Autistic teen says he was left feeling ‘inhuman’ after being rejected by NHS mental health services
Damien Dalmayne, 17, is autistic. He also battles mental health issues that have left him unable to get out of bed and contemplating harming himself.
Warning: This story contains references to suicide
“There were thoughts of me doing stuff to myself. I never did but there were stages where it would get pretty hard and it really did get to that point that I was really considering it,” Damien says.
His depression spiralled during the COVID lockdowns and when he was 15 he was referred to his local NHS mental health team in Greenwich.
The paediatrician who made the referral recommended that Damien be seen “urgently”.
But Child and Adolescent Mental Health Services (CAMHS) rejected the referral, instead referring Damien and his family to a local social services team.
Damien believes he was rejected because of his autism diagnosis.
“They [CAMHS] think they can’t help people with special needs. They think ‘that’s just a terminal illness’ even though it’s not,” says Damien.
In its rejection letter, Greenwich CAMHS agreed Damien “experiences emotional difficulties”.
But, noting his autism diagnosis, it suggested he see the area’s Children with Disabilities Team, rather than a specialist mental health service.
Crucially, his mother, Emma Dalmayne, says this meant they were unable to access specialist services like therapy to help Damien.
Autism and mental health ‘seen as separate issues’
Ms Dalmayne says a confused social worker called her after Damien’s referral was redirected to their team.
“They said ‘why have we been called?’ I said ‘I don’t know’.”
“CAMHS see autism and mental health as separate for some reason,” says Ms Dalmayne.
“If you’re not well you go to a doctor, you get help. But no, if you’re mentally ill and autistic and go to a doctor, you’re not getting anything. You’re told ‘well we can’t see you because you have a neurological difference’.”
The NHS trust responsible for Greenwich CAMHS said it is unable to comment on individual cases but stressed it does accept referrals for autistic children who have a “severe and enduring mental health need”.
However, it said children may be referred to other services “where referrals do not meet the threshold for CAMHS”.
CAMHS are run by different health trusts throughout the UK.
Ms Dalmayne is campaigning for better access to CAMHS for autistic children
Ms Dalmayne says she has spoken to other parents with autistic children who have had similar experiences.
She says she knows one mother who is scared to tell her local CAMHS that her son has been diagnosed as autistic because she worries they will stop his care.
“It’s not an inclusive world. We don’t feel included at all,” says Ms Dalmayne, who is also autistic.
Damien believes NHS services don’t think autistic people can engage effectively with therapy.
“It’s not like just talking to a wall. They [autistic children] will end up listening and if they can they will end up talking.”
He says his experience with CAMHS left him feeling “inhuman”.
Damien ended up using his disability benefits to pay for private therapy.
“If I had waited probably six months [longer to get therapy], I probably wouldn’t be here. They [CAMHS] really put my health at risk,” he says.
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Oxleas NHS Foundation Trust, which administers Greenwich CAMHS, said: “Currently, just over 16% of our CAMHS caseload includes children and young people with both an autism diagnosis and a severe and enduring mental health need. This does not include children and young people either waiting for or currently being assessed by an autism diagnostic service alongside CAMHS.
“Should individual circumstances change, re-referrals can be made. CAMHS is just one part of a much larger collection of services delivering emotional health and wellbeing support and services to children and young people.”
People with autism more likely to experience mental health issues
Sky News tried to get a clearer picture of autistic children’s access to CAMHS across the UK, but when we requested data from health trusts, the majority did not disclose the number of referrals and rejections for autistic children.
We did learn of the serious pressure facing services nationally, with data showing total referrals to CAMHS had risen by 60% between 2018 and 2023. Rejections from CAMHS were up by 30% across the same period.
While it’s difficult to get a sense of the number of autistic children accessing CAMHS, autistic people are more likely to experience mental health problems than people who aren’t autistic.
Damien says the rejection by CAMHS put his health at risk
Sky News spoke to one CAMHS nurse anonymously – we aren’t identifying the health trust she works for.
She said nationally it’s a mixed picture in terms of the level of care autistic children receive.
“We [CAMHS] certainly don’t do enough for children that have been diagnosed with autism in terms of their post-diagnostic support.”
She says she has witnessed preconceptions about autism among staff that can lead to autistic children not getting the care they need.
Skills ‘aren’t consistent’ across health service
“Some people [working in CAMHS], sometimes might tend to say ‘well it’s [their issues are] because of their autism’ as opposed to thinking well actually they might be autistic but they can also have a mental health difficulty that can be supported,” says the nurse.
“A child that has autism and mental health needs, that’s not going to be solved by social services, they need mental health support.”
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She says skills aren’t “consistent” across the health service and that autistic children can be at a disadvantage if their behaviour means more traditional forms of talking therapy aren’t appropriate.
The nurse continues: “I’ve known it happen where people say ‘oh this person is not engaging’ so they get discharged.
“Sometimes therapy is not always helpful, then it’s about different, more holistic ways to support children and support behavioural changes.
“I do think there’s a need to increase skills within CAMHS absolutely. [Staff] recruitment and retention has been difficult across the board.”
Ms Dalmayne is campaigning for better access to CAMHS for autistic children, her biggest fear is that autistic children and adults are hurting, and even killing themselves, if they can’t access mental health support.
“It makes me feel we’ve got to do everything we can to change it,” she says.
Anyone feeling emotionally distressed or suicidal can call Samaritans for help on 116 123 or email jo@samaritans.org in the UK. In the US, call the Samaritans branch in your area or 1 (800) 273-TALK
UK
Nottingham attacks wouldn’t have happened if authorities had listened, says family of man killed months earlier
It was a sunny morning in June 2023 as news broke that a major incident had been declared in Nottingham. As the hours went by it emerged three people had been stabbed.
Students Barnaby Webber and Grace O’Malley-Kumar had been walking home from a night out when they were fatally attacked. School caretaker Ian Coates was heading into work when he was killed.
Across the city, Delvin Marriott was following the news in horror. “I just had a sinking feeling – emptiness – I felt devastated,” he says. “You know, the Nottingham attacks wouldn’t have happened if they listened to us. It wouldn’t have happened.”
He says he knew instinctively that the killer of Barnaby, Grace, and Ian would turn out to be a mental health patient and blames the loss of his brother on the same system that allowed paranoid schizophrenic Valdo Calocane to be out on the streets armed with a knife.
Left to right: Grace O’Malley-Kumar, Barnaby Webber, and Ian Coates
Valdo Calocane’s mugshot. Pic: PA
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Ten months earlier, in August 2022, 58-year-old Brenton Marriott had been killed by his son.
Rudi Marriott (right) did not receive any mental health support until after he stabbed his father Brenton (left) to death
Rudi Marriott stabbed his father 75 times in a frenzied attack at home in Nottingham.
The family says they had repeatedly called the police and mental health services about Rudi’s violence but their warnings were ignored.
Over a decade earlier, as a teenager Rudi had been attacked with a baseball bat, leading to a bleed on the brain. His family says after that he began hearing voices and grew increasingly violent. As his health deteriorated he believed he had a microchip in his head that was controlling him.
“I knew he was dangerous, I was living with him,” says his mother Juliette, who recalls barricading her bedroom door when she could hear him having a psychotic episode.
Rudi suffered a bleed on the brain when he was attacked with a baseball bat as a teenager
The family called the police on many occasions. “We would phone the police hoping the mental health service would come with them, hoping that this is an opportunity for him to be assessed and receive the help that he needs,” Juliette says.
“That was the main reason for phoning the police – not to have him arrested, but for the assessment to happen.”
They say they repeatedly questioned why he wasn’t being sectioned. Rudi’s sister Charise says she once asked a mental health nurse: “Is it going to take him to kill someone for something to be done?”
But none of their warnings were heeded. Rudi didn’t receive any mental health support until after he stabbed his father to death. He later received a diagnosis of paranoid schizophrenia.
Brenton was desperate to help his son who up until his illness was very loving, their family says
‘I lost my best friend and my son’
Juliette breaks down as she reflects on the double tragedy. “I’m devastated because I’ve lost two of them. Lost his dad – he was my best friend for 35 years, my best friend. And I’ve lost my son, who up until his illness was very loving.”
Rudi was sentenced to a hospital order. A domestic homicide review is examining what more the authorities could have done.
Delvin says his brother Brenton was just desperate to help Rudi. “Brenton in my eyes is a hero,” he says. “If he wasn’t doing what he was doing, that could have been anybody that Rudi attacked. He could have gone out and gone on a frenzied attack.”
A recent NHS report found that in the four years before Calocane carried out his attacks there were 15 incidents of patients either under the current care of the Nottinghamshire Healthcare NHS Trust or who had been discharged perpetrating serious violence towards members of the community. Most of the incidents involved stabbings and three cases resulted in fatalities.
Neil Hudgell, a lawyer representing the families, says the public inquiry due to begin into the deaths of the Nottingham attack victims needs to ensure the trust is held accountable for failings.
“I think we’ve seen tragic story after tragic story where patients, their families, and victims have been let down,” he says.
“We need to get to the bottom of why that happened, who’s responsible for that and to have some genuine change.”
Delvin says his family feels “failed by the NHS, by the police, by the mental health service”.
Delvin Marriott (right) has described his brother Brenton (left) as ‘a hero’
Ifti Majid, chief executive of Nottinghamshire Healthcare NHS Trus, said: “Any loss of life in such circumstances is an absolute tragedy, and on behalf of the trust I again offer my sincerest condolences to Brenton’s family and friends.”
Nottinghamshire Police told Sky News “our thoughts remain with all family members affected by this tragic incident”, adding that they are fully participating in the domestic homicide review.
Delvin describes the failure to deal with the mental health crisis as “a ticking timebomb, waiting for another disaster”.
Juliette agrees. “This is a real epidemic,” she says. “And as a result of the broken system the public are at risk. Everybody’s at risk.”
Labour faces a major challenge from its own backbenchers ahead of an announcement to restrict some sickness and disability benefits.
The plans are likely to be opposed by those in the party who are concerned about attempts to slash the ballooning welfare bill and encourage adults back to work.
Work and Pensions Secretary Liz Kendall is expected to set out the reforms on Tuesday, but details of where those cuts could fall is proving highly divisive within Labour.
Total welfare spending in 2023-23 was about £296bn, by the end of the decade it is forecast to reach almost £378bn.
Explainer: Where could welfare cuts be made?
The chancellor needs to find savings to meet her strict fiscal rules and Rachel Reeves has previously insisted “we do need to get a grip” on the welfare budget.
One proposal reportedly under consideration is to save around £5bn by freezing or tightening the rules around the personal independence payment (PIP).
But Labour’s Mayor of Greater Manchester Andy Burnham, a former Labour health secretary, has “urged great caution on how changes are made” although, writing in The Times, he accepts “the benefits system needs a radical overhaul”.
“I would share concerns about changing support and eligibility to benefits while leaving the current top-down system broadly in place. It would trap too many people in poverty,” he added.
Health Secretary Wes Streeting argued on Sunday Morning With Trevor Phillips that the current system is “unsustainable” and welfare reforms are needed. He also said mental health conditions are often overdiagnosed.
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‘1,000 people every day signing on to PIP benefits’
PIP is a payment of up to £9,000 a year for people with long-term physical and mental health conditions.
Campaigner Steve Morris is one of those 3.6 million PIP claimants and says freezing it at the current level would make his life much harder.
Steve Morris claims PIP and is worried about what reforming the benefit could mean for him
“I’m deafblind. PIP makes a huge difference to my life. It enables me to, afford some of the additional costs that are associated with my disability.
“For so many disabled people benefits are a lifeline. So to hear that lifeline might be taken away or severely restricted is hugely concerning.”
Liz Kendall told The Sunday Times it was an “absolute principle” to protect welfare payments for people unable to work. “For those who absolutely cannot work, this is not about that,” she said.
But she said the number of people on PIP is set to more than double this decade, partly driven by younger people.
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Sky’s political correspondent Liz Bates said the government had been expected to announce a detailed plan over welfare spending last week.
“This particular issue of PIPs stopped that plan being announced because of the strength of backlash… from the backbenches all the way up to cabinet level.”
She added that talks were going on behind the scenes about whether the policy could be softened in some way, although it was unlikely reforms could be avoided completely ahead of the spring statement on 26 March.
“Could there be a bit of backtracking from Number 10 and from the department? This is what we’re going to find out on Tuesday. There is, of course, a lot of pressure coming from the chancellor.”
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Welfare system ‘letting people down’
Labour is also aiming to tackle economic inactivity – especially among those under 35 – with an increasing proportion out of work due to long-term sickness.
A recent PwC report warns “a significant proportion of working adults are close to becoming economically inactive” and ill-health “is a major driver”.
The poll of 4,000 people shows 10% of the workforce are currently actively considering leaving work, and not just their current role.
That rises to 37% of those aged 18-24, who say they have either seriously considered leaving work in the last year, or are actively considering doing so now.
While the factors are complex and vary by age, the report reflects mental health is a major concern with 42% of 18-24 year-olds citing it as the biggest reason to leave work.
Backbench Labour MPs are concerned welfare reforms will harm vulnerable people claiming benefits. File pic: PA
On Sunday, Ms Kendall teased one policy announcement to attract people back to work, effectively giving disabled people the right to try employment without the risk of losing their benefits.
The so-called “right to try guarantee” aims to prevent those people who receive health-related benefits from having their entitlements automatically re-assessed if they enter employment.
The Conservatives support welfare reform but claim Labour is “divided” over the issue and “cannot deliver the decisive change we need”.
Shadow work and pensions secretary Helen Whately said: “The government’s dithering and delay is costing taxpayers millions every day and failing the people who rely on the welfare system.”
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