Celine Dion reveals she is suffering from ‘very rare’ and incurable stiff-person syndrome
Celine Dion has revealed she is suffering from stiff-person syndrome, an incurable and rare neurological disorder which causes muscle stiffness and spasms
The Canadian star gave details of her condition in an emotional video message to fans, saying she is suffering spasms “that affect every aspect” of her life, causing difficulty when she walks and preventing her from using her vocal chords properly.
Dion, known for her hit power ballads including Think Twice, Because You Loved Me, My Heart Will Go On, and It’s All Coming Back To Me Now, delayed a Las Vegas residency in 2021 and postponed tour dates earlier this year due to health issues.
Pic: AP
In her video message, the singer said she now has no choice but to postpone most of her European shows, originally planned to start in February 2023, until 2024. Some shows, including dates in Greece and Romania, have been cancelled altogether.
“As you know, I’ve always been an open book and I wasn’t ready to say anything before, but I’m ready now,” Dion said.
“I’ve been dealing with problems with my health for a long time and it’s been really difficult for me to face these challenges and to talk about everything that I’ve been going through.
“Recently I’ve been diagnosed with a very rare neurological disorder called stiff person syndrome, which effects something like one in a million people.
“While we are still learning about this rare condition we now know this is what’s been causing all of the spasms I’ve been having.
“Unfortunately these spasms affect every aspect of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal chords to sing the way I’m used to.”
Dion appeared tearful during her message, which she recorded in English and French, telling fans that it “hurts” to say she will not be ready to restart her European tour, which included UK dates, in February, and that she misses performing.
‘All I know is singing… I miss you so much’
“I have a great team of doctors working alongside me to help me get better, and my precious children who are supporting me and giving me hope,” she said. “I’m working hard with my sports medicine therapist every day to build back my strength and my ability to perform again, but I have to admit it’s been a struggle.
“All I know is singing, it’s what I’ve done all my life and it’s what I love to do the most. I miss you so much, I miss seeing all of you, being on the stage, performing for you. I always give 100% when I do my shows but my condition is not allowing me to give you that right now.”
Dion said she has no choice but to concentrate on her health and is hopeful that she is “on the road to recovery”.
She finished by saying: “This is my focus and I’m doing everything that I can to recuperate. I want to thank you so much for your encouraging wishes of love and support on my social media. This means a lot to me. Take care of yourselves, be well. I love you guys so much. And I really hope I can see you again real soon.”
What is stiff-person syndrome?
According to the National Institute of Neurological Disorders and Stroke in the US, stiff-person syndrome (SPS) is a rare neurological disorder with features of an autoimmune disease.
On its website, the institute says that SPS is characterised by “fluctuating muscle rigidity in the trunk and limbs and a heightened sensitivity to stimuli such as noise, touch, and emotional distress, which can set off muscle spasms…
“Abnormal postures, often hunched over and stiffened, are characteristic of the disorder. People with SPS can be too disabled to walk or move, or they are afraid to leave the house because street noises, such as the sound of a horn, can trigger spasms and falls.”
It says the disease affects twice as many women as men and that “scientists don’t yet understand what causes SPS, but research indicates that it is the result of an autoimmune response gone awry in the brain and spinal cord”.
Entertainment
Snoop Dogg becomes co-owner and investor of Swansea football club saying it’s ‘an underdog just like me’
Police are taking no further action over Kneecap’s performance at Glastonbury.
Officers said they had investigated “comments about a forthcoming court case made during Kneecap’s performance” at the festival on 28 June.
However, after Crown Prosecution Service advice, they decided there is not enough evidence “to provide a realistic prospect of conviction for any offence”.
The Avon & Somerset force started investigating the Irish group’s show last month, as well as comments by punk-rap duo Bob Vylan.
It said they were looking at a possible public order incident.
Police said on Friday that the investigation into Bob Vylan’s performance was ongoing.
The London duo were widely criticised – and caused a BBC crisis – after leading on-stage chants of “death to the IDF” (Israel Defence Forces).
Kneecap’s Liam Og O Hannaidh appeared at Westminster Magistrates’ Court in June. Pic: PA
Kneecap posted a photograph on Instagram, which the group said was an email from police announcing the case was being dropped.
They said their packed Glastonbury gig was a “celebration of love and solidarity” and reporting used “wildly misleading headlines”.
Fears over what Kneecap might do or say during the performance had prompted the BBC not to show it live.
The group said: “Every single person who saw our set knew no law was broken, not even close… yet the police saw fit to publicly announce they were opening an investigation.”
“There is no public apology, they don’t send this to media or post it on police accounts,” they added.
The police statement on Friday said they had informed Kneecap of their decision to drop the case.
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One of the group’s members appeared in court in June charged with a terror offence.
Liam Og O hAnnaidh is accused of displaying a flag in support of Hezbollah, a proscribed organisation in the UK, at a gig last year.
He was released on unconditional bail ahead of a second court appearance in August.
Entertainment
Tomorrowland: ‘Devastating’ blaze destroys main stage at major festival – two days before it was due to begin
A huge fire has destroyed the main stage of a major festival in Belgium – two days before it was due to begin.
Tomorrowland is a dance music event as big as Glastonbury – and David Guetta was due to perform.
Footage showed flames and thick plumes of black smoke engulfing the stage and spreading to nearby woodland on Wednesday.
The fire gutted the main stage
Fire crews attempt to bring the blaze under control
The annual festival in the town of Boom, north of Brussels, is one of the biggest in Europe and attracts about 400,000 people over two consecutive weekends.
It is famous for its immersive and elaborate designs and attracts big names within dance music – including Guetta, best known for tracks When Love Takes Over and Titanium.
Dutch DJs Martin Garrix and Charlotte de Witte were also due to perform, along with the likes of Swedish House Mafia, Eric Prydz and Alok.
Black smoke could be seen rising into the sky
The festival’s website described the creative elements which went into the elaborate main stage.
The theme, described as Orbyz, was “set in a magical universe made entirely out of ice” and “full of mythical creatures”.
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Organisers said no one was injured in the blaze but confirmed “our beloved main stage has been severely damaged”, adding they were “devastated”.
Spokesperson Debby Wilmsen added: “We received some truly terrible news today. A fire broke out on the Tomorrowland site … and our main stage was essentially destroyed there, which is truly awful.
“That’s a stage that took years to build, with so much love and passion. So I think a lot of people are devastated.”
Spokesperson Debby Wilmsen told reporters ‘a lot of people are devastated’
Despite the fire, Tomorrowland organisers said they were still expecting 38,000 festivalgoers at DreamVille, the event’s campsite.
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