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Former prime minister David Cameron has opened up about the death of his six-year-old son Ivan in 2009 – and described the “chaos” of caring for him while balancing a life in politics.

Speaking to Sky’s Kay Burley, the former Tory leader, 58, said the loss of Ivan – who had Ohtahara’s syndrome – was “completely transformational”.

Lord Cameron said: “Bringing up children is hard enough but if you have a child who is having seizures every day, is having to be fed through a tube and needs to be cared for all night as well as all day, who’s going in and out of hospital.

“I can still remember the chaos… of you’re in hospital, then you’re back home, then you’re back again. I had just become an MP [when Ivan was born]. I remember turning up for debates in the House of Commons completely exhausted because I’ve been in St Mary’s Paddington [hospital] all night.

“I remember this great blessing of having your first child. In spite of all the difficulties he had with the seizures and cerebral palsy and everything – you still remember this beautiful, smiling boy that you would rest on your lap and look after and love.

“The extraordinary thing about grief is to start with, there’s nothing but black clouds. But after a while, happy memories do break through.”

Ivan Cameron died in 2009 Pic: Reuters
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Ivan Cameron died in 2009 Pic: Reuters

Lord Cameron unquestionably a safe pair of hands

Striding determinedly towards me, hand outstretched to offer a firm eye-contact handshake, Lord Cameron cuts a powerful image as he arrives for our interview.

I first met him as a friendly, fresh-faced MP when he was put forward by the government in the 2005 election campaign to hold the party line on myriad topics. He was calm, friendly and self-assured. When he left, I had turned to the cameraman and said: “I bet you £20 he’s a future PM.”

A warm smile spread across Lord Cameron’s face as I shared the recollection with him.

That faded into watery-eyed steel as we talked about the desperate loss of his son Ivan who died when he was just six-years-old. We touched on many other emotions too – considered politician when discussing Israel; polite stonewalling for who he wants to win the Tory leadership election; a useful lack of recall on whether he really did tell Boris Johnson “I will f*** you up, forever” over his stance on Brexit and a cheeky to-and-fro about SwiftGate.

He may no longer be in frontline politics but Lord Cameron is unquestionably a safe pair of hands in the unpredictable world of politics.

Politics latest: Sunak tries to wrong-foot Starmer

Lord Cameron, who resigned as prime minister after the 2016 Brexit referendum before returning for a stint as foreign secretary under Rishi Sunak, has recently started working with a joint US-UK venture that aims to develop 40 new treatments for rare diseases in the next decade.

The partnership between the University of Oxford and the Harrington Discovery Institute in Cleveland, Ohio sets out to bring together academia, pharmaceutical companies, philanthropy and venture capital, Lord Cameron has said. He will be the chair of the centre’s advisory council.

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He told Sky News he believes Ivan’s life “could be very different” if he was born today, saying he and his wife Samantha “didn’t really get an answer” on Ivan’s condition.

“Back then, the first genome was being sequenced, the whole code of the human being – it took seven years and cost $2bn,” he said.

“Today, you can sequence a genome in an afternoon and it will cost you a few hundred dollars so we can see the full DNA, the genetic, biological makeup of a human being.

“That might not provide you with an answer but in some cases it will.

“There are thousands of different rare diseases, but about 80% seem to have a genetic base.

“There have been children born with those sorts of symptoms [that Ivan had] who’ve been identified through genomic medicine, who’ve had treatments, and that has improved their condition.

“There would be a very good chance that if Ivan was born today, and we immediately sequenced the genome, you could spot what was wrong, [and] that you might be able to take steps.”

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Lord Cameron also said he felt “lucky” that he and his wife “took the risk” of having more children after Ivan. They share two daughters and another son – Nancy, Florence and Arthur.

“At the time there was no genomics and genetic counselling back then,” he said.

“[It] was, ‘well, maybe it’s genetic, maybe it’s not’. Could be one in four, could be one in 1,000 – who knows?

“I’m lucky we took the risk. We have three happy, healthy children.”

The former prime minister also opened up about assisted dying, which MPs are set to vote on after a bill was introduced in parliament.

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What is assisted dying?

He says he’s “got an open mind” and is “thinking about” the issue.

“I haven’t supported it before on the basis that I’ve always worried about vulnerable people being put under pressure,” he said.

“Once you have some form of assisted dying, what’s the pressure put on people by relatives? I’ve always had that worry and concern.”

But his mind was changed “over the years of watching this debate and listening to the passionate arguments that people have put forward, having also known people with things like motor neurone disease and seen the deterioration and know how awful the end can be”.

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In a wide-ranging interview, he also dismissed claims in Boris Johnson‘s new book that Lord Cameron would “f*** him up” if he supported the Leave campaign in the 2016 Brexit referendum, saying: “That’s not my recollection.

“Any recollection I have is that I had a proper discussion and argument – heated at times.”

Lord Cameron also reflected on a plan to sanction two Israeli ministers while he was foreign secretary, saying it did not go ahead because the work had not been completed and that he was advised it was “a political act in the wrong direction”.

But he added the plan was “a better option than what [Labour] have done in terms of the partial arms embargo on Israel”.

“We do back Israel’s right to self-defence. We just had two missile attacks from Iran into Israel,” he said.

“We’re trying to help prevent that from happening using our own planes and the military. It seems to me utterly bizarre to be banning some arms exports from Israel.”

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Another tantrum from the Labour backbenches is inevitable

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Rachel Reeves hints at tax rises in autumn budget after welfare bill U-turn

In common with many parents across the country, here’s a conversation that I have with my young daughter on a semi-regular basis (bear with me, this will take on some political relevance eventually).

Me: “So it’s 15 minutes until your bedtime, you can either have a little bit of TV or do a jigsaw, not both.”

Daughter: “Ummmm, I want to watch TV.”

Me: “That’s fine, but it’s bed after that, you can’t do a jigsaw as well.”

Fast-forward 15 minutes.

Me: “Right, TV off now please, bedtime.”

(Pause)

Daughter: “I want to do a jigsaw.”

Now replace me with the government, the TV and jigsaw options with axing welfare cuts and scrapping the two-child cap, and my daughter with rebellious backbenchers.

Politics latest: Former Labour leader calls for wealth tax on assets above £10m

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Rachel Reeves’s fiscal dilemma

That is the tension currently present between Downing Street and Labour MPs. And my initial ultimatum is the messaging being pumped out from the government this weekend.

In essence: you’ve had your welfare U-turn, so there’s no money left for the two-child cap to go as well.

As an aside – and before my inbox fills with angry emails lambasting me for using such a crude metaphor for policies that fundamentally alter the lives of some of the most vulnerable in society – yes, I hear you, and that’s part of my point.

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Welfare U-turn ‘has come at cost’

For many in Labour, this approach feels like the lives of their constituents are being used in a childish game of horse-trading.

So what can be done?

Well, the government could change the rules.

Altering the fiscal rules is – and will likely remain – an extremely unlikely solution. But as it happens, one of Labour’s proverbial grandparents has just popped round with a different suggestion.

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Welfare: ‘Didn’t get process right’ – PM

A wealth tax, Lord Neil Kinnock says, is the necessary outcome of the economic restrictions the party has placed on itself.

Ever the Labour storyteller, Lord Kinnock believes this would allow the government to craft a more compelling narrative about whose side this administration is on.

That could be valuable, given one of the big gripes from many backbench critics is that they still don’t really understand what this prime minister stands for – and by extension, what all these “difficult decisions” are in aid of.

The downside is whether it will actually raise much money.

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Is Corbyn an existential risk to Labour?

The super-rich may have lots of assets to take a slice from, but they also have expensive lawyers ready to find novel ways to keep their client’s cash away from the prying eyes of the state.

Or, of course, they could just leave – as many are doing already.

In the short term, the future is a bit easier to predict.

If Downing Street is indeed now saying there is no money to scrap the two-child cap (after heavy briefing in the opposite direction just weeks ago), an almighty tantrum from the backbenches is inevitable.

And as every parent knows, the more you give in, the harder it becomes to hold the line.

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UK restores diplomatic ties with Syria

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UK restores diplomatic ties with Syria

The UK has re-established diplomatic ties with Syria, David Lammy has said, as he made the first visit to the country by a British minister for 14 years.

The foreign secretary visited Damascus and met with interim president Ahmed al Sharaa, also the leader of the rebel group Hayat Tahrir al-Sham (HTS), and foreign minister Asaad al Shaibani.

It marks the latest diplomatic move since Bashar al Assad’s regime was toppled by rebel groups led by HTS in December.

In a statement, Mr Lammy said a “stable Syria is in the UK’s interests” and added: “I’ve seen first-hand the remarkable progress Syrians have made in rebuilding their lives and their country.

“After over a decade of conflict, there is renewed hope for the Syrian people.

“The UK is re-establishing diplomatic relations because it is in our interests to support the new government to deliver their commitment to build a stable, more secure and prosperous future for all Syrians.”

Foreign Secretary David Lammy shakes hands with Syrian interim president Ahmed al-Sharaa in Damascus. Pic: X / @DavidLammy
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Foreign Secretary David Lammy with Syria’s interim president Ahmed al Sharaa in Damascus. Pic: X / @DavidLammy

The Foreign, Commonwealth and Development Office has also announced a £94.5m support package for urgent humanitarian aid and to support the country’s long-term recovery, after a number of British sanctions against the country were lifted in April.

While HTS is still classified as a proscribed terror group, Sir Keir Starmer said last year that it could be removed from the list.

The Syrian president’s office also said on Saturday that the president and Mr Lammy discussed co-operation, as well as the latest developments in the Middle East.

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Since Assad fled Syria in December, a transitional government headed by Mr al Sharaa was announced in March and a number of western countries have restored ties.

In May, US President Donald Trump said the United States would lift long-standing sanctions on Syria and normalise relations during a speech at the US-Saudi investment conference.

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From May: Trump says US will end sanctions for Syria

He said he wanted to give the country “a chance at peace” and added: “There is a new government that will hopefully succeed.

“I say good luck, Syria. Show us something special.”

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Secret Service seizes $400M in crypto, cold wallet among world’s largest

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Secret Service seizes 0M in crypto, cold wallet among world’s largest

Secret Service seizes 0M in crypto, cold wallet among world’s largest

Secret Service quietly amasses one of the world’s largest crypto cold wallets with $400 million seized, exposing scams through blockchain sleuthing and VPN missteps.

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