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The dark granite block in a children’s cemetery in Bristol tells an incomplete story: “Trelissa Whitbread, born 3rd of Feb 1988. She lived 2 hours.”

Deborah Mann has not returned to the grave of her firstborn for 30 years but today has come with her daughter, Branwen, to tell her the story. “It shouldn’t have happened,” she says quietly.

Ms Mann had four pregnancies. Her first two children, Trelissa and Kaverne, died shortly after birth. Ms Mann believes their deaths were caused by an epilepsy drug she was taking called sodium valproate, prescribed by her GP.

After a long gap she would go on to have two more children, both girls, who were diagnosed with what is now recognised as foetal valproate syndrome, which has left them with life-long physical and neurological problems.

Ms Mann tells Sky News: “I asked so many questions and was told ‘this is just the way things are.’ It can’t be the way things are when you lose two babies. How can it be the way things are?”

Deborah Mann
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Deborah Mann

Five years ago, valproate was among three medical products including the pregnancy test drug Primodos and medical device pelvic mesh, that were found to have caused “avoidable harm” to patients.

The report was clear that valproate could cause lifelong disabilities to the children of mothers taking the drug when pregnant.

The independent review, chaired by Baroness Julia Cumberlege, strongly criticised the industry and regulators and made a series of recommendations, including the creation of a redress scheme for victims in all three groups.

On valproate, it stated: “Nothing can undo the harm that has been done to these individuals, but steps can be taken to make their lives easier.”

Deborah Mann and her daughter Branwen visit Trelissa's grave
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Deborah Mann and her daughter Branwen visit Trelissa’s grave

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20,000 children exposed to drug while in womb

Five years on there is still no such scheme for any of the campaign groups. In the week of developments in the Post Office scandal and infected blood, here is another scandal no less significant.

An estimated 20,000 children were exposed to sodium valproate while in the womb.

UK regulator the MHRA says an increased risk of neonatal loss is not currently a recognised adverse reaction, but it does warn of a range of congenital problems caused by the drug that are increasingly likely the higher the dose.

Sky News has also seen a study from 1972 which shows high doses of sodium valproate could be embryo-lethal in rats. At times Ms Mann was being prescribed 5,000mg, which is double the highest recommended dose.

Ms Mann worries about the future of her surviving children. She says of the government: “It’s financially better to pretend they don’t even exist. So many children are harmed, so many children that will not have their needs addressed as they grow older.”

At the time of birth her eldest daughter Rhonwen’s medical records state “valproate levels caused foetal and patient damage,” which included deafness.

Branwen, 29
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Branwen, 29

Daughter worries about being a mother as she can pass condition on

Ms Mann wasn’t initially told about the cause of her daughter’s problems, even when she was pregnant with her next child Branwen.

The 29-year-old told Sky News: “I have tight ankles, tight legs, tight hips and I have a weak lower back. I have to wear splints every day to be sure I can keep walking, and I have to do exercises every day. I have autism, Asperger’s syndrome.”

She goes on to list a series of brain problems that must be scanned every two years, “to make sure nothing’s grown or moved.”

She was bullied at school for her appearance, and she worries about being a mother as she can pass the condition on to her children.

She said: “I feel very let down by the government. I feel let down by the people who promised they would help us, that they will help ensure that we have a better quality of life.”

‘Somebody at last had listened’

Others the Cumberlege review wanted to get redress for “avoidable harm” were children born with malformations after their mothers used the drug Primodos.

These hormone-packed pills were prescribed as a pregnancy test to thousands of women in the 1960s and 70s and are alleged to have caused a range of malformations to babies, from shortened limbs to heart defects, which the manufacturer denies.

Marie Lyon, lead campaigner for the Association for Children Damaged by Hormone Pregnancy Tests
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Marie Lyon, lead campaigner for the Association for Children Damaged by Hormone Pregnancy Tests

Lead campaigner for the Association for Children Damaged by Hormone Pregnancy Tests (ACDHPT), Marie Lyon, told Sky News: “Our families were utterly overjoyed that somebody at last had listened, and Julia Cumberlege did a thorough review. Our expectations were wow! This is it now. An apology from the health secretary, all these years and we’ve finally got there, and then nothing.

“Five years and may I say, five years and 31 deaths. That’s how many of our members have died since that report was published in 2020 and we’ve still not received justice. It’s a disgrace.”

Baroness Cumberlege also recommended the government create a redress scheme for women left debilitated by pelvic mesh implants.

Kath Sansom, founder of the Sling The Mesh campaign group
Image:
Kath Sansom, founder of the Sling The Mesh campaign group

‘The government are dragging their feet’

Kath Sansom, founder of the Sling The Mesh campaign group, told Sky News: “There are women in there who can’t walk any more, who need a stick or a mobility scooter – they’ve lost jobs, marriages, pensions. Some have had to sell their homes, and it feels really unfair that we are still waiting for a reply on redress.

“The government are dragging their feet. We keep being told that they are working on it at pace – but the phrase within the group is – a snail’s pace.”

The Department of Health and Social Care said: “The harm caused by pelvic mesh continues to be felt today” and “we are fully focused on how best to support patients and prevent future harm.”

“Health Minister Baroness Gillian Merron met patients affected and has committed to providing a further update.”

Government considering recommendations

The government says it is considering the recommendations by the patient safety commissioner last year for a redress scheme, but it’s notable there is no timescale and no reference to the harm caused by valproate or Primodos in their statement.

Dr Alison Cave, chief safety officer at the Medicines and Healthcare products Regulatory Agency (MHRA), said: “Patient safety is our highest priority and no one should stop taking valproate without seeking advice from their healthcare professional.

“Valproate is a highly teratogenic medicine and there is evolving evidence for harms in males, which is why the Commission on Human Medicines (CHM) recommended new regulatory measures to reduce the known harms from valproate, including the significant risk of serious harm to the baby if taken during pregnancy and the risk of impaired fertility in male.”

Sanofi, manufacturers of sodium valproate, told us: “We have always worked closely with the MHRA and fully met all our legal and regulatory obligations in relation to valproate which is an essential medicine used to treat a serious and potentially life-threatening condition.

“Sanofi has at all times provided information regarding valproate that reflects current knowledge as approved by MHRA.

“We are committed to working with all concerned stakeholders to continue educating about the risks and precautions for the appropriate use of valproate.”

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Justice system ‘frustrating’, Met Police chief says – as he admits London’s ‘shameful’ racism challenge

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Justice system 'frustrating', Met Police chief says - as he admits London's 'shameful' racism challenge

It is “shameful” that black boys growing up in London are “far more likely” to die than white boys, Metropolitan Police chief Sir Mark Rowley has told Sky News.

In a wide-ranging interview with Sunday Morning with Trevor Phillips, the commissioner said that relations with minority communities are “difficult for us”, while also speaking about the state of the justice system and the size of the police force.

Sir Mark, who came out of retirement to become head of the UK’s largest police force in 2022, said: “We can’t pretend otherwise that we’ve got a history between policing and black communities where policing has got a lot wrong.

“And we get a lot more right today, but we do still make mistakes. That’s not in doubt. I’m being as relentless in that as it can be.”

He said the “vast majority” of the force are “good people”.

However, he added: “But that legacy, combined with the tragedy that some of this crime falls most heavily in black communities, that creates a real problem because the legacy creates concern.”

Sir Mark, who also leads the UK’s counter-terrorism policing, said black boys growing up in London “are far more likely to be dead by the time they’re 18” than white boys.

“That’s, I think, shameful for the city,” he admitted.

“The challenge for us is, as we reach in to tackle those issues, that confrontation that comes from that reaching in, whether it’s stop and search on the streets or the sort of operations you seek.

“The danger is that’s landing in an environment with less trust.

“And that makes it even harder. But the people who win out of that [are] all of the criminals.”

Met Police Commissioner Sir Mark Rowley said racism is still an issue in the force
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Met Police Commissioner Sir Mark Rowley

The commissioner added: “I’m so determined to find a way to get past this because if policing in black communities can find a way to confront these issues, together we can give black boys growing up in London equal life chances to white boys, which is not what we’re seeing at the moment.

“And it’s not simply about policing, is it?”

Sir Mark said: “I think black boys are several times more likely to be excluded from school, for example, than white boys.

“And there are multiple issues layered on top of each other that feed into disproportionality.”

‘We’re stretched, but there’s hope and determination’

Sir Mark said the Met is a “stretched service” but people who call 999 can expect an officer to attend.

“If you are in the middle of a crisis and something awful is happening and you dial 999, officers will get there really quickly,” Sir Mark said.

“I don’t pretend we’re not a stretched service.

“We are smaller than I think we ought to be, but I don’t want to give a sort of message of a lack of hope or a lack of determination.”

“I’ve seen the mayor and the home secretary fighting hard for police resourcing,” he added.

“It’s not what I’d want it to be, but it’s better than it might be without their efforts.”

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How police tracked and chased suspected phone thief

‘Close to broken’ justice system facing ‘awful’ delays

Sir Mark said the criminal justice system was “close to broken” and can be “frustrating” for police officers.

“The thing that is frustrating is that the system – and no system can be perfect – but when the system hasn’t managed to turn that person’s life around and get them on the straight and narrow, and it just becomes a revolving door,” he said.

“When that happens, of course that’s frustrating for officers.

“So the more successful prisons and probation can be in terms of getting people onto a law-abiding life from the path they’re on, the better.

“But that is a real challenge. I mean, we’re talking just after Sir Brian Leveson put his report out about the close-to-broken criminal justice system.

“And it’s absolutely vital that those repairs and reforms that he’s talking about happen really quickly, because the system is now so stressed.”

Giving an example, the police commissioner went on: “We’ve got Snaresbrook [Crown Court] in London – it’s now got more than 100 cases listed for 2029.”

Sir Mark asked Trevor Phillips to imagine he had been the victim of a crime, saying: “We’ve caught the person, we’ve charged him, ‘great news, Mr Phillips, we’ve got him charged, they’re going to court’.

“And then a few weeks later, I see the trial’s listed for 2029. That doesn’t feel great, does it?”

Asked about the fact that suspects could still be on the streets for years before going to trial, Sir Mark conceded it’s “pretty awful”.

He added: “If it’s someone on bail, who might have stolen your phone or whatever, and they’re going in for a criminal court trial, that could be four years away. And that’s pretty unacceptable, isn’t it?”

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Challenge to reform the Met

The Met chief’s comments come two years after an official report found the force is institutionally racist, misogynistic and homophobic.

Baroness Casey was commissioned in 2021 to look into the Met Police after serving police officer Wayne Couzens abducted, raped and murdered Sarah Everard.

She pinned the primary blame for the Met’s culture on its past leadership and found stop and search and the use of force against black people was excessive.

At the time, Sir Mark, who had been commissioner for six months when the report was published, said he would not use the labels of institutionally racist, institutionally misogynistic and institutionally homophobic, which Baroness Casey insisted the Met deserved.

However, London Mayor Sadiq Khan, who helped hire Sir Mark – and could fire him – made it clear the commissioner agreed with Baroness Casey’s verdict.

A few months after the report, Sir Mark launched a two-year £366m plan to overhaul the Met, including increased emphasis on neighbourhood policing to rebuild public trust and plans to recruit 500 more community support officers and an extra 565 people to work with teams investigating domestic violence, sexual offences and child sexual abuse and exploitation.

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UK measles cases rising among children – with leading NHS hospital ‘concerned’

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UK measles cases rising among children - with leading NHS hospital 'concerned'

A leading NHS hospital has warned measles is on the rise among children in the UK, after treating 17 cases since June.

Alder Hey Children’s Hospital in Liverpool said it is “concerned” about the increasing number of children and young people who are contracting the highly contagious virus.

It said the cases it has treated since June were for effects and complications of the disease, which, in rare cases, can be fatal if left untreated.

“We are concerned about the increasing number of children and young people who are contracting measles. Measles is a highly contagious viral illness which can cause children to be seriously unwell, requiring hospital treatment, and in rare cases, death,” the hospital said in a statement to Sky News.

In a separate open letter to parents and carers in Merseyside earlier this month, Alder Hey, along with the UK Health and Security Agency (UKHSA) and directors of Public Health for Liverpool, Sefton and Knowsley, warned the increase in measles in the region could be down to fewer people getting vaccinated.

The letter read: “We are seeing more cases of measles in our children and young people because fewer people are having the MMR vaccine, which protects against measles and two other viruses called mumps and rubella.

“Children in hospital, who are very poorly for another reason, are at higher risk of catching the virus.”

What are the symptoms of measles?

The first symptoms of measles include:

• A high temperature

• A runny or blocked nose

• Sneezing

• A cough

• Red, sore or watery eyes

Cold-like symptoms are followed a few days later by a rash, which starts on the face and behind the ears, before it spreads.

The spots are usually raised and can join together to form blotchy patches which are not usually itchy.

Some people may get small spots in their mouth too.

What should you do if you think your child has measles?

Ask for an urgent GP appointment or call 111 if you think your child has measles.

If your child has been vaccinated, it is very unlikely they have measles.

You should not go to the doctor without calling ahead, as measles is very infectious.

If your child is diagnosed with measles by a doctor, make sure they avoid close contact with babies and anyone who is pregnant or has a weakened immune system.

The skin of a patient after 3 days of measles infection
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The skin of a patient after three days of measles infection

It comes after a Royal College of Paediatrics and Child Health (RCPCH) report released earlier this month determined that uptake of vaccines in the UK has stalled over the last decade and is, in many cases, declining.

It said none of the routine childhood vaccinations have met the 95% coverage target since 2021, putting youngsters at risk of measles, meningitis and whooping cough.

The MMR vaccine has been available through the NHS for years. Two doses gives lifelong protection against measles, mumps and rubella.

File photo of a MMR vaccine
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Two doses of the MMR vaccine give lifelong protection against measles, mumps and rubella. Pic: iStock

According to the latest NHS data, Liverpool was one of the cities outside London with the lowest uptake of the MMR vaccination in 2023-2024.

By the time children were five years old, 86.5% had been give one dose, decreasing to 73.4% for a second dose.

The RCPCH report put the nationwide decline down to fears over vaccinations, as well as families having trouble booking appointments and a lack of continuous care in the NHS, with many seeing a different GP on each visit.

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‘My voice box was removed after NHS missed cancer’

In the US, measles cases are at their highest in more than three decades.

Cases reached 1,288 on Wednesday this week, according to the US Centres for Disease Control and Prevention, with 14 states battling active outbreaks.

The largest outbreak started five months ago in communities in West Texas, where vaccination uptake is low. Since then, three people have died – including two children in Texas and an adult in New Mexico – with dozens more in hospital.

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‘My voice box was removed after NHS missed my throat cancer’

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'My voice box was removed after NHS missed my throat cancer'

Steve Barton is angry, and he has every right to be.

The 68-year-old retired engineer stares at his medical notes that, he says, expose in black and white the moment his life changed forever.

“I have somehow missed… due to my mistake,” a doctor writes in one of the notes, after it became apparent that Mr Barton had not been urgently referred to specialists over what later became an aggressive form of throat cancer.

Steve now has a prosthetic voice box and is one of many British patients fighting medical negligence claims after being misdiagnosed.

NHS officials in Scotland are dealing with thousands of cases annually. Meanwhile, Westminster’s Public Affairs Committee (PAC) recently disclosed England’s Department of Health and Social Care has set aside £58.2bn to settle clinical lawsuits arising before 2024.

Mr Barton, who lives in Alloa near Stirling, repeatedly contacted his doctors after he began struggling with his breathing, speaking and swallowing. His concerns were recorded by the NHS as sinus issues.

As panic grew and his voice became weaker, Mr Barton paid to see a private consultant who revealed the devastating news that a massive tumour had grown on his larynx and required part of his throat to be removed immediately.

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“I am angry, I am upset, I don’t want anyone else to go through this,” Mr Barton told Sky News.

“There were at least four, possibly five, conversations on the phone. He [the doctor] said to me that it sounds like I’ve got reflux.”

‘He was palmed off’

Mr Barton is now unable to work and cannot shower by himself because if water enters the hole in his neck, he could drown.

And a windy day can cause a debilitating coughing fit if a gust catches his prosthetic voice box.

Steve in hospital
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Steve Barton is one of thousands battling medical negligence cases

Asked if he believes this was avoidable, Mr Barton replied: “Absolutely. 100%.”

His wife, Heather, told Sky News: “He hates this. You see him crying. It breaks my heart. It’s been hard emotionally.”

She added: “Everybody knows their own body. He was palmed off and the consequence is a neck dissection. It [life] changed overnight.”

Legal battle over compensation

The Barton family have been locked in a legal battle over their ordeal with the Medical and Dental Defence Union Scotland (MDDUS) – a body which indemnifies GPs.

It has not admitted formal liability in this case but has agreed to settle financial compensation to Mr Barton.

Steve

Izabela Wosiak, a solicitor from Irwin Mitchell who represents the Bartons, said: “Cases like Steve’s are complex and usually quite difficult, but solicitors have accepted there was no defence to this case.

“They have arranged to make an interim payment; however we are still in the process of negotiating final settlement.”

A MDDUS spokeswoman refused to comment while talks are being finalised.

What is the scale of medical negligence in Britain?

The NHS in Scotland is under the devolved control of the Scottish government.

Figures suggest there were almost 14,000 clinical negligence claims and incidents in 2023/24, an increase on the previous year.

It comes as PAC warned that the total liabilities in England’s health service has hit £58.2bn.

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PAC chair Sir Geoffrey Clifton-Brown MP told Sky News: “I extend my sympathies to Steve and his family. Unfortunately, he is not alone.

“Some are really heart-wrenching tales. Every single claim somebody is involved, someone has been in some way injured, so this is a terrible thing.

“We are going to be working on how we can make the whole system less litigious and get compensation paid out quickly because if the state does harm to somebody, the least they could do is to compensate them as quickly as possible.”

Paul Whiteing, the chief executive of patient safety charity Action Against Medical Accidents, told Sky News: “The NHS itself last year [in England] paid out just over £5bn in compensational set aside money for compensation that it would need to pay out.

“It’s a huge cost and of course that doesn’t speak to the cost to every individual, every family, every person who is impacted by the consequences of some form of medical accident and the trauma that can go with that.”

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