The families of premature babies face being pushed into poverty or missing out on time with their sick children amid the rising cost of living.
On average, parents are paying an extra £405 per week while their baby is in hospital, according to a survey of 1,928 people.
For many, it is a double-edged sword – the extra expenses come at a time when their household income has dropped, with statutory maternity pay of £156.66 per week (or 90% of average weekly earnings – whichever is lower).
One in seven babies born in the UK is admitted to a neonatal unit, according to Bliss – a charity for sick and premature babies.
While the majority are born full term (and on average spend a week receiving care), the families of the sickest babies face an agonising hospital stay – and a hefty bill at the end of it, exacerbated by the cost of living crisis.
Born weighing just 535g
Lauren Ormston’s pregnancy had been progressing normally when she suddenly went into labour at six months.
Baby Isla was given survival odds of 40% and was born weighing 1lb 2oz (535g) at 23 weeks. This would not even be her lowest weight – a few days later, it dropped to just 15oz (430g).
Lauren, 27, was allowed to cuddle her daughter for six minutes alongside her fiance Oliver Dewey, 31, before Isla was moved to the neonatal unit and ventilated.
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She had a bleed on her brain, a hole in her heart and kidney failure.
“The doctor just told us to take each hour as it comes,” Lauren told Sky News.
“I was devastated, I didn’t know what to say, think or do. Because I had just brought this little human into the world and now she was having to fight for her life. It wasn’t fair on her.”
130 days of travel
Isla spent 130 days in neonatal units at Ashford and St Peter’s Hospital in Surrey and Frimley Park Hospital in Camberley, and Lauren visited her every single day.
“There was not one day when I didn’t see her,” she said.
At St Peter’s Hospital, it was an 80-minute round trip – when Isla moved back to Frimley Park this was halved – although the family had to pay parking costs of £20 a week.
At one point, Isla was rushed to Great Ormond Street hospital for surgery on her eye, but Oliver was not allowed to stay on the ward, so had to pay £400 for a hotel for two nights to be near his daughter.
The hospital was unable to save the sight in Isla’s right eye – and the stay at Great Ormond cost the family £600.
Image: Isla being transported between neonatal units
Like many other parents surveyed by Bliss, travel was the biggest cost and Lauren spent around £150 a week on fuel. A tyre puncture en route one day added an extra £300.
Bliss said parents who are able to drive to the hospital spend £101 a week on average, while those who have to rely on public transport spend £119.
Despite spending more on travel, parents using public transport to see their babies are more likely to be in lower income brackets.
The unaffordable cost of travelling to and from the neonatal unit had a tangible impact on how involved parents can be in their baby’s care.
Some 84% of those who used public transport said that stopped them from being as involved as they wanted to be.
Expensive canteen food and takeaways
The cost of food and drink at hospitals is notoriously high and options are limited.
Bliss said: “Parents have little choice over where to buy food and drink while at the hospital and are reliant on expensive hospital canteens and franchises rather than being able to prepare food from scratch or shop around.
“The lack of choice is exacerbated by limited facilities on neonatal units.”
A recent report found that more than a quarter of hospitals (27%) don’t have a parent kitchen.
On average, parents spent £96 a week more than their regular food budget while their baby was in a neonatal unit.
Lauren and her fiance lived off hospital sandwiches and fast food – or quick pick-up meals – while Isla was in hospital.
“I had to keep eating, but I didn’t want to have anything in the house because I needed to be with Isla all the time,” she said.
The cost of life-sustaining equipment
When Isla returned home in July, she required oxygen for four months.
This ended last Friday – but the family still operates a sleep study machine that monitors her oxygen levels and an apnea monitor.
They are also looking to buy a CO2 monitor at a cost of £230.
Bliss found 74% of parents with a baby who had been discharged from a neonatal unit in the last year said they were concerned that it was somewhat or very likely that the rising cost of energy could stop them from keeping their home warm this winter – something essential for premature children.
Within the survey, two of the 24 respondents whose babies were currently using at-home medical equipment said the rising cost of energy had stopped them from using the devices their babies need.
Some 47% said they were concerned that the cost of energy may impact their ability to run this equipment in the future.
The charity is calling on the government and Ofgem to ensure energy companies cannot disconnect domestic energy support for households which include a vulnerable baby – and those who need to power at-home medical equipment.
It is also asking for an emergency neonatal fund to offer payments to cover extra energy costs caused by this equipment and for one to cover food and drink, travel, parking, accommodation and childcare costs associated with having a baby in neonatal care.
Oliver had to return to work three days after Isla was born, or risk using up all of his two-week paternity leave while Isla was in the neonatal unit.
“He had to, as much as it hurt him,” said Lauren.
“He wasn’t able to be there to see his daughter during the mornings, or change her nappy during the day, or help me. He had to go back to work so that he could help me pay for things.”
Bliss found on average households lost £2,994 in income over the time that their baby was in neonatal care.
Meanwhile, Lauren had to spend four months of her maternity leave watching Isla in hospital.
A new law, backed by the government, could allow parents whose babies require specialist care after birth to take additional time off work.
The Neonatal Care (Leave and Pay) Bill would allow parents to take up to 12 weeks of paid leave, in addition to maternity and paternity leave.
However, although the bill has passed its second reading in the House of Commons, it still must go through the House of Lords before it can become law, which means there is no immediate relief for parents such as Lauren and Oliver.
She now has to return to work just a few months after Isla is out of hospital and said she felt “cheated” from the time she will now lose with her daughter, all while paying £81 a day in nursery fees. This will suck up the majority of her paycheck, with what’s left going toward their mortgage.
“I am basically working to pay for nursery, and to try and keep a roof over our heads,” she said.
‘I would never forgive myself’
Isla will have chronic lung disease for the rest of her life, alongside blindness in one eye. The family is not sure what other problems her prematurity may bring, or if she will have any disabilities because of the bleed on her brain.
But for Lauren, whatever the cost she will continue – even if it means going into debt.
One in four families have had to borrow money or increase their debt because of their baby’s neonatal stay.
“I am concerned, but I won’t stop using it. Money is money at the end of the day,” Lauren said.
“The cost of energy is going to have a massive impact, but I know I can’t stop using it.
“Because I know if I do and something happened I would never forgive myself.”
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A grief-stricken family has told Sky News they want “someone to take accountability” for the death of Lewis Stone, a retired butcher who was killed by a secure psychiatric unit patient released 10 days earlier.
In her first TV interview, Mr Stone’s step-daughter Vicki Lindsay said they were calling for an internal NHS Trust report to be made public so that lessons can be learned.
“The thought of anybody going through what we’ve gone through for the last six years… We’re living a life sentence,” she said.
On 28 February 2019, Lewis Stone was where he loved being most – the remote town of Borth on the west coast of Wales near Aberystwyth. It’s where he and his wife, Elizabeth, had a holiday home and planned to retire.
Image: Lewis’s step-daughter, Vicki Lindsay, says the family wants an apology and accountability
That morning, Lewis left for his daily pre-breakfast walk with his beloved dog Jock along the River Leri and never came home.
He had been stabbed multiple times, and despite repeated attempts to save his life, he died in hospital three months later.
Lewis’s killer, David Fleet, was sectioned under the Mental Health Act after admitting manslaughter with diminished responsibility.
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Sentencing, Judge Paul Thomas QC said Lewis had been in the wrong place at the wrong time.
Lewis’s family disagrees: “I just want somebody to say, ‘Yes, we messed up, we’re sorry. It doesn’t change things but we’re sorry’.
“We’ve had none of that. Mum’s had nothing, no support, she’s had nothing. That’s all we want, an admission.”
Image: Elizabeth and Lewis Stone, with their step-daughter Vicki Lindsay (centre), in happier times
Image: Lewis Stone and his grand-daughter Sammy
Fleet was suffering from paranoid schizophrenia at the time of the attack and told psychiatrists if he had not stabbed Mr Stone, the voices in his head “were going to kill him”.
Four months earlier, he had been detained under the Mental Health Act, but despite concerns raised by his own family, it was decided he should be treated at home.
The Hywel Dda health board told Sky News they don’t intend to release the internal report into Fleet’s care.
Sharon Daniel, the Interim Executive Director for Nursing, Quality and Patient Experience, said: “The Duty of Candour for patients came into force in Wales in April 2023. At the time of this incident and concern, we fulfilled our duties to be open.”
When asked if they would be willing to apologise to both affected families, Ms Daniel said: “In the event of serious incidents, we have robust processes in place for reviewing internally, identifying any issues, and where appropriate preparing an improvement plan to prevent such an occurrence in the future. We regret such incidents and always seek to learn from them.”
In February, victims’ families in Nottingham won their fight for an NHS review into the care of paranoid schizophrenic Valdo Calocane, who killed three people, to be made public. It exposed a catalogue of errors and systemic failings.
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In February, Sky’s Sarah-Jane Mee spoke to two mothers of two people killed by paranoid schizophrenic Valdo Calocane
The family’s adviser and former NHS lawyer Radd Seiger, who also advised the Nottingham families, told Sky News the two cases have striking similarities: “Sunlight is the best disinfectant when there are problems in the NHS.
“Let’s have these things out in the open. Yes, they’re uncomfortable, but that’s the only way the NHS is going to learn from its mistakes.
“It’s no good them marking their own homework in private where journalists, or lawyers, or families don’t get to scrutinise these things because we see that these things keep happening over and over and over.”
David Fleet’s family declined an opportunity to speak to Sky News for this report.
The Welsh government said: “We are fully committed to openness and transparency in line with the Duty of Candour to ensure lessons are learned. We have also invested in improving both the quality and safety of mental health care in Wales.”
A host of local and mayoral elections will be taking place across England on Thursday 1 May – the first voting day since the general election last year.
There will also be a new Member of Parliament.
Here is everything you need to know – from what’s at stake to how you can vote.
Local elections
There will be local elections in 23 of England’s 317 local authorities on 1 May.
Some are slightly different to others, depending on the type of authority.
A unitary authority is a one-tier local government, where the services of a county council and the other smaller councils listed above are combined.
A metropolitan district has a council that oversees all services, similar to a unitary authority – but has a mayor with a role similar to that of local councils.
The mayors for Doncaster and North Tyneside are single authority, making them the political leader of the council and leaving them responsible for delivering local council services.
Metro mayors chair combined authorities made up of several local councils.
Metro mayor election
There are six mayoral elections taking place on 1 May, two of which are the first ever in their areas.
One of them is for the West of England, where the current mayor is Dan Norris, who was elected as a Labour MP when he defeated Jacob Rees-Mogg to win the seat of North East Somerset and Hanham in last year’s general election.
Image: Labour MP Dan Norris. File pic: PA
Mr Norris, who has been mayor since 2021, has to vacate the role because the Labour Party introduced rules to prevent serving MPs from standing as mayoral candidates.
There is another mayoral election in Cambridgeshire and Peterborough, while the first mayors for Hull and East Yorkshire and Greater Lincolnshire will be chosen after devolution deals were agreed in 2023, bringing together local councils in both areas to create larger authorities.
There will also be elections for the next mayor of Doncaster and North Tyneside.
New MP for Runcorn and Helsby
A by-election is also being held in Runcorn and Helsby after Labour’s Mike Amesbury agreed to stand down following his conviction for punching a man in the street.
Amesbury, who was suspended from the Labour Party, was jailed on 24 February for 10 weeks after he pleaded guilty to assault by beating of 45-year-old Paul Fellows in Main Street, Frodsham, Cheshire, in the early hours of 26 October.
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Amesbury steps down as MP
His resignation means Karen Shore, the deputy leader of Cheshire West and Chester Council, will run for Labour in the by-election, while the Conservatives are putting forward Sean Houlston, a membership services manager for the National Federation of Builders, and Sarah Pochin, a former Cheshire East councillor, is Reform’s candidate.
Amesbury came first in Runcorn and Helsby with 22,358 votes at the 2024 general election – equating to 52.9% of the electorate.
Reform UK came in second with 7,662 votes (18.1%) and the Tories in third with 6,756 votes (16%).
Outcomes could have significant national impact
The elections will be the first big test of all the parties since the general election, which fundamentally redrew the UK’s political landscape with a new world of multiparty politics.
The Tories have the most to lose as they hold 20 of the 23 local authorities up for grabs on 1 May.
And for the first time in a long time, Labour and the Conservatives are facing a genuine threat from other parties.
YouGov conducted exclusive polling for Sky News to get a sense of how the country was feeling ahead of the elections, surveying 2,178 adults in the UK on 6 and 7 April.
Here is the voting intention poll:
• Labour: 24% (no change) • Reform UK: 23% (no change) • Conservatives: 22% (+1) • Liberal Democrats: 17% (+3) • Green Party: 9% (-2)
It suggests that Nigel Farage’s Reform UK could be Labour’s closest competitor, with Kemi Badenoch trailing as she leads the Conservatives through elections for the first time, while the Lib Dems have closed the gap on the three top parties.
You have until 11.59pm on Friday to register to vote if you haven’t already.
You must be aged 16 or over (or 14 or over in Scotland and Wales) to register to vote – but to vote for a new MP you must be at least 18.
You can register if you are:
• A British citizen • An Irish or EU citizen living in the UK • A Commonwealth citizen who has permission to enter or stay in the UK, or who does not need permission • A citizen of another country living in Scotland or Wales who has permission to enter or stay in the UK, or who does not need permission • You can be an overseas voter if you previously lived in the UK and are a British citizen.
The easiest and quickest way to register is online.
Alternatively, you can use a paper form – though it may be too close to the deadline for you to complete this by the deadline.
You can do it by contacting your local Electoral Registration Office and asking them to post a form to you. Or you can print your own form off. You’ll then need to return the completed form to your local Electoral Registration Office.
How can I cast my vote?
There are three ways to vote:
In person at your local polling station
You’ll be sent a poll card just before an election or referendum telling you when to vote and at which polling station. It will usually be in a public building, such as a school or local hall, near your home.
You can only vote at the polling station allocated to your address. This will be shown on your poll card. You can also enter your postcode on this website to find out where your polling station is.
You will be able to cast your vote any time between 7am and 10pm
You must bring a form of photo ID with you in order to vote. There are 22 accepted types of ID.
At the polling station, you will need to give your name and address to staff and show them your photo ID.
There will be instructions in the polling booth telling you exactly how to cast your vote.
Postal vote
You can register to vote by post for any reason, including that you simply don’t want to go to a polling station on the day.
You need to apply for this by 5pm on 14 April and can do so by clicking here.
Postal votes now expire every three years, so if you registered to do so more than three years ago, you will need to re-apply.
By proxy
This is where you apply for someone to vote on your behalf if you cannot go to the polling station in person and do not want to or can’t vote by post.
You and your proxy must both be registered to vote in the UK before you can apply.
The deadline to apply for proxy voting in the May 1 elections is 5pm on 23 April, and you can apply here.
Which elections have been postponed – and why?
Elections for county councils in the following areas have been postponed until May 2026:
• Norfolk • Suffolk • Essex • Thurrock • Surrey • East and West Sussex • Hampshire • Isle of Wight
Most areas of the UK are now covered by one-tier systems such as unitary authorities, but there are still 21 county councils.
The government is pushing for a “devolution revolution”, meaning the remaining county councils are being encouraged to merge with other local authorities to become unitary authorities.
So in December last year, the government told county councils they could request to postpone their elections set for 1 May if they were trying to reorganise into one-tier systems.
While 16 county councils requested to postpone, only the eight listed above were successful.
A new spit test for prostate cancer which can be done at home may be better than current testing methods, a study suggests.
Experts have developed a simple saliva test which analyses genetic variants in a man’s DNA, which appears to perform better than the current method for assessing prostate cancer risk.
Currently, the prostate-specific antigen (PSA) blood test is used to check for prostate conditions, including prostate cancer or an enlarged prostate.
Routine testing is not currently available on the NHS, but patients may be offered a PSA test if a GP suspects they have prostate cancer. Men over 50 can ask their GP for a PSA test even if they do not have symptoms.
But experts have said the new saliva test could be used as an additional screening tool, as it reduced the number of false positive results and detected a higher proportion of aggressive cancers than the PSA test.
It could lead to fewer men being sent for unnecessary testing, according to researchers at The Institute of Cancer Research, London, and The Royal Marsden NHS Foundation Trust.
They tested the effectiveness of a new tool they had developed called a polygenic risk score, which uses spit to assess 130 genetic variants known to be associated with an increased risk of prostate cancer, which can then determine whether or not a person is at high risk of the disease.
Image: The new spit test for prostate cancer. Pic: PA
Test saved lives of two brothers
Taking part in the trial saved the lives of two brothers.
Dheeresh Turnbull said traditional methods to assess prostate cancer deemed he had a low risk of disease, but the new spit test helped the 71-year-old discover he actually had a life-threatening tumour in his prostate.
After finding out the news, his brother Joel Turnbull also took part in the study and discovered he had an aggressive prostate tumour.
“It’s incredible to think that because of this study two lives have now been saved in my family,” Dheeresh said.
The brothers were among 6,300 men aged 55 to 69 in the UK who were assessed by the tool as part of the study.
Of those, 745 (12%) were deemed to have a high risk score and were invited to have prostate cancer screening, including an MRI scan and a biopsy.
Prostate cancer was detected in 187 of the 468 who took up the offer, and of those, 103 had cancer that was deemed to be “higher risk”, so treatment was offered.
Of the 187 men, 118 had a PSA level below 3.0ug/L – which is considered “normal” and would typically indicate no further screening is required.
Test could ‘turn the tide on prostate cancer’
Writing in the New England Journal of Medicine, the researchers said cancer “would not have been detected” in 74 of the men using the “diagnostics pathway” currently in use in the UK – which includes a high PSA level and an MRI.
They concluded that for the men with the highest genetic risk, the test falsely identified fewer people with prostate cancer than the PSA test and picked up people with cancer who would have been missed by the PSA test alone.
It detected a higher proportion of aggressive cancers than the PSA test and also accurately identified men with prostate cancer who were missed by an MRI scan.
Professor Ros Eeles, from the Institute of Cancer Research, London, and The Royal Marsden NHS Foundation Trust, said: “With this test, it could be possible to turn the tide on prostate cancer.
“We have shown that a relatively simple, inexpensive spit test to identify men of European heritage at higher risk due to their genetic make-up is an effective tool to catch prostate cancer early.
Some 55,000 cases of prostate cancer are diagnosed each year in the UK, with around 12,000 men in the UK dying from the disease annually, according to Cancer Research UK.
It comes after Health Secretary Wes Streeting suggested he would support a national prostate cancer screening programme for men at higher risk of disease if it is backed by the evidence. The UK’s National Screening Committee is currently assessing whether or not such a programme should be rolled out.