high-rise buildings so firefighters can easily access them in an emergency.
Arnold Tarling, a chartered surveyor, says the consequence of the information not being available in the event of a fire could be “death or serious injury”.
However, he says he isn’t surprised by the recording we have obtained. He believes cutting corners on fire safety “will be industry-wide” for several reasons.
“Money saving, couldn’t care less, lessons haven’t been learned, ‘it won’t happen to me,'” he says, describing an attitude he says he encounters across the housing sector.
He believes there needs to be stricter enforcement but also says workers in the industry must be prepared to call out wrongdoing.
“The fire brigade, the building safety regulator, whoever it is, needs to check, do spot checks and enforce. But when you’ve got a file which has been faked, how do you know that it’s been faked? So these issues will just simply slip through and won’t get corrected,” he warns.
‘Those in power don’t care enough’
Edward Daffarn, who survived the Grenfell fire, told Sky News that complacency about fire safety “is actually a widespread problem that still prevails”.
“I stood underneath the burning carcass of Grenfell in the days after the fire and I was absolutely convinced that it would be the catalyst for societal change,” he said.
However, more than eight years on, a new competence and conduct standard for social housing is yet to come into force and will not be fully implemented for another three to four years.
“The only conclusion I can come to is that those in power, those people who have the power to make the change necessary, really don’t care enough about people that live in social housing,” Mr Daffarn claimed.
Housing campaigner Kwajo Tweneboa told Sky News: “I do worry about the fact that they are going to be in charge of housing thousands of more people up and down the country.
“They are also my landlords and it’s an absolute disgrace that five years into me campaigning, there’s still situations like this.”
A company spokesperson said: “Clarion continues to invest heavily in maintaining and improving our homes, and as a strategic partner of Homes England we are committed to playing our part in building safe, affordable homes that help tackle the housing crisis and give people a place they can call home.”
A Ministry of Housing, Communities and Local Government spokesperson said: “These allegations show a total disregard of vulnerable people whose lives and safety depend on strict fire safety laws.
“We are tackling the poor treatment of social housing tenants using lessons learned from the Grenfell Tower tragedy, so it can never happen again.
“Those breaking the law can already face prosecution for criminal offences including prison sentences and we’re introducing new laws so that residential personal emergency evacuation plans are required for all high-rise homes – with funding to help social landlords provide these for tenants – and ensure staff managing social housing have the skills and training to keep residents safe.”